This Is MS Multiple Sclerosis Knowledge & Support Community

Thank you. It will be nice to follow along and get to know the group. Sharing the burden too, in a way.

Don't believe there's currently any substantial wait (few months, tops) ...........:D Ahhh. Sad but true. We've now waited over a year (my wife's choice to hold out until Dr. Sclafani returned) and I've watched her decline noticeably during this time. A few more months? We'd be hard pressed to call...

Interesting. I never would have guessed the possibility of multiple doctors lurking.

So why not? Any treating physicians in or around Western Pa? Feel free to PM me.

Thanks Lyon. I appreciate the information.

I called and talked to the VAC office near me about a month ago. The doctor there is a nephrologist (kidneys). This is what I was told: The CEO of the company researched CCSVI and became very interested in it. The office I talked to has the idea that they will do a venography only. They want the ima...

Has Dr. Siskin and his group changed their treatment as they've ventured forward with this? Does anyone know if the numbers are still 1/3, 1/3, 1/3?

I would just hope that his group (and any doctor who has already embarked on treating CCSVI) continually changes/modifies as they learn.

Wow....never heard of this before. Right away I found something to research. Please report back with the progress!

Thought I'd just drop in and say hi and then go to lurking! Wishing everyone a positive day.