Search found 18 matches

by Kiki
Sat Jan 28, 2012 10:44 am
Forum: General Discussion
Topic: seizures
Replies: 0
Views: 1584

seizures

Does anybody have seizures? I have uncontrollable seizures, and in this forum I haven’t seen anybody dealing with seizures. So if anybody is dealing with seizures let me know so I don’t feel so alone.
by Kiki
Wed Sep 14, 2011 4:55 am
Forum: Rebif
Topic: seizures
Replies: 0
Views: 3007

seizures

I am on this rebif, was on beterseron, that was when I first got sick, now I have seizures and these interferons cause seizures, now not everybody will get them, but I have a primary brain lesion which is big, I have three others, but they are small. I took a break from this rebif, don't remember ha...
by Kiki
Wed Sep 14, 2011 3:37 am
Forum: General Discussion
Topic: Cognitive issues
Replies: 3
Views: 1894

Re: Cognitive issues

OMG add me to your list I also have visual problems, seizures and now I am on seroquel, for schizophrenia and bipolar, nice, and trust me I feel completely insane. I am losing my vision, IQ is now around 3, I was once educated, I have a ton of degrees, and one of them is nursing, I have vague memori...
by Kiki
Wed Sep 14, 2011 3:16 am
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

Re: Never saw this coming

I have to tell you, I am a RN sadly, lol and also a MSW, oh yea so I studied mental illness most of my adult life. My favorites are always the sociopaths, so that is the one that I knew like the back of my hand. It wasn't until yesterday that it came to me HOLY SH*T, I have mental illness and I am a...
by Kiki
Wed Sep 14, 2011 2:16 am
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

Re: Never saw this coming

Thank you so much I will look into this, with this brain tumor growing it is making things ugly. Now it is a race between the tumor and the meds, and not sure who is running the show, I do know I am not even up there in the drivers seat. I started the new seizure drug last night, lacosamide, I am su...
by Kiki
Sun Aug 21, 2011 12:35 pm
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

I run 5 miles 5 days a week and really eat healthy, and you can see what good it has done. The funny thing is I was an aerobic interstor when I was first dx. I stopped all my exercise and got heavy, than started back with healthy eating and exercising, and guess what comes calling. I wonder if the i...
by Kiki
Sun Aug 21, 2011 4:40 am
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

I will find out Tuesday what is up with my blood sugar, but here again, I am playing my own doctor, I thought since I am so thin now that my blood sugar would be OK. But I have so much on my plate right now that diabetes kind of take a back seat at the moment to seizures. I just can't get anymore di...
by Kiki
Sat Aug 20, 2011 1:14 pm
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

Here is a list of my meds, and yes I just had a fasting blood sugar, that is when they called me with the problem of the overdose of dilitan. I get to see my diabetes doc this Tuesday. I do have to say all my information is online and all I have to do is go online and get my meds delivered to my doo...
by Kiki
Sat Aug 20, 2011 7:37 am
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

I wish I could say it is the interferon, but I started to have seizures while I was on no MS meds. My old doc was useless, when my mother saw one of my seizures she suggested I get a new doc. I did and to my surprise I was suffering from seizures. I have a pretty good team of docs, but now I have so...
by Kiki
Sat Aug 20, 2011 4:44 am
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

I am going to bring this up to my doc, I am there all the damn time I might just move in to the clinic with them. 8O I now have diabetes, MS, epilepsy, what else can come to the table. I talk to the psych yesterday, by the way I was a social worker who really can't work with black outs and seizures ...
by Kiki
Fri Aug 19, 2011 3:05 pm
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

Well I had a blood test today, and just 6 hours later, the nurse called and said that my levels of dilitan in my blood was 30 normal levels are 10, so I am toxic and have to stop the dilitan for one day, of course I have to take my other seizure meds. Thank you so much for all your replies, I am loo...
by Kiki
Fri Aug 19, 2011 4:14 am
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

Thank you for your replies, I am going to get some zinc, I am desperate here to stop this nightmare. I am starting to have rages, doc tells me it is all the different meds. They are trying to get my meds right as you can see nothing is working. I hate this so much, I feel tired all the time, but abo...
by Kiki
Thu Aug 18, 2011 2:33 pm
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

I am type two, but I thought since I am so skinny now that it would be under control, at least I hope it is.
by Kiki
Thu Aug 18, 2011 6:00 am
Forum: General Discussion
Topic: Never saw this coming
Replies: 25
Views: 5987

Never saw this coming

I have written here before about seizures, I now realize this is not a common problem. When I first was dx I the so called "normal" symptoms, numbness in my left side. I understood I thought about MS, now I am confused. I went to the doc yesterday the neurologist, useless, lol they took me...
by Kiki
Wed Jul 20, 2011 4:40 am
Forum: General Discussion
Topic: What is going on??????????
Replies: 6
Views: 1730

What is going on??????????

I was diagnosis with MS when my daughter was in second grade, she has just gotten her master's and is in south Africa in the Peace Corp, so you can see I have had this problem for a while. When I first got sick my left side of my body went numb, didn't take long at all till my doctors told me I had ...

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