Search found 231 matches

by CVfactor
Sun Jul 15, 2012 1:07 pm
Forum: General Discussion
Topic: Will the real multiple sclerosis please stand up?
Replies: 35
Views: 4400

Re: Will the real multiple sclerosis please stand up?

I agree. Dr. Zamboni has severly tarnished the name of a fine ice refinishing machine.
by CVfactor
Sun Jul 15, 2012 7:12 am
Forum: General Discussion
Topic: Will the real multiple sclerosis please stand up?
Replies: 35
Views: 4400

Re: Will the real multiple sclerosis please stand up?

That is a great e-mail from the esteemed doctor. But this is the best part.
I think this post delivers a Sad Zamboni or
Worse
Image
by CVfactor
Sat Jul 14, 2012 3:18 pm
Forum: General Discussion
Topic: Researchers identify potassium channel autoantibody in MS
Replies: 4
Views: 1640

Re: Researchers identify potassium channel as an MS autoanti

Ampyra is a potassium channel blocker, isn't it? Maybe I'm getting this backward but from what I'm reading here it seems Ampyra goes against this discovery. From the Ampyra website: "How is AMPYRA thought to help? In MS, the body's immune system mistakenly attacks the protective coating around nerv...
by CVfactor
Sat Jul 14, 2012 6:22 am
Forum: General Discussion
Topic: Researchers identify potassium channel autoantibody in MS
Replies: 4
Views: 1640

Researchers identify potassium channel autoantibody in MS

http://www.news-medical.net/news/20120714/Researchers-identify-potassium-channel-as-an-autoantibody-target-in-MS.aspx For the first time, scientists in Germany's multiple sclerosis competence network have been able to identify an antibody that bonds with the potassium channel KIR4.1. "We found this...
by CVfactor
Fri Jul 13, 2012 7:50 am
Forum: General Discussion
Topic: Will the real multiple sclerosis please stand up?
Replies: 35
Views: 4400

Re: Will the real multiple sclerosis please stand up?

I don't beleive that the end point of PPMS (or any other type for that matter) means you will have dissability in all of these functional areas, but these are the functions that effect people with MS generally. Here is a better explanation:
http://ms.about.com/od/multiplesclerosi ... s_edss.htm
by CVfactor
Thu Jul 12, 2012 1:51 pm
Forum: General Discussion
Topic: Will the real multiple sclerosis please stand up?
Replies: 35
Views: 4400

Re: Will the real multiple sclerosis please stand up?

If the beak fits........
by CVfactor
Thu Jul 12, 2012 12:07 pm
Forum: General Discussion
Topic: Will the real multiple sclerosis please stand up?
Replies: 35
Views: 4400

Re: Will the real multiple sclerosis please stand up?

“I guess we have no choice, do we? I mean, there is so much push and pressure,” Dr. Peter Stys, a professor of clinical neuroscience and an MS researcher at the University of Calgary says of the money being poured into CCSVI research at record speed. Stys does not deal directly with MS patients but...
by CVfactor
Tue Jul 10, 2012 7:09 am
Forum: General Discussion
Topic: Ann Romney used Chemo therapy for her MS??
Replies: 23
Views: 4916

Re: Ann Romney used Chemo therapy for her MS??

Here is an article written by the doctor that treated Ann Romney (Howard Weiner from Harvard): http://www.ncbi.nlm.nih.gov/pubmed/19334069 The challenge of multiple sclerosis: how do we cure a chronic heterogeneous disease? Weiner HL. SourcePartners Multiple Sclerosis Center, Center for Neurologic D...
by CVfactor
Mon Jul 09, 2012 3:49 pm
Forum: General Discussion
Topic: Ann Romney used Chemo therapy for her MS??
Replies: 23
Views: 4916

Re: Ann Romney used Chemo therapy for her MS??

That's a great time to start. Halting further progression is the key but many people have an EDSS reduction by a couple points within a few years. You are very lucky to be in this trial. Best of luck.
by CVfactor
Sat Jul 07, 2012 4:53 pm
Forum: General Discussion
Topic: Ann Romney used Chemo therapy for her MS??
Replies: 23
Views: 4916

Re: Ann Romney used Chemo therapy for her MS??

reallyreally wrote: I have actually been excepted into the Dr Burt trial! Wish me luck
Reallyreally, this is really really great news about being accepted into the trial. I wish you the best of luck. If you don't mind me asking what is your EDSS score right now?
by CVfactor
Sat Jul 07, 2012 2:35 pm
Forum: General Discussion
Topic: Ann Romney used Chemo therapy for her MS??
Replies: 23
Views: 4916

Re: Ann Romney used Chemo therapy for her MS??

Hi Scott1, Dr. Burts phase III FDA trial has a lot of promise which appears to be the case of the person shown in your link. there is a new facebook site dedicated to people who have gone through the MIST trial as well as HALT-MS (which is also entering phase III) and also BEAM treatments overseas. ...
by CVfactor
Sat Jul 07, 2012 6:35 am
Forum: General Discussion
Topic: Ann Romney used Chemo therapy for her MS??
Replies: 23
Views: 4916

Re: Ann Romney used Chemo therapy for her MS??

The idea behind using chemotherapy is to reset the faulty immune system back to a naive state to eliminate the memory mechanisms that are believed to cause MS. There are currently different approaches to this in various protocols, but chemotherapy is the unifying concept. The methods range from comp...
by CVfactor
Fri Jun 22, 2012 4:34 pm
Forum: General Discussion
Topic: How likely will there be a cure for MS within the next 10 yr
Replies: 47
Views: 18914

Re: How likely will there be a cure for MS within the next 1

Hello chrishasms, I just recently found out about Hi-Cy and have interest in it. You say you re-activated but have no new lesions or atrophy but are taking steroids to keep it at bay. What do you mean by re-activation? Has your EDSS score increased? Also you say you cannot have it again, but is this...
by CVfactor
Fri Jun 22, 2012 5:10 am
Forum: Stem Cells
Topic: Rebooting Immune System at Johns Hopkins
Replies: 13
Views: 4555

Re: Rebooting Immune System at Johns Hopkins

Thanks George, As usual you have investigated all options with much detail. I think the best hope in my view is HSCT prior to becoming progressive, but it will be a while before it is accepted treatment availabe to all. Edit: After thinking about what you wrote about these agents, it seems it might ...
by CVfactor
Thu Jun 21, 2012 4:00 pm
Forum: Stem Cells
Topic: Rebooting Immune System at Johns Hopkins
Replies: 13
Views: 4555

Re: Rebooting Immune System at Johns Hopkins

No doubt George, but before HSCT becomes approved for MS treatment I would be willing to take a gamble with Hi-Cy to hopefully stop from transitioning to secondary progressive. Especially if it is affordable. It seems the FDA has already approved this for two other autoimmune diseases. Im going to k...

Go to advanced search