This Is MS Multiple Sclerosis Knowledge & Support Community

bluesky, I have had countless mri's. I have never studied them or asked questions about them. I always figured the dr knows what he is talking about. When first diagnosed in 2001 I had lesions on my brain, had a spinal tap and started on Copaxone. Later went to rebif. However MRIs done in 2009 showe...

I just received my free DVD. Looks interesting, I never tried yoga before.

I have to disagree with the study. I have gotten slowly worse. I have not had exerbations to speak of. My walking has gotten slowly worse, my balance, my cognitive issues just about everything has slowly gotten worse. Even my ability to comprehend almost everything. I think I will stop talking now w...

I saw Dr. Snyder yesterday. What a good doctor. I've seen some really unkind, uncaring doctors in the past, he seems like he cares and knows what he is doing. We are going to try tsybri after I get all the approvals with insurance. I'm excited about a possible improvement in my walking and cognition...

I was officially told by my original Neuro in September 2010. He was real hesitant to tell me for some reason. After I broke my wrist, I saw him after the surgery to fix my wrist and he pissed me off and I decided not to see him anymore. Then, looking for a new neuro I went to another doctor who tol...

I've been told by 3 different neuros that I have PPMS. When I was first diagnosed in 2001 I was told I had rrms. Over the years I developed "black holes". Now I have PPMS. I haven't had many exerbations over the years just my walking has gotten much worse, I use a walker most of the time n...

I liked your blog. You write really good. I have trouble even writing letters. Good luck with this damn disease. Good luck with the tysabri- my doctor wants me to start it soon.
Sandra

Not to rain on anybodys parade.....I was dx in 2001 with rrms, was on copaxone then rebif. My walking sucked but I never had any symptoms to write home about. My last two MRIs showed now I have black holes and I recently had my first exerbation. I fell and broke my wrist. Then I couldn't walk. A new...

Thank you for all the input on this subject. I'm crying now. I thought I was just going crazy. It's nice to know there is a reason for my madness.
Thank you,
Sandra

I read your post and the reply. I too have emotional outbursts and crying for no reason. I just thought I was going crazy. Thanks for the info.
Sandra

I got so excited, talking about PPMS. I recently found out that I don't have RRMS I hve PPMS. No treatment, no cure. I got a book from MS society to help me understand things. I havent talked to anyone with PPMS about anything. I dont understand things very good anymore. Is this normal for PPMS. Am ...

yes a fall can cause a relapse. when I fell and broke my wrist my MS kicked in and I got to where I couldn't walk st all. Seems that your emotions play a big part in relapses.

I'm not the most knowlegable about MS. I have Primary Progressive MS. My daughter did a project like this when she was in school. I can just tell you about me and my symptoms, I can't use medical terms like some of these people. A lot of other people in the forum are much more knowledgeable than me....

I can offer no advice or help. Just wanted to say I'm so sorry that this is happening to you. Healthcare problems suck. MS sucks! No matter, life must go on.
Sandra

I have been diagnosed with ppms. For several years I used "Walk Away the Pounds" tapes or CDs for evercising. It is mostly walking, I used to do it regulary until I fell while exercising. Not to be detered I started holding on to the bar in my kitchen. It's not as effective holding on to t...