Search found 125 matches

by MSBOB
Tue Mar 24, 2015 5:48 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera vs no med
Replies: 8
Views: 7170

Re: Tecfidera vs no med

I am in the same position with my MS and treatment course, although I took rebif for a year. My MRI is always bad with new lesions. I work every day, and I don't feel like the meds work all that well for the risks. I have met with four different neurologists, trying to gauge if I am crazy for not ta...
by MSBOB
Mon Mar 23, 2015 3:08 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: BG12 ...compounding pharm
Replies: 1
Views: 1637

Re: BG12 ...compounding pharm

I'd be weary of a compounder in this situation. The BG12 is encoated to be absorbed after it passes the stomach. Does your compounder do microencapsulation or anything like that? DMF digested by stomach acid is different than DMF absorbed through the intestine. If the compounder is throwing a powder...
by MSBOB
Mon Sep 23, 2013 8:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Link made to retrovirus Herv-FC1 for RRMS and SPMS
Replies: 18
Views: 3383

Re: Link made to retrovirus Herv-FC1 for RRMS and SPMS

Marc, you sir have a wealth of information. Thanks for sharing. I have studied bee stings, tape worms, aromatherapy, vitamins, diet, ccsvi, mmp inhibitors, interferons, cordycept mushroom zombie ants, coeliac disease, diabetes, sodium channels, potassium channels, chlamydia, measles, aids, cancer, h...
by MSBOB
Fri Sep 20, 2013 1:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Link made to retrovirus Herv-FC1 for RRMS and SPMS
Replies: 18
Views: 3383

Re: Link made to retrovirus Herv-FC1 for RRMS and SPMS

The immune system depends on the thymus during maturation, up into a person's early twenties. Before then, we inherent our mother's immune system and the body uses the thymus to learn to program a new immune system. Many B-cells are defective. When the bad Bcell fails the thymus checkpoint, it is pr...
by MSBOB
Thu Sep 19, 2013 9:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Link made to retrovirus Herv-FC1 for RRMS and SPMS
Replies: 18
Views: 3383

Re: Link made to retrovirus Herv-FC1 for RRMS and SPMS

These viruses fit the disease profile well. They attack B cells responsible for the immune system and how the body distinguishes between self and nonself. An infected B cell can repress the body's instructions for the cell to self destruction if it has been miscoded. Basically, if the cell had becom...
by MSBOB
Mon Jul 22, 2013 10:15 pm
Forum: Undiagnosed
Topic: If you had lesions on your brain MRI...
Replies: 5
Views: 2058

Re: If you had lesions on your brain MRI...

That it a neat article. Lesions suck. From what I know, the following is kind of a telltale pattern for MS, common but not exhaustive for MS. From jimmylegs' link. http://www.ajronline.org/na101/home/literatum/publisher/arrs/journals/content/ajr/2002/ajr.2002.179.issue-1/ajr.179.1.1790251/production...
by MSBOB
Mon Jul 22, 2013 9:42 pm
Forum: Drug Pipeline
Topic: HELP !
Replies: 2
Views: 1324

Re: HELP !

I don't believe it's invented by big pharma but I align with your sentiment about drug pricing ethics or lack thereof.
by MSBOB
Mon Jul 22, 2013 9:34 pm
Forum: Undiagnosed
Topic: Please look at my MRI? Opinions please!
Replies: 2
Views: 1179

Re: Please look at my MRI? Opinions please!

OPINION: ask your nuerologist. They should know the anatomy well enough to tell you if that's a piece of fat or a normal vein or a normal variation of a vein or possibly something else. They get the big money to tell you. Best of luck.
by MSBOB
Sun Jun 09, 2013 1:02 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: JCV and BG-12
Replies: 35
Views: 9253

Re: JCV and BG-12

I second the kudos to ladymac. Way to be mature and straight forward!
by MSBOB
Sun Jun 09, 2013 1:34 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: JCV and BG-12
Replies: 35
Views: 9253

Re: JCV and BG-12

Anyone can read the paperwork that comes with their drugs and look online at some of the published whitepapers. BG-12 is extremely promising for neuroprotection and immune suppression. I quite am considering taking it myself. JC virus is slightly associated with dimethyl fumarate (DMF), but not at t...
by MSBOB
Wed Jan 09, 2013 11:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: fibrinogen may be the trigger
Replies: 26
Views: 3611

Re: fibrinogen may be the trigger

Fibrinogen Level Tied to Poorer PCI Outcomes http://www.medpagetoday.com/Cardiology/PCI/36734 Thought that Clopidogrel (plavix) is still used by some docs . . in CCSVI venoplasty - but only after the procedure? Perhaps some prescribe for pre-procedure use? Pradaxa would have a similar effect re: fi...
by MSBOB
Thu Jan 03, 2013 11:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: fibrinogen may be the trigger
Replies: 26
Views: 3611

Re: fibrinogen may be the trigger

I imagine that all sorts of things can cause leakage oc the BBB. Alergies, blood flow, viruses, drugs, vitamin deficiencies, fatty food, posture, trama, and things maybe other things. Any theory of MS could be strengthened from this article. The great thing about it is that there's a downstream link...
by MSBOB
Mon Jul 30, 2012 5:54 pm
Forum: Gene Therapy
Topic: does ms run in families
Replies: 10
Views: 5798

Re: does ms run in families

Mom has MS. Grandma had Parkinson's. I got MS.
by MSBOB
Tue Jul 03, 2012 5:59 pm
Forum: Rebif
Topic: Emotionally Dealing with Rebif
Replies: 17
Views: 10925

Re: Emotionally Dealing with Rebif

My headaches seem highly correlated to the amount of water I drink on injection days. Drink more water; Get less headaches.
by MSBOB
Mon Jul 02, 2012 7:54 pm
Forum: Rebif
Topic: Emotionally Dealing with Rebif
Replies: 17
Views: 10925

Re: Emotionally Dealing with Rebif

Unless one feels that acupuncture relieved a side effect of rebif, it should probably be discussed elsewhere.