Search found 80 matches

by kareng7
Sat Jun 11, 2005 10:11 am
Forum: General Discussion
Topic: Theories: "Auto-Immune" vs. Not
Replies: 47
Views: 9831

The reason that Prineas and Barrett's autopsy work has caused such a stir in MS circles is because it is the first time that someone has actually been able to scientifically look at a lethal lesion so quickly after the patient died. They were able to see something very different to what the researc...
by kareng7
Tue May 17, 2005 10:02 pm
Forum: General Discussion
Topic: Thyroid and MS
Replies: 6
Views: 2856

There's a whole endocrine trail to follow when it comes to autoimmune diseases and such. Interesting to hear all your experiences.

I still await my test results. I'm sure they're around--just have to poke a few doctors to get them. I'll be shocked if my thyroid is normal.
by kareng7
Fri May 06, 2005 6:54 pm
Forum: General Discussion
Topic: Thyroid and MS
Replies: 6
Views: 2856

Hi Sharon, Thanks for your response and that information. My multiple threads on the topic, which I added in each of the drug sections for the various interferons, started after I did a search on this site on "thyroid" and nothing came up. It just seems so relevant, the whole endocrine topic. Hopefu...
by kareng7
Fri May 06, 2005 5:55 pm
Forum: Betaseron
Topic: Thyroid Issues and interferon
Replies: 1
Views: 4599

Thyroid Issues and interferon

Just followed an interesting line of research about thyroid problems and MS--since thryoid runs in my family. I found a study that says up to 24% of the people on interferon 1-a and 1-b develop hypothyroidism within the first year of treatment. Hypothyroidism can cause hair loss. This study suggests...
by kareng7
Fri May 06, 2005 5:51 pm
Forum: Rebif
Topic: Thyroid Issues and interferon
Replies: 2
Views: 3522

Thyroid Issues and interferon

Just followed an interesting line of research about thyroid problems and MS--since thryoid runs in my family. I found a study that says up to 24% of the people on interferon 1-a and 1-b develop hypothyroidism within the first year of treatment. Hypothyroidism can cause hair loss. This study suggests...
by kareng7
Fri May 06, 2005 5:33 pm
Forum: Avonex
Topic: avonex and hair loss
Replies: 7
Views: 5754

Just followed an interesting line of research about thyroid problems and MS--since thryoid runs in my family. I found a study that says up to 24% of the people on interferon 1-a and 1-b develop hypothyroidism within the first year of treatment. Hypothyroidism can cause hair loss. This study suggests...
by kareng7
Fri May 06, 2005 5:24 pm
Forum: General Discussion
Topic: Thyroid and MS
Replies: 6
Views: 2856

Thyroid and MS

Wondering if any of you have experienced thyroid issues or even been tested for them. I recently found out that hypothyroidism runs on both sides of my family--brother, maternal aunt, mother, maternal great aunt, and now, paternal grandfather. I got curious and looked up thyroid and MS on the web an...
by kareng7
Wed May 04, 2005 9:21 pm
Forum: General Discussion
Topic: Just An Opinion
Replies: 2
Views: 1860

I read somewhere that, based upon autopsies, for every four people diagnosed with MS, there's a fifth person who never knows he/she has it. Asymptomatic his/her entire life. Then there are others of us who fill out the rest of the spectrum. The disease is as variant as the individuals who have it. I...
by kareng7
Fri Apr 29, 2005 9:10 pm
Forum: General Discussion
Topic: Scientists in NZ say they have a cure!
Replies: 20
Views: 5836

Bromley, On a separate point - John said that MS is not fatal. However, I've not seen any studies which confirm that this is the case...I don't think think that one could say that MS "never" kills because the young girl (17) that Drs. Prineas and Barrett did their autopsy on, died after suffering a...
by kareng7
Fri Apr 29, 2005 6:40 pm
Forum: General Discussion
Topic: remyelination
Replies: 4
Views: 2402

Arcee, I'm interested in the topic of remyelination as well. In doing some research, I came across this organization: http://www.myelinrepair.org/ This group of researchers is about an hour away from where I live. Their collaborative team approach gives me great hope. And of course, they're not the ...
by kareng7
Fri Apr 29, 2005 6:24 pm
Forum: General Discussion
Topic: Theories: "Auto-Immune" vs. Not
Replies: 47
Views: 9831

Thanks, Wesley. I'll definitely share mine. So, where do you stand on the concept of auto-immunity, if you don't mind me asking?
by kareng7
Thu Apr 28, 2005 4:11 pm
Forum: Statins
Topic: statins
Replies: 16
Views: 11108

I'm not taking statins but most of my immediate family members are for high cholesterol. I plan on doing an overall blood check, including cholesterol levels, once I get off the antibiotic I just started for a UTI. I'm almost hoping my cholesterol is high enough to need a statin so I can give it a s...
by kareng7
Thu Apr 28, 2005 3:38 pm
Forum: General Discussion
Topic: ? relationship of personal characteristics to MS
Replies: 4
Views: 2275

Hi Tracy, I've had some problems with stomach upset--mostly gas bubbles that lodge in odd places and feel like stabbing wounds until I'm able to dislodge them and burp. Usually only lasts a few minutes, but hurts like heck. Developed adult-onset allergies to shrimp and clams. Symptoms are painful in...
by kareng7
Thu Apr 28, 2005 3:13 pm
Forum: Introductions
Topic: Hi, Could We All Introduce Ourselves on this thread?
Replies: 316
Views: 67747

Hi folks, I'm Karen

Hi, I'm Karen. I'm 38. Live in the San Francisco/Bay Area. My diagnosis in January this year is "Clinically Isolated Syndrome." Last year, I had numbness periodically in one foot and some fingers, particularly when I exercised. A virus or bacterial infection over Christmas '04 left me with a mild ca...
by kareng7
Thu Apr 28, 2005 3:04 pm
Forum: General Discussion
Topic: Theories: "Auto-Immune" vs. Not
Replies: 47
Views: 9831

Theories: "Auto-Immune" vs. Not

I'm a great lover of theories, especially when faced with a complex topic like MS where the first thing the medical community and published articles say is "no one knows what causes..." So I want to hear from you about your theories, in this case, regarding the concept of auto-immunity. Do you belie...

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