This Is MS Multiple Sclerosis Knowledge & Support Community

errmmmm, WTFrak? They seem by the book at Wynn's. Double and triple check...dot every i and cross every t. even check my driver's license to make sure I'm me and I have to read my labels to verify I'm getting what I'm supposed to be getting. Took copies of my label supplements. I can understand the ...

Since I've met your neuro personally, do you think he'd mind? I'm not sure about letting somebody else from the study in. On the other hand, since we're not blinded anymore, what difference would it make? Still waiting on a response from mine re: treating my current relapse.... let us know! and wha...

In these press releases Opexa and their reps keep repeating the term "following the full course of treatment (weeks 28-52)" and one thing I wish Opexa would clarify/confirm is that "the full course of treatment" they are referring to is the pre-determined treatment schedule for ...

Well, as Dr. Wynn told me, the top line data isn't all the data. It was just unfortunate. As they further analyze, it seems that there is cause for hope. They just need more data, more money, and hopefully ultimately a Phase III with a bigger sample to prove that the trends are real and not just hop...

av8rgirl wrote: I feel cheated and deprived. I wanna see mine!

that would be because you have been. Wanna come to my next appointment and look at mine? At least it's something.

Webcast [link] of their Third Quarter Results conference call.  My summary, so take it for what it's worth. Highlights from their further analysis of Phase IIb Data • Number of enhancing lesions in Tovaxin arm was more than twice that of the placebo group at study initiation.  • Made it difficult t...

I got to look at mine too. With my doc. It was part of our evaluation process about whether I should go forward.

av8rgirl wrote: It's nice to have another Pac NW lab rat here!!

PacRat NW Lab

NW PacRat Lab

NW Lab PacRat

NW Pac LabRat

I dunno.

Hiya. What does your MS-specialist neuro make of all of this? I'd be curious for a medical interpretation. Sounds great that you've done so well on it compared to where you were and odd that you'd be doing worse if you were in fact not producing the MRTCs. To my narrow mind, it means that you're pro...

Any thoughts on what to do conventional treatment-wise if you continue to be MRTC negative after your last monitoring arm visit and you are released from the study? Hi HEC and welcome. Why would you be released from the study? I thought they just watched you and kept bringing you back. It does not ...

Had my meeting with doc to discuss the first year results. DISCLAIMER : These are my best memories from my Friday appointment. I do not vouch for the veracity of all of them, and especially when it gets to the more technical stuff it is sometimes hard for me to keep up, retain, and regurgitate those...

Oh yeah, Lars.

Why?!?

<duck>

Well.... after considerable thought and emotional chaos I have decided to stay IN the Tovaxin trial. <snip> I am keenly aware of the horribly difficult decisions we are all making and regardless of the personal choices made, I am happy to have found you all on this journey. 1st real Tovaxin injecti...

Called my doc on Monday and was told that they had the results but wanted to see their patients in person to give them out. I go in on Friday. And as bummed as I am to not have my results, judging by the confusion and emotions on here, a day later I'm feeling that it's not such a bad thing for me to...

drug sucks, stock in the toilet, end of tovaxin story. oh well, shit happens... ps Mike don't put me in your group of "flaming people who have crawled out of the shadows who seem pretty pissed off and have told all of us who are participants in this study that we are fools, that we've been sca...