Search found 357 matches

by ssmme
Tue Jun 21, 2011 9:07 am
Forum: General Discussion
Topic: Please help with Health Insurance questions
Replies: 6
Views: 1580

If I were you I would look into long term care insurance so you will have peace of mind for whatever happens in your future - do it before any MS diagnosis otherwise you won't qualify. I have had no problem getting insurance and I am self employed. Right now I'm on Anthem BCBS. None of us have any i...
by ssmme
Mon May 30, 2011 11:10 am
Forum: General Discussion
Topic: Follow up didn't go so good, and now need feedback from yall
Replies: 33
Views: 4804

Have you had a lumbar puncture? If so did they find oligoclonal bands? That's what secured the ms dx for me. My ms doc told me (whether right or wrong) that only brain lesions could be lyme but spinal cord lesions are ms.
by ssmme
Mon Jan 24, 2011 11:26 am
Forum: General Discussion
Topic: What was your first MS symptom?
Replies: 47
Views: 37015

The symptom that got me going to the neuro and got me on the road to an MS diagnosis was heat intolerance that caused my left leg to become floppy like a wet noodle. In hindsight - about two and a half years before the actual dx - I was stricken with what the doctor called a case of bell's palsy whi...
by ssmme
Thu Jan 13, 2011 9:50 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Protein detected in Urine test
Replies: 2
Views: 3113

Protein detected in Urine test

I went in for the monthly blood draw and urine sample deposit and got a call that I have to go back to get my urine checked again. They detected protein in it and want to retest to see if it's still there. Has any other campather had this happen? Anybody know what it might mean in regard to campath?...
by ssmme
Fri Dec 31, 2010 2:02 pm
Forum: General Discussion
Topic: Too close to home...
Replies: 2
Views: 1563

Thanks NHE.
by ssmme
Thu Dec 30, 2010 11:42 am
Forum: General Discussion
Topic: Too close to home...
Replies: 2
Views: 1563

Too close to home...

I got a phone call from my brother yesterday. He was dx'd with ON. His eye doc sent him for an MRI and a follow up with a neuro. The neuro said there was no evidence of demylination but he had a hemorrhage in the back of his left eye optic nerve. I am so relieved because I never ever want anyone in ...
by ssmme
Fri Sep 03, 2010 4:44 am
Forum: General Discussion
Topic: Just Wondering...
Replies: 7
Views: 1491

Just Wondering...

Do you get to the point that "fighting" this nasty disease gets futile? I am sick and tired of being sick and tired but I just don't want to fight anymore. I'm not talking suicide...I just don't think it's worth fighting anymore. Nothing seems to really help. No one really seems to want a cure. They...
by ssmme
Fri Aug 27, 2010 4:45 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Campath Rash
Replies: 1
Views: 2584

Campath Rash

I was treated with my second round of Campath in early May. In June I started with a rash that first appeared on my head around my hairline. I initially thought it was the new shampoo I bought so I quit using it. The rash continued and popped up on my torso. I went to my neurologist/study doctor to ...
by ssmme
Fri Aug 20, 2010 7:46 am
Forum: General Discussion
Topic: Hysterectomy & MS
Replies: 1
Views: 1388

Hysterectomy & MS

This is a question for the gals... I'm scheduled for a complete hysterectomy in a couple of weeks. I'm not concerned with the actual surgery since I've had two c-sections and hernia surgery but I am concerned with how my body will respond to the changes hormonally. I'm 43 and not menopausal yet. Did...
by ssmme
Fri Aug 20, 2010 6:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 152865

I was treated on July 19th and felt a little better for a while but no real improvements. :-(
by ssmme
Tue Aug 03, 2010 10:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 284721

MS HISTORY Name: SSMME Male/Female: F Age: 43 Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): diagnosed in 2006 with RRMS Lesion locations (most affected side, if known), number: 7 in spinal cord, 3 in brain stem, 7 in brain of which 2 enhancing slightly, left side affect...
by ssmme
Fri Jul 09, 2010 12:37 pm
Forum: General Discussion
Topic: For those who associate MS with a virus
Replies: 26
Views: 4676

This is the article I started a thread about several weeks ago. It was published in the Discover magazine issued in I think April or May of this year.
by ssmme
Fri Jul 09, 2010 12:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AMEDS July 16
Replies: 11
Views: 2046

@Doug613 - we should see each other there. I arrive in Poland on the July 14th. Like everyone else I'm worried/concerned they won't find anything wrong with me and will send me on my way. My treatment (day 1) begins July 16th.

I wish you a safe and peaceful trip to Warsaw!!
by ssmme
Tue Jul 06, 2010 12:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AMEDS July 16
Replies: 11
Views: 2046

@CCSVIhusband - thanks for the words of encouragement. I feel like for the first time I'm taking my MS into my own hands and not being pulled by the leash of my neurologist. It's scary. It's a big thing but I'm not getting any better. I hope and pray that it helps. I know it's not a cure but I'm wil...
by ssmme
Tue Jul 06, 2010 7:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AMEDS July 16
Replies: 11
Views: 2046

AMEDS July 16

My date at AMEDS in Poland is July 16th. I am excited, scared plus all the other emotions. What if they don't find anything wrong? What if they can't treat mine? Yikes I'm going crazy. I can't wait till I know more about how my veins look. I could use some words of encouragement and words of advice....