Search found 357 matches

by Trish317
Tue Dec 14, 2010 7:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 3736

Trish, you have always been such a supportive advocate and I am sorry to hear this latest. I've 'followed' you/your darling as our treatment dates were not too far apart. I went to Albany in Aug and am pretty sure that I have restenosed. I haven't been successful in finding an IR to do follow-up D/...
by Trish317
Sun Dec 12, 2010 6:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 3736

trish317 i would hope, as he only had the angioplasty that he is going where they can re-do the procedure, and not waste his time, because restenosis is usually the return of symptoms... i'm getting ck'd because this is my 2nd time and i have a stent, and i would like to know if my blood flow is 'n...
by Trish317
Sun Dec 12, 2010 6:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 3736

Cece wrote:Oh, Trish, such a hard road. :( Doesn't feel fair. Yes, there is a doppler protocol somewhere, on the Haacke mris website maybe?
I think I have the link to the Haacke site. Thanks, Cece.
by Trish317
Sun Dec 12, 2010 11:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 3736

Is there a link to the proper Doppler protocol? My darling man is having an ultrasound this month....his 3 month post procedure. He's going somewhere local to him but I don't know if they're going to know what they're looking for or exactly how to do it correctly. He found out that his GP's daughter...
by Trish317
Thu Dec 09, 2010 8:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Holly Shean and her death ... a few facts
Replies: 16
Views: 5474

My thoughts and prayers are with you and your family as you continue to deal with the devastating loss of your beloved sister. I didn't have the honor of knowing Holly but her loss diminishes us all.

God bless you....
by Trish317
Wed Dec 01, 2010 4:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Good news to report!!
Replies: 10
Views: 1698

Glad to hear you're feeling better, BB!
by Trish317
Sun Nov 28, 2010 3:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: diagnosed - MRV images added, page 5&6!
Replies: 93
Views: 12496

Wonderful news, Cece! You'll be in my thoughts and prayers....
by Trish317
Sun Nov 28, 2010 3:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 50005

Brave, I hope you are feeling better soon. It seems that many people gain improvments over a period of a few months so be patient. Please keep us informed. My wife and I leave tomorrow for Albany. Her procedure is on Wednesday. I'll let everyone know how it goes. Bruce. Sending prayers and good tho...
by Trish317
Tue Nov 23, 2010 5:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 50005

bruce123 wrote:"Brave" from California is in Albany today for testing and will have the procedure tomorrow.

Good luck, we're pulling for you.

Bruce.
Sending prayers and good thoughts....
by Trish317
Mon Nov 22, 2010 7:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: JCB's Liberation Journey PPMS
Replies: 54
Views: 11143

Sending you good thoughts and prayers. I think my darling man has also restenosed. He's having an ultrasound next month. I hope they know what they're doing and what they're looking for.
by Trish317
Mon Nov 22, 2010 7:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Greetings and update
Replies: 14
Views: 2433

I've been thinking of you, BB, and wondering how you are. I hope the leg numbness gets better. Please give up those cigarettes.

Hugs!
by Trish317
Tue Nov 16, 2010 4:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI-mania as a Marketing Excellence Project
Replies: 45
Views: 6759

Joan states "Go Local". Damn right but to be effective, this needs to be done in mass, again it won't happen because people are too busy collecting money to sustain an over inflated and overrated industry to consider moving forward constructively. CCSVI marketing you're seeing now is short term cra...
by Trish317
Sun Nov 14, 2010 6:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ultrasound Facilities in the US - is there a list?
Replies: 9
Views: 1718

After all this time, I should know the answer to my question and I might even have the information saved somewhere but is there a link to the ultrasound protocol? My darling man is having a follow-up ultrasound next month but I'm concerned that they aren't going to know what they're doing or what to...
by Trish317
Thu Nov 11, 2010 5:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Albany - Mehta
Replies: 42
Views: 6123

kaboodah wrote:My husband and I really enjoyed the symposium, but it was a lot of information. I have a lot of trouble with comprehension and retention so if anyone hears of a recording of it, I am very interested. Tomorrow morning is my Part one! Please pray! Blessings!!
Sending you prayers, kaboodah....
by Trish317
Sun Nov 07, 2010 6:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AlmostClever is Liberated!
Replies: 23
Views: 5349

Wonderful news! Sending you prayers and good thoughts for healing.