Search found 207 matches

by annad
Tue Sep 07, 2010 4:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Attn: Canadians who have been treated
Replies: 7
Views: 1705

garyak, I don't know how Mark is submitting these. The message that's being passed around does say 'first hand' so I can only assume directly from him. We won't know if they're accepted or not or even if they are read once they are accepted but we won't know unless we try. It would be hard to turn d...
by annad
Tue Sep 07, 2010 4:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Attn: Canadians who have been treated
Replies: 7
Views: 1705

garyak,
I only realized it was posted after the fact :/ It's ok, it's a reminder. I think Mike had some 75 sent to him and we know there are more than 75 of us who have been treated in Canada.
take care
a
by annad
Mon Sep 06, 2010 4:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: URGENT!! Request 'Mark Lane' CCSVI Facebook!! LAST CHANCE!!
Replies: 14
Views: 3761

PCakes,
I just reposted Mark's request. I was asked to post it. . . I guess he didn't know it was on and I didn't look down far enough to see this.
Oh well, good reminder.
a
by annad
Mon Sep 06, 2010 4:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Attn: Canadians who have been treated
Replies: 7
Views: 1705

Attn: Canadians who have been treated

I am posting for Mark Lane: Mark Lane is requesting that all those Canadians who have had angio/venoplasty as treatment for CCSVI or MS to send a 1 page testimony of your experiences pre and post op to mark@marklane.ca. Please include your name and contact information. This anecdotal evidence ...wil...
by annad
Tue Aug 10, 2010 10:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1742534

Lack of oxygen to the brain cause extreme fatigue. CCSVI treatment/angioplasty did the trick for me.
by annad
Fri Jul 23, 2010 8:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Our very own Anna featured on CTV
Replies: 3
Views: 1632

BadCopy, My angle was not to bash the Society but I realize the reporter has to get all sides in. To have the lady from our local chapter say there is no connection just. . .. grrrrr! We're not going to move quickly on it with that attitude. I did not expect to get this much out of the treatment but...
by annad
Fri Jul 23, 2010 5:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Our very own Anna featured on CTV
Replies: 3
Views: 1632

I am thrilled they decided to do a segment on CCSVI on our local news, for sure. I also understand how they have just a minute or two to condense an hour and a half of interview time! I remember going through the list of my improvements such as bladder urgency, balance, walking, leg stiffness, brain...
by annad
Sat Jul 17, 2010 4:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: anna d successfully treated. Negative MRV sometime back.
Replies: 6
Views: 2317

Mark, Hind sight 20/20 . . . What I know now is different from what I thought I knew back in November of 2009. Like most things, until you have the patient on the OR table and you 'open them up' you really don't know what you are dealing with. Yes, venogram, venogram, venogram :) I am thankful for m...
by annad
Thu Jul 15, 2010 6:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: anna d successfully treated. Negative MRV sometime back.
Replies: 6
Views: 2317

Thanks Curious! Yes, I was one of those with negative MRVs and pretty non-impressive doppler results so I went in this with low expectations thinking I'll be thrilled if they find something. So when I thought I heard the words 'balloon' I had to ask the doctor, "did you say balloon?" lol I had steno...
by annad
Sat Jul 03, 2010 12:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have a date for vein and valve transplant surgery.
Replies: 24
Views: 5310

Good luck, Rici! Stay strong and all the best to you!
:)
by annad
Thu Jun 24, 2010 3:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cold water swimming and CCSVI
Replies: 13
Views: 2651

Funny, I keep saying I feel better when I'm on vacation. Guess what I do when I'm on vacation. . . . swim in salt water.

I have to go in the water gradually because the shock of the cold on my skin makes my legs give out from under me and I do a not-so-graceful face plant.

Interesting.
by annad
Mon Jun 14, 2010 6:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Plodding to Poland with Johnson...
Replies: 92
Views: 13258

Johnson!
I haven't been on TIMS lately but I've been thinking of you! Looks like you're a success story! Yay! lol I'm giddy for you!
I hope you are home resting and getting caught up on life missed. Can't wait to see what you'll be painting now!
best wishes!
a
:)
by annad
Sun May 16, 2010 3:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Send thank yous to Dr. Sandy McDonald
Replies: 11
Views: 2182

I will pass on the thanks to my friend who is doing it . . . I just posted the info on TIMS.
:)
by annad
Sun May 16, 2010 12:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Send thank yous to Dr. Sandy McDonald
Replies: 11
Views: 2182

thisisalex,
thank you! Wow, all the way from Hungary!
I just sent off your thank you to my friend who is compiling them. I hope she can still fit it in.
a
by annad
Sun May 16, 2010 5:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Send thank yous to Dr. Sandy McDonald
Replies: 11
Views: 2182

72 thank yous in 24 hours!

Great work!

thank you to all!

My friend will be hand delivering it when she goes for her doppler.

a

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