Search found 218 matches

by thisisalex
Fri Dec 03, 2010 4:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Taiwan's recruiting controls for CCSVI trial
Replies: 7
Views: 1985

hi

is it a diagnosis only trial? or are they doing the procedure itself?

alex
by thisisalex
Thu Dec 02, 2010 3:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy Featured in New Pathways Magazine MSRC
Replies: 28
Views: 8086

Andrew
it does't work for me... :( could you please find a way to share it? it would be very interesting!
thank you
alex
by thisisalex
Wed Dec 01, 2010 1:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: European interventional radiologists are against CCSVI
Replies: 31
Views: 6400

European interventional radiologists are against CCSVI

CIRSE (Cardiovascular and Interventional radiological Society of Europe http://www.cirse.org/) has just released an announcement about CCSVI. I don't find the original announcement on the internet, but here is the hungarian version please try to read it with google translate: < shortened url > it lo...
by thisisalex
Wed Nov 17, 2010 3:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Study: Excercise improves cog fog etc in MS patients.
Replies: 11
Views: 2896

CRHInv wrote: Here is the part you aren't going to believe. If I ran that day, I would go about a mile, my words didn't slur.
amazing!
i am not alone... same thing here: 20 minutes of walking OR 5 minutes of running in the evening makes me awake, no more fatique for that day...
lets move pwMS :)

alex
by thisisalex
Fri Nov 05, 2010 10:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PLAVIX - An Idea to accelerate the PROOF
Replies: 14
Views: 2702

hi there, A hungarian neurologist tried to replicate Putnam (in 1950!) , and used blood thinners (dicumarin) in a study. he wasnt succesful... here is the abstract: Z. Böszörményi (Neuropsychiatric-university-clinic, Budapest, 1950): New therapeutic trials of disseminated sclerosis. From among 36 pa...
by thisisalex
Fri Oct 29, 2010 2:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Latest Wheelchair Kamikaze Post on CCSVI
Replies: 61
Views: 10808

hi Alex-the conclusions of the Italian and Lebanese papers say it all. From the Italian paper: "Conclusions: Our findings do not support the hypothesis that cerebral venous congestion plays a causative role in the pathogenesis of MS." From the Beirut paper: "Conclusion: CCSVI is an unlikely cause o...
by thisisalex
Fri Oct 29, 2010 2:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Latest Wheelchair Kamikaze Post on CCSVI
Replies: 61
Views: 10808

Marc, i am glad you write again :) great summary as usual, but may i have a question? you wrote: One paper demonstrated that the severity of CCSVI increases with the severity of Multiple Sclerosis symptoms experienced by patients, and with a more advanced disease course. These findings were backed u...
by thisisalex
Sat Oct 23, 2010 1:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Please help! Treatment in Poland is at risk!
Replies: 43
Views: 10289

hi Rici

letter sent!

alex
by thisisalex
Sun Oct 03, 2010 11:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 18th Slovak Angiological Congress with prof. Simka
Replies: 11
Views: 2953

http://sofista.sk/documents/CCSVI%20&%20MS,%20Slovakia,%202010.ppt This is the presentation of prof. Simka from the 18th Slovak Angiological Congress. I have not mentioned one important thing: he became a professor at the end of September 2010 - so only couple of days ago. Congratulations prof. Sim...
by thisisalex
Thu Sep 23, 2010 10:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo Study Healthy Controls
Replies: 102
Views: 14335

Cheer this is not accurate. Mayoclinic says: "In most instances when a carotid artery is completely blocked, the risk of a revascularization procedure usually outweighs the benefit. Fortunately, the brain has great capacity to use alternative routes to provide blood to the area of the brain supplie...
by thisisalex
Wed Sep 22, 2010 10:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Lack of Immune Supression Capability
Replies: 20
Views: 3754

Re: Lack of Immune Supression Capability

The abstract below demonstrates that persons with MS have a decreased capacity for immune suppression. I put this on to emphasize the point that MS is not simply a normal immune system invading the CNS due to CCSVI effects. There is no doubt that CCSVI plays a major role in MS and needs to be treat...
by thisisalex
Wed Sep 15, 2010 12:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does CCSVI explain fewer relapses in pregnant women?
Replies: 5
Views: 2096

Typically, venous malformations present early in life. However, it is not uncommon for venous malformations to present for the first time in the adult patient. There are many case reports that have documented the sudden appearance of a previously unrecognized venous malformation. This behaviour has...
by thisisalex
Tue Sep 14, 2010 10:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Sclafani in Belfast
Replies: 10
Views: 3159

Re: Dr Sclafani in Belfast

You all will be pleased to know that Dr Sclafani and myself have been invited to take part in a debate on CCSVI, which will be held in Belfast as a satellite symposium in a conference of Vascular Surgery on the 24th of September. We will argue in favour of the liberation procedure, while two well k...
by thisisalex
Wed Sep 01, 2010 11:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: can someone find an article for me??
Replies: 2
Views: 1113

Re: can someone find an article for me??

probably not cause i don't have a lot of info. i should have bookmarked it. i saw it yesterday and it was talking about CCSVI and the treatment on patients and the results. i believe the people in the article were some of the well known doctors in ccsvi. the article went on to state about how some ...
by thisisalex
Fri Aug 27, 2010 12:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and Slovakia, Europe
Replies: 384
Views: 67463

18th Slovak Angiological Congress with International participation. Sept. 29. - Oct. 2., 2010 - Tatranska Lomnica, Slovakia. - CCSVI, MS, Dr. Simka... http://www.angiology.sk/sak/index.php?preliminary_program/en/10/2/ (click on Program in PDF - it is written in English as well) Go to page 9 - Thurs...

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