Search found 74 matches

by Kathyj08
Fri Jul 16, 2010 5:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 month update
Replies: 15
Views: 4645

That's wonderful to hear!
Kathy
by Kathyj08
Thu Jul 15, 2010 2:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poland feedback
Replies: 2
Views: 1566

Congratulations and hope you continue to see improvements!!
Kathy
by Kathyj08
Tue Jul 13, 2010 6:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Possible CCSVI without MS diagnosis?
Replies: 8
Views: 2852

I am in Bulgaria now being treated just 3 days ago. Go to the thread I created called "InBulgaria now, stenosis found"! I am in the same boat. Over 30 years of just a few flare-ups and did not get a diagnosis so therefore did not qualify for studies and such. Prof. Grozdinski said to go ahead and co...
by Kathyj08
Mon Jul 12, 2010 9:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 226253

We are in Bulgaria now and will be leaving tomorrow. The ziploc bags for us with the small containers worked just fine. We had no problems. We flew in from the states. About the fasting, thats not until before your procedure. The way they explained it to me was no food before procedure, so I did not...
by Kathyj08
Sun Jul 11, 2010 8:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: In Bulgaria now, stenosis found!
Replies: 4
Views: 1431

I forgot to mention, all ballooning and no stenting so hopefully they stay open!

Kathy
by Kathyj08
Sun Jul 11, 2010 6:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: In Bulgaria now, stenosis found!
Replies: 4
Views: 1431

In Bulgaria now, stenosis found!

This was a huge decision for my husband and I as I never have been diagnosed with ms. In over a 30 year period I have had only 3 known flare-ups and have been in one for a year this time. They were never able to quite figure out what was wrong with me but I was pretty sure it was ms since my first s...
by Kathyj08
Fri Jun 25, 2010 2:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 226253

Anya,
My husband and I will be leaving early on the 14th of July. Sorry we will miss each other!
Kathy
by Kathyj08
Sun Jun 13, 2010 5:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 226253

Re: Hi ALL

Hi Everyone I am New to this I will be in Sofia July 6-13 so I was wondering if anyone else will be there the same time. I am flying in with a friend and will be staying at Greenville. I am scheduled to be there July 10th (arriving the 9th) and will be leaving the 14th. (we are traveling from the U...
by Kathyj08
Sun Jun 13, 2010 5:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Relaps 3 weeks after ccsvi operation, and NO restenosis
Replies: 28
Views: 6106

Sofia,
I am happy to hear that things are looking up for you again and I hope things continue to improve!
Kathy
by Kathyj08
Sat Jun 12, 2010 12:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 226253

Re: flight

BillTerry wrote:Hi Kathy, where are you flying from

bill
Bill,
We are from the U.S and will be taking Air France.
See you in a few weeks.
Kathy
by Kathyj08
Thu Jun 10, 2010 4:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 226253

Sofia, I hope the rest helps you and the vertigo leaves as it did shortly after your surgery. Anna, Thanks for the update and am very happy the surgery went well for you and hopefully more improvements to come! Burg, Thanks for your informative posting and glad things went well for you guys. Bill, I...
by Kathyj08
Sun May 30, 2010 9:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 226253

Hi. I am going in July and received a recent e-mail from Prof. Grozdinski informing me of his new e-mail address.
Try: grozdinski@dir.bg
by Kathyj08
Fri Feb 26, 2010 1:46 pm
Forum: General Discussion
Topic: anyone hear of this wierd symptom?
Replies: 2
Views: 1639

I wish that were my only symptom. I have many. balance problems, tingling, nerve or muscle twitches, sometimes left arm and leg feels not quite with it (a little weak), etc. Plus this only happens when I am experiencing a "flare" or whatever this is. Thanks. Kathy
by Kathyj08
Fri Feb 26, 2010 11:09 am
Forum: General Discussion
Topic: anyone hear of this wierd symptom?
Replies: 2
Views: 1639

anyone hear of this wierd symptom?

Hi. I'm a newbie at this. I actually have 2 questions. I have not had a difinitive diagnosis but have had 3 flares over a 30 yr. period. The first one being nystagmus and fatigue over a 2 day period then disappearing. then 12 years later starting with joint pain in every joint for a few days then sl...

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