Search found 173 matches

by FlashHack
Mon Jun 28, 2010 2:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: From M.S. Patients, Outcry for Surgery - NYTimes.com
Replies: 24
Views: 4325

Thanks for posting this. I have already forwarded to about ten people. If you can, try to use the NYT web site to email it so that it will show up on their "Most Emailed" list. This will get it more exposure!
by FlashHack
Tue Jun 22, 2010 2:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812157

Re: Partner/Satelite Clinic

I'm no Dr. but in my simple mind, the best (and quickest) way to get up and running would be to partner with another DR. S we know... Had a question for Dr. Siskin about something else and so I mentioned Dr. Sclafani's IRB rejection. Here's what Dr. Siskin replied: I want you to know that I am in c...
by FlashHack
Tue Jun 22, 2010 10:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812157

Dearest Dr. Sclafani, That is so disappointing to hear about your rejected trial. All I can do is shake my head. One thought: could you use all you have learned to help educate others who are performing the procedure? I have been in contact with Dr. Siskin's office in Albany, NY, and I believe that ...
by FlashHack
Wed Jun 16, 2010 3:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BMK, Albany, NY, Dr. Siskin and my Liberation
Replies: 45
Views: 16602

How about those headaches? Still there?
by FlashHack
Tue Jun 15, 2010 6:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BMK, Albany, NY, Dr. Siskin and my Liberation
Replies: 45
Views: 16602

Cheer,
Dr. Siskin's clinic has a 2 web page spread on his site regarding CCSVI and the fact that they are treating people. Rokkit created a thread on it about a month ago:
http://www.thisisms.com/ftopict-11660.html
by FlashHack
Mon Jun 14, 2010 10:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Parliamentary debate re CCSVI
Replies: 18
Views: 4145

Any of you Canucks know how to find these recordings on the CPAC site? This Yank can't seem to find any. Can you only watch it live?
by FlashHack
Mon Jun 14, 2010 5:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Latitude, MS and CCSVI: Any answers?
Replies: 13
Views: 2605

hwebb wrote:So not so important how much sun you've seen, or even how much sun your mother has seen
If only metabolism were important than the birthdate studies would not have shown such a drastic bias of spring birthdays for pwMS. Sun exposure for your mom during your pregnancy matters!
by FlashHack
Mon Jun 14, 2010 9:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fingers crossed!
Replies: 18
Views: 4010

Clavicle ... SUBClavian ... DOH! Some of these vein names actually make sense.

BooBear, that is awesome.
by FlashHack
Sun Jun 13, 2010 9:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Latitude, MS and CCSVI: Any answers?
Replies: 13
Views: 2605

Re: some figures

I recall reading that Tokyo, Japan has a similar latitude to Melbourne, Australia. However, in Melbourne the MS rate is high (approx 1 in 1000)...in Tokyo low (approx 1 in 10,000). Interestingly, the rate in Scotland is approx 1 in 250. The rate in neighbouring England and Wales is approx 1 in 1000...
by FlashHack
Sat Jun 12, 2010 7:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Letter writing campaign for Barb Farrell - VICTORY
Replies: 97
Views: 20927

Done and done.
by FlashHack
Fri Jun 11, 2010 2:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 173286

I could be wrong but I seem to remember reading that the doctors in Albany (Siskin, Mandato) do not prescribe anti-coagulants. Maybe someone can confirm that or say that I'm incorrect. I would find this very odd since these drugs are pretty standard for at least a week following a ballooning of the...
by FlashHack
Thu Jun 10, 2010 8:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812157

Informative link on IRB: http://en.wikipedia.org/wiki/Institutional_review_board Institutions that conduct human research and receive funding from Health and Human Services (HHS) must have an IRB that operates according to federal guidelines (i.e., no IRB = no government funding). The IRB process en...
by FlashHack
Thu Jun 10, 2010 8:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812157

As I understand it, the FDA presides over drugs and DEVICES. The devices would have to be stents, which have never been approved by the FDA for use in VEINS, only in Arteries. Use of a device or drug that has been approved by the FDA for another purpose is very common and is known as "off label" use.
by FlashHack
Wed Jun 09, 2010 9:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 173286

Stix, (WARNING: THIS MINOR RANT IS ONLY FRACTIONALLY RELATED TO YOUR POSTING SO FEEL FREE TO DISREGARD IT ENTIRELY) I would like a magic bullet as much as the next guy. Certainly Liberated people with a medical background carry more weight than the rest of us in this battle and they ARE speaking up....
by FlashHack
Wed Jun 09, 2010 12:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 173286

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