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Hi Algis, First, I would like to reinforce one point: what I am going to say below is my own experience. I am not a doctor so I won’t claim this is the key to cure ms, even if that worked for me. You’ve been in Taiwan for many years so I guess you know a little about how Asian doctors handle health ...

Please simply copy/paste the names of the herbs in here - I certainly can find that locally :) 謝謝你 Good afternoon Taiwan! I’ve been there several times for business purpose and I remember that the weather is warmer than where I am now (Jiangsu province, Suzhou city) Hope you can keep up with the he...

Hi Maybe, this is a useless thread but I am puzzled with one thought and I would like to see whether I am thinking in the right direction or not: I have a stenosis from my right internal jugular. When I had optic neuritis, the pain was located in the right side of my head. -> I am wondering if there...

Acupuncture….. Some people say it sounds like relaxation I did try it but it was more like a painful trip I still remember the doctors, mopping up my blood after removing the needles :P I had a talk with Chinese doctors who know a bit about MS. They told me that it would not stop the disease but it ...

Zen, How are you doing? Any progress? ... Hi Sbr, It’s all good! My ms stopped progressing since I started to care about my CCSVI. I didn’t go through surgery to fix it; however, I am following a treatment with Chinese medicines which improve the blood flow in my stenosis. Seems to work pretty well...

TMrox, you really rock. I am curious to know how you came to know about CCSVI? It would be great if researchers started looking if CCSVI is underlying cause of any other neurological diseases!!! One of my friends was recently diagnosed “rheumatoid arthritis” which is also a neurological disease. I ...

I have ppms since Sep2009. Cold is clearly my “enemy” regarding ms symptoms. When I feel cold optic neuritis occurs and my ability to move gets worse.

So far, I found only one way to stop the headaches: HEAT
I put my head under hot water and the optic neuritis just vanishes

Hi Genevieve, I had totally 3 Dopplers at the neck level! The first one was done in China and the angiologist told me I had an issue with my blood flow. He even told me that this issue could be the reason why I was having headaches (optic neuritis). :lol: I got a second one as I wanted to confirm th...

Hi Belou,

That's interesting...
When I have optic neuritis, I do some fitness + I drink hot water. The pain disapears as soon as my pulse gets high

My neuro re-classified me as PPMS after a February exam. I had my first liberation procedure done last month. I had dramatic improvements for five days following, but unfortunately the internal jugular veins have re-stenosis. search "Donnchadh" for related posts. Donnchadh Hi Donnchadh, T...

Hi Zen, I will look forward to that day. About the PPMS and procedure, other folks here might be in a better position to provide info. BTW, are in a position to throw some light on the status of CCSVI in China? For example, in India, now there are multiple choices as to where we can get tested and ...

sbr487 wrote:Probably first visitor from China as far as I can remember.
Welcome to TIMS!

Thks SBR,
I heard that PPMSer could not benefit from CCSVI treatment... I was just wondering whether it was true or not.

India is actually very close Maybe I ll meet you one day

Hi
Maybe this question has been raised already (sorry if that’s the case)

I was diagnosed ppms and also CCSVI (narrowing of internal jugular at neck level)

Did anybody suffering with progressive ms has ever reported symptom improvements following CCSVI treatment?
Thks a lot for your feedbacks

thks

Thks for your feedback Euphoniaa
You might be right.
I may blame ms every time something abnormal happens:oops: