Search found 233 matches

by zen2010
Sat Mar 27, 2010 8:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and breathing issues/problems
Replies: 12
Views: 2997

Hi Kar1, I was also diagnosed with CCSVI and I also have breathing issues One week ago, I tried to sing a song I like but I could not as I could not breathe enough! The way I speak is also affected by this problem. The idea from Jozee looks interesting as I saw many soccer players using small bandag...
by zen2010
Sat Mar 27, 2010 8:10 pm
Forum: General Discussion
Topic: ms symptoms getting worst after a long rest?
Replies: 9
Views: 1575

Hi L,
I do practice IBT (my bed is raised since a few weeks) but I still feel bad after a long rest. So I guess I’d better avoid long naps :(
by zen2010
Sat Mar 27, 2010 4:46 am
Forum: General Discussion
Topic: ms symptoms getting worst after a long rest?
Replies: 9
Views: 1575

ms symptoms getting worst after a long rest?

Hi, I noticed that after a very long rest, my ms symptoms get worst. On Saturday, I usually get up late and enjoy a long nap. If I decide after that, to go out for a while, I feel terrible, I can barely walk and I also feel I just want to get back home. I remember the neurologist telling me “ you mu...
by zen2010
Wed Mar 24, 2010 7:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 199140

Andrew and others, I dont know if I should be starting a new on this. This is something that is bugging me about IBT and CCSVI. In the light of CCSVI discovery, does anyone here think that there is a need to relook at ITB. That is, is IBT most beneficial for patients with: 1) issues in IJV 2) exter...
by zen2010
Mon Mar 22, 2010 10:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment in Spain!
Replies: 10
Views: 3731

CCSVI treatment in Spain!

Seen on the French forum (ARSEP): Link: http://www.gizmag.com/ccsvi-multiple-sc%20...%20oni/13447/ (one guy spoke about what’s going on in Spain regarding MS and blood flow) I am an M.S patient for 18 years. And an M.S researches for 10 years. I am electronic engineer and a university teacher. If yo...
by zen2010
Thu Mar 18, 2010 7:55 pm
Forum: General Discussion
Topic: migrane as a first symptom of ms
Replies: 29
Views: 4219

Migrain was also my first ms symptom. However, these migrains were somehow kind of unusual. They were occurring every day/several times per day at the same time with the visual aura and then nasty one-sided headache. During this difficult time (6 months) I had my first relapse, followed by a progres...
by zen2010
Tue Mar 16, 2010 8:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Primary Progressive and accidents
Replies: 34
Views: 8186

Hi there,

Yup, similar story happened to me. I had a car accident in 2007 and I was diagnosed with pms in 2009. Although I was not hurt physically in the accident, I was really shocked 8O

Maybe there is also a link between emotional shocks and ms…
by zen2010
Mon Mar 15, 2010 11:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 199140

Hi everybody, I just joined the IBT users :) I was diagnosed Progressive MS in last September. I read somewhere in the topic that sleeping “flat” only one day can stop the ibt effects for several weeks! So I can not follow this therapy as I would like, cause I can not avoid flat beds (I sometimes ha...