Search found 103 matches

by msgator
Wed Jul 21, 2010 7:15 am
Forum: General Discussion
Topic: Pregnancy????
Replies: 18
Views: 3120

when I spoke to my OB about CCSVI, he thought it made sense because progesterone is a smooth muscle relaxant (veins are smooth muscles), something about the blood volume increase and possibly the baby requiring extra iron. Also what Lyon wrote about the immune system powering down as to not reject t...
by msgator
Tue Jul 20, 2010 6:13 am
Forum: General Discussion
Topic: how long to diagnose?
Replies: 5
Views: 1704

it took three years for me to get diagnosed (the week after my 24th birthday) I had MRI's of my brain that showed nothing for two years and then finally showed some spots in my spine and had the lumbar puncture (I got lucky and had not issues) to confirm. Good luck. It is a tricky disease, if that i...
by msgator
Wed Jul 14, 2010 5:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Re:
Replies: 49
Views: 10561

oh honey, so sorry to hear the news. Puts yet another kink in the life plans doesn't it. Sending you healing thoughts from across the atlantic.

Ann
by msgator
Wed Jul 14, 2010 5:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FlashHack is Liberated
Replies: 161
Views: 28507

thanks for the great info. Wishing you much healing and please continue to keep us updated.

Ann
by msgator
Wed Jul 07, 2010 5:19 pm
Forum: General Discussion
Topic: Short Survey for School Project
Replies: 16
Views: 2752

Yes
No
RR
No
No
by msgator
Fri Jul 02, 2010 5:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 8658

keep the updates coming

:)

Ann
by msgator
Mon Jun 28, 2010 5:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 161725

I left a message on the machine a week ago tomorrow and haven't heard anything either.
by msgator
Fri Jun 25, 2010 4:52 pm
Forum: Natural Approach
Topic: all things vitamin D
Replies: 1043
Views: 113002

seems to me like the most important time to take Vit. D is while you are pregnant as most prenatals contain either the 400IU or less dose. Although I guess there is some research that says that it slows the diagnosis, if CCSVI is a congenital anomaly by the time we arrive it is too late to correct t...
by msgator
Fri Jun 25, 2010 4:59 am
Forum: Introductions
Topic: New to the forum
Replies: 2
Views: 1084

have had the itching too. Found nothing that helped. Just had to wait until it went away. Hopefully someone has better advice.

Welcome to TIMS

Ann
by msgator
Wed Jun 23, 2010 6:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1616121

count me in for the $1000, and I bet I can get another from my brother, from my parents and other amounts from other family members and friends.

Ann
by msgator
Tue Jun 22, 2010 11:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1616121

I am flabbergasted. Why can't intelligent human beings realize the urgency and potential of this procedure?? Don't they realize by not having well trained people do this, they are putting patients at risk of having the procedure done badly by someone else.? Have you seen the open letter from the Doc...
by msgator
Sun Jun 20, 2010 11:27 am
Forum: General Discussion
Topic: Opinions sought
Replies: 5
Views: 1519

it took three years to diagnose me in part because they kept doing MRI of only the brain and the finally checked the spine where they found some. I now have them in both locations. Definitely possible to have MS w/o brain lesions. I did have a lumbar puncture to confirm my diagnosis but that was 99 ...
by msgator
Fri Jun 18, 2010 4:47 pm
Forum: Introductions
Topic: New to the site
Replies: 4
Views: 1073

check out the ccsvi thread on this site. there is a lot of information from people who have had the procedure in various places there.
by msgator
Thu Jun 17, 2010 5:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Childbearing advice after CCSVI treatment?
Replies: 11
Views: 2938

I had two full term pregnancies during MS and felt fabulous the entire time. Even people w/out MS have very different pregnancy experiences.

Ann
by msgator
Wed Jun 16, 2010 5:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Pregnancy
Replies: 6
Views: 1337

I am planning to try for a third baby after liberation. I know that you will need to wait until you are done taking anti-coagulants and any other drugs that are counterindicated during pregnancy. Stenting would increase the wait time.

Probably wouldn't hurt to ask a doctor though.