Search found 46 matches

by Sweetyhide
Sun Jan 06, 2008 4:54 am
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

My syringe was never hidden from me either.

my take on the whole thing is there was chatter about the different colors and someone realized that might not be a good thing. So now they are trying to keep it from view.
by Sweetyhide
Thu Jan 03, 2008 2:54 am
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

69 is not all that magical. it's not what its cracked up to be! -sorry! couldn't resist :lol: Hiya, Jane! yeah i was disapointed also. I was under the assumption that all those vials throughout the study was for tests. I never considered that they could use that blood for anything other. Is it quite...
by Sweetyhide
Wed Jan 02, 2008 3:40 am
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN ROLE CALL
Replies: 339
Views: 51263

Come to think of it, my coordinator told me the same thing Flip.
by Sweetyhide
Tue Jan 01, 2008 3:04 am
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN ROLE CALL
Replies: 339
Views: 51263

Wow..nice summary Lyon.
Thanks for taking the time to do that.
I know for me it's hard to remember everyone and how they are doing and where they are in the study.

Happy New Year to everyone!
by Sweetyhide
Fri Dec 28, 2007 12:54 pm
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

I knew after I sent that message I might be putting my foot in my mouth! Sorry Loobie! Don't know why I thought you were female. I am sure I got you mixed up with someone else here. Lyon, The dry spell hasn't been all that dandy, but it's not been bad either. I am just so sick of waiting for the "kn...
by Sweetyhide
Fri Dec 28, 2007 4:08 am
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

I agree with you, so lets include all the odds. Including the chance that you are on placebo (30%? isn't it) so, the 90+% of Tovaxin (unproven) drops to that below the clinically proven effectiveness of Tysabri (>70% I think). You can take out the placebo factor for Loobie. The rollover study is th...
by Sweetyhide
Fri Nov 23, 2007 2:23 am
Forum: Tcelna (Tovaxin)
Topic: News about Opexa
Replies: 36
Views: 11618

Hey MaggieMae!

Seems I have lost some entrys on my blog :(
I did a quick update: http://360.yahoo.com/sweetyhide

I am doing well actually.
Excited about the extension. Like a child waiting for Christmas morning.
:D
by Sweetyhide
Wed Nov 21, 2007 5:30 am
Forum: Tcelna (Tovaxin)
Topic: News about Opexa
Replies: 36
Views: 11618

I just talked to my coordinator yesterday to make my next appt (I am currently waiting out that big 8 week gap) and she told me the extension study protocol is finally in and we will talk about it at my 12/11 appt. Seems this year has went by at a snails pace! http://i174.photobucket.com/albums/w90/...
by Sweetyhide
Thu Jul 12, 2007 3:16 am
Forum: Tcelna (Tovaxin)
Topic: Tovaxin and fatigue
Replies: 28
Views: 7037

I am more awake now than before, but my fatigue is still a pest.
Insomnia is not the perfect trade off, luckily it come in waves.

Again I have no idea if I am on the placebo and all that is happening could be my natural course.

MRI today and last shot scheduled next week!
by Sweetyhide
Mon Jun 18, 2007 5:02 am
Forum: Tcelna (Tovaxin)
Topic: RESULTS WILL VARY!
Replies: 144
Views: 30622

Re: RESULTS WILL VARY!

Excellent post Tim. I have to admit that in the beginning I was guilty of looking for major improvement or any amount of improvement, even when I knew that was likely not going to happen. Could it be that we are just desperate for something to actually work? My husband and I had a long talk last nig...
by Sweetyhide
Sat Jun 16, 2007 7:47 pm
Forum: Tcelna (Tovaxin)
Topic: First injection of Tovaxin?/placebo
Replies: 13
Views: 3634

LOL Lyon! I guess I could be a hairy truck driver, but you have to take my word that I am a smooth secretary. :wink: I agree with your thoughts. Like you said, and Tim, it's not very likely that we will hear about dramtic improvements or should look for immediate results. I totally thought in the be...
by Sweetyhide
Sat Jun 16, 2007 7:37 pm
Forum: Tcelna (Tovaxin)
Topic: Tovaxin Users
Replies: 96
Views: 47934

HavingMS, The numbers are stumping me I think. You get your second shot but will soon go down to Houston for the 6th shot? Maybe I am really confused. I have significant cognitive issues and I just cant sort out what you mean. You were in the phase 2 and now you are in phase 2b? Is that what you mea...
by Sweetyhide
Sat Jun 16, 2007 5:02 am
Forum: Tcelna (Tovaxin)
Topic: First injection of Tovaxin?/placebo
Replies: 13
Views: 3634

I agree that results for this leg in the trial may not show very dramatic changes although some of my changes are very dramtic to me. I was sleeping, on average, about 13-14 a day. Now I average about 7-8 (when insomnia is not present). It is totally possible this is my normal course of MS fatigue c...
by Sweetyhide
Fri Jun 15, 2007 6:02 pm
Forum: Tcelna (Tovaxin)
Topic: My Tovaxin Experience so far
Replies: 59
Views: 13512

Hi Jane!
Good to see you here.
Did you bring cheetos with you? :wink:
by Sweetyhide
Tue May 29, 2007 10:29 am
Forum: Tcelna (Tovaxin)
Topic: Tovaxin Users
Replies: 96
Views: 47934

When did you receive your first vaccination?

01-30-07

What was your overall experience? Did you get better or worse?

I got worse, then between shot 2 and 3 I noticed small improvements and more each week.

What side effects did you notice?

None at all.