Tysabri (Antegren or Natalizumab)

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Experiences with Tysabri

Last post by koneall « Sat Oct 07, 2017 7:39 am
Replies: 66
by Arron » Wed Mar 29, 2006 10:11 am
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First post

This is a call for our members who currently are, or previously have taken, Tysabri for the treatment of MS to please share your experiences with the...

Last post

Ultrasound shows no clots in the arm or shoulder or rib cage. But still painful. The doctor says it might be phlebitis. Which means I have to live...
66 Replies

63520 Views

Last post by koneall
Sat Oct 07, 2017 7:39 am
Tysabri Prescribing Information

Last post by NHE « Sat Jul 16, 2016 10:54 pm

by NHE » Sat Jul 16, 2016 10:54 pm

Tysabri Prescribing Information

0 Replies

5327 Views

Last post by NHE
Sat Jul 16, 2016 10:54 pm
Tysabri only i try what next ?

Last post by Scott1 « Sun May 09, 2021 7:15 pm
Replies: 9
by Weneedhope » Sat Dec 19, 2020 5:48 pm

First post

hi all

i like to know what after Tysabri

i am new this game my guess i be live with m.s for over 25 years

is too late 44 now and male i found...

Last post

Hi,

What has your neurologist suggested to you?

Regards,

9 Replies

537 Views

Last post by Scott1
Sun May 09, 2021 7:15 pm
Gray matter atrophy

Last post by Petr75 « Sun Feb 14, 2021 1:42 am
Replies: 6
by Petr75 » Fri Jan 11, 2019 1:08 pm

First post

2018 Dec 21
Division of Clinical Neurosciences, Turku University Hospital and University of Turku, Turku, Finland.
Department of Neurology, Oregon...

Last post

2021 Feb 2
Department of Radiology, Research Imaging Institute , Joe R. and Teresa Lozano Long School of Medicine , R.S.R., B.T., P.T.F.), and...

6 Replies

4127 Views

Last post by Petr75
Sun Feb 14, 2021 1:42 am
Chickenpox

Last post by Petr75 « Sun Feb 14, 2021 12:42 am
Replies: 3
by Researcher » Wed Dec 05, 2012 7:24 am

First post

I am very interested in MS and hopefully they will eventually find a cure. My brother was diagnosed at the age of 28. He has a very aggressive and...

Last post

2021 Jan
Department of Public Health (Abouelyazid, Wassel), Faculty of Medicine, Mansoura University, Egypt
Risk factors of multiple sclerosis in...

3 Replies

2633 Views

Last post by Petr75
Sun Feb 14, 2021 12:42 am
Tysabri long-term use anyone?

Last post by odin1243 « Mon Jun 04, 2018 1:19 pm
Replies: 20
by VHighland » Sun Mar 11, 2012 9:37 am
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First post

I've been on Tysabri for over seven (7) years. I've had almost 100 infusions. I was part of the clinical trial beginning (for me) Aug 2002 and went...

Last post

Thanks everyone who took the time to reply. My doctor recently contacted me to ask if I wanted to continue on the Tysabri. This was after I had some...
20 Replies

21944 Views

Last post by odin1243
Mon Jun 04, 2018 1:19 pm
PML Cases Now Reach 486

Last post by surendermca04 « Wed Mar 07, 2018 9:11 am
Replies: 7
by HarryZ » Sat Aug 23, 2014 4:50 am

First post

A rather large jump this past month in Tysabri related PML cases...up 11 to a new total of 486. Not known if any additional deaths were involved....

Last post

I was taking but I quite after 3 dose and feeling this is not working with me and also scared about the side effects.
Now I am handle symptom...

7 Replies

6183 Views

Last post by surendermca04
Wed Mar 07, 2018 9:11 am
The cost of your Tysabri infusion?

Last post by NHE « Tue Feb 27, 2018 1:10 am
Replies: 22
by Glavata » Wed May 26, 2010 3:04 pm
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First post

Hello,

I am 22 years old and I was diagnosed with MS around 7-8 months ago. My doctor put me on Tysabri for 6 infusions after which I will switch to...

Last post

Hi Sebastiann,
I can't answer your question except to suggest that you get things setup in advance of your move with your employer and your wife's...
22 Replies

35026 Views

Last post by NHE
Tue Feb 27, 2018 1:10 am
Risks associated between MS drug natalizumab and pregnancy

Last post by MSUK « Tue Feb 20, 2018 5:44 am

by MSUK » Tue Feb 20, 2018 5:44 am

Study reveals the risks associated between MS drug natalizumab and pregnancy

A recent study, published in the journal Neurology, assessed foetal...

0 Replies

2147 Views

Last post by MSUK
Tue Feb 20, 2018 5:44 am
Changing natalizumab dosing frequency reduced risk for PML

Last post by ElliotB « Wed Feb 07, 2018 5:45 am
Replies: 1
by MSUK » Wed Feb 07, 2018 3:21 am

First post

Changing natalizumab dosing frequency reduced risk for Progressive Multifocal Leukoencephalopathy (PML)

A commonly-prescribed multiple sclerosis...

Last post

I have to wonder why anyone would take a medication known to cause or potentially cause something as serious as PML. This is not the only medication...

1 Replies

2201 Views

Last post by ElliotB
Wed Feb 07, 2018 5:45 am
Olfactory hallucinations

Last post by koneall « Wed Oct 11, 2017 8:05 pm

by koneall » Wed Oct 11, 2017 8:05 pm

These are phantom scents. For me they were severe in college during finals. They're often a familiar odor but not something I can describe. I could...

0 Replies

2902 Views

Last post by koneall
Wed Oct 11, 2017 8:05 pm
Allergic reactions

Last post by P4r4d0xxx « Thu Aug 10, 2017 6:40 am
Replies: 10
by stathis » Wed Feb 06, 2008 11:46 pm

First post

Hello to everyone, I am very much aware that this maybe the best forum around the world for MS, so this is the place to place my ...... question...

Last post

I ended up having antibodies to tysabri. I'm now worse off then ever.

10 Replies

9093 Views

Last post by P4r4d0xxx
Thu Aug 10, 2017 6:40 am
RRMS patients experience sustained improvements in QOL...

Last post by MSUK « Wed Aug 02, 2017 7:38 am

by MSUK » Wed Aug 02, 2017 7:38 am

RRMS patients experience sustained improvements in quality of life after long-term #Tysabri treatment

A study of RRMS patients, treated with...

0 Replies

2457 Views

Last post by MSUK
Wed Aug 02, 2017 7:38 am
Tysabri Law Suit

Last post by Xenova « Sat Apr 01, 2017 5:30 pm
Replies: 4
by MomJ » Wed Jan 21, 2015 9:38 pm

First post

Does anyone know the name of a good law firm or lawyer working on tysabri lawsuits -PML?

Last post

Isn't there a black box warning that PML may develop along with papers you have to sign acknowledging that? Sounds like a tough law suit to win....

4 Replies

4651 Views

Last post by Xenova
Sat Apr 01, 2017 5:30 pm
Detecting PML early could lessen damage to MS patients...

Last post by MSUK « Tue Jan 17, 2017 5:48 am

by MSUK » Tue Jan 17, 2017 5:48 am

Detecting PML early could lessen damage to MS patients using Tysabri

A recent study has found that early detection of Progressive Multifocal...

0 Replies

3370 Views

Last post by MSUK
Tue Jan 17, 2017 5:48 am
Natalizumab as a first line of treatment any advice?

Last post by saisriharsha « Tue Jan 10, 2017 7:21 pm
Replies: 7
by saisriharsha » Wed May 18, 2016 5:13 am

First post

Hi All,

I had been recently diagnosed as a case of Multiple sclerosis with active inflammation and had my first attack a month ago. Intravenous...

Last post

Thanks a lot for the advice and wish the same for you

7 Replies

4345 Views

Last post by saisriharsha
Tue Jan 10, 2017 7:21 pm
Tysabri may be more effective than Gilenya...

Last post by MSUK « Fri Oct 07, 2016 12:13 am

by MSUK » Fri Oct 07, 2016 12:13 am

Tysabri may be more effective than Gilenya at reducing disease activity in MS patients, study says

An indirect comparison of results from randomised...

0 Replies

3484 Views

Last post by MSUK
Fri Oct 07, 2016 12:13 am
Tysabri Treatment-Good or Bad?

Last post by lyndacarol « Thu Jul 21, 2016 4:05 pm
Replies: 15
by wesley199 » Thu Feb 16, 2012 7:55 pm
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First post

I don't personally have MS. But my fiance does. She's currently in the hospital right now. The doctors found 5 new lesions on her brain and right now...

Last post

My mother and I were doing some research of our own about Tysabri, and came across your post. I haven't read all the replies, but after reading your...
15 Replies

13086 Views

Last post by lyndacarol
Thu Jul 21, 2016 4:05 pm
JC Virus ‘carries mutation that amplifies PML’

Last post by MSUK « Tue May 24, 2016 6:07 am

by MSUK » Tue May 24, 2016 6:07 am

A mutation in a mouse model of the John Cunningham (JC) virus, which causes progressive multifocal leukoencephalopathy (PML), allows the virus to...

0 Replies

3210 Views

Last post by MSUK
Tue May 24, 2016 6:07 am
vedolizumab (alternative to natalizumab)

Last post by centenarian100 « Wed May 18, 2016 10:52 am

by centenarian100 » Wed May 18, 2016 10:52 am

Vedolizumab (Entyvio) is an anti-integrin α4β7 approved for inflammatory bowel disease. Could this be used in someone with a natalizumab allergy or...

0 Replies

2935 Views

Last post by centenarian100
Wed May 18, 2016 10:52 am
New to all of this - with lots of questions!

Last post by Lynn56 « Wed May 18, 2016 2:10 am
Replies: 6
by lreynolds » Sat Jan 09, 2016 7:14 am

First post

Hello my name is Lindsey. I am so glad to have found this site and an ability to connect with other MS patients!! I have never known one person with...

Last post

Lindsey, I started having severe heartburn after a course of antibiotics. I started taking probiotics (from the drugstore) with every meal and my...

6 Replies

3927 Views

Last post by Lynn56
Wed May 18, 2016 2:10 am
Tysabri ‘no help in secondary progressive MS’

Last post by MSUK « Tue Apr 26, 2016 2:50 am

by MSUK » Tue Apr 26, 2016 2:50 am

Tysabri didn't slow disability progression in patients with secondary progressive multiple sclerosis (SPMS).
...Read more -

0 Replies

3116 Views

Last post by MSUK
Tue Apr 26, 2016 2:50 am
Imaging biomarker diagnoses PML in Tysabri patients

Last post by MSUK « Tue Apr 12, 2016 3:10 am

by MSUK » Tue Apr 12, 2016 3:10 am

A group of T2 weighted hyperintensities that disseminate in what is called a “punctate pattern” (PP) may directly precede the appearance of...

0 Replies

3069 Views

Last post by MSUK
Tue Apr 12, 2016 3:10 am
Considering Tysabri - questions...

Last post by kw202 « Fri Feb 12, 2016 8:37 am
Replies: 13
by kw202 » Tue Jan 12, 2016 11:50 am

First post

Hello,

I won't repeat a lot of my story, which you can read in all of its turn-of-the-screw (updated! new!) glory here:

I got some labs back...

Last post

All right, that's done. It wasn't bad, really. In fact it was fine. The nurse got me on the first stick (BLESS YOU).

The infusion itself gave me a...

13 Replies

5191 Views

Last post by kw202
Fri Feb 12, 2016 8:37 am
Tysabri ‘more effective’ than Gilenya, study claims

Last post by MSUK « Mon Feb 08, 2016 1:23 am

by MSUK » Mon Feb 08, 2016 1:23 am

A retrospective analysis has found Tysabri is more effective than Gilenya in preventing relapses in patients with relapsing-remitting multiple...

0 Replies

3225 Views

Last post by MSUK
Mon Feb 08, 2016 1:23 am
MS drug linked to rising JC virus antibody levels

Last post by MSUK « Thu Jan 28, 2016 3:51 am

by MSUK » Thu Jan 28, 2016 3:51 am

People who take the drug Tysabri for multiple sclerosis may have up to a 10 times greater risk of developing a risk biomarker for activity of a virus...

0 Replies

3101 Views

Last post by MSUK
Thu Jan 28, 2016 3:51 am
PML case reported despite negative JCV test

Last post by MSUK « Fri Jan 15, 2016 1:55 am

by MSUK » Fri Jan 15, 2016 1:55 am

A case of progressive multifocal leukoencephalopathy (PML) associated with Tysabri has been reported in an MS patient who had tested negative for the...

0 Replies

3276 Views

Last post by MSUK
Fri Jan 15, 2016 1:55 am
Studies investigate possible PML vaccine

Last post by MSUK « Tue Jan 05, 2016 6:46 am

by MSUK » Tue Jan 05, 2016 6:46 am

The JC polyomavirus is reported to be a persistent but otherwise asymptomatic kidney infection in a large portion of healthy people. However, in...

0 Replies

3096 Views

Last post by MSUK
Tue Jan 05, 2016 6:46 am
Anyone considering a port for infusions?

Last post by NHE « Tue Dec 29, 2015 5:14 pm
Replies: 4
by MichelleMM » Thu Feb 10, 2005 5:25 am

First post

Hi, Just wondering if anyone was considering a port for the Tysabri infusions. Any long term infusion will be hard on the veins after time and I...

Last post

Here are the three entries from the Dr. Sclafani's Case Studies post.
August 7, 2011

A case of a prominent emissary vein, a stenosed jugular vein,...

4 Replies

5819 Views

Last post by NHE
Tue Dec 29, 2015 5:14 pm
No conclusions over best drug for Multiple Sclerosis

Last post by MSUK « Mon Oct 12, 2015 4:39 am

by MSUK » Mon Oct 12, 2015 4:39 am

Two studies - one from France, the other from Denmark - came to conflicting conclusions about whether Tysabri or Gilenya offers better efficacy,...

0 Replies

3766 Views

Last post by MSUK
Mon Oct 12, 2015 4:39 am
Pregnancy ‘not neuroprotective for women with MS who stop...

Last post by MSUK « Fri Oct 09, 2015 5:45 am

by MSUK » Fri Oct 09, 2015 5:45 am

Pregnancy ‘not neuroprotective for women with MS who stop taking Tysabri’

The possible protective effect of pregnancy on multiple sclerosis activity...

0 Replies

3264 Views

Last post by MSUK
Fri Oct 09, 2015 5:45 am
Tysabri every eight weeks may cut PML risk

Last post by MSUK « Fri Oct 09, 2015 5:34 am

by MSUK » Fri Oct 09, 2015 5:34 am

Preliminary findings from an ongoing study of multiple sclerosis patients suggest the dosing interval for Tysabri can be as much as doubled from the...

0 Replies

3333 Views

Last post by MSUK
Fri Oct 09, 2015 5:34 am
Researchers reveal treatment for rare brain disease

Last post by MSUK « Fri Sep 25, 2015 1:18 am

by MSUK » Fri Sep 25, 2015 1:18 am

Researchers reveal treatment for rare brain disease

The discovery that specific antibodies play a key role in combating the viral infection...

0 Replies

3363 Views

Last post by MSUK
Fri Sep 25, 2015 1:18 am
Study claims Tysabri improves cognitive impairment

Last post by MSUK « Tue Jul 14, 2015 3:23 am

by MSUK » Tue Jul 14, 2015 3:23 am

Researchers in Italy have published findings claiming Tysabri (natalizumab) can improve cognitive impairment in patients with relapsing remitting...

0 Replies

3808 Views

Last post by MSUK
Tue Jul 14, 2015 3:23 am
Low immune system help?

Last post by Greenmachine « Mon Jun 29, 2015 5:55 am
Replies: 2
by Greenmachine » Tue May 05, 2015 7:09 am

First post

I am not sure how taking tysabri affects us as far as getting infections , flus etc. Have we got no immune system at all or is it just very low?

Last post

Thanks Cheerleader, the link was very helpful

2 Replies

3725 Views

Last post by Greenmachine
Mon Jun 29, 2015 5:55 am
Insurance plan cover monthly Tysabri infusion cost

Last post by NHE « Wed Jun 03, 2015 6:52 pm
Replies: 1
by harshil223 » Wed Jun 03, 2015 10:54 am

First post

Hello All

I have been diagnosed with RRMS and having monthly infusion of Tysabri since last two years.
I got to work in new project in USA starting...

Last post

Hello All

I have been diagnosed with RRMS and having monthly infusion of Tysabri since last two years.
I got to work in new project in USA starting...

1 Replies

5597 Views

Last post by NHE
Wed Jun 03, 2015 6:52 pm
Tysabri

Last post by mibsey « Tue May 19, 2015 2:41 am

by mibsey » Tue May 19, 2015 2:41 am

Hi, I'm new to this! discovered this site by accident.
What is the longest anyone has been on Tysabri?
I have been getting it for 7-8 years.
Thoughts?

0 Replies

3640 Views

Last post by mibsey
Tue May 19, 2015 2:41 am
Tysabri review launched in Europe

Last post by MSUK « Mon May 11, 2015 1:30 am

by MSUK » Mon May 11, 2015 1:30 am

In light of growing evidence, the European Medicines Agency (EMA) has been asked to launch a review of the multiple sclerosis drug Tysabri to assess...

0 Replies

3565 Views

Last post by MSUK
Mon May 11, 2015 1:30 am
Increasing Tysabri dosing interval may cut PML risk

Last post by NHE « Fri Apr 24, 2015 11:56 pm
Replies: 1
by MSUK » Thu Apr 23, 2015 7:11 am

First post

Freedom from relapse was maintained in multiple sclerosis patients on Tysabri who received the infusion drug less frequently than the recommended...

Last post

Prior to any flag waving, please note that this is not a randomized double blind controlled trial...
Weinshenker commented that selection of...

1 Replies

3700 Views

Last post by NHE
Fri Apr 24, 2015 11:56 pm
Extending natalizumab up to eight weeks ‘safe and effective’

Last post by MSUK « Tue Apr 21, 2015 1:10 am

by MSUK » Tue Apr 21, 2015 1:10 am

In a study of 1,964 patients with multiple sclerosis, researchers at the NYU Langone Multiple Sclerosis Comprehensive Care Center found that...

0 Replies

3352 Views

Last post by MSUK
Tue Apr 21, 2015 1:10 am
Tsabri creator is devising a new drug

Last post by bookbah « Wed Mar 18, 2015 4:57 pm

by bookbah » Wed Mar 18, 2015 4:57 pm

Tysabri creator Lawrence Steinman of Stanford University has designed a new drug. It is based on 2 studies he published in the US's top journal...

0 Replies

3719 Views

Last post by bookbah
Wed Mar 18, 2015 4:57 pm
Possible biomarker for Tysabri response in MS

Last post by MSUK « Wed Mar 18, 2015 1:19 am

by MSUK » Wed Mar 18, 2015 1:19 am

Possible biomarker for Tysabri response in MS........ Read More -

0 Replies

3365 Views

Last post by MSUK
Wed Mar 18, 2015 1:19 am
look what can be done when money is on the line

Last post by jerrygallow « Fri Mar 13, 2015 6:43 pm

by jerrygallow » Fri Mar 13, 2015 6:43 pm

with Biogen at risk of losing billions on this blockbuster when patients keep getting PML, it's amazing to me how much progress they have made and...

0 Replies

3593 Views

Last post by jerrygallow
Fri Mar 13, 2015 6:43 pm
Thinking of stopping Tysabri. Thoughts appreciated

Last post by michew « Sat Dec 20, 2014 1:51 pm
Replies: 30
by tt89 » Sun Jan 24, 2010 11:18 am
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First post

Well I had my 8th infusion this month. The only positive thing to having this IV once a month is that I'm only sick a few days vs everyone on the...

Last post

I am thinking about stopping Tysabri also, I have had 3 infusions and I'm not walking any better actually worse that I was before I started it. I was...
30 Replies

18109 Views

Last post by michew
Sat Dec 20, 2014 1:51 pm
MS does not exist You have all been lied to - Big pharma

Last post by jimmylegs « Wed Dec 17, 2014 7:25 am
Replies: 3
by MSBS » Fri Dec 05, 2014 6:41 pm

First post

HERE ARE THE REAL ANSWERS- Google this MS does not exist, what You all have is Lyme parasites, they can be micro tiny and hide even in the white...

Last post

so, notice how this post was doing nothing for 10 days? to me seeing this at the top of the tysabri list was as if it got posted again, was...

3 Replies

4665 Views

Last post by jimmylegs
Wed Dec 17, 2014 7:25 am
Thoughts...

Last post by echo17 « Fri Dec 05, 2014 12:57 pm
Replies: 2
by echo17 » Thu Dec 04, 2014 2:16 pm

First post

I was diagnosed when I was 17 (I'm 26 at the moment). Since then I have been on Avonex, Rebif, Betaseron, and Tecfidera. 4 years ago I had an MRI. I...

Last post

Can you share with us what you have been doing for yourself as far as diet, exercise and supplements?

I don't do anything special diet wise. I...

2 Replies

3823 Views

Last post by echo17
Fri Dec 05, 2014 12:57 pm
Surprised by diagnosis, no symptoms, is Tysabri right for me

Last post by vesta « Sat Nov 29, 2014 11:47 am
Replies: 10
by MomOf4Kids2Dogs » Thu Nov 20, 2014 7:14 am

First post

Hi friends, over the past 3 weeks, after an unexpected MRI result for a different issue showed lesions on C4 and my brain and my spinal fluid was...

Last post

In my opinion, it would be insane to launch into major drug therapy when you aren't even sick. Below are my steps to MS health, which just means...

10 Replies

4900 Views

Last post by vesta
Sat Nov 29, 2014 11:47 am
Two years are up, now what?

Last post by NHE « Thu Nov 27, 2014 9:48 pm
Replies: 5
by jlmned94 » Tue Nov 25, 2014 10:46 am

First post

I have tried copaxone and rebif, but neither one work. Then, I started tysabri. It has worked great, no new lesions or relapses! The bad part is I...

Last post

JVC positive so they said only two years cause after that the risk goes up for getting the virus.
Just to clarify, if you're JCV positive, then you...

5 Replies

3889 Views

Last post by NHE
Thu Nov 27, 2014 9:48 pm
Missing a Dose... what might happen?

Last post by cb1998 « Wed Nov 19, 2014 1:29 pm
Replies: 3
by cpencak » Fri Jul 25, 2014 7:51 am

First post

Good Morning people! - My purpose of posting this fourm is to get your experiences and thoughts. Here's a little background information:

I am 21...

Last post

Hi cpencak. Hopefully you've already spoken with your neuro about this but you should be fine. I have been on the big T for more than 4 years now (am...

3 Replies

5225 Views

Last post by cb1998
Wed Nov 19, 2014 1:29 pm
Anti-NMDA may explain some MS mental deficits

Last post by MSUK « Tue Nov 11, 2014 1:30 am

by MSUK » Tue Nov 11, 2014 1:30 am

Prematurely severe cognitive impairment in multiple sclerosis patients could be an effect of autoantibodies against the N-methyl-D-aspartate (NMDA)...

0 Replies

3402 Views

Last post by MSUK
Tue Nov 11, 2014 1:30 am

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