A board to discuss the soon-to-be released drug Campath as a treatment for Multiple Sclerosis
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Last post by NHE
Sat Jul 16, 2016 11:31 pm
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Last post by Scott1
Thu Nov 29, 2018 8:20 pm
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Last post by MSUK
Mon Mar 05, 2018 8:27 am
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Last post by MSUK
Tue Oct 24, 2017 12:15 am
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Day 2 of LEmtrada - Round 2
Replies: 1
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Grumpster » Thu Aug 24, 2017 1:21 pm
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I just finished up day 2 of Lemtrada. Seems to be going ok so far except headache and lack of sleep from steroids. I got Campath during the MS Care...
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Update - the 3 day treatment went fairly well, glued to the ceiling for 3 days on Solumedrol, dizzy and queezy, as expected. Things seemed pretty...
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Last post by Grumpster
Tue Aug 29, 2017 4:18 pm
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Last post by MSUK
Thu Jun 15, 2017 2:42 am
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Thyroid pre-MS and Campath
Replies: 1
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CassidySS » Thu Dec 31, 2015 2:12 pm
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Happy New Year All,
I was wondering whether anyone here has had an underactive/overactive thyroid independent of their MS and still pursued...
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I've been on thyroid replacement since I was 25. My current Dr made me go through a nuke scan which shows that I have almost no thyroid anymore, and...
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Last post by Anunymouse
Thu May 18, 2017 10:42 am
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Lemtrada decision
Replies: 2
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smo3 » Thu Dec 22, 2016 11:35 am
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Hi all,
Just wondering how you made the decision to take the Lemtrada option? I'm being steering towards Lemtrada or Tysabri due to the nature of my...
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FWIW I've been asking for Lemtrada since I was diagnosed. Specialist I was seeing was involved in the trials and said I'd be a perfect candidate, if...
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Last post by Anunymouse
Thu May 18, 2017 10:34 am
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Campath - retreatment after ITP the 1st time??!!
Replies: 7
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Grumpster » Fri Apr 14, 2017 10:41 am
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SO I was in the CARE MS trial and got the high dose for the full week. It was very effective for me neurologically, but after 6 months I got ITP,...
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I saw the hematologist yesterday and we discussed another round of Campath at the low dose. she was the same one that treated me when I got ITP last...
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Last post by Grumpster
Fri May 12, 2017 2:10 pm
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Last post by MSUK
Thu Apr 20, 2017 5:17 am
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Last post by MSUK
Tue Feb 28, 2017 8:18 am
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Infusion related side effects/allergic reactions.
Replies: 3
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sofia » Mon Oct 27, 2014 12:01 am
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I finished my first lot of infusions Friday, today is Monday morning.
I am feeling pretty shite. I am tiered, itching, stinging, blotchy (comes and...
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Hi sofia,
I finished my first lemtrada cycle on february 4 and just discovered your post. How is your ms now doing, 3 years later? Have the side...
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Last post by BavarianStef
Wed Feb 08, 2017 1:03 am
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Last post by MSUK
Tue Feb 07, 2017 3:35 am
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Last post by MSUK
Tue Jan 24, 2017 6:27 am
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Last post by MSUK
Thu Oct 13, 2016 2:13 am
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Hx of cancer and Lemtrada
Replies: 2
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chowder1 » Sun Apr 24, 2016 5:07 pm
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Has anyone with a history of cancer taken Lemtrada?
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Thanks
I have had these checked. I now take a D3 supplement.
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Last post by chowder1
Mon Apr 25, 2016 9:01 am
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Last post by CureOrBust
Tue Mar 01, 2016 3:32 am
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Lemtrada haulted MS
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sarah859 » Mon Feb 22, 2016 2:22 am
Has Lemtrada haulted your MS? Have you suffered any adverse side effects? Thanks
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Last post by sarah859
Mon Feb 22, 2016 2:22 am
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Last post by seeva
Sat Nov 14, 2015 1:52 am
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Lemtrada ‘a permanent therapy’ claims doctor
Replies: 4
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MSUK » Mon Jun 01, 2015 5:27 am
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Speaking at the 2015 Annual Meeting of the Consortium of Multiple Sclerosis Centers in Indianapolis, Indiana, Mr Samuel F. Hunter, MD, PhD, president...
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Ah, that learn me for skim reading.
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Last post by CureOrBust
Tue Oct 13, 2015 12:40 am
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Last post by MSUK
Thu Oct 08, 2015 2:45 am
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Last post by MSUK
Thu Jun 04, 2015 4:38 am
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Last post by MSUK
Fri Apr 24, 2015 4:44 am
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MS drug Lemtrada to be resubmitted to FDA for approval
Replies: 3
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MSUK » Wed Apr 09, 2014 7:19 am
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Nearly four months after the Food and Drug Administration rejected a multiple sclerosis drug developed by Genzyme, citing the clinical trial’s design...
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I was in a Campath trial, got the high dose. It was very effective for my MS symptoms and progression. I have not had any true relapses since I got...
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Last post by Grumpster
Wed Apr 08, 2015 4:28 pm
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Last post by HiCy
Sun Nov 16, 2014 4:36 am
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Campath and hair loss
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Mieke127 » Tue Nov 04, 2014 5:41 am
Since I started using campath, my hair falls out more and more.
This was 3 years ago and i have been wearing a permanent wig for almost a year,...
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Last post by Mieke127
Tue Nov 04, 2014 5:41 am
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MS drugs Lemtrada and Aubagio launched in Ireland
Replies: 3
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MSUK » Tue Sep 02, 2014 11:50 pm
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Genzyme's plans to grow its multiple sclerosis business in Europe continued with the launch of two new treatments in the Republic of Ireland.
The...
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I think that it has opened up a new window in the life of people having multiple sclerosis. Whenever, I read this news, I really very happy....
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Last post by kengriff
Wed Oct 08, 2014 8:57 pm
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Last post by MSUK
Tue Jul 08, 2014 5:15 am
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Last post by MSUK
Tue Jun 03, 2014 7:29 am
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Last post by MSUK
Tue Jun 03, 2014 12:22 am
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NHS patients to get new MS drug
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MSUK » Wed May 28, 2014 5:45 am
- Scientists have spent 25 years developing treatment at Cambridge
- Alemtuzumab infusion is given in two short courses over two years
- Despite...
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Last post by MSUK
Wed May 28, 2014 5:45 am
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Last post by MSUK
Mon May 19, 2014 2:25 am
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Last post by MSUK
Thu May 01, 2014 6:50 am
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Last post by MSUK
Wed Apr 09, 2014 3:44 am
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Lemtrada approved in Canada for treatment of MS
Replies: 1
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MSUK » Fri Dec 13, 2013 7:59 am
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Genzyme, a Sanofi company, announced today that Health Canada has approved Lemtrada (alemtuzumab) for the management of adult patients with relapsing...
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I'm currently taking Avonex, but it's not working. Had a relapse and/or my symptoms are worsening. The MS clinic has recommended I try Lemtrada. Does...
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Last post by jeremy711
Wed Mar 19, 2014 2:13 am
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Last post by MSUK
Tue Feb 04, 2014 8:19 am
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MS drug Lemtrada approved in Australia
Replies: 1
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MSUK » Fri Dec 20, 2013 4:00 am
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Genzyme, a Sanofi company, has announced that the Australian Therapeutic Goods Administration (TGA) has approved Lemtrada (alemtuzumab) for the...
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Where To Go To Treat MS With Lemtrada:
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Last post by ChrisDeMuthJr
Fri Jan 17, 2014 6:07 am
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MS drug Lemtrada investigators protest FDA decision
Replies: 1
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MSUK » Fri Jan 17, 2014 2:00 am
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Several multiple sclerosis (MS) experts who were involved in the clinical development program for alemtuzumab (Lemtrada, Genzyme) have voiced their...
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The FDA Nixes a Pathbreaking Drug for MS:
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Last post by ChrisDeMuthJr
Fri Jan 17, 2014 6:06 am
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Last post by MSUK
Mon Dec 23, 2013 4:58 am
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FDA staff says new oral MS drug Lemtrada may be too risky
Replies: 1
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MSUK » Fri Nov 08, 2013 8:26 am
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Sanofi’s multiple sclerosis treatment Lemtrada may not offer enough benefit to patients to outweigh risks including cancer, U.S. regulators said. The...
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This original posting about Lemtrada seems more accurate than the new one you posted yesterday...............Sarah
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Last post by SarahLonglands
Fri Nov 15, 2013 10:04 am
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Last post by MSUK
Thu Nov 14, 2013 1:22 am
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Got all it's gonna give me
Replies: 1
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ssmme » Tue Jul 16, 2013 8:55 am
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I went to my neuro clinic for my monthly blood draw. The trial coordinator asked me how I was doing since my last dose of alemtuzumab (it's been over...
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Hi Marcia
Just wondering what you decided to do and how you are getting on? X
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Last post by LR1234
Wed Nov 13, 2013 1:58 pm
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Last post by MSUK
Fri Oct 11, 2013 2:52 am
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Oral MS drug Lemtrada approved by European Commission
Replies: 1
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MSUK » Tue Sep 17, 2013 12:27 am
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Genzyme, a Sanofi company announced today that the European Commission has granted marketing authorization for Lemtrada(TM). This follows the August...
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This title is misleading. Lemtrada is an IV infusion, as the stomach would destroy the drug if taken orally.
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Last post by aredmosquito
Sun Sep 22, 2013 8:16 pm
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Last post by MSUK
Fri Jun 28, 2013 5:34 am
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Mechanism found for Alemtuzumab side effect
Replies: 1
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MSUK » Mon May 20, 2013 1:02 am
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Researchers think they may have figured out why a drug that is highly effective against one autoimmune disease can sometimes trigger another.... Read...
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I was really hoping they had found some understanding to the side effect of how some people experience great gains/repair.
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Last post by CureOrBust
Mon May 20, 2013 4:27 pm
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Infusion duration
Replies: 1
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pballer76 » Sat Apr 27, 2013 5:20 am
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I have a simple question for anyone that has been on Lemtrada. How long does each individual
infusion take? Is it about an hour or all day?
I just...
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The infusion takes a few hours. First you have an IV steroid infusion for about an hour to help prevent side effects, then I think it's about 4-5...
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Last post by bee26
Sun May 12, 2013 11:39 pm
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Genzyme boasts of durable response to MS drug Lemtrada
Replies: 2
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MSUK » Fri Mar 22, 2013 2:19 am
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Genzyme boasts of durable response to MS drug Lemtrada
Looking ahead to a prospective FDA approval of its experimental multiple sclerosis drug...
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Lemtrada is the commercial name for alemtuzumab, which had also been approved as Campath to treat leukemia. That cheaper drug, though, was shelved to...
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Last post by euphoniaa
Fri Mar 22, 2013 6:21 am
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Alemtuzumab lessens relapses, improves disability in MS
Replies: 3
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MSUK » Thu Nov 01, 2012 1:27 am
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Alemtuzumab lessens relapses, improves disability in MS - studies
Two new trials offer proof that a leukemia drug long used to treat multiple...
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I'm tired of dinking around with Interferons and Copaxone, but am still highly functional, but getting worse... vision is starting to get seriously...
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Last post by KobeSystem
Mon Mar 11, 2013 9:45 am
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pseudo relapses after Campath
Replies: 8
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Grumpster » Thu Aug 23, 2012 6:33 pm
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I had one high dose of Campath 2-3 years ago. I got ITP and could not have another dose. I have not had any major relapses since the treatment....
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I was on abx for a year or so but did not feel it benefited me so i stopped. So did I.
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Last post by CureOrBust
Fri Oct 19, 2012 5:26 am
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