Campath (Lemtrada, Alemtuzumab)

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Campath worked great for me for 6 months, then RELAPSE CITY

Last post by k6ristin « Mon Dec 14, 2009 4:57 pm
Replies: 23
by LittleLisa » Sun Nov 15, 2009 2:12 pm
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First post

I was in the CAMMS323 trial and I received Campath (although I still do not know the dosage). I was only diagnosed with RRMS for one year and 2...

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HI again,
I used 4-AP off and on @ 1 yr ago; it seemed to work ok. (2x campath & worsening of symptons right after both, then 3mo short of 2nd annual...
23 Replies

6091 Views

Last post by k6ristin
Mon Dec 14, 2009 4:57 pm
Campath round one 6 weeks ago

Last post by teague143 « Thu Nov 26, 2009 1:40 pm
Replies: 3
by teague143 » Tue Oct 20, 2009 6:35 pm

First post

So far no side effects to speak of and to be honest not real sure what to expect. I went into this without any real expectations. I just trusted my...

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Well I'm 8 weeks post infusion and so far I feel the same. I guess I went into this with no expectations and although I still have MS and the cronic...

3 Replies

2631 Views

Last post by teague143
Thu Nov 26, 2009 1:40 pm
Flu shot, post campath: Yes or no?

Last post by queenie « Tue Oct 13, 2009 3:48 pm
Replies: 6
by queenie » Fri Sep 04, 2009 7:27 pm

First post

Okay, so I am an RN. The Dept of Health in my county has mandated all healthcare workers to get vaccinated, or else have a doc's note.
I asked my...

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Yes, leetz, that's right. Dead vaccines only. The new H1N1 is dead, and I plan to get it. The nasal one is live, so just say no!

6 Replies

2698 Views

Last post by queenie
Tue Oct 13, 2009 3:48 pm
awesome results

Last post by queenie « Wed Oct 07, 2009 6:54 pm
Replies: 36
by scorpion » Fri Sep 11, 2009 6:43 pm
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First post

Genzyme Says Follow-up Data From Alemtuzumab Phase 2 Trial Continues To Show Lasting Benefits - Update
9/11/2009 1:32 PM ET

EnCana Revives...

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Yes, they check wbc counts monthly, as well as a slew of other things. My wbc has slowly been climbing, finally breaking 3 at 5 months.
36 Replies

8225 Views

Last post by queenie
Wed Oct 07, 2009 6:54 pm
8 month update, and a long rant.. enjoy....

Last post by queenie « Mon Oct 05, 2009 7:16 pm
Replies: 9
by sugarmomma » Fri Nov 21, 2008 7:16 am

First post

Well it has been 8 months since my first campath infusion.

I actually have been feeling pretty good lately. I can't say it's a miracle drug or that...

Last post

At almost 6 months, I am doing very well.
I no longer have the wierd neuropathic pain in my groin, but still take the cymbalta. I DID cut back from...

9 Replies

4166 Views

Last post by queenie
Mon Oct 05, 2009 7:16 pm
5 month update

Last post by charlie1 « Wed Sep 30, 2009 1:29 pm

by charlie1 » Wed Sep 30, 2009 1:29 pm

well ive past the 5 month mark. no relapses so far, i think... no real changes in symptoms. my chronic sleepiness since december is decreasing...

0 Replies

1892 Views

Last post by charlie1
Wed Sep 30, 2009 1:29 pm
Five month update, shamless self promotion, and a question?

Last post by queenie « Sun Sep 27, 2009 7:09 pm
Replies: 5
by sugarmomma » Wed Aug 13, 2008 9:41 am

First post

Well yesterday marked the five month date of my first Campath infusion. I wish I had more to report about how I feel, but it changes from day to day....

Last post

I am five months post Campath.
My counts dropped to expected levels, and have been rising slowly and consistantly.
I have not been sick once with any...

5 Replies

3107 Views

Last post by queenie
Sun Sep 27, 2009 7:09 pm
A few Campath questions

Last post by raven « Sat Sep 19, 2009 3:10 pm
Replies: 19
by Lars » Thu Jan 01, 2009 11:30 am
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First post

Hello All,
As a recent transfer from the Tovaxin trial, I, like some others am considering the Campath trial. Thanks for all the posted info and...

Last post

Bob,

I'm glad we're still friends and I've never really thought of you as a ditzy blonde.... Is there something you aren't telling me????
19 Replies

6021 Views

Last post by raven
Sat Sep 19, 2009 3:10 pm
Meet a man starting 2nd year of Campath

Last post by queenie « Sun Sep 06, 2009 5:30 pm
Replies: 5
by catfreak » Thu Aug 20, 2009 4:55 am

First post

While I was getting my Tysabri Infusion we met a man and his wife who came in to say hello the infusion nurses. He said he would be back next week to...

Last post

G man:
This is most unfortunate for you!
Who knows? Maybe the campath IS curative, and you will continue to do well. I'll keep my fingers crossed for...

5 Replies

2483 Views

Last post by queenie
Sun Sep 06, 2009 5:30 pm
Second round of infusions start tomorrow

Last post by queenie « Sat Sep 05, 2009 9:11 pm
Replies: 17
by freiguy » Tue Jul 21, 2009 3:09 pm
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First post

Hey everyone,
I start my second round of campath tomorrow. I can't believe it has been a year already. Only three days this time. I hope everyone is...

Last post

Fred, what's the story with finishing your infusions?
I'd want to, even if you hit a speed bump.
17 Replies

4699 Views

Last post by queenie
Sat Sep 05, 2009 9:11 pm
Change in lymphocyte gene expression induced by Campath-1H

Last post by scorpion « Sat Aug 15, 2009 2:47 pm
Replies: 1
by CureOrBust » Sat Aug 15, 2009 4:23 am

First post

Change in lymphocyte gene expression induced by Campath-1H treatment of multiple sclerosis
J.A. Somerfield, J.L. Jones, V.H. Robertson, D.A.S....

Last post

very cool! Thanks.

1 Replies

2090 Views

Last post by scorpion
Sat Aug 15, 2009 2:47 pm
My Campath Story

Last post by queenie « Sun Aug 02, 2009 9:10 am
Replies: 11
by hmtucker » Mon May 18, 2009 12:46 pm

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WOW, what an interesting but very stressful journey to finally get to this point! The short version of the story is that I was a Tovaxin lab rat who...

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Hi, Mike.
I got my infusions the last week in April, and I'm feeling pretty good. I've been biking 5 miles at a clip on the w/es, and last Sunday I...

11 Replies

3683 Views

Last post by queenie
Sun Aug 02, 2009 9:10 am
Three month mark

Last post by queenie « Mon Jul 27, 2009 3:10 pm
Replies: 2
by queenie » Tue Jul 14, 2009 12:22 am

First post

I am now nearing the three month mark post campath infusions.
I'm feeling pretty good, in spite of a recent fall that banged me up.
Friday, I return...

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Thanks for the info, Elle! You are the first one to respond to anything I have written, since marcstok first told me about this site!
I have to say,...

2 Replies

1968 Views

Last post by queenie
Mon Jul 27, 2009 3:10 pm
6 months after Campath

Last post by queenie « Sun Jul 05, 2009 6:41 am
Replies: 3
by k6ristin » Wed Sep 24, 2008 6:23 pm

First post

Today was me & Jessica's 6 month check up. I scored 100% on the PASAT math test, and my vision is still awesome at 20/20 & 20/15.
This is the same as...

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Shardenay: I too did not want rebif, and told the study nurse I would drop out if i was randomized to it.
I was lucky,lucky, lucky, and got the...

3 Replies

3193 Views

Last post by queenie
Sun Jul 05, 2009 6:41 am
day five, was friday. today is sunday

Last post by queenie « Sat Jul 04, 2009 12:46 pm
Replies: 5
by sara33 » Sun Jun 28, 2009 7:20 am

First post

went ok, other than i've now got a cold. yuck. so, do i have any immune system or what? nobody seemed to care that i was sick. i had the scary...

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Yes, I am working. I am 52. I took a few years off when my kids were born, but went back P/T almost right away.
Luckily, I got my MSN pretty early,...

5 Replies

2045 Views

Last post by queenie
Sat Jul 04, 2009 12:46 pm
fourth day post campath-rash

Last post by queenie « Fri Jul 03, 2009 9:28 am
Replies: 1
by sara33 » Tue Jun 30, 2009 6:35 pm

First post

got the rash today. looks like little pimples all over the fronts of my shoulders. doesn't itch though, which is a good point. i also had to go to...

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I got the rash on day four also; first day without solumedrol. It faded within a day or two, and didn't itch.
Sorry about your cough...

1 Replies

2007 Views

Last post by queenie
Fri Jul 03, 2009 9:28 am
new to the forum but had first set of infusions in april

Last post by queenie « Fri Jul 03, 2009 12:56 am
Replies: 14
by charlie1 » Fri Jun 26, 2009 7:02 pm

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just wondering how people felt two months post infusion, still feel the same symptoms havent decreased, just curious maybe im expecting too much too...

Last post

My doc is terrific; I e-mail him, and he gets back to me in under 24 hours - usually at 5am the next morning
1 My research nurse is okay, also.
And...

14 Replies

3339 Views

Last post by queenie
Fri Jul 03, 2009 12:56 am
day four/yesterday

Last post by sara33 « Sun Jun 28, 2009 7:28 am
Replies: 2
by sara33 » Fri Jun 26, 2009 3:34 am

First post

so yesterday was good, in that there were no steroids. so no gaining another five pounds overnight. but this morning, my joints are KILLING ME. and...

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thanks quenie:). i think i sweated out most of the steroids night before last. i woke up dripping wet. disgusting. ewwie. i wrote today of my last...

2 Replies

1863 Views

Last post by sara33
Sun Jun 28, 2009 7:28 am
third day of campath done. yahoo-eee

Last post by sara33 « Wed Jun 24, 2009 6:50 pm
Replies: 2
by sara33 » Wed Jun 24, 2009 5:15 pm

First post

ok.. i really don't get how to type in bold here... because it really suits my eyes better. but it just does something weird with parentheses stuff...

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thanks lyon. funny your picture there. i've got a bent paperclip structure of a guy doing the same thing except he's getting a bright idea with a...

2 Replies

1861 Views

Last post by sara33
Wed Jun 24, 2009 6:50 pm
day 2 done

Last post by sara33 « Tue Jun 23, 2009 6:32 pm
Replies: 2
by sara33 » Tue Jun 23, 2009 2:17 pm

First post

well today went much faster as the pharmacy actually sent the meds up on time. i was just really sleepy the whole day. around hour three of the...

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yeah, tomorrow should be the last long day, with the steroids and all.

2 Replies

1749 Views

Last post by sara33
Tue Jun 23, 2009 6:32 pm
dose one over

Last post by freiguy « Mon Jun 22, 2009 6:57 pm
Replies: 3
by sara33 » Mon Jun 22, 2009 5:58 pm

First post

did today. how did you people sleep? they were taking my vitals every fifteen minutes. holy cow. my bones hurt. i'm tired. i'm going to bed. little...

Last post

I don't remember the rash being too difficult to deal with. Zyrtec and benedryl knocked it out pretty quick. I am not sure of the bikinizone stuff....

3 Replies

1908 Views

Last post by freiguy
Mon Jun 22, 2009 6:57 pm
i start tomorrow

Last post by sara33 « Mon Jun 22, 2009 5:56 pm
Replies: 4
by sara33 » Sun Jun 21, 2009 10:12 am

First post

so.... i got the campath arm of this thing. which is good, because i hate rebiff with a passion. now i'm kinda scared. i start tomorrow. my husband...

Last post

thanks guys:)

4 Replies

2279 Views

Last post by sara33
Mon Jun 22, 2009 5:56 pm
Treatment after long term RRMS

Last post by queenie « Sat Jun 13, 2009 6:16 pm
Replies: 8
by CureOrBust » Tue Nov 04, 2008 4:39 pm

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I am trying to get Campath off-label. The thing that worries me, even though I am still RRMS, I have had symptoms for over 13 years, with a diagnosis...

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i WAS DIAGNOSED IN 2005. hOWEVER, I TRULY BELIEVED i HAVE HAD SYMPTOMS SINCE AT LEAST 1988, WHEN DD was born. If not then, then 2090, when I had a 5...

8 Replies

3441 Views

Last post by queenie
Sat Jun 13, 2009 6:16 pm
Campath feedback please

Last post by queenie « Thu Jun 04, 2009 5:53 pm
Replies: 17
by hmtucker » Mon Feb 23, 2009 8:55 am
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Hello all,

I am new to the Campath forum but some of you may recognize me from the Tovaxin forum. I want to for some feedback from you folks,...

Last post

Mike: I am about 1 1/2 months out of my first year campath infusions(the 5 in a row). I knew I would drop out if I was randomized to rebif, and was...
17 Replies

5691 Views

Last post by queenie
Thu Jun 04, 2009 5:53 pm
In the Phase 3 Campath study!

Last post by queenie « Wed Jun 03, 2009 3:48 pm

by queenie » Wed Jun 03, 2009 3:48 pm

So I needed to switch tx after 4 years on copaxone. Doc recommended I choose between tysabri and Campath, as he is involved in the study. It was a...

0 Replies

1869 Views

Last post by queenie
Wed Jun 03, 2009 3:48 pm
Genzyme

Last post by robbie « Tue Jun 02, 2009 6:13 am

by robbie » Tue Jun 02, 2009 6:13 am

0 Replies

1863 Views

Last post by robbie
Tue Jun 02, 2009 6:13 am
possibly joining the ranks of campath testers...

Last post by sara33 « Fri May 29, 2009 1:57 pm
Replies: 3
by sara33 » Thu May 28, 2009 7:15 pm

First post

hello all. i'm sara, 33... i will find out on the 15 of june if i get the campath or the rebiff. i'm actually hoping for the camp. as i've been on...

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oh good! a response:) i hope i get on the campath side too. i was on rebiff once before and hated it. the first time i had this period that didn't...

3 Replies

1851 Views

Last post by sara33
Fri May 29, 2009 1:57 pm
David's story update

Last post by bromley « Fri May 29, 2009 3:32 am

by bromley » Fri May 29, 2009 3:32 am

David is a Campath recipient who set up a website to share his experience. Partly as a result of his diary I went for the Campath option. David has...

0 Replies

2074 Views

Last post by bromley
Fri May 29, 2009 3:32 am
Any updates?

Last post by freiguy « Wed May 20, 2009 6:04 pm
Replies: 1
by patientx » Sun May 17, 2009 5:44 pm

First post

Any updates/reports from the Campath recipients?

Last post

Not much to report which is a good thing. Blood counts all look good. 1 year MRI of brain and spine coming up in the next few weeks and then round 2...

1 Replies

1797 Views

Last post by freiguy
Wed May 20, 2009 6:04 pm
I have a decision to make

Last post by freiguy « Mon Apr 27, 2009 6:49 pm
Replies: 2
by ShadyPines » Thu Apr 23, 2009 2:36 pm

First post

I am unsure what to do about the Phase 3 Alemtuzumab study. I have been approved for it, but have not yet done the Screening and Baseline visits....

Last post

Where do you live?

2 Replies

1784 Views

Last post by freiguy
Mon Apr 27, 2009 6:49 pm
one week after campath

Last post by Grumpster « Thu Apr 09, 2009 4:48 pm
Replies: 5
by k6ristin » Wed Mar 25, 2009 1:13 pm

First post

I went into the Neuro's office today, 'cause I just can't get my legs to work right. They're super duper spastic and the dropped foot is way worse....

Last post

I everyone will say oh how are you and be expecting this miraculous thing , when in fact i'm way worse and it'll take some re-explaining....they have...

5 Replies

2570 Views

Last post by Grumpster
Thu Apr 09, 2009 4:48 pm
Second Campath infusion

Last post by k6ristin « Sun Mar 22, 2009 8:59 am
Replies: 1
by k6ristin » Fri Mar 20, 2009 10:46 am

First post

I detailed the experience @ www.myspace.com/chilliwacklove under my blog, it's public so read it if you're interested. The 3rd and final infusion was...

Last post

My skin's just a rosy red. A little itchy. Only taking 12.5mg benadryl 1-2 times a day.
Getting a tummy ache whenever I eat something that isn't MS...

1 Replies

1872 Views

Last post by k6ristin
Sun Mar 22, 2009 8:59 am
Freiguy....

Last post by patientx « Thu Mar 19, 2009 8:03 am

by patientx » Thu Mar 19, 2009 8:03 am

Freiguy, if you happen to be checking in, I sent you a PM.

0 Replies

1675 Views

Last post by patientx
Thu Mar 19, 2009 8:03 am
second dose day two

Last post by sugarmomma « Tue Mar 17, 2009 6:30 am

by sugarmomma » Tue Mar 17, 2009 6:30 am

I have in IV in my right wrist, so it is hard for me to type. Therefore, I not sure how long this post will be. Yesterday the infusion went ok....

0 Replies

1710 Views

Last post by sugarmomma
Tue Mar 17, 2009 6:30 am
Second dose.....tomorrow

Last post by ssmme « Mon Mar 16, 2009 6:02 am
Replies: 3
by sugarmomma » Sun Mar 15, 2009 4:05 am

First post

Well Kristin and I go for our second dose of Campath tomorrow. It has almost been one year to date since our last infusion. Our MRIs showed good...

Last post

You make me feel very comfortable in my decision for joining CARE MS II. I had my first week of treatment at the beginning of March. Keep reporting...

3 Replies

1963 Views

Last post by ssmme
Mon Mar 16, 2009 6:02 am
Campath research

Last post by robbie « Sun Mar 08, 2009 6:44 am
Replies: 1
by bromley » Sun Mar 08, 2009 4:04 am

First post

Given that a number of people have received this treatment / are thinking about it, here is an abstract of some research to be presented in April...

Last post

early, active RRMS
do you not get better anyway Ian i saw that to enter the trial it was 1 relapse a year, i thought it was more than that. how are...

1 Replies

1899 Views

Last post by robbie
Sun Mar 08, 2009 6:44 am
finally OUT part 1

Last post by Lars « Fri Mar 06, 2009 12:56 pm
Replies: 9
by Lars » Tue Mar 03, 2009 5:20 pm

First post

Well the fine folks at Genzyme have given me the boot. I am apparently not treatment naive because of the 28 days I was in the open label with...

Last post

Marcia,
Could I burden you one more time for your clinic's phone #?
Be Well,
Lars

9 Replies

2356 Views

Last post by Lars
Fri Mar 06, 2009 12:56 pm
finally in part 2

Last post by k6ristin « Fri Feb 20, 2009 7:10 pm
Replies: 7
by Lars » Tue Feb 17, 2009 10:07 pm

First post

Signed consent forms today (Doc scared the shit out of me). A question to those of you in the know, how long after treatment did it take to get back...

Last post

At month 9 declared myself improved and was able to document so at the 9month exam. Told stories of energy & ability to playfully run after 3 yr old...

7 Replies

2710 Views

Last post by k6ristin
Fri Feb 20, 2009 7:10 pm
Finally in

Last post by freiguy « Fri Feb 13, 2009 5:28 am
Replies: 25
by Lars » Fri Feb 06, 2009 12:00 pm
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First post

After what seems like months of waiting for the call and the issues related to my participation in the Tovaxin trial, I finally got the OK from my...

Last post

Patientx,
I sent a PM the other night. Catch you later.
25 Replies

4750 Views

Last post by freiguy
Fri Feb 13, 2009 5:28 am
I am in the trial, but got questions

Last post by ssmme « Fri Jan 23, 2009 8:46 am
Replies: 2
by Grumpster » Thu Jan 22, 2009 8:13 pm

First post

I have been accepted into the trial after a battery of tests the other day. The coordinator said to stop the Rebif crap from hell that i am on now to...

Last post

I know its frustrating but they have to follow a specific protocol and the method is to wash from all treatment prior to beginning initial treatment...

2 Replies

1852 Views

Last post by ssmme
Fri Jan 23, 2009 8:46 am
Article on Campath

Last post by lionheart « Sat Jan 17, 2009 6:23 am
Replies: 3
by bromley » Fri Jan 16, 2009 7:58 am

First post

Positve, but realistic article on effectiveness of Camapth.

Buzz around Campath proof-of-concept trial in MS 16 January 2009

When news broke in...

Last post

I was thinking about Campath, perhaps it's been posted somewhere here, but does it shut down your immune system?...which makes you susceptible to...

3 Replies

2021 Views

Last post by lionheart
Sat Jan 17, 2009 6:23 am
Campath research articles

Last post by patientx « Thu Jan 15, 2009 4:52 pm
Replies: 4
by bromley » Mon Jan 05, 2009 2:30 am

First post

First thing - happy New Year.

A belated Christmas present for Lyon and others.

Here is a link to Dr Alasdair Coles which give an overview of his...

Last post

Campath targets the CD52 protein, which is found on both T and B cells.

What doesn't make sense to me is, if MS is a T-cell mediated disease, then...

4 Replies

2111 Views

Last post by patientx
Thu Jan 15, 2009 4:52 pm
Day 4 of my campath infusion!

Last post by freiguy « Mon Jan 12, 2009 3:03 pm
Replies: 4
by Alli » Thu Jan 08, 2009 7:17 am

First post

I'm on day 4 and it's going MUCH better than expected. I was diagnosed in Sept 08 and started campath off-label Jan 5, 2009. Only minor side effect...

Last post

Alli,
Good to here things are well. I got my first infusions in July 2008 and so far everything is going well. I wish you the best.

4 Replies

2203 Views

Last post by freiguy
Mon Jan 12, 2009 3:03 pm
Campath trial

Last post by freiguy « Thu Jan 01, 2009 8:24 am
Replies: 7
by ssmme » Tue Dec 30, 2008 4:15 pm

First post

I got a phone call today from my neurologists office asking me if I'd be interested in this study. They are already approved as a trial site for the...

Last post

As far as the CAMMS323 trial - if you randomize to rebif then you will be in that arm until the trial is over. After the trial concludes and...

7 Replies

2190 Views

Last post by freiguy
Thu Jan 01, 2009 8:24 am
just back from my pre-screening

Last post by k6ristin « Sat Dec 27, 2008 5:39 pm
Replies: 3
by Grumpster » Thu Dec 18, 2008 4:02 pm

First post

I just got back from my pre-trial screening. The site I am looking at is in the final stages of hopefully getting approved. I should know by next...

Last post

Grumpster,
The thyroid condition is treatable, but it does require daily medication. As mentioned in previous post, your blood is tested every single...

3 Replies

1919 Views

Last post by k6ristin
Sat Dec 27, 2008 5:39 pm
almost a week after the last Campath infusion

Last post by Grumpster « Sat Dec 20, 2008 4:30 pm
Replies: 14
by sugarmomma » Thu Mar 27, 2008 5:27 am

First post

well, I am not going to lie. The whole Campath experience was worse than I expected. By the fifth day, Kristin and I were just over the whole...

Last post

Oh yes, Best of luck with round #2 sugarmomma. Thanks for the post! I am gaining back my optomism about the trial!!

14 Replies

5192 Views

Last post by Grumpster
Sat Dec 20, 2008 4:30 pm
Talked to my Dr about campath

Last post by catfreak « Mon Dec 08, 2008 8:38 pm

by catfreak » Mon Dec 08, 2008 8:38 pm

He does the most recent 2 clinical trails for Campath and he says things are looking great for the drug as a true major MS treatment. He said it was...

0 Replies

1784 Views

Last post by catfreak
Mon Dec 08, 2008 8:38 pm
Another Trial Participant story

Last post by CureOrBust « Tue Nov 04, 2008 4:30 pm
Replies: 7
by sweetC » Tue Jun 24, 2008 9:11 pm

First post

Hi guys,

Just signed up for the Campath trial May '08. Finished my 5 day infusion 6/20/08.

Almost got excluded due to low lymphocyte count on the...

Last post

Good luck, I hope to follow you soon. But I am planning a celebration for when it works, the odds are on our side. :D

This is a bet, if it were in...

7 Replies

3300 Views

Last post by CureOrBust
Tue Nov 04, 2008 4:30 pm
Allergies and Campath, update 6 months after Campath

Last post by Lyon « Tue Nov 04, 2008 2:06 pm
Replies: 30
by Fighter » Thu Oct 23, 2008 10:33 am
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First post

Hello, I received Campath off lable in April of this year. It is very true that the reasurch trials have shown promising results for RRMS. Some...

Last post

Thanks Ursula,
Actually I'm pretty sure that the study(ies) you mention must have started in about 2005 because the guy who owns Ovamed made me aware...
30 Replies

10205 Views

Last post by Lyon
Tue Nov 04, 2008 2:06 pm
Dr Alasdair Coles explains Campath on you tube

Last post by superman « Mon Nov 03, 2008 2:25 pm

by superman » Mon Nov 03, 2008 2:25 pm

Below youtube videos from Dr Alasdair Coles(leader of the research on Campath) exlains risks and gains from Campath....

0 Replies

2181 Views

Last post by superman
Mon Nov 03, 2008 2:25 pm

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