For questions on how to support loved ones with MS.
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no more-there's nothing left
Replies: 13
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cas » Thu Feb 02, 2017 12:47 pm
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I am so weak. I can hardly get to the bathroom. I use a wheel chair outside apartment. Diagnosed 20 years ago. I feel I have no options. My left side...
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Is there anything personally you couldn't live without JL ?
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Last post by robbie
Mon Nov 25, 2019 4:19 pm
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Friend with MS drinks, talks to themselves constantly
Replies: 6
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Zoldyck » Sat Oct 27, 2018 12:15 pm
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A friend of mine who I help provide care for has been diagnosed with MS for about 5 years. For a while after their diagnosis, even though they had...
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hi z i just noticed the link i had posted was broken so i switched it for something likely similar
my only experience in this area is arm's length...
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Last post by jimmylegs
Tue Sep 10, 2019 9:15 am
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My mom is 75 and has been living with PPMS for 25 years
Replies: 3
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onebravegirl » Tue Mar 06, 2018 2:07 pm
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I have watched my Mom decline for 25 years. She is lucky enough to be living at home with a 24 hour caregiver. She has been non weight bearing for...
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Does she do any exercise or engage in any movement therapy? There are motorized pedal and movement devices which might be of benefit. Here are some...
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Last post by NHE
Fri Mar 09, 2018 1:16 am
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Last post by jimmylegs
Sun Dec 10, 2017 3:42 pm
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Last post by nowwhatmsresearch
Thu Nov 30, 2017 7:10 am
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Relationship advice
Replies: 18
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mayprimrose » Sun Jun 25, 2017 2:47 pm
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This is my first time posting on this forum and would appreciate any input/advice/opinions.
So I have been dating a guy on and off for about 2 years...
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i don't feel like my ex suddenly just saw me as that person with ms. in fact when i got start suddenly there was a lot more caring and niceness which...
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Last post by jimmylegs
Sun Jul 02, 2017 7:19 am
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Need advice on telling others
Replies: 16
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SlowI » Thu Jun 17, 2004 7:43 pm
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I would really appreciate comments on what others have found both successful and unsuccessful in terms of telling others. I have specific fears about...
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When I found out it was because I thought I had a pinched nerve or something. The Doctor kept running tests for different things and they were ruled...
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Last post by MSKarateka
Sat Jul 01, 2017 2:34 pm
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Husband just diagnosed -- what should I expect?
Replies: 1
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ebrownkirkland » Tue May 02, 2017 7:09 am
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Hi everyone. My husband (43--almost 44) was just diagnosed with RRMS this past Friday, April 28. Right now, he is just having occasional spasms in...
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As you stated, the progression of MS is different for everyone and there is just no way to know.
Expect that he may not be able to be the...
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Last post by ElliotB
Tue May 02, 2017 1:45 pm
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New member, new illness
Replies: 8
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jw10216 » Fri Jan 27, 2017 8:50 pm
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Hi there all,
I somehow stumbled upon this website today, and I am glad I did. It seems that you all have been a great support system for each...
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congrats :) had a quick look at tysabri, just mechanism of action:
The drug is believed to work by reducing the ability of inflammatory immune...
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Last post by jimmylegs
Tue Jan 31, 2017 11:25 am
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Calling all caregivers and family!!!!!!!!!!!
Replies: 16
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soapdiva884 » Wed Jan 26, 2011 12:00 pm
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Where are all of the caregivers and family of MS patients????
I am the girlfriend of 6 years to a wonderful, kind, gentle, giving man who has MS. He...
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I have a niece with MS. She was diagnosed when she was 23.
It started out with Optic Neuritis. Once diagnosed she was put on different decease...
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Last post by AuntEllie
Thu May 19, 2016 10:57 am
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Mom with MS-can anybody relate?
Replies: 1
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MusicIsLife » Sun Mar 20, 2016 4:24 pm
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Hi, im new to this site, but you can call me Claire if you want. Currently i am looking for somebody who can maybe just simply relate to what ive...
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Hi, im new to this site, but you can call me Claire if you want. Currently i am looking for somebody who can maybe just simply relate to what ive...
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Last post by lyndacarol
Sun Mar 20, 2016 4:49 pm
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Need some advice
Replies: 8
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sadforhim » Sat May 26, 2012 9:16 am
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My boyfriend was diagnosed with MS this past August.
We had only been living together since May 2011 before he found out, and we were together...
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You have received so much wonderful advice from everyone! Just because he has m.s. Does not give him the right to be abusive. Take care of yourself,...
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Last post by avengr13
Fri Mar 04, 2016 10:42 am
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My mum was diagnosed with MS today... advice please?
Replies: 2
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Leisa82 » Wed Apr 03, 2013 2:35 am
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Hello. My mum and I are very close, she is my best friend, and today we were told that she has MS. I am here hoping someone can offer some advice on...
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I was diagnosed at 23 and am now 52. I was worried about my future. Should I marry? Have children? Take the promotion? Buy a house? If I had worried...
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Last post by avengr13
Fri Mar 04, 2016 10:33 am
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Advice
Replies: 1
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bigjstang » Mon Jul 06, 2015 1:03 am
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Hello all,
I have never been one to really look for support online but i am entering uncharted territory and want to be the best significant other i...
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You sound like an awesome man and you are both lucky!
You are doing the right things by being informed and caring. But as much as you want to, you...
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Last post by avengr13
Thu Feb 25, 2016 11:36 am
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My mothers condition is drastically worsening. Need advice!
Replies: 5
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daughterofms » Wed Sep 18, 2013 10:10 pm
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My mom has had MS for 27 years, since I was 1 year old. She is now completely debilitated and lives in a long term care facility. Although her...
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You sound like a great daughter! I am quite sure that seeing you care so much is so important.
There are somethings you can do that were suggested...
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Last post by avengr13
Thu Feb 25, 2016 11:18 am
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Mom with MS, advice?
Replies: 2
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mahiloa » Sun Feb 21, 2016 7:05 pm
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Hey everyone! My name is Tori, I'm 19 years old, and I'm very new to this site. I really have never talked about this, so I'm just going to spill it,...
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You sound like a great daughter! Is there a school closer to where she lives. Sounds like it might be important to both of you to be closer in...
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Last post by avengr13
Thu Feb 25, 2016 11:05 am
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Infidelity because of MS?
Replies: 19
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nuftin » Fri Jun 21, 2013 10:48 am
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This is my first time to this forum, so forgive me if I am either posting in the wrong place, or shouldn't be posting here at all.
I am a boyfriend...
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Nuftin, this is your time to decide: What do you want? Is it an exclusive relationship where both partners are going to promise fidelity to each...
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Last post by agapetos
Sun Feb 07, 2016 3:32 am
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Trouble in relationship with fiancé
Replies: 1
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Brendanm » Wed Jan 27, 2016 5:47 pm
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My fiancé and I we were having trouble prior to being diagnosed with ms. She says for the past 2 years and I said I thought it was only for the past...
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??
She said its over. I think you should respect her decision (and her). MS has nothing to do with it.
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Last post by Anonymoose
Thu Jan 28, 2016 12:02 pm
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Daughter of mom with MS
Replies: 1
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Scareddaughter13 » Sun Feb 08, 2015 3:40 pm
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Hi all, my mother was diagnosed about a year ago with MS. Before this she was also diagnosed with Fibromyalgia, and Rhumetoid arthritis. Lately her...
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I know this is a very, very tough situation and time for you. And as tough as it is for you, it is 100x tougher for her. Learn to be patient with her...
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Last post by ElliotB
Mon Feb 09, 2015 12:19 am
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Housing and Care for friend in Manhattan
Replies: 1
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brunosterling » Tue Sep 02, 2014 11:40 am
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A friend with MS in Manhattan just ended his relationship of a decade with his partner and caregiver. During the last 10 years his condition has...
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hi and welcome to the forum :) i don't know anything about medicaid but you will likely find useful info via:
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Last post by jimmylegs
Tue Sep 02, 2014 12:15 pm
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Newly Dating a man with MS
Replies: 5
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DCWyo » Fri Jun 20, 2014 6:46 pm
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I have recently started dating a man with MS. He is in a wheel chair most of the time.
It does not bother me in the least that he has MS, but I do...
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My experience only:
1. Ask him what he prefers -- if you offer or if he asks :)
2. Hard to say really without knowing him. People with RRMS are...
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Last post by misslux
Sat Jul 05, 2014 1:48 pm
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Do your friends and family typically check up on you?
Replies: 6
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mattalleng » Tue May 17, 2011 3:00 pm
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Do your friends and family typically check up on you to see how your doing? None of mine do, not my cousins, my aunts, my uncles, my old friends, no...
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I'm fortunate to have an incredible family support system. Most of my friends live in the US but they are in constant contact and strive to learn...
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Last post by misslux
Sat Jul 05, 2014 1:41 pm
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partner ended our relationship
Replies: 11
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bacon » Mon Feb 28, 2011 7:28 pm
First post
Hi
I have just joined the forum. I wanted to share my story, get some advice. And maybe just try to sort my feelings out by writing about my...
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Are you sure Sarah Longlands actually had MS? So many other diseases can look like MS, like Lyme disease, for example. Anyway, the antibiotics would...
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Last post by Choupinette
Mon Jun 30, 2014 9:10 am
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Last post by kpd913
Mon Mar 10, 2014 8:20 am
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Did I take too long to tell him??
Replies: 6
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cubanita1 » Mon Mar 03, 2014 9:23 pm
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Hi everyone. I'm struggling with a relationship issue and hoping you can all shed some light on this. My fiance and I started dating Jan 2013. In...
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Make sure you tell him (truthfully) that, before you could tell him, you had to tell yourself first!
I wish the best for both of you, and I hear...
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Last post by BadKittyCat
Fri Mar 07, 2014 1:55 pm
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Last post by wesgarnett
Wed Mar 05, 2014 11:47 am
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Adivce needed, is this normal for MS or should I take action
Replies: 4
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Zoldyck » Mon Jan 27, 2014 1:42 am
First post
Hi all. I provide care for a friend with MS who was diagnosed around a year ago. I want to be clear that I am not a licensed caregiver, at least not...
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They recently changed their medication (an increase, I have a list but not sure I should post it) and they believe the change provoked this new...
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Last post by NHE
Tue Jan 28, 2014 10:52 pm
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Is this normal behaviour??
Replies: 2
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pepsi » Fri Apr 13, 2012 5:12 am
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One of my friends was diagnosed with MS 2 or so years ago and had her first major relapse 2 months ago. I understand that balance and coordination...
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The short answer to your question is Yes what you described is symptomatic of MS.
Impulsiveness (i.e. over talking, talking out of turn, tangential...
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Last post by hermano
Tue Sep 17, 2013 11:59 am
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Worried about depression
Replies: 2
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JFFWC » Wed Apr 17, 2013 9:05 am
First post
Hello all,
First time poster here - I'm new to this forum & dealing with MS. My wife of 20+ years was recently diagnosed with RRMS. It seems that...
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My wife and I (15 years) are also dealing with MS (mine). We are seasons ticket holders (seahawks). I would much rather meet her at our seats than...
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Last post by Jimpsull
Sat Aug 03, 2013 11:20 pm
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MS Caregivers
Replies: 1
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camilles » Fri Jul 19, 2013 5:04 am
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If you are a caregiver who has a spouse with Multiple Sclerosis, please consider participating in this research study in understanding the factors...
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I am studying the impact of social support on the quality of life of spousal caregivers of patients with Multiple Sclerosis. My hope is that my...
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Last post by camilles
Fri Jul 26, 2013 7:26 am
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Having issues with girlfriend who has MS
Replies: 2
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gossimer23 » Tue May 14, 2013 6:45 pm
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hello. i started dating my girlfriend who has ms about a year ago but recently i have been having issues with her. she is constantly saying how i do...
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hi goss my antennae fired when you mentioned ballet. I would have a serious look at athletic nutrient depletion. there are a group of nutrients that...
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Last post by jimmylegs
Wed May 15, 2013 4:40 am
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My Father, the best Care Giver
Replies: 2
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MNMS » Sat Feb 09, 2013 4:50 pm
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I am new to this forum in seek of some feedback after my 74 YOA mother entered the hospital just recently for a UTI and the flu. I saw this post and...
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Thank you very much; all of their friends and of course the family feel the same. It's amazing that he she has him, and that they are still truly in...
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Last post by MNMS
Sat Feb 09, 2013 6:46 pm
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My husband doesn't understand me
Replies: 4
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Kquestions » Tue Aug 14, 2012 12:55 am
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I need help, my husband has been to the appointments, but is still stressing me out about my obligations and duties as a wife. I am now pregnant,...
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Hi, i dont suggest counciling but each to their own :)
I care for my wife 24/7 since 1996. There is no easy answer and as you have already said your...
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Last post by Razgo
Mon Aug 27, 2012 10:05 pm
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Last post by milesap
Sun Jul 01, 2012 8:35 pm
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Copaxone virgin
Replies: 2
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belky73 » Tue Jan 03, 2012 5:06 pm
First post
Hi all. I just picked up my first Copaxone dosage package and I am finally going to begin my treatment. Any words of advise for a neebie? I have read...
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Thank you so much!
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- 4830 Views
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Last post by belky73
Wed Jan 04, 2012 5:02 pm
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best friend of 10 yrs walked away
Replies: 2
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Maledicte » Mon Jan 02, 2012 5:48 pm
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Its sad when someone you know & were super close w/for 10.yrs
Becomes someone you knew
He's changed a lot past 3 yrs, turned into a jerk, then I got...
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Not so easy when he was my only (yes, I know, pathetic) friend
Now I feel lonely as hell
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- 5018 Views
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Last post by Maledicte
Wed Jan 04, 2012 3:58 pm
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best friend of 10 yrs walked away
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Maledicte » Mon Jan 02, 2012 5:47 pm
Its sad when someone you know & were super close w/for 10.yrs
Becomes someone you knew
He's changed a lot past 3 yrs, turned into a jerk, then I got...
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- 4358 Views
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Last post by Maledicte
Mon Jan 02, 2012 5:47 pm
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How to lead life with ms patient
Replies: 1
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abdulk » Fri Dec 30, 2011 2:50 am
First post
Hi all,
I have just joined the forum. I wanted to share my story, get some advice.
I am Abdul Kadhar 29 years old from Cairo, Egypt.
I got...
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Welcome to ThisIsMS, Abdul. You have an unfortunate situation; obviously, you cannot rely on your wife's family for information; you must educate...
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Last post by lyndacarol
Fri Dec 30, 2011 9:13 am
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Mom with MS lives in US, I'm in Canada
Replies: 1
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Courtenay » Tue May 03, 2011 4:19 pm
First post
Okay, a little back story I guess...
My mom was diagnosed with MS in 2007, although the doctors have told her she likely has had it for 20 years....
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hi and welcome, courtenay.
i'm afraid i don't have much xp with your situation sorry.
all i can really offer is nutritional support if you're...
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- 4468 Views
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Last post by jimmylegs
Tue May 03, 2011 7:36 pm
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Thanksgiving was a challange need ideas
Replies: 8
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stillfighting » Sat Nov 27, 2010 9:01 pm
First post
I will try to explain this situation, as it will sound insane( actually it maybe)
I have lived in the same place most of my adult life.. Now my...
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Your reply was priceless. I did survive winter. They never really call anymore. We have been meeting outside do to warmer weather.
They still have...
- 8 Replies
- 5572 Views
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Last post by stillfighting
Sun Mar 20, 2011 2:02 pm
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Partner with MS
Replies: 6
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Pimppeter2 » Sun Jan 16, 2011 9:10 pm
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My girlfriend had an MS scare. She's only 20, and he's been upset over it for the past couple of days. She's (I think) convinced it's already...
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If it's an MS scare and not a diagnosis you should try and comfort her, but also make sure that she doesn't get so focused on the idea that it's MS...
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- 5713 Views
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Last post by Bender
Tue Jan 18, 2011 11:51 am
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How can I help my family?
Replies: 3
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lilbrothergeo » Tue Apr 06, 2010 8:17 pm
First post
Hi All,
I need some suggestions and I see here you have a strong community that seems to work well in helping each other. I hope you can help me.....
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Thanks Deb. A few things you mentioned definitely help. I know my parents received from reading material on depression but they were not sure if it...
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- 5333 Views
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Last post by lilbrothergeo
Sat Sep 04, 2010 6:56 pm
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Dad is mom's caregiver...
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ErinA87 » Mon Jun 14, 2010 8:46 am
My mom was diagnosed with MS 10 years ago. Since then, my dad has been her husband, doctor, supporter and a great father to their 4 children since....
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- 4797 Views
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Last post by ErinA87
Mon Jun 14, 2010 8:46 am
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I don't know what to do...
Replies: 5
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Dief » Thu Apr 08, 2010 4:50 am
First post
Almost a year ago, my husband was diagnosed with MS.
I thought nothing could ever threaten us, our relationship, and I actually felt that for the...
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I am the one with MS and no it is not real advanced(3 edss).However, I still suffer freatly from the cramps, blurred vision, brain fog, and most...
- 5 Replies
- 5714 Views
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Last post by Bubba
Sun Jun 06, 2010 9:07 pm
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Fiance with MS
Replies: 6
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AlPal » Thu Sep 10, 2009 8:35 am
First post
Howdy folks!
I will soon be married! My soon-to-be wife doesn't like to discuss her RRMS. Luckily she is marrying an expert ;-) I like keeping up to...
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A thought, Bubba, and this is mere speculation...
sometimes when faced with the unknown, something so uncertain and scary as MS, people tend to shut...
- 6 Replies
- 6350 Views
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Last post by Kacey
Thu Mar 25, 2010 5:50 pm
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Explaining ms to children
Replies: 3
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indigoinmotion » Wed Jul 29, 2009 8:22 am
First post
My daughter is 3 1/2. While I've tried to explain my condition, she doesn't quite understand. The other day, she told me that I needed to learn how...
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Hi,
I was about 3 years old when my dad was diagnosed with MS.
I used to ask questions at first, I got upset when Dad told me he was sick and...
- 3 Replies
- 6074 Views
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Last post by BiancaPolzin
Mon Mar 15, 2010 2:14 am
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Bathtubs
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jfhcrgvr » Tue Mar 09, 2010 1:33 pm
I'm beginning to look into various types of bathtubs to make TWSTRML (The Woman Sent To Run My Life)'s life easier. She has SPMS and getting in and...
- 0 Replies
- 4829 Views
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Last post by jfhcrgvr
Tue Mar 09, 2010 1:33 pm
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need your help - How to cope with "issues" ?
Replies: 2
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wifehasMS » Tue Jun 16, 2009 8:44 am
First post
I originally posted this in the General Discussion, i guess it belongs here :)
To make a long story short, my wife has had MS for at least 13...
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My mom use to do senior-care and hospice care. And my brother and I use to help out sometimes. I think I know what you mean about being...
- 2 Replies
- 5805 Views
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Last post by Lorin
Thu Aug 27, 2009 4:19 pm
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How do I get my family to understand?
Replies: 2
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Maeve » Mon Nov 10, 2008 8:02 am
First post
Hi all . . . I was diagnosed a year ago with MS . . . its something I've felt coming for a long time so it was no surprise to me . . .
I am...
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1- simple part: take one of them with the neuro with you. i had to do this with my own husband. because i'm like you. or was at first. now i just use...
- 2 Replies
- 6541 Views
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Last post by sara33
Wed Jun 10, 2009 5:26 am
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SHOULD WE HAVE MORE KIDS??
Replies: 1
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BEXSTER1978 » Fri Jun 05, 2009 10:45 am
First post
Hi all
Im new here, hope you dont mind me asking a question.
My husband was diagnosed with ms last year...he gets tired alot, cold hands, pins and...
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Hi all
My main reason for this topic though, and I hope I dont sound selfish, but I would love another baby, we have a 3 year old daughter. What are...
- 1 Replies
- 5373 Views
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Last post by cheerleader
Fri Jun 05, 2009 1:04 pm
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