Regimens

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Last post

Enzolytics when we get it

Last post by Weneedhope « Fri Dec 11, 2020 1:01 am
Replies: 2
by Weneedhope » Thu Dec 10, 2020 10:54 pm

First post

hi all i new here from this post the drug is done it only about money

when do we get it ??

thank you

Last post

hi hope it cracked in next 5 years great for reply with life .. is my goal i try to fight it all way i am young go like this way

thank you relpy

2 Replies

1294 Views

Last post by Weneedhope
Fri Dec 11, 2020 1:01 am
bloodwork monitoring

Last post by jimmylegs « Mon Oct 05, 2020 4:50 am
Replies: 15
by jimmylegs » Mon Oct 28, 2019 3:37 pm
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First post

welp i've been feeling a bit on the crap side and some of the answers are coming in now. most levels look great; the main news so far is serum...

Last post

great to hear from you j, hope u are well all things considered.
i am not quite out of the woods yet over here. what a year!
it has been very nice to...
15 Replies

4175 Views

Last post by jimmylegs
Mon Oct 05, 2020 4:50 am
Reversing Endothelial Dysfunction

Last post by Jaded « Tue Mar 10, 2020 7:01 am
Replies: 186
by cheerleader » Mon Oct 27, 2008 1:59 pm
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First post

Overwhelmed: Reversing Endothelial Dysfunction in Autoimmune Disease by Cheerleader

-edited to explain the endothelium for those new to this...

Last post

Remyelination? That's excellent - well done you and Jeff
186 Replies

72652 Views

Last post by Jaded
Tue Mar 10, 2020 7:01 am
Ocrevus

Last post by Anunymouse « Tue Feb 11, 2020 1:42 pm
Replies: 5
by ebrownkirkland » Mon Feb 12, 2018 6:46 am

First post

Hi there. My husband was diagnosed with RRMS back in May, but now the doctor thinks he may have PPMS. He suggested that we look into Ocrevus. I have...

Last post

I've been on it 3 or 4 years now, the only actual MS drug I've taken. In general I've never had relapses even though I'm dx'd RR. My secret suspicion...

5 Replies

3598 Views

Last post by Anunymouse
Tue Feb 11, 2020 1:42 pm
I'm making myself a lab rat for n-acetylglucosamine

Last post by Labrat2 « Fri Mar 08, 2019 7:58 am
Replies: 30
by Jim_P » Wed Dec 19, 2007 7:49 pm
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First post

NOTE: Below this messege I've posted some very interesting information about a certain strain of Glucosamine that has dramatically helped mice with...

Last post

Three months, nothing. There are effects, good and bad, but nothing for MS. I'll keep messing with the glucosamine/sulfur at a much-reduced amount...
30 Replies

18981 Views

Last post by Labrat2
Fri Mar 08, 2019 7:58 am
RE:HOW TO COPE WITH M.S NUMBNESS AND TINGLING

Last post by seeva « Fri Mar 01, 2019 1:10 am

by seeva » Fri Mar 01, 2019 1:10 am

HI FRIENDS PLEASE READ

regards
seeva

0 Replies

1312 Views

Last post by seeva
Fri Mar 01, 2019 1:10 am
Why the Paleo-Macrobiotic Diet Works

Last post by Jaded « Sun Feb 10, 2019 4:05 am
Replies: 29
by vesta » Sun Jul 15, 2012 8:27 am
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First post

Why the Paleo-Macrobiotic Diet Works

First let’s think about all the reasons you might not want to be bothered by Diet. With a major health problem...

Last post

Thanks Vesta - I shan't be without it now.

Thanks NHE - yes I have that same product!
29 Replies

9000 Views

Last post by Jaded
Sun Feb 10, 2019 4:05 am
to add to jimmyleg's info/thiamine B1

Last post by jimmylegs « Wed Jan 09, 2019 10:15 am
Replies: 23
by katie45 » Thu Apr 10, 2008 10:46 pm
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23 Replies

10334 Views

Last post by jimmylegs
Wed Jan 09, 2019 10:15 am
MS DRUG MAVENCLAD ADDED TO PBS

Last post by seeva « Sat Dec 22, 2018 11:47 pm

by seeva » Sat Dec 22, 2018 11:47 pm

HI FRIENDSTODAY NEWS BY OURE P.M

REGARDS
SEEVA

0 Replies

2141 Views

Last post by seeva
Sat Dec 22, 2018 11:47 pm
PPMS and diet

Last post by ElliotB « Sat Nov 17, 2018 3:24 am
Replies: 4
by TonyNZ » Wed Nov 19, 2014 3:47 pm

First post

Hi There,

I would like to ask people suffering from PPMS what diet they are following.

I am following the Swank diet at present and it seems to be...

Last post

I see I responded to this thread back in 2014. As an update, I came to the unscientific conclusion a couple of years ago that the veggies were not...

4 Replies

4540 Views

Last post by ElliotB
Sat Nov 17, 2018 3:24 am
rHGH @ 2IU (Somatropin)

Last post by radiologytech « Sat Nov 17, 2018 1:02 am
Replies: 45
by PhireX » Fri Jul 03, 2015 5:37 pm
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First post

I am 32, male, I have had MS for 15 years - physically I am fortunately in a fairly good state without much disability. 5 10, 59kg (130lb) which...

Last post

I am a 42 year old man, recently diagnosed (June 2018) with MS...Florida, its hot and humid and I was going through a lot of stress...I am 5'6 and...
45 Replies

16741 Views

Last post by radiologytech
Sat Nov 17, 2018 1:02 am
Low dose benadryl: An unknown treatment for MS

Last post by Nenebird54 « Fri Nov 16, 2018 5:29 pm
Replies: 6
by David1951 » Sat Oct 12, 2013 6:21 am

First post

I do not have MS. I have an acquired metabolic syndrome that is similar in symptom sets and is ultimately just a different manifestation of the same...

Last post

Search for MS and Tavist - you will see some research showing the active ingredient in Tavist seems to support re-mylineation.

6 Replies

8299 Views

Last post by Nenebird54
Fri Nov 16, 2018 5:29 pm
How Stress Affects MS Symptoms

Last post by seeva « Sun Oct 07, 2018 11:45 pm

by seeva » Sun Oct 07, 2018 11:45 pm

HI FRIENDS PLEASE READ

regards
seeva

0 Replies

2179 Views

Last post by seeva
Sun Oct 07, 2018 11:45 pm
Beyond Avonex and Valtrex

Last post by vesta « Sun Sep 30, 2018 8:35 am
Replies: 283
by Scott1 » Mon Jan 06, 2014 3:37 pm
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First post

It’s a long time since I made a contribution to the Regimens post as I believe the only objective way to assess a protocol is to give it time and...

Last post

Hi,

I've just crawled off the deck after having the head-cold from hell. Whilst it isn't MS related, all my tight muscles, aches and pains became...
283 Replies

63523 Views

Last post by vesta
Sun Sep 30, 2018 8:35 am
Wheldon Rollercoaster

Last post by orphansparrow « Wed Aug 15, 2018 6:43 pm
Replies: 6
by thatguy39 » Sun May 29, 2016 12:33 pm

First post

Hello,

I am a 39 year old male and have been on the Wheldon protocol since February 15, 2015. I am now at the stage where the antibiotics are given...

Last post

Thank you Anonymouse. That link didn't work for me, but the old one now does.

@SarahLonglands - I am so thankful for your husbands (and your) work....

6 Replies

4333 Views

Last post by orphansparrow
Wed Aug 15, 2018 6:43 pm
Cryotherapy thoughts?

Last post by orphansparrow « Sat May 26, 2018 8:33 am

by orphansparrow » Sat May 26, 2018 8:33 am

Hi all.

Anyone here do cryotherapy? What is your experience/thoughts?

Thank you!

0 Replies

2766 Views

Last post by orphansparrow
Sat May 26, 2018 8:33 am
FMT CURED 10 YEARS PATIENT WITH SPMS

Last post by orphansparrow « Sat May 26, 2018 7:43 am
Replies: 2
by seeva » Tue May 08, 2018 1:34 am

First post

HI FRIENDS PLEASE READ

regards
seeva

Last post

Wow. Really interesting!

2 Replies

3285 Views

Last post by orphansparrow
Sat May 26, 2018 7:43 am
8 Ways to Attack Secondary Progressive MS

Last post by seeva « Tue May 01, 2018 3:52 am

by seeva » Tue May 01, 2018 3:52 am

HI FRIENDS PLEASE READ

REGARDS
SEEVA

0 Replies

2428 Views

Last post by seeva
Tue May 01, 2018 3:52 am
GUT GERMS APPEAR TO PLAY ROLE IN M.S

Last post by seeva « Sat Apr 21, 2018 6:20 pm

by seeva » Sat Apr 21, 2018 6:20 pm

DEAR FRIENDS PLEASE READ

regards
seeva

0 Replies

2151 Views

Last post by seeva
Sat Apr 21, 2018 6:20 pm
Just starting to put together vitamins and supplements help!

Last post by jimmylegs « Sun Apr 08, 2018 12:15 pm
Replies: 15
by thisiswater » Tue Feb 02, 2016 7:31 pm
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First post

I'm just beginning to organize my supplements after a recent dx of MS. I want the best quality *fresh* (cold pressed Omega-3, fish and/or flax), etc....

Last post

abx are not at all my thing and recalling op, not what i would consider a 'supplement' let alone an essential nutrient by any means.
stlll, there's...
15 Replies

7670 Views

Last post by jimmylegs
Sun Apr 08, 2018 12:15 pm
Blood test results

Last post by jimmylegs « Sat Feb 10, 2018 1:54 pm
Replies: 5
by SARABAND » Fri Feb 09, 2018 8:03 am

First post

Hi everyone,
I have MS since 11 years ago. Had two relapses over these years with full recovery and have never taken any medication (despite my...

Last post

hi again, all sounding good :)

ah i didn't look closely enough at labwork vs regimen for the vit E; sunflower seeds are another great dietary...

5 Replies

2837 Views

Last post by jimmylegs
Sat Feb 10, 2018 1:54 pm
Topamax for nerve pain?

Last post by Scott1 « Thu Jan 18, 2018 1:45 pm
Replies: 1
by TraciT » Wed Jan 17, 2018 1:42 pm

First post

Has anyone any experience using Topamax for nerve pain?

Last post

Hi,

It's a very serious drug. Read this FDA note

Having been down a lot of paths, my initial read is I wouldn't touch it. A bit of a read doesn't...

1 Replies

2566 Views

Last post by Scott1
Thu Jan 18, 2018 1:45 pm
Has Anyone Heard of Protandim

Last post by 3verydaySurvivor « Wed Nov 08, 2017 9:19 pm
Replies: 13
by suestory56 » Tue Mar 06, 2012 1:54 am

First post

I became aware of this natural supplement. I then learned that Protandim can be used to alleviate the symptoms of MS and that Montel Williams is...

Last post

I think it's a supplement if I'm not mistaken?

13 Replies

19627 Views

Last post by 3verydaySurvivor
Wed Nov 08, 2017 9:19 pm
Baclofen and alcohol

Last post by Snoopy « Thu Jul 27, 2017 10:27 am
Replies: 8
by ebrownkirkland » Tue Jul 25, 2017 8:14 am

First post

Hi all. I am on 5 mg of Baclofen twice a day for muscle spasms (so 10 mg total per day). I have been told not to drink while on this drug because it...

Last post

I haven't worked out since all these spasms started, so I have no idea how that will affect me.

Exercise and Physical Therapy helps with many of...

8 Replies

4009 Views

Last post by Snoopy
Thu Jul 27, 2017 10:27 am
Tecfidera

Last post by NHE « Wed Jul 26, 2017 11:46 pm
Replies: 4
by ebrownkirkland » Tue Jul 25, 2017 8:10 am

First post

Hi all. After first being diagnosed with clinically isolated syndrome back in June, my neurologist decided to change the diagnosis to RRMS yesterday,...

Last post

So you're saying I made a good choice with Tecfidera?? What kinds of side effects did you experience with Avonex? I understand the side effects with...

4 Replies

2876 Views

Last post by NHE
Wed Jul 26, 2017 11:46 pm
Fatigue relief in MS patien studies

Last post by vitolella « Mon Jul 10, 2017 5:29 pm

by vitolella » Mon Jul 10, 2017 5:29 pm

Hello,

The following is a link to public information on a randomized control study of patients using Bemer Electro Magnetic Therapy. These studies...

0 Replies

3172 Views

Last post by vitolella
Mon Jul 10, 2017 5:29 pm
Have not started yet.

Last post by MSKarateka « Sun Jun 25, 2017 8:22 am
Replies: 10
by MSKarateka » Fri Mar 24, 2017 1:28 pm

First post

I am currently taking 50,000 IU of D 2 x/week. B complex, and Fish oil 3, 6, 9.

My JCV test came back borderline positive. I am eligible for...

Last post

I have gotten all my immunizations up to date and the Doc has given me clearance to start after July 17.

10 Replies

4138 Views

Last post by MSKarateka
Sun Jun 25, 2017 8:22 am
RE UNPUBLISHED DATA MAY POINT TO LINK BETWEEN LEMTRADE AND O

Last post by seeva « Wed Jun 21, 2017 2:19 pm

by seeva » Wed Jun 21, 2017 2:19 pm

HI Friends please read

Unpublished Data May Point to Link Between Lemtrada and Other Autoimmune Diseases in MS Patients

Previously unpublished...

0 Replies

2742 Views

Last post by seeva
Wed Jun 21, 2017 2:19 pm
Prosthetics

Last post by NHE « Sat Jun 03, 2017 2:36 am
Replies: 3
by MSyborg » Thu Jun 01, 2017 7:08 am

First post

Do prosthetics really work for those with Multiple Sclerosis.

Last post

Something like that and also this too:
Even though my hand sometimes doesn't work well, I would rather have it than not.

3 Replies

2923 Views

Last post by NHE
Sat Jun 03, 2017 2:36 am
Ms doesn't exist you all been lied to

Last post by SeanReynolds « Mon Apr 24, 2017 5:08 pm
Replies: 5
by MSBS » Fri Dec 05, 2014 6:58 pm

First post

Ms is a symptom of Lyme which is an multi parasitic and bacterial infection.

Please educate yourself doctors admit the tests aren't 100%

Last post

But there are cases of MS around the world but no infective Lyme disease type organism. CPn has been implicated in MS however.

5 Replies

6328 Views

Last post by SeanReynolds
Mon Apr 24, 2017 5:08 pm
Just Started Tecfidera

Last post by CLSawdon « Wed Mar 22, 2017 12:17 pm
Replies: 13
by marcsbey » Wed Oct 22, 2014 7:11 am

First post

Hello everyone!

I just started taking Tecfidera. I was officially diagnosed this August after an MRI showed two areas of inflammation. This is day 2...

Last post

I never bothered taking the aspirin since I rarely used ANY medication (until being diagnosed with MS). I did fine the first week or two, but then...

13 Replies

6828 Views

Last post by CLSawdon
Wed Mar 22, 2017 12:17 pm
Multiple Sclerosis desatascador

Last post by gristy56 « Thu Feb 09, 2017 6:55 am

by gristy56 » Thu Feb 09, 2017 6:55 am

MS should be renamed Magnetite Supersufficiency. As children, we have had a bout of iron overload and not realised. The excess iron has been...

0 Replies

3015 Views

Last post by gristy56
Thu Feb 09, 2017 6:55 am
Aubagio - side effects

Last post by NLGal « Wed Dec 28, 2016 4:16 am
Replies: 4
by Paddi » Tue Dec 27, 2016 5:58 pm

First post

hi and help

after taking aubagio for only 5 weeks my hair has been falling out for the last 3 months and shows no signs of stopping.

I really dont...

Last post

Hi Paddie. Alopecia is one of the potential side effects from Aubagio. However, in my experience, it is not permanent. I lost a lot of hair when I...

4 Replies

3952 Views

Last post by NLGal
Wed Dec 28, 2016 4:16 am
Starting treatment...before diagnosis?

Last post by Paddi « Tue Dec 27, 2016 5:47 pm
Replies: 2
by Andrea5501 » Fri Dec 09, 2016 1:21 pm

First post

Hey there everyone, thanks for reading. I'm a 28 year old female; I've been followed by a neurologist for almost 4 years now. I have NOT been...

Last post

OMG Yes

I am fast beginning to hate doctors - ok stay calm - if you have no residual damage from any of the 3 episodes why on earth would
you put...

2 Replies

3386 Views

Last post by Paddi
Tue Dec 27, 2016 5:47 pm
RE AXIM MOVING AHEAD WITH TESTING OF CANNABINOID PRODUCTS FO

Last post by seeva « Tue Nov 01, 2016 1:36 am

by seeva » Tue Nov 01, 2016 1:36 am

HI FRIENDS Please read

AXIM Moving Ahead with Testing of Cannabinoid Products, Including Chewing Gum for MS Patients

regards
seeva

0 Replies

3401 Views

Last post by seeva
Tue Nov 01, 2016 1:36 am
Try plant based diet: new study

Last post by jimmylegs « Tue Oct 18, 2016 4:23 am
Replies: 24
by ncarnet » Fri Aug 19, 2016 2:17 pm
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First post

I am reading that a study from the University of Oregon Mendical School says plant based diet benefits MS. Is anyone vegan or vegetarian here? If...

Last post

hi orphan sorry just spotted your post now. glad you find value in posts here at tims :) you are correct no ms drugs to date. ten years post dx and i...
24 Replies

9248 Views

Last post by jimmylegs
Tue Oct 18, 2016 4:23 am
Anyone currently using the Cal EAP protocol? In the USA?

Last post by TeresaL « Wed Sep 14, 2016 1:18 pm
Replies: 21
by ThePixie » Tue Nov 14, 2006 1:25 pm
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First post

:) Is anyone in MS land currently on the CAL EAP protocal? Are you working with a physician in the USA? I have been doing quite a bit of reading on...

Last post

Helped me but couldn't stick w it, tried EAP suppositories but didn't work. Worse now
21 Replies

20349 Views

Last post by TeresaL
Wed Sep 14, 2016 1:18 pm
On IVIG for 12 years, now Tecfidera or Copaxone?

Last post by MrsBarber « Tue Sep 13, 2016 6:47 pm
Replies: 4
by MrsBarber » Tue Sep 13, 2016 7:56 am

First post

I have been on IVIG for over 12 years now. MRIs and other health issues are causing that to change. I am JCV+, so no option for other infusion med....

Last post

Thank you all so much!! I appreciate the comments.

4 Replies

3632 Views

Last post by MrsBarber
Tue Sep 13, 2016 6:47 pm
Modafinil, Ritalin

Last post by Scott1 « Thu Sep 01, 2016 12:43 am
Replies: 1
by UWE59 » Sat Aug 20, 2016 7:29 am

First post

I use occasionally modafinil to make something against my fatigue and weakness. I also feel some effect in terms of concentration while walking. Now...

Last post

Hi,

I never want to say never and I freely admit to trying many different things over a long period. It's hard for me to say I agree with doing...

1 Replies

3532 Views

Last post by Scott1
Thu Sep 01, 2016 12:43 am
MS and Spinal fusions?

Last post by vesta « Wed Aug 17, 2016 1:29 pm
Replies: 10
by sherberry223 » Sat Jul 30, 2016 4:14 pm

First post

Hi everyone, this is my very first post. I'm not new to auto immune diseases. I've had rheumatoid arthritis for 36 years. I've had most of my joints...

Last post

Greetings:

Since you have had so much work done on your spine, I would check out the cerebro-spinal fluid and blood flow to be certain there is no...

10 Replies

5377 Views

Last post by vesta
Wed Aug 17, 2016 1:29 pm
meat - How does it work?

Last post by ElliotB « Thu Jul 28, 2016 12:57 pm
Replies: 11
by mevrouw » Tue May 12, 2015 2:08 am

First post

Hi All,

I am new to any of the diets that exist to MS and am hoping that any of you can help me to explain eating of meat. If meat would be bad for...

Last post

Hi orphansparrow - I was diagnosed about 3 1/2 years ago, RRMS.

11 Replies

5401 Views

Last post by ElliotB
Thu Jul 28, 2016 12:57 pm
Tecfidera ....and Gas

Last post by QTKT « Fri Jul 22, 2016 7:32 am
Replies: 4
by QTKT » Mon Jul 18, 2016 9:06 pm

First post

Hi,

I have been taking Tecfidera for almost 3 weeks now. I do not experience any symptoms (thank God) besides horrible flatulence and gas. There is...

Last post

I have been taking Tecfidera for almost 3 weeks now. I do not experience any symptoms (thank God) besides horrible flatulence and gas. There is no...

4 Replies

4292 Views

Last post by QTKT
Fri Jul 22, 2016 7:32 am
False positives??

Last post by lyndacarol « Wed Jul 20, 2016 7:33 am
Replies: 4
by kitzzie » Sun Jul 17, 2016 3:32 am

First post

Hi,
Had my first lot of bloods done since starting on Gilenya 1 and 1/2 mths ago and the results came back positive for a ty pe of TB?
Could it be a...

Last post

Ok, thanks for your reply. Shall remember to write a note otherwise I'll never remember to ask...
They did test for my vitamin D levels and they were...

4 Replies

3199 Views

Last post by lyndacarol
Wed Jul 20, 2016 7:33 am
TRANQUILNESS strategy

Last post by hmacoli « Wed May 25, 2016 6:36 am

by hmacoli » Wed May 25, 2016 6:36 am

Dear friends,
In this MS world´s day I would like to share with you my experiences with different CAM therapies. Since 2010 when I realized that...

0 Replies

3174 Views

Last post by hmacoli
Wed May 25, 2016 6:36 am
Starting Natalizumab as a first line treatment ?

Last post by saisriharsha « Wed May 18, 2016 3:15 am

by saisriharsha » Wed May 18, 2016 3:15 am

Hi All,

I had been recently diagnosed as a case of Multiple sclerosis with active inflammation and had my first attack a month ago. Intravenous...

0 Replies

3193 Views

Last post by saisriharsha
Wed May 18, 2016 3:15 am
Why is dairy not recommended when following Coimbra protocol

Last post by PJM26 « Thu Mar 10, 2016 11:54 am
Replies: 3
by ElliotB » Thu Mar 10, 2016 10:03 am

First post

Anyone know?

Last post

If you scroll down, there is a whole sub-forum for this protocol.

The answers you seek are probably therein.

3 Replies

4367 Views

Last post by PJM26
Thu Mar 10, 2016 11:54 am
PointsNorth's Current Regimen

Last post by Columbo « Thu Mar 10, 2016 6:57 am
Replies: 4
by PointsNorth » Mon Dec 01, 2014 8:35 pm

First post

PointsNorth's Regimen
Last Updated: January 22, 2016

MORNING
Probiotic breakfast and dinner
105Kiu D
B2
Zinc
CoQ10
L-Methionine
Lecithin
K2 100mcg...

Last post

What kind of k2 (brand, mk4 or mk7) and what's the new dosage?

4 Replies

5000 Views

Last post by Columbo
Thu Mar 10, 2016 6:57 am
vit D source

Last post by jimmylegs « Wed Feb 10, 2016 8:18 pm
Replies: 8
by nepatternmaker » Fri Jul 10, 2015 12:11 pm

First post

I need to start vit D again. I've taken it in the past and felt much better and did not get the cold/flu going around at all.
1st question: what...

Last post

my prescription liquid is 1,000,000 IU/gm so a few drops would do the trick. i would never take 180,000 IU/d

8 Replies

4687 Views

Last post by jimmylegs
Wed Feb 10, 2016 8:18 pm
Just bought children's fish oil by mistake!

Last post by NHE « Thu Feb 04, 2016 11:01 pm
Replies: 3
by thisiswater » Wed Feb 03, 2016 11:08 am

First post

Ugh -- I bought Carlson's Norwegian fish oil and thought I was buying the smallest size so that I could try it. Turns out its children's! 800 mg. Do...

Last post

This is what I bough. I didn't have my glasses and didn't see the kids' on the label!;
Thanks. What you want to look at is the combined amount of...

3 Replies

3580 Views

Last post by NHE
Thu Feb 04, 2016 11:01 pm
When Diet Alone Won't Work

Last post by ElliotB « Fri Dec 18, 2015 11:28 am
Replies: 6
by vesta » Fri Oct 25, 2013 9:09 am

First post

Testimony extolling the virtues of nutritional therapy to heal MS flood the Internet. Well known
protocols include the 60 year old Dr. Roy Swank low...

Last post

Vesta, may I recommend two books by Dr. David Perlmutter, Brain Maker and Grain Brain, both of which may provide you with much insight and possibly...

6 Replies

7883 Views

Last post by ElliotB
Fri Dec 18, 2015 11:28 am

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