Tell us what you are using to treat your MS-- and how you are doing.
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Updated Regimen
by
joeymia » Fri Apr 22, 2011 11:33 am
30 year old Male
Daily Copaxone Injection around 10pm
Morning:
As needed 100mg Modafinil (Modapro, or Modalert)
With Food:
81mg Bayer low dose...
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- 1940 Views
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Last post by joeymia
Fri Apr 22, 2011 11:33 am
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Minocycline Self Study
Replies: 78
by
viper498 » Mon Jun 04, 2007 4:50 am
First post
I'll start posting my Minocycline experiences here instead. I will copy and paste from a post I made in the general forum. This should catch everyone...
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It’s been a long time since I posted here. I wanted to update my log as to where I am at now. I stopped taking minocycline about a year ago now due...
- 78 Replies
- 28279 Views
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Last post by viper498
Wed Apr 20, 2011 8:27 am
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Anyone use Aniracetam?
by
joeymia » Mon Apr 11, 2011 12:19 pm
Been reading a lot about Aniracetam and its positive effects. Anyone with MS have any experience?
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- 1836 Views
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Last post by joeymia
Mon Apr 11, 2011 12:19 pm
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Logical assumptions about treatments - (rant)
Replies: 2
by
MSBOB » Thu Apr 07, 2011 12:17 am
First post
All opinionated rant:
Fingolimod was developed by studying the fungus that grows on insects, eventually killing the host and sprouting fruiting...
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I was wrong about Tysabri, confused with Gelina (sp). I talked to my doc about it. I have taken in too much information in a short time and all of it...
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- 4901 Views
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Last post by MSBOB
Fri Apr 08, 2011 9:25 pm
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Why do some docs use stents, not others in ccvsi?
Replies: 4
by
katie45 » Sat Dec 05, 2009 1:20 am
First post
thanks for any input.
Last post
We've heard an anecdotal report of a stent fracture. I have to agree with FastBenz's doctor, stents seem risky at this time especially if they are...
- 4 Replies
- 3051 Views
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Last post by Cece
Sat Mar 12, 2011 12:07 pm
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Canadian Petition
by
msdragonslayer » Sat Jan 29, 2011 10:29 am
There is a petition that Canadians hoping to bring Vascular Angioplasty to Canada can sign. It is going to the Quebec Legislature but all Canadians...
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- 1683 Views
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Last post by msdragonslayer
Sat Jan 29, 2011 10:29 am
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CCSVI testing denied due to use of IVIG?
Replies: 2
by
zanne10000 » Sun Jan 02, 2011 5:55 am
First post
Hi all-- asking this for a friend. She recently tried to get scheduled for CCSVI testing and treatment, but was told she couldn't because she's on...
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Thank you! That makes a lot of sense. I had never even heard of IVIG being used as a treatment for MS until around a year ago (and I even worked in...
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- 2209 Views
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Last post by zanne10000
Sun Jan 02, 2011 4:23 pm
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My Regimen
Replies: 2
by
MSConqueror » Sat Oct 09, 2010 5:26 pm
First post
33 year old male dx'd in 2008, had my first relapse (optic neuritis) in 2007
Daily regimen
4 grams of Carlson's Salmon fish oil
1 Multi-vitamin...
Last post
Hi,
I have made a change or two. After seeing an article about enzymes that made sense to me, I bought some. They are called Serracor-NK
I've been on...
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- 2394 Views
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Last post by msdragonslayer
Sat Dec 11, 2010 3:43 pm
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what to do now?
Replies: 3
by
suzq77 » Thu Oct 28, 2010 12:04 pm
First post
Ok, here's my story (as truncated as possible). I ...
...was diagnosed 10/01
...have been on all 4 injectibles and one dose of Tysabri - when it was...
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hey there, worry can deplete important nutrients already low in ms patients. have you ever gone through and done your bloodwork for all the known...
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- 2090 Views
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Last post by jimmylegs
Mon Nov 22, 2010 1:18 pm
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B12 tested - low
Replies: 3
by
astro » Mon Oct 25, 2010 6:51 pm
First post
I was diagnosed with MS back in 2001, but was never tested for B12.
Recently, I was prompted to get B12 level checked by several young family...
Last post
hi astro, here's a tidbit at least!
there's a study from japan in the late 80's talking about dementia and it refers to 'normal limits' as...
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- 2535 Views
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Last post by jimmylegs
Sat Oct 30, 2010 8:08 pm
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Acthar
Replies: 1
by
jcbatt1 » Fri Oct 15, 2010 12:44 pm
First post
Has anyone ever tried this? I did a steroid treatment back in July and all of my MS symptoms have calmed down except the optic neuritis. My doc...
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Has anyone ever tried this? I did a steroid treatment back in July and all of my MS symptoms have calmed down except the optic neuritis. My doc...
- 1 Replies
- 1961 Views
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Last post by NHE
Fri Oct 15, 2010 10:57 pm
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cervical spine injuries
Replies: 12
by
katie45 » Sat Sep 22, 2007 3:54 pm
First post
Dr. Erin Elster's study of parkinson's and ms patients showed 100% of them had c-spine (neck) injury and have some wonderful results with...
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this atlas chiro seems like it is worth a try (nothng to loose really)
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- 5597 Views
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Last post by 1hunter
Wed Sep 08, 2010 4:20 pm
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Marie's Stents CCSVI
Replies: 180
by
mrhodes40 » Tue May 26, 2009 2:51 pm
First post
I m going to copy and paste my long stanford story into this hread so I can have a place to journel recovery stuff related to my stent placement.
I...
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It's OK Laura. :D I agree that the big problem is the fact that people do not have the details of what to do yet and others are demanding double...
- 180 Replies
- 42041 Views
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Last post by mrhodes40
Wed Aug 18, 2010 8:22 pm
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Any bad effects from Lunesta??
Replies: 1
by
mooshell » Tue Aug 17, 2010 5:55 pm
First post
For about 8 or 10 mo. now I have been having these feelings of agitaion or something. They have gotten progressively worse. I started to think maybe...
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the circadian rhythm aspect made me think of b12.
i went looking for possible nutrient depletion aspects of lunesta.
found this:
SLEEP AIDS...
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- 2319 Views
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Last post by jimmylegs
Wed Aug 18, 2010 7:42 am
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My regimen
Replies: 13
by
joeymia » Wed Jul 14, 2010 1:24 pm
First post
30 year old Male
Waiting on vitamin and heavy metal labs to see what I am deficient in. So far this is what my regimen consists of.
Daily Copaxone...
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great info NHE. i don't know anything about those kind of supplements.
- 13 Replies
- 3652 Views
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Last post by jimmylegs
Tue Aug 10, 2010 3:41 am
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Deleted
Replies: 3
by
ms_turophile » Tue Jul 20, 2010 5:13 pm
First post
Deleted
Last post
I did try ibuprofen - my stomach doesn't tolerate it well (especially if I'm no steroids at the time). Tylenol Arthritis actually works surprisingly...
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- 1791 Views
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Last post by NHE
Wed Jul 21, 2010 11:08 am
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Relaxing my Postural Back Muscles
Replies: 2
by
sensfantodd » Fri May 14, 2010 9:04 am
First post
The postural muscles are located along the edges of the spine.
I have been working at relaxing these muscles for 8 months through massage and...
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My chiro uses a technique called Graston--special metal instruments (some can get into areas fingers cannot) used softly to ease out the adhesions,...
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- 2111 Views
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Last post by shye
Fri May 28, 2010 5:34 am
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Size of stents
by
spiff1970 » Tue Apr 20, 2010 9:37 am
Dear all,
For those who have done the procedure, can you tell me what was the size of the stents used in the Jugular veins? My VS in Portugal wants...
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- 1974 Views
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Last post by spiff1970
Tue Apr 20, 2010 9:37 am
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Complications with Lyrica
Replies: 2
by
lmacalus » Mon Aug 24, 2009 8:00 pm
First post
Anyone else having a bad experience with this drug... when they say a side could be sudden rapid weight gain the are not kidding - roughly 30 lbs in...
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the gret news is the weight is finally going away - ehoo hoo! A new ayervedic practing neurologist has got my digestion realigned, which in...
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- 2791 Views
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Last post by lmacalus
Sat Feb 27, 2010 5:06 pm
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Difficulty swallowing supplements
Replies: 9
by
JoyIsMyStrength » Sat Feb 06, 2010 11:48 am
First post
Hi everyone,
I am a firm believer in trying the natural route, having already suffered thru the DMD's with bad results. Whole 'nother topic.
So......
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Whew jimmylegs, you are quite the arm twister. Uncle! :)
I listed that B12 only because it's already here. I was experimenting with it when B12...
- 9 Replies
- 5089 Views
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Last post by JoyIsMyStrength
Sat Feb 20, 2010 1:16 pm
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Solumedrol
Replies: 6
by
Caralea » Thu Oct 22, 2009 6:34 am
First post
I've been searching the forums for information about the use of Solumedrol during an exacerbation.
That has always been the standard response from...
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Thanks for info, Lynda. Fascinating stuff.
I would also like to have my hormones checked. Will keep this in mind the next time I see my GP in April.
- 6 Replies
- 3049 Views
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Last post by Slumby
Fri Feb 05, 2010 12:31 pm
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Hydrogene Peroxide
Replies: 4
by
gazda » Thu Jan 07, 2010 10:42 am
First post
Started using hydrogene peroxide on daily basis to energize.Amazing results.My day goes now from 5.00am to 10.00pm in full speed.
Last post
This scares me, I don't know enough about it to say anything but did want to say why it scares me so badly. A couple or few years back I remember the...
- 4 Replies
- 3068 Views
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Last post by Rainbolt
Sat Jan 23, 2010 5:47 pm
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Vitamin regime?? Need Help!
Replies: 20
by
Cleremond2000 » Mon Oct 27, 2008 9:17 am
First post
Ok...I was newly diagnosed with RRMS back in early February of this year (2008).
I started Copaxone in late February and haven't missed a dose. I...
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sandy, sometimes when they do supplement studies they use artificial isolated versions of things, eg vitamin e in the dL-alpha tocopherol form,...
- 20 Replies
- 8459 Views
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Last post by jimmylegs
Fri Jan 08, 2010 3:29 am
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Gibbledygook's anti-viral log
Replies: 246
by
gibbledygook » Tue Mar 18, 2008 8:46 am
First post
I have started taking anti-viral herbs as opposed to antibiotics in the hope that trying to weaken Epstein Barr, varicella zoster et al might...
Last post
gibbledygook
During I.T. pilot studies there were reports of spasm increases, which at first were thought to be relapses but generally following the...
- 246 Replies
- 63523 Views
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Last post by AndrewKFletcher
Mon Dec 14, 2009 3:31 am
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Stents for CCSVI-Jeff
Replies: 41
by
cheerleader » Thu May 07, 2009 6:16 am
First post
Wanted to have a journal for Jeff's journey.
He has received two stents in his internal jugular veins. His IJVs were both blocked with stenosis, and...
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Hi Jeff
have you reverted back to sleeping flat since your surgery?
- 41 Replies
- 13748 Views
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Last post by AndrewKFletcher
Fri Dec 11, 2009 6:37 am
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Treatment confusion
Replies: 7
by
ariehs » Fri Nov 27, 2009 8:26 am
First post
I was finally diagnosed with MS in June, after ignoring minor symptoms for years, and then months of doctors and neurologists dithering.
Being the...
Last post
Wow, that's exciting. From what I've read, the treatment in Israel has had the most success. Good luck and keep us posted!
- 7 Replies
- 3030 Views
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Last post by tzootsi
Wed Dec 09, 2009 4:38 pm
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My regimen
Replies: 2
by
cyllent » Tue Nov 17, 2009 11:59 pm
First post
ent from having pins and needles in my foot in 2001, within a month it had spread up the left side of my body, dropped foot, then dragged left leg,...
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I guess considering the time Ive been diagnosed, Im doing well. Cognitive changes have been dramatic, memory mainly, but I adapt as well as i can. I...
- 2 Replies
- 2985 Views
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Last post by cyllent
Tue Nov 24, 2009 9:25 am
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Seeking Advise !!!!!
Replies: 1
by
Bibek » Tue Jun 23, 2009 5:03 am
First post
Hi Group Members,
I had several diagnosis since 2003,PPMS,Aquisucral Stenosis,emeylinating Deises ?Prograssive MS.Now my symproms are:
1.Walking (Get...
Last post
Reading your post, my first question is: Why do you reject each of these diagnoses?
I'm not sure what most of the diagnoses you mentioned are or why...
- 1 Replies
- 2322 Views
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Last post by Liesel
Sat Sep 12, 2009 12:35 pm
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Tramacet side effects?
Replies: 2
by
Mike56 » Sun Aug 30, 2009 8:30 am
First post
I occasionally take Tramacet for headache pain when plain aspirin won't do the trick. I took 4 yesterday, 2 at 8:30 pm and 2 at 1:30 am. When my...
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NHE,
Very informative. Now I know where to look for this kind of info.
Thanks very much for the response!
- 2 Replies
- 3404 Views
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Last post by Mike56
Tue Sep 01, 2009 9:04 am
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Taking Copaxone & Rebif together
Replies: 2
by
Sweets » Fri Aug 21, 2009 12:04 pm
First post
I will soon be adding Rebif to my Copaxone therapy. My neuro suggested it since Copaxone seems to have lost its efficacy. Has anyone else tried this?
Last post
I've only read of one other person taking both Copaxone and Rebif. I'm curious, why is you doctor prescribing both, if the Copaxone no longer seems...
- 2 Replies
- 2718 Views
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Last post by NHE
Sat Aug 22, 2009 7:21 pm
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- 0 Replies
- 2606 Views
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Last post by Bibek
Tue Jul 14, 2009 5:14 am
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Quistion !!!
Replies: 2
by
Bibek » Mon Jun 29, 2009 8:04 pm
First post
Hi fello MSers,
Recently my neuro gave me few new meds ( meythile peadisolon )and increased doses of Beclofen for 1 *2 to 1*3.
I felt very good...
Last post
My neuro has not said any thing regarding this,she simply advised me for thyroid test . :(
- 2 Replies
- 2220 Views
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Last post by Bibek
Thu Jul 09, 2009 5:05 am
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FDA - Attacks Vitamin B-6
Replies: 9
by
Sharon » Tue Jun 23, 2009 8:03 am
First post
Here is an article from Dr. Mercola's website. I have not had a chance to research the claims of the article, but I did find it interesting...
Last post
I use a company called Life Extension which has written extensively on the FDA collusion with pharmaceutical interests and the revolving door of its...
- 9 Replies
- 4751 Views
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Last post by gibbledygook
Sun Jul 05, 2009 2:44 am
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Looking for Feedback on CCSVI Friendly Regime
Replies: 2
by
daniel » Sun Jun 21, 2009 5:33 pm
First post
Hi All,
I'm 27 and had my first attack in October '08, and modified my diet a month later. I've since had my second attack in May that I'm almost...
Last post
Looks great, Daniel! Thanks for sharing your program. I'd recommend a regular blood test (you probably get a CBC- complete blood count- done...
- 2 Replies
- 2828 Views
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Last post by cheerleader
Mon Jun 22, 2009 8:09 am
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Imagine the solumedrol highs without the side effects
Replies: 4
by
Jim_P » Thu Dec 20, 2007 7:13 am
First post
Ok, I must be dreaming because this n-acetyl glucosamine has got me bouncing off the walls with goodness.
This morning I had two teaspoons after...
Last post
Has anyone else tried n-acetyl glucosamine?
Edit: ahhh missed the newer thread:
- 4 Replies
- 4133 Views
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Last post by daniel
Thu Jun 04, 2009 7:07 pm
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My Final Decision...
Replies: 12
by
Bubba » Tue Mar 10, 2009 8:13 pm
First post
OkayI am starting,
1- vit B super complex (w/vit C)
2- (2) vit D w/ calcium
3- (3) 1000mg omega 3 fish oil
4- Rebif
5- Lipitor
6- Monster...
Last post
i'll update it soon on the mega D etc thread. i just got a new batch of lab req stuff so i'll have a few updates coming down the pipe.
if you hadn't...
- 12 Replies
- 3897 Views
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Last post by jimmylegs
Tue Apr 07, 2009 1:19 pm
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- 0 Replies
- 2063 Views
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Last post by oneeyedjack
Sat Mar 28, 2009 12:34 pm
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On Hold...
Replies: 1
by
Bubba » Fri Mar 13, 2009 5:30 pm
First post
I suppose I will put my Final decision on hold for a month. I made a bunch of phone calls and emails and was able to get an appointment at the...
Last post
I love USF neuro!!! Dr.Krolczyk & Lise Casady ARNP are the very best team I've ever had.
- 1 Replies
- 2226 Views
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Last post by k6ristin
Mon Mar 23, 2009 12:10 pm
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at my wit's end
Replies: 19
by
donushka » Sun Mar 08, 2009 9:54 am
First post
Hello. I am a 29 year-old woman living in Israel with secondary progressive MS (diagnosed with MS when I was 20) that has tried every treatment there...
Last post
I honestly don't know the answers to those questions and I suspect nobody really does. What I do works for me but maybe something else is better for...
- 19 Replies
- 6385 Views
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Last post by Scott1
Thu Mar 12, 2009 3:12 pm
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Quercetin
Replies: 5
by
patientx » Wed Feb 25, 2009 7:00 am
First post
For those of you taking this, how much do you take per day? In the study that Zamboni was part of, I think they were using 1 g/day. As the pills I...
Last post
Hubby's 6'2 tall, 195 lbs....so I'm not too worried. But if he was smaller, he'd take less.
AC
...wife is 5'94 Cheer not so dumpy, better safe than...
- 5 Replies
- 3641 Views
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Last post by DIM
Thu Feb 26, 2009 2:51 am
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My Regimen (any tweaks?)
Replies: 23
by
Abe » Thu Feb 19, 2009 3:03 am
First post
before breakfast:
1200mg NAC
500mg Vitamin C
1000mg Inosine
at breakfast:
200mg Resveratrol
300mg R Lipoic Acid
500mg Acetyl -L-Carnitine
350mg...
Last post
The second opinion isn't to prove the diagnosis, as mine is definitely ms, my complaints were typical, but just to find a professional opinion of a...
- 23 Replies
- 6520 Views
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Last post by lionheart
Tue Feb 24, 2009 9:00 am
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Ideas
Replies: 17
by
LiquidSkin » Wed Jun 18, 2008 1:43 am
First post
Alright I was Dx less than 4ish months ago, and I keep asking my doctor what I should do to keep healthly what is best to avoid and what might I eat...
Last post
hi bubba just the other day i put some of those resources in my signature and the one dave posted is on the list, it's good in the supplement...
- 17 Replies
- 5920 Views
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Last post by jimmylegs
Fri Feb 20, 2009 4:34 am
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My regimen(s)
Replies: 174
by
CureOrBust » Tue Oct 11, 2005 4:33 am
First post
Hi all,
Realised I havnt had a single place just to let others know what I am taking, and how it is working for (on) me. You would quite literally...
Last post
I went and saw another neuro today. I'm not dropping my existing neuro, but I saw this one because he is the lead guy in Australia for the Campath...
- 174 Replies
- 48776 Views
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Last post by CureOrBust
Tue Feb 10, 2009 11:58 pm
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The Compound Vitamin
Replies: 7
by
Nenu » Wed Apr 23, 2008 10:29 am
First post
Here's the MS mix my nutritionist hooked me up with:
Thiamine HCI 300mg
Riboflavin HCI 100mg
Folic Acid 1000mcg
Vitamin C (Corn) 2000mg
Vitamin D3...
Last post
just heard from my co-worker another anecdote about insane prenatal itching.
back story: when i itched, i did not blame it on ms - i blamed my new...
- 7 Replies
- 3961 Views
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Last post by jimmylegs
Wed Dec 17, 2008 10:01 am
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SQUALENE
Replies: 4
by
willem » Wed Nov 26, 2008 12:02 pm
First post
is there anyone who tried Squalene?
Last post
Is it duck hunting season already?
- 4 Replies
- 3099 Views
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Last post by patientx
Fri Nov 28, 2008 6:32 pm
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Everything including the Kitchen Sink
Replies: 43
by
daisy » Thu May 31, 2007 4:51 pm
First post
Hi - I am the caregiver/advocate and functional brain for my dear husband. Here's our story and maybe you will see why I have chosen the everything...
Last post
Oh my dear Daisy, the infection theory has been mused over since the latter quarter of the nineteenth century. Then it was a prime idea behind the...
- 43 Replies
- 18597 Views
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Last post by SarahLonglands
Wed Nov 19, 2008 3:44 pm
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Cheerleader's Regimen for her Husband
Replies: 56
by
cheerleader » Wed Jan 16, 2008 2:20 pm
First post
Welp.I thought it was time to put down all the supplement info I’ve compiled into one place. Warning: this will be long, but hopefully of help to...
Last post
So you are an opera singer?
I have to admit that I really like pucchini (kitsch...!)
I´ll first give valerian a try - but thank you for your advice,...
- 56 Replies
- 17405 Views
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Last post by ursula
Tue Nov 18, 2008 7:36 am
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Testosterone Users out there??
Replies: 1
by
Cojack » Sun Nov 16, 2008 5:03 pm
First post
HI,
haven't been able to find any threads on off label testosterone users for ms....can anyone lead me to one or care to divulge how it's going?...
Last post
Have you tried searching the forum yet? I found 164 posts discussing testosterone. I haven't gone through them all but I do recall that some time ago...
- 1 Replies
- 2295 Views
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Last post by NHE
Sun Nov 16, 2008 10:19 pm
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Steve's Updated Regimen
Replies: 2
by
mormiles » Fri Sep 05, 2008 7:17 am
First post
It's been a long time since posting here on Steve's treatment regimen. Steve has secondary progressive MS, and after he got worse on Rebif, we looked...
Last post
Joyce,
I live in the DFW area and was newly diagnosed with RRMS back in February this year. I'm looking into support groups in the area and was...
- 2 Replies
- 2782 Views
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Last post by Cleremond2000
Tue Oct 28, 2008 12:35 pm
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Need Help
Replies: 1
by
LiquidSkin » Wed Sep 10, 2008 1:35 am
First post
Alright, So NYS decide that 50 cents over min wage means you dont get state health care. So, I cant afford to keep paying for Betaseron anymore,...
Last post
Most of the drug companies for MS medications have assistance plans for low income folks. For example, Biogen has a program called the Avonex Access...
- 1 Replies
- 2245 Views
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Last post by NHE
Wed Sep 10, 2008 3:08 am
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