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Progressive MS

Last post by jimmylegs « Thu May 13, 2021 7:11 am
Replies: 16
by jimmylegs » Wed Jul 10, 2019 11:19 am
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First post

this topic is added and pinned at the request of TiMS member robbie, as a venue for discussion of information and issues relevant to progressive...

Last post

Construction of a User-Led Resource for People Transitioning to Secondary Progressive Multiple Sclerosis: Results of an International Nominal Group...
16 Replies

3762 Views

Last post by jimmylegs
Thu May 13, 2021 7:11 am
Echoes

Last post by NHE « Tue Mar 30, 2021 5:57 am

by NHE » Tue Mar 30, 2021 5:57 am

Overhead the albatross hangs motionless upon the air
And deep beneath the rolling waves in labyrinths of coral caves
The echo of a distant time comes...

0 Replies

328 Views

Last post by NHE
Tue Mar 30, 2021 5:57 am
Grabber pickup tool

Last post by ArthurJ « Sun Feb 21, 2021 11:01 pm
Replies: 1
by ArthurJ » Sat Feb 20, 2021 7:13 pm

First post

I have one of these spring-claw grabber tools from my days working in auto repair. I now carry it around with me on my rollator. It's very helpful...

Last post

Here's a quick photo of the grabber with the pickup tines extended and retracted.

1 Replies

389 Views

Last post by ArthurJ
Sun Feb 21, 2021 11:01 pm
Sleep is your superpower

Last post by NHE « Sat Feb 20, 2021 12:22 am

by NHE » Sat Feb 20, 2021 12:22 am

TED Talk: Sleep is Your Superpower - Matthew Walker, UC Berkeley

0 Replies

214 Views

Last post by NHE
Sat Feb 20, 2021 12:22 am
Playing for Change - world unity through music

Last post by Petr75 « Mon Jan 04, 2021 7:27 am
Replies: 6
by zen2010 » Tue Apr 30, 2019 12:20 am

First post

Chanda Mama is a folk tune about the moon that originated in Chennai, India. We started the track in New Orleans and added musicians from the all...

Last post

2020 Dec 24
Studio di Psicoterapia Relazionale e Riabilitazione Cognitiva, viale Europa, Messina, Italy
How may patients with MS benefit from using...

6 Replies

1796 Views

Last post by Petr75
Mon Jan 04, 2021 7:27 am
Happy Holidays!

Last post by NHE « Fri Dec 25, 2020 10:15 am
Replies: 2
by NHE » Thu Dec 24, 2020 3:39 pm

First post

:peace:

Last post

The Santaland Diaries

2 Replies

196 Views

Last post by NHE
Fri Dec 25, 2020 10:15 am
Dealing with wildfire smoke

Last post by NHE « Mon Sep 14, 2020 3:28 am

by NHE » Mon Sep 14, 2020 3:28 am

There are lots of wildfires on the West Coast. These have filled the air with smoke and toxic particulate matter. In some cites, such as Portland,...

0 Replies

443 Views

Last post by NHE
Mon Sep 14, 2020 3:28 am
Do you Jumble?

Last post by ArthurJ « Sun Jul 19, 2020 4:04 am
Replies: 2
by NHE » Fri Aug 30, 2019 11:46 pm

First post

Play Jumble :peace:
Flash , Mobile

Last post

Drab bard brad's cobra had low carbo carob.

:roll:

2 Replies

865 Views

Last post by ArthurJ
Sun Jul 19, 2020 4:04 am
Odd symptom

Last post by ArthurJ « Sat Jun 13, 2020 12:31 am
Replies: 1
by ArthurJ » Wed Jun 10, 2020 5:55 am

First post

Sometimes I get a very thin, clear mucus that just starts dripping from my nose without any other prior symptoms. I find that it leaves a foul taste...

Last post

I don't get any of the headaches described on most of the pages I find on CSF leaks.

1 Replies

356 Views

Last post by ArthurJ
Sat Jun 13, 2020 12:31 am
MSAA Assistance

Last post by NHE « Fri Jun 05, 2020 10:38 pm

by NHE » Fri Jun 05, 2020 10:38 pm

The Multiple Sclerosis Association of America (MSAA) offers several assistance programs to help people with MS acquire basic assistance products like...

0 Replies

295 Views

Last post by NHE
Fri Jun 05, 2020 10:38 pm
Listen from Dreamgirls movie

Last post by zen2010 « Mon Apr 20, 2020 11:51 am

by zen2010 » Mon Apr 20, 2020 11:51 am

The song I am listening to very very very often nowadays:

0 Replies

273 Views

Last post by zen2010
Mon Apr 20, 2020 11:51 am
The definition of life

Last post by zen2010 « Fri Feb 14, 2020 12:45 am

by zen2010 » Fri Feb 14, 2020 12:45 am

0 Replies

1800 Views

Last post by zen2010
Fri Feb 14, 2020 12:45 am
Riding Amtrak in a wheelchair? $25,000!!!

Last post by NHE « Fri Jan 17, 2020 5:15 pm

by NHE » Fri Jan 17, 2020 5:15 pm

Amtrak Asks Two People Who Use Wheelchairs To Pay $25,000 For A Ride

It costs just $16 to buy a one-way ticket on the Amtrak train from Chicago...

0 Replies

725 Views

Last post by NHE
Fri Jan 17, 2020 5:15 pm
Happy New Year!

Last post by Petr75 « Wed Jan 01, 2020 7:36 am
Replies: 2
by NHE » Tue Dec 31, 2019 2:31 am

2 Replies

696 Views

Last post by Petr75
Wed Jan 01, 2020 7:36 am
Three wifi men

Last post by NHE « Tue Dec 24, 2019 5:05 am

by NHE » Tue Dec 24, 2019 5:05 am

0 Replies

486 Views

Last post by NHE
Tue Dec 24, 2019 5:05 am
ToTok app is a spy tool.

Last post by NHE « Tue Dec 24, 2019 4:21 am

by NHE » Tue Dec 24, 2019 4:21 am

The ToTok app is a spy tool. Stay away. 8O

0 Replies

440 Views

Last post by NHE
Tue Dec 24, 2019 4:21 am
What a disease

Last post by robbie « Wed Dec 11, 2019 5:09 pm
Replies: 12
by robbie » Mon Jul 29, 2019 6:58 am

First post

If only you knew what your life has in store, i had so many plans i took it all for granted.

Last post

My wife and I are having a reno done mostly for a roll in shower but it's slowly becoming more than that :) I notice how many people are sick colds,...

12 Replies

1895 Views

Last post by robbie
Wed Dec 11, 2019 5:09 pm
Interstellar Traveler

Last post by NHE « Fri Dec 06, 2019 1:54 am

by NHE » Fri Dec 06, 2019 1:54 am

On Sunday Dec 8th we will be briefly visited by an interstellar traveler.

A Comet From Another Star Hints That Our Solar System Isn't...

0 Replies

588 Views

Last post by NHE
Fri Dec 06, 2019 1:54 am
Robocalls

Last post by Music « Thu Nov 28, 2019 8:17 am
Replies: 4
by NHE » Mon Nov 25, 2019 6:05 am

First post

I get a lot of robocalls, sometimes 4 or more per day. They're all fraudulent. I usually just hang up. They all want to steal my identity, money,...

Last post

I've had 21 calls this morning starting at 7:30 and it's only 9am. We never answer numbers we don't know. No messages so far.

Okay, here's number...

4 Replies

769 Views

Last post by Music
Thu Nov 28, 2019 8:17 am
Bed pan

Last post by robbie « Mon Sep 30, 2019 6:35 am

by robbie » Mon Sep 30, 2019 6:35 am

Is their any other man out there that has to use a bed pan, just have a question ,
Thx rob

0 Replies

820 Views

Last post by robbie
Mon Sep 30, 2019 6:35 am
It's funny

Last post by robbie « Fri Sep 13, 2019 8:31 am
Replies: 8
by robbie » Wed Sep 11, 2019 2:26 pm

First post

It's funny I've been cast as someone who has never give a hoot about trying, when diagnosed at 28 for 12 yrs I worked till I dropped. 2 yrs later I...

Last post

Thats all you can do .

8 Replies

1065 Views

Last post by robbie
Fri Sep 13, 2019 8:31 am
Erectile Dysfunction?

Last post by robbie « Thu Sep 12, 2019 1:08 pm
Replies: 14
by SassyBoots » Sun Aug 11, 2013 7:13 am

First post

Hi Everyone.

I don't know if I am posting in the right place, so if I'm not, then please accept my apologies.

I recently met a man I really like...

Last post

It's not zinc, beer, smoking or pot, it's the fact that the ms just happens to be inflaming and gradually destroying the myelin around that...

14 Replies

6664 Views

Last post by robbie
Thu Sep 12, 2019 1:08 pm
Getting up

Last post by robbie « Mon Sep 09, 2019 9:04 am
Replies: 1
by ArthurJ » Sun Sep 08, 2019 9:09 pm

First post

Getting up after a fall can sometimes be a challenge. I sometimes use our stairs to get my legs below me. Here's a video with some additional ideas....

Last post

Great video Arthur love the creative thought 🤔

1 Replies

704 Views

Last post by robbie
Mon Sep 09, 2019 9:04 am
never say never!

Last post by jimmylegs « Fri Sep 06, 2019 11:52 am
Replies: 8
by jimmylegs » Thu Sep 05, 2019 8:35 am

First post

just took a prophylac-tick 200mg dose of doxy

the sample was probably too damaged for confident id so this is being perhaps overcautious but i'd...

Last post

my insurance company had me lined up for rebif right off the bat. but, it was pretty easy for me to blame myself so i opted out. if all i have ever...

8 Replies

1037 Views

Last post by jimmylegs
Fri Sep 06, 2019 11:52 am
Living without a life,

Last post by robbie « Thu Aug 22, 2019 5:41 am
Replies: 20
by robbie » Fri May 31, 2019 10:00 am
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First post

They say u have to find things your able to do that you enjoy, but what if there isn't anything. What if for you to have a happy life you need...

Last post

God I got to get going it's our anniversary today, I've got reservations at a nice steak house for dinner. I thought after we could go to a movie and...
20 Replies

2957 Views

Last post by robbie
Thu Aug 22, 2019 5:41 am
Don't Like Typing? ... Type with your Voice - Fast and Easy & Free

Last post by THX1138 « Sat Aug 10, 2019 1:00 pm
Replies: 6
by THX1138 » Tue Oct 31, 2017 10:35 pm

First post

Speechnotes

This FREE :-D :-D :-D
You basically just go to the Speechnotes website and start talking. What you say is transformed, as you talk,...

Last post

A Google search for where is the microphone on an iPad yielded:

6 Replies

3500 Views

Last post by THX1138
Sat Aug 10, 2019 1:00 pm
Swollen ankles and feet

Last post by robbie « Tue Jul 30, 2019 10:52 am
Replies: 30
by robbie » Sun Jul 07, 2019 2:35 pm
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First post

Feet are like football's so I looked and there it was again MS , is there anything ms doesn't cause ?

Swollen feet and ankles are common in MS, and...

Last post

Their open toed , my ankles make it hard. Here I am 54 and having my wife put on my compression stockings around my swollen twisted ankles ,the whole...
30 Replies

3369 Views

Last post by robbie
Tue Jul 30, 2019 10:52 am
life with ms question

Last post by robbie « Sat Jul 27, 2019 12:31 pm
Replies: 11
by robbie » Fri Oct 30, 2009 12:31 pm

First post

when u slowly see everything that u knew life to be taken from you do you just deal with it. is there somthing inside us that kicks in and shows us...

Last post

When reading how I felt then hard to believe I'm still here, I've crossed every red line i drew for that limit of enough. Always found a reason......

11 Replies

4516 Views

Last post by robbie
Sat Jul 27, 2019 12:31 pm
i want to get better or die

Last post by robbie « Thu Jul 18, 2019 2:26 pm
Replies: 13
by dkep11 » Sat Mar 12, 2011 2:44 pm

First post

im edss 8 & climbing

this sucks

nothing works 4me

im all fun-ned out

Last post

I was thinking of his title get better or die , when i was told finally, the part i remember most is the neurologist saying the words it's multiple...

13 Replies

3538 Views

Last post by robbie
Thu Jul 18, 2019 2:26 pm
Washroom ?

Last post by robbie « Tue Jul 16, 2019 8:47 am

by robbie » Tue Jul 16, 2019 8:47 am

Wondered if there's anyone that is in a wheelchair and can't transfer ,how do you manage ?

0 Replies

591 Views

Last post by robbie
Tue Jul 16, 2019 8:47 am
Some of the reasons

Last post by robbie « Tue Jun 25, 2019 9:34 am
Replies: 18
by robbie » Fri Jun 07, 2019 10:03 am
1

2
One of hardest thoughts for me is missing the golden years and all that goes with it. I know the golden years can not always be so golden but we all...
18 Replies

2370 Views

Last post by robbie
Tue Jun 25, 2019 9:34 am
Smartphone users grow horns

Last post by NHE « Mon Jun 24, 2019 3:03 am

by NHE » Mon Jun 24, 2019 3:03 am

Horns are growing on young people's skulls. Phone use is to blame, research suggests.

0 Replies

758 Views

Last post by NHE
Mon Jun 24, 2019 3:03 am
headhunted!

Last post by jimmylegs « Thu Jun 13, 2019 10:28 am
Replies: 2
by jimmylegs » Wed Jun 12, 2019 2:01 pm

First post

maybe :D we'll see.

Last post

probably nothing. maybe, a job :)

2 Replies

781 Views

Last post by jimmylegs
Thu Jun 13, 2019 10:28 am
Right Place, Wrong Time

Last post by NHE « Fri Jun 07, 2019 12:10 am

by NHE » Fri Jun 07, 2019 12:10 am

A great musician, and a cornerstone of New Orleans, has left us. Dr. John, Malcolm Mac John Rebennack, died at age 77 on June 6th due to a heart...

0 Replies

932 Views

Last post by NHE
Fri Jun 07, 2019 12:10 am
Constipation

Last post by robbie « Tue May 28, 2019 9:36 am

by robbie » Tue May 28, 2019 9:36 am

Not always because of what your eating

What is neurogenic bowel?
Neurogenic bowel is the loss of normal bowel function. It’s caused by a nerve...

0 Replies

685 Views

Last post by robbie
Tue May 28, 2019 9:36 am
27yrs

Last post by robbie « Tue May 28, 2019 7:13 am
Replies: 32
by robbie » Tue Feb 05, 2019 11:19 am
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2

3
First post

Feels like a life time bed bound , bed pan , pee bottle the whole nine yards. 53 yrs old what now?

Last post

Hi NHE I did look at them and yes they would help if not just for movement and circulation. Honestly man I shouldn't be on this site , it's all about...
32 Replies

2973 Views

Last post by robbie
Tue May 28, 2019 7:13 am
My wife has MS and libido is gone.

Last post by robbie « Tue Mar 12, 2019 11:13 am
Replies: 19
by Fireguy4669 » Sun Sep 22, 2013 6:56 am
1

2
First post

Hello all,

First time post. 3 years ago my wife was diagnosed with MS after the birth of our son. Over the course of those years her libido and...

Last post

I thought Dr.Phil today had a couple on that might help answer some questions about thoughts and feelings that some of us may have :) 12/3
19 Replies

13906 Views

Last post by robbie
Tue Mar 12, 2019 11:13 am
gadolinium good times

Last post by jimmylegs « Fri Mar 08, 2019 6:02 pm
Replies: 2
by jimmylegs » Fri Mar 08, 2019 5:05 pm

First post

another spin thru the magnet this eve. they had a lovely time finding a vein - i have polka dot arms :S chuggin agua now to clear out the dye.

Last post

HA already done. 'this here is orion's belt. and that one is the north star. that hot mess over there is the milky way. watch your step'

2 Replies

1035 Views

Last post by jimmylegs
Fri Mar 08, 2019 6:02 pm
fed up

Last post by jimmylegs « Fri Mar 08, 2019 5:00 pm
Replies: 13
by jimmylegs » Mon Nov 05, 2018 8:27 am

First post

venting re my friend's cancer xp.
i tabled the zinc idea much earlier this year, then gave it up to a large extent when we heard 'no' re zinc...

Last post

aaaaand next up on the frustration train, parent going in for hip replacement. nutritional prep infuriating.

300 mg iron per day.

just sayin:
Low...

13 Replies

2701 Views

Last post by jimmylegs
Fri Mar 08, 2019 5:00 pm
story behind "The show must go on"

Last post by zen2010 « Fri Mar 01, 2019 10:04 am

by zen2010 » Fri Mar 01, 2019 10:04 am

Hi,

Today, I discovered the story behind that song.

Did you know this song was recorded a few weeks before Freddie Mercury’s death?

He knew he...

0 Replies

846 Views

Last post by zen2010
Fri Mar 01, 2019 10:04 am
Irony for breakfast

Last post by jimmylegs « Thu Feb 07, 2019 4:18 am
Replies: 7
by ArthurJ » Mon Feb 04, 2019 4:46 pm

First post

You gotta love the irony in the disconnect of our modern food supply. I was eating fresh strawberries, watermelon and an orange for breakfast today...

Last post

mixed berries purchased from a local farm and frozen last season. enjoying these today in a bowl of steel cut oats and milk topped with flax seed and...

7 Replies

1246 Views

Last post by jimmylegs
Thu Feb 07, 2019 4:18 am
Can MS look like withdrawal?

Last post by ArthurJ « Wed Jan 02, 2019 1:10 am
Replies: 6
by Meowbunnymoo » Mon Dec 31, 2018 7:11 am

First post

My boyfriend isn't feeling so well, but I've suspected drug abuse.

Can MS look like withdrawal from opiates, or any other drug?

Last post

My boyfriend isn't feeling so well, but I've suspected drug abuse.

Can MS look like withdrawal from opiates, or any other drug?
From the info...

6 Replies

1514 Views

Last post by ArthurJ
Wed Jan 02, 2019 1:10 am
Happy New Year!

Last post by Zyklon « Tue Jan 01, 2019 9:44 am
Replies: 2
by NHE » Mon Dec 31, 2018 10:10 pm

2 Replies

1200 Views

Last post by Zyklon
Tue Jan 01, 2019 9:44 am
ok that was a headache

Last post by jimmylegs « Fri Nov 30, 2018 7:15 am
Replies: 58
by jimmylegs » Mon Mar 12, 2018 5:16 am
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3

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First post

had some kind of infection recently. all over painful. an especially severe headache.

i took so much magnesium glycinate trying to stop the pain, i...

Last post

update re

results were crap. d3 only went up by 40 nmol/l after one megadose meant to achieve 50 and which from personal xp had previously achieved...
58 Replies

10983 Views

Last post by jimmylegs
Fri Nov 30, 2018 7:15 am
R·E·S·P·E·C·T

Last post by NHE « Fri Aug 17, 2018 1:39 am

by NHE » Fri Aug 17, 2018 1:39 am

Aretha Franklin, the Queen of Soul, died Thursday morning at her home in Detroit after a long battle with cancer, her family said in a statement. She...

0 Replies

1423 Views

Last post by NHE
Fri Aug 17, 2018 1:39 am
Quote of the day...

Last post by NHE « Thu May 17, 2018 1:26 am

by NHE » Thu May 17, 2018 1:26 am

The reasonable man adapts himself to the world, the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress...

0 Replies

1435 Views

Last post by NHE
Thu May 17, 2018 1:26 am
i am a bad friend

Last post by jimmylegs « Sat Jan 27, 2018 7:29 pm
Replies: 5
by jimmylegs » Thu Jan 25, 2018 5:01 pm

First post

i just invited my friend to participate in an experiment to see which of us would react more strongly to 250mg niacin, given that she takes 4 caps of...

Last post

yeah kinda think i went over the full vs empty stomach thing above. i'm lacklustre either way. not my friend. i started my new fish oil today

5 Replies

2524 Views

Last post by jimmylegs
Sat Jan 27, 2018 7:29 pm
good songs

Last post by zen2010 « Sat Jan 20, 2018 5:13 am
Replies: 8
by erinc14 » Sun Mar 04, 2012 9:47 am

8 Replies

4636 Views

Last post by zen2010
Sat Jan 20, 2018 5:13 am
Happy Holidays!

Last post by NHE « Sun Dec 31, 2017 11:49 pm
Replies: 2
by NHE » Fri Dec 29, 2017 11:48 pm

2 Replies

1908 Views

Last post by NHE
Sun Dec 31, 2017 11:49 pm
College Scholarships wanted.

Last post by MSKarateka « Sat Dec 23, 2017 7:19 pm
Replies: 2
by MSKarateka » Wed Dec 20, 2017 5:02 pm

First post

As some of you may remember, I am currently going to college for a double major in Finance and Managerial Accounting. I have 2 semesters left.

This...

Last post

Thanks for letting me know.

2 Replies

2057 Views

Last post by MSKarateka
Sat Dec 23, 2017 7:19 pm

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