A forum to talk about the general challenges of daily life with MS.
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Progressive MS
Replies: 13
by
jimmylegs » Wed Jul 10, 2019 11:19 am
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this topic is added and pinned at the request of TiMS member robbie, as a venue for discussion of information and issues relevant to progressive...
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...the writings on the wall that were so blurry early on become clear. That's the only good thing about getting to this point it's a relief on the...
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Last post by THX1138
Tue Jun 09, 2020 10:36 am
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Echoes
by
NHE » Tue Mar 30, 2021 5:57 am
Overhead the albatross hangs motionless upon the air
And deep beneath the rolling waves in labyrinths of coral caves
The echo of a distant time comes...
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- 148 Views
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Last post by NHE
Tue Mar 30, 2021 5:57 am
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Grabber pickup tool
Replies: 1
by
ArthurJ » Sat Feb 20, 2021 7:13 pm
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I have one of these spring-claw grabber tools from my days working in auto repair. I now carry it around with me on my rollator. It's very helpful...
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Here's a quick photo of the grabber with the pickup tines extended and retracted.
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Last post by ArthurJ
Sun Feb 21, 2021 11:01 pm
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- 188 Views
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Last post by NHE
Sat Feb 20, 2021 12:22 am
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Playing for Change - world unity through music
Replies: 6
by
zen2010 » Tue Apr 30, 2019 12:20 am
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Chanda Mama is a folk tune about the moon that originated in Chennai, India. We started the track in New Orleans and added musicians from the all...
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2020 Dec 24
Studio di Psicoterapia Relazionale e Riabilitazione Cognitiva, viale Europa, Messina, Italy
How may patients with MS benefit from using...
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Last post by Petr75
Mon Jan 04, 2021 7:27 am
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Happy Holidays!
Replies: 2
by
NHE » Thu Dec 24, 2020 3:39 pm
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:peace:
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The Santaland Diaries
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Last post by NHE
Fri Dec 25, 2020 10:15 am
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Dealing with wildfire smoke
by
NHE » Mon Sep 14, 2020 3:28 am
There are lots of wildfires on the West Coast. These have filled the air with smoke and toxic particulate matter. In some cites, such as Portland,...
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Last post by NHE
Mon Sep 14, 2020 3:28 am
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Do you Jumble?
Replies: 2
by
NHE » Fri Aug 30, 2019 11:46 pm
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Play Jumble :peace:
Flash , Mobile
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Drab bard brad's cobra had low carbo carob.
:roll:
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- 825 Views
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Last post by ArthurJ
Sun Jul 19, 2020 4:04 am
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Odd symptom
Replies: 1
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ArthurJ » Wed Jun 10, 2020 5:55 am
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Sometimes I get a very thin, clear mucus that just starts dripping from my nose without any other prior symptoms. I find that it leaves a foul taste...
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I don't get any of the headaches described on most of the pages I find on CSF leaks.
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- 325 Views
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Last post by ArthurJ
Sat Jun 13, 2020 12:31 am
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MSAA Assistance
by
NHE » Fri Jun 05, 2020 10:38 pm
The Multiple Sclerosis Association of America (MSAA) offers several assistance programs to help people with MS acquire basic assistance products like...
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- 279 Views
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Last post by NHE
Fri Jun 05, 2020 10:38 pm
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- 255 Views
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Last post by zen2010
Mon Apr 20, 2020 11:51 am
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Last post by zen2010
Fri Feb 14, 2020 12:45 am
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Riding Amtrak in a wheelchair? $25,000!!!
by
NHE » Fri Jan 17, 2020 5:15 pm
Amtrak Asks Two People Who Use Wheelchairs To Pay $25,000 For A Ride
It costs just $16 to buy a one-way ticket on the Amtrak train from Chicago...
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- 700 Views
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Last post by NHE
Fri Jan 17, 2020 5:15 pm
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- 2 Replies
- 662 Views
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Last post by Petr75
Wed Jan 01, 2020 7:36 am
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- 470 Views
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Last post by NHE
Tue Dec 24, 2019 5:05 am
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- 411 Views
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Last post by NHE
Tue Dec 24, 2019 4:21 am
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What a disease
Replies: 12
by
robbie » Mon Jul 29, 2019 6:58 am
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If only you knew what your life has in store, i had so many plans i took it all for granted.
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My wife and I are having a reno done mostly for a roll in shower but it's slowly becoming more than that :) I notice how many people are sick colds,...
- 12 Replies
- 1795 Views
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Last post by robbie
Wed Dec 11, 2019 5:09 pm
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Interstellar Traveler
by
NHE » Fri Dec 06, 2019 1:54 am
On Sunday Dec 8th we will be briefly visited by an interstellar traveler.
A Comet From Another Star Hints That Our Solar System Isn't...
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- 565 Views
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Last post by NHE
Fri Dec 06, 2019 1:54 am
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Robocalls
Replies: 4
by
NHE » Mon Nov 25, 2019 6:05 am
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I get a lot of robocalls, sometimes 4 or more per day. They're all fraudulent. I usually just hang up. They all want to steal my identity, money,...
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I've had 21 calls this morning starting at 7:30 and it's only 9am. We never answer numbers we don't know. No messages so far.
Okay, here's number...
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- 737 Views
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Last post by Music
Thu Nov 28, 2019 8:17 am
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Bed pan
by
robbie » Mon Sep 30, 2019 6:35 am
Is their any other man out there that has to use a bed pan, just have a question ,
Thx rob
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- 804 Views
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Last post by robbie
Mon Sep 30, 2019 6:35 am
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It's funny
Replies: 8
by
robbie » Wed Sep 11, 2019 2:26 pm
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It's funny I've been cast as someone who has never give a hoot about trying, when diagnosed at 28 for 12 yrs I worked till I dropped. 2 yrs later I...
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Thats all you can do .
- 8 Replies
- 1034 Views
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Last post by robbie
Fri Sep 13, 2019 8:31 am
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Erectile Dysfunction?
Replies: 14
by
SassyBoots » Sun Aug 11, 2013 7:13 am
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Hi Everyone.
I don't know if I am posting in the right place, so if I'm not, then please accept my apologies.
I recently met a man I really like...
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It's not zinc, beer, smoking or pot, it's the fact that the ms just happens to be inflaming and gradually destroying the myelin around that...
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Last post by robbie
Thu Sep 12, 2019 1:08 pm
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Getting up
Replies: 1
by
ArthurJ » Sun Sep 08, 2019 9:09 pm
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Getting up after a fall can sometimes be a challenge. I sometimes use our stairs to get my legs below me. Here's a video with some additional ideas....
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Great video Arthur love the creative thought 🤔
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Last post by robbie
Mon Sep 09, 2019 9:04 am
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never say never!
Replies: 8
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jimmylegs » Thu Sep 05, 2019 8:35 am
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just took a prophylac-tick 200mg dose of doxy
the sample was probably too damaged for confident id so this is being perhaps overcautious but i'd...
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my insurance company had me lined up for rebif right off the bat. but, it was pretty easy for me to blame myself so i opted out. if all i have ever...
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- 1006 Views
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Last post by jimmylegs
Fri Sep 06, 2019 11:52 am
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Living without a life,
Replies: 20
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robbie » Fri May 31, 2019 10:00 am
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They say u have to find things your able to do that you enjoy, but what if there isn't anything. What if for you to have a happy life you need...
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God I got to get going it's our anniversary today, I've got reservations at a nice steak house for dinner. I thought after we could go to a movie and...
- 20 Replies
- 2866 Views
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Last post by robbie
Thu Aug 22, 2019 5:41 am
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- 6 Replies
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Last post by THX1138
Sat Aug 10, 2019 1:00 pm
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Swollen ankles and feet
Replies: 30
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robbie » Sun Jul 07, 2019 2:35 pm
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Feet are like football's so I looked and there it was again MS , is there anything ms doesn't cause ?
Swollen feet and ankles are common in MS, and...
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Their open toed , my ankles make it hard. Here I am 54 and having my wife put on my compression stockings around my swollen twisted ankles ,the whole...
- 30 Replies
- 3205 Views
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Last post by robbie
Tue Jul 30, 2019 10:52 am
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life with ms question
Replies: 11
by
robbie » Fri Oct 30, 2009 12:31 pm
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when u slowly see everything that u knew life to be taken from you do you just deal with it. is there somthing inside us that kicks in and shows us...
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When reading how I felt then hard to believe I'm still here, I've crossed every red line i drew for that limit of enough. Always found a reason......
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Last post by robbie
Sat Jul 27, 2019 12:31 pm
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i want to get better or die
Replies: 13
by
dkep11 » Sat Mar 12, 2011 2:44 pm
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im edss 8 & climbing
this sucks
nothing works 4me
im all fun-ned out
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I was thinking of his title get better or die , when i was told finally, the part i remember most is the neurologist saying the words it's multiple...
- 13 Replies
- 3489 Views
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Last post by robbie
Thu Jul 18, 2019 2:26 pm
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Washroom ?
by
robbie » Tue Jul 16, 2019 8:47 am
Wondered if there's anyone that is in a wheelchair and can't transfer ,how do you manage ?
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- 569 Views
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Last post by robbie
Tue Jul 16, 2019 8:47 am
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Some of the reasons
Replies: 18
by
robbie » Fri Jun 07, 2019 10:03 am
One of hardest thoughts for me is missing the golden years and all that goes with it. I know the golden years can not always be so golden but we all...
- 18 Replies
- 2264 Views
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Last post by robbie
Tue Jun 25, 2019 9:34 am
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Last post by NHE
Mon Jun 24, 2019 3:03 am
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headhunted!
Replies: 2
by
jimmylegs » Wed Jun 12, 2019 2:01 pm
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maybe :D we'll see.
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probably nothing. maybe, a job :)
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- 756 Views
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Last post by jimmylegs
Thu Jun 13, 2019 10:28 am
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Right Place, Wrong Time
by
NHE » Fri Jun 07, 2019 12:10 am
A great musician, and a cornerstone of New Orleans, has left us. Dr. John, Malcolm Mac John Rebennack, died at age 77 on June 6th due to a heart...
- 0 Replies
- 909 Views
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Last post by NHE
Fri Jun 07, 2019 12:10 am
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Constipation
by
robbie » Tue May 28, 2019 9:36 am
Not always because of what your eating
What is neurogenic bowel?
Neurogenic bowel is the loss of normal bowel function. It’s caused by a nerve...
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- 666 Views
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Last post by robbie
Tue May 28, 2019 9:36 am
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27yrs
Replies: 32
by
robbie » Tue Feb 05, 2019 11:19 am
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Feels like a life time bed bound , bed pan , pee bottle the whole nine yards. 53 yrs old what now?
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Hi NHE I did look at them and yes they would help if not just for movement and circulation. Honestly man I shouldn't be on this site , it's all about...
- 32 Replies
- 2855 Views
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Last post by robbie
Tue May 28, 2019 7:13 am
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My wife has MS and libido is gone.
Replies: 19
by
Fireguy4669 » Sun Sep 22, 2013 6:56 am
First post
Hello all,
First time post. 3 years ago my wife was diagnosed with MS after the birth of our son. Over the course of those years her libido and...
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I thought Dr.Phil today had a couple on that might help answer some questions about thoughts and feelings that some of us may have :) 12/3
- 19 Replies
- 13812 Views
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Last post by robbie
Tue Mar 12, 2019 11:13 am
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gadolinium good times
Replies: 2
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jimmylegs » Fri Mar 08, 2019 5:05 pm
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another spin thru the magnet this eve. they had a lovely time finding a vein - i have polka dot arms :S chuggin agua now to clear out the dye.
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HA already done. 'this here is orion's belt. and that one is the north star. that hot mess over there is the milky way. watch your step'
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Last post by jimmylegs
Fri Mar 08, 2019 6:02 pm
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fed up
Replies: 13
by
jimmylegs » Mon Nov 05, 2018 8:27 am
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venting re my friend's cancer xp.
i tabled the zinc idea much earlier this year, then gave it up to a large extent when we heard 'no' re zinc...
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aaaaand next up on the frustration train, parent going in for hip replacement. nutritional prep infuriating.
300 mg iron per day.
just sayin:
Low...
- 13 Replies
- 2631 Views
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Last post by jimmylegs
Fri Mar 08, 2019 5:00 pm
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story behind "The show must go on"
by
zen2010 » Fri Mar 01, 2019 10:04 am
Hi,
Today, I discovered the story behind that song.
Did you know this song was recorded a few weeks before Freddie Mercury’s death?
He knew he...
- 0 Replies
- 822 Views
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Last post by zen2010
Fri Mar 01, 2019 10:04 am
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Irony for breakfast
Replies: 7
by
ArthurJ » Mon Feb 04, 2019 4:46 pm
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You gotta love the irony in the disconnect of our modern food supply. I was eating fresh strawberries, watermelon and an orange for breakfast today...
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mixed berries purchased from a local farm and frozen last season. enjoying these today in a bowl of steel cut oats and milk topped with flax seed and...
- 7 Replies
- 1191 Views
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Last post by jimmylegs
Thu Feb 07, 2019 4:18 am
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Can MS look like withdrawal?
Replies: 6
by
Meowbunnymoo » Mon Dec 31, 2018 7:11 am
First post
My boyfriend isn't feeling so well, but I've suspected drug abuse.
Can MS look like withdrawal from opiates, or any other drug?
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My boyfriend isn't feeling so well, but I've suspected drug abuse.
Can MS look like withdrawal from opiates, or any other drug?
From the info...
- 6 Replies
- 1471 Views
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Last post by ArthurJ
Wed Jan 02, 2019 1:10 am
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Last post by Zyklon
Tue Jan 01, 2019 9:44 am
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ok that was a headache
Replies: 58
by
jimmylegs » Mon Mar 12, 2018 5:16 am
First post
had some kind of infection recently. all over painful. an especially severe headache.
i took so much magnesium glycinate trying to stop the pain, i...
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update re
results were crap. d3 only went up by 40 nmol/l after one megadose meant to achieve 50 and which from personal xp had previously achieved...
- 58 Replies
- 10757 Views
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Last post by jimmylegs
Fri Nov 30, 2018 7:15 am
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R·E·S·P·E·C·T
by
NHE » Fri Aug 17, 2018 1:39 am
Aretha Franklin, the Queen of Soul, died Thursday morning at her home in Detroit after a long battle with cancer, her family said in a statement. She...
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- 1402 Views
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Last post by NHE
Fri Aug 17, 2018 1:39 am
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Quote of the day...
by
NHE » Thu May 17, 2018 1:26 am
The reasonable man adapts himself to the world, the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress...
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- 1415 Views
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Last post by NHE
Thu May 17, 2018 1:26 am
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i am a bad friend
Replies: 5
by
jimmylegs » Thu Jan 25, 2018 5:01 pm
First post
i just invited my friend to participate in an experiment to see which of us would react more strongly to 250mg niacin, given that she takes 4 caps of...
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yeah kinda think i went over the full vs empty stomach thing above. i'm lacklustre either way. not my friend. i started my new fish oil today
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- 2494 Views
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Last post by jimmylegs
Sat Jan 27, 2018 7:29 pm
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- 8 Replies
- 4581 Views
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Last post by zen2010
Sat Jan 20, 2018 5:13 am
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- 2 Replies
- 1884 Views
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Last post by NHE
Sun Dec 31, 2017 11:49 pm
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College Scholarships wanted.
Replies: 2
by
MSKarateka » Wed Dec 20, 2017 5:02 pm
First post
As some of you may remember, I am currently going to college for a double major in Finance and Managerial Accounting. I have 2 semesters left.
This...
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Thanks for letting me know.
- 2 Replies
- 2020 Views
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Last post by MSKarateka
Sat Dec 23, 2017 7:19 pm
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