A forum to post questions, answers and discussion about general medications not specifically for multiple sclerosis, such as prednisone, painkillers, etc.
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Concerns about gabapentin
Replies: 5
by
NHE » Wed Apr 10, 2019 2:26 am
First post
New concerns regarding gabapentin, e.g., side effects, interactions with other medications, withdrawal symptoms, etc.
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Same here NHE - I was offered it early on too. I declined it because the side effects seemed like MS symptoms. The burning feet are very bad at...
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Last post by Jaded
Sat Apr 24, 2021 1:22 pm
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Acyclovir/Valacyclovir long term use
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DIM » Mon Mar 22, 2021 6:41 am
For those that take one of the above antivirals for their MS could you post please:
-for how long you take it
-what, if any, side effects you...
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Last post by DIM
Mon Mar 22, 2021 6:41 am
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Metformin for treatment of multiple sclerosis?
Replies: 3
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jackD » Tue Feb 03, 2015 8:55 pm
First post
Seems like Metformin does all the right things to treat MS.
jackD
J Immunol. 2009 Jun 15;182(12):8005-14. doi: 10.4049/jimmunol.0803563....
Last post
2021 Apr
Department of Physiology, Faculty of Medical Sciences, Tarbiat Modares University, Tehran, Iran
Metformin Protects Myelin from Degeneration...
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Last post by Petr75
Tue Mar 16, 2021 12:13 pm
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Carcininogen found in Zantac (ranitidine)
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NHE » Wed Sep 18, 2019 3:01 am
FDA finds probable carcinogen in Zantac and other heartburn drugs
A probable carcinogen that prompted the recall of several versions of blood...
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Last post by NHE
Wed Sep 18, 2019 3:01 am
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PAIN
Replies: 2
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msmything » Mon Feb 19, 2018 6:33 pm
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I am in pretty much life-limiting pain. Not only do I dislike the pain, I very much dislike the solutions from the doctors. I am on 2 different types...
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I am in pretty much life-limiting pain. Not only do I dislike the pain, I very much dislike the solutions from the doctors. I am on 2 different types...
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Last post by NHE
Mon Apr 01, 2019 7:17 pm
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Concerning pain medications...
Replies: 11
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RobM105 » Wed May 23, 2012 1:59 am
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Does anybody have any thoughts on pain medications? I'm just curious as to which ones work best. My 300mg x 3 a day of gabapentin used to work, but...
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Nubain / Nalbuphine. It is an agonist antagonist. It will not get you high. It is not addictive. It is not a scheduled painkiller. It will however...
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Last post by vender
Fri Aug 31, 2018 11:45 am
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Nubain Nalbuphine
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vender » Fri Aug 31, 2018 11:39 am
Hello has anyone tried Nubain for spasticity in the legs? For pain? Not many people know of this drug so I am trying to find out if others are using...
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Last post by vender
Fri Aug 31, 2018 11:39 am
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Surprising Gabapentin Side Effects
Replies: 3
by
NHE » Fri Dec 18, 2015 4:54 am
First post
Surprising Gabapentin Side Effects
Gabapentin Side Effects:
Dizziness, vertigo
Fatigue and or tiredness
Unsteadiness or incoordination...
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Gabapentin makes me tired and forgetful.
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Last post by Lostpuppy
Tue May 15, 2018 10:50 pm
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Advice on a new drug
by
r7111 » Mon Nov 06, 2017 11:11 am
I need to find a new drug as I would like to father a child.
Ideally I would like something with:
No PML risk
Oral
Men can use who wish to father a...
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Last post by r7111
Mon Nov 06, 2017 11:11 am
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Solumedrol to Prednisone withdrawl amount
Replies: 2
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MomJ » Wed Jun 21, 2017 4:39 pm
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After 5 days of 1 gram of Solumedrol IV, what was the taper dose prescribed to you of Prednisone and for how long for each taper reduction?
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7 days 1 gram IV, 64mg taper start, weekly 8mg decrease. Multiple systems, EDSS 5-6 at the start of attack.
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Last post by Zyklon
Wed Jun 28, 2017 7:29 am
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Last post by NHE
Sun Apr 23, 2017 6:42 am
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Last post by SeanReynolds
Wed Apr 12, 2017 8:54 pm
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Pain and the Feds?
Replies: 7
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Cammie » Sun Sep 11, 2016 11:10 am
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My pain has increased, so I increased my Oxycodone but still stayed within prescription limits. When I called for my renewal of the med, they mailed...
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I do take D3. I was not given the number, only told it was low and I needed to double. For future reference, you should request your own copy of any...
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Last post by lyndacarol
Thu Sep 22, 2016 6:14 am
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Last post by NHE
Thu Aug 18, 2016 12:00 am
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Does anyone take Effexor (venlafaxine) for depression?
Replies: 3
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Lynn62 » Fri Jul 29, 2016 11:01 am
First post
I saw my MS specialist last week for my yearly visit. I am SPMS now after RRMS since 1990. Lately I have been depressed about all the things I can't...
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Thank you both for the replies. I have heard so much bad stuff about Effexor that I am in no hurry to try it or even take it at all. I am going to...
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Last post by Lynn62
Sat Jul 30, 2016 8:53 am
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MS Drugs in General
Replies: 3
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thisiswater » Tue Feb 09, 2016 1:04 pm
First post
I am brand new to MS drugs. I'll be having a spinal tap to confirm my neuro's pending dx of MS (based on 2 MRIs) and the next step will be treatment...
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Tell me more about Lemtrada or HSCT; is the latter stem cell tx? Also, which are oral meds and which are by injection or IV. Will I likely have to...
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Last post by thisiswater
Tue Feb 09, 2016 7:39 pm
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Aspirin + omega3 can reduce inflammation?
Replies: 5
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kw202 » Wed Dec 30, 2015 7:53 am
First post
Hi all,
Ran across this article while poking around on MS and diet/omega-3 supplementation. It seems that there are some studies showing that...
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hope the appointment went smoothly :)
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Last post by jimmylegs
Mon Jan 04, 2016 3:08 pm
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acthar?
Replies: 2
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dkep11 » Fri Apr 01, 2011 4:04 pm
First post
Hi all
In a few weeks I've been approved to give Acthar a try, visit acthar.com for more poop.
It is ungodly expensive; if you are interested too...
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THE doctor was dumbfounded: a drug that used to cost $50 was now selling for $28,000 for a 5-milliliter vial.
H.P. Acthar Gel was initially...
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- 5310 Views
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Last post by NHE
Sat Nov 21, 2015 1:34 am
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Suicide: a Gabapentin side effect
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NHE » Fri Aug 07, 2015 4:25 am
The People's Pharmacy discusses the risks of off-label Gabapentin use, the side effects of which include severe depression and suicide. Gapapentin is...
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Last post by NHE
Fri Aug 07, 2015 4:25 am
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anybody used sodium chlorite for MS treatment ?
Replies: 1
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ghaith » Tue May 05, 2015 3:33 am
First post
I recently came across a claim (no idea how true) that a man prepared a miracle mineral supplement that can cure so many diseases and MS, it is...
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One brief review of the Material Safety Data Sheet (MSDS) was all it took for me to think that people recommending sodium chlorite have lost all good...
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Last post by NHE
Wed May 06, 2015 1:06 am
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Klonopin (clonozapam) for spasticity?
Replies: 1
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Lynn62 » Sat Jan 03, 2015 11:29 am
First post
Does anyone take Klonopin for spasticity?
My neuro told me to try 0.5mg at bedtime to help my leg stiffness since I can't tolerate baclofen....
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Well, I did try klonopin (clonazepam) for a month but had to titrate off and stop because it did not help and made me weak, dizzy, and VERY...
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Last post by Lynn62
Tue Apr 28, 2015 7:42 am
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HYDRALAZINE - Blood pressure drugs - MS
Replies: 16
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jackD » Wed Jan 11, 2012 8:20 pm
First post
My doctor put me on another blood pressure drug to control my high blood pressure.
I was going to complain that I was already taking 4 other blood...
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Interesting... another blood pressure med, Lisinopril, is also being looked at as a possible ms treatment.
IEEE Pulse. 2014 Jan-Feb;5(1):63-7....
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Last post by jackD
Thu Oct 23, 2014 9:19 am
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Question...IV Solu-Medrol and Spasticity
Replies: 5
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Ejonesbowlie » Fri Oct 17, 2014 12:16 pm
First post
Hello Everyone,
I am new to the board. Posted an introduction the other day, but have a question for you as I am new to all of this :smile: I was...
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Thank you for the info on this Elliot. I did a little research on this and it does sound promising. Looks like there was a small study done on the...
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Last post by Ejonesbowlie
Sat Oct 18, 2014 3:22 pm
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Botox in ankle
by
DougL » Mon May 26, 2014 8:37 am
my wife just got her first injection of botox in her ankle.
when doc was done my wife looked at him and said but doc, my ankle doesn't look any...
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Last post by DougL
Mon May 26, 2014 8:37 am
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Baclofen?
Replies: 3
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flynn » Mon Apr 08, 2013 5:37 am
First post
Hi there,
New to the forum...dx'd almost 7 yrs ago.
My spasticity (especially in my legs) got pretty bad over the winter with the cold we have in...
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Is there any alternative to baclofen that doesn't have this side effect?
the alternative - Botox.
my wife found with baclofen all her muscles...
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- 4481 Views
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Last post by DougL
Wed Apr 23, 2014 8:36 am
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gabapentin
Replies: 10
by
its2much » Tue Aug 16, 2011 6:47 am
First post
My neuro put me on gabapentin for pain in my legs and hips. Fatigue was an issue and now I'm even more fatigued.. My balance is of as well. Is this...
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Has anyone out there considered pre-gabalin as opposed to gabapentin? I have read personal accounts that they are not as fatigued and reduced...
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- 7240 Views
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Last post by msmything
Tue Mar 11, 2014 2:09 pm
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bone mineral density & corticosteroids
Replies: 3
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WarmOutToday » Mon Oct 14, 2013 1:53 pm
First post
after being treated with a very high dose of steroids, i was given a diagnosis of schummermans disease & osteo-penia. before the steroids they called...
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I had osteo-penia from using Prednisone fairly often. I was put on Fosamax for a year, and it helped return my bone density to low normal.
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Last post by CureOrBust
Thu Oct 17, 2013 2:26 am
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FDA Warning on Tylenol (acetaminophen)
Replies: 2
by
NHE » Mon Aug 05, 2013 12:47 am
First post
The FDA has recently published a new warning that acetaminophen can cause rare and sometimes lethal skin reactions such as Stevens-Johnson Syndrome...
Last post
An article on Tylenol from Propublica...
Nine Ideas to Make Tylenol and Other Acetaminophen Drugs Safer
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Last post by NHE
Thu Sep 26, 2013 4:12 am
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Experiences with Amantadine
Replies: 7
by
Froggie » Sun Aug 21, 2011 11:06 am
First post
Hello All-
Has anyone taken Amantadine for fatigue? It was originally used to treat the flu, but it's supposed to be efficacious with fighting...
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I tried amantadine with no result. I switched to Provigil and it worked great!!
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Last post by aredmosquito
Sun Sep 22, 2013 8:31 pm
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Tecfidera or thyroid nodule?
Replies: 2
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mpalla » Tue Jul 16, 2013 8:43 pm
First post
Good evening. I am curious...I am losing hair by the handful and have been on tecfidera now 2 weeks. Only side effect is belly ache and when I gotta...
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Went to endo....yaaay a good result. My nodules are too small to biopsy, got tests that take 2 weeks to get results to tell my levels then go from...
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- 4658 Views
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Last post by mpalla
Thu Jul 25, 2013 9:18 pm
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Azathioprin : imuran
Replies: 2
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LSITC » Mon Jul 08, 2013 6:33 am
First post
Hi to all out there in interweb land
I have just been diagnosed with autoimmune hepatitis (in addition to relapsing remitting ms) and my liver...
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I have never used azathioprine for MS nor any of the other chemo drugs. However, here is an interesting article about chemotherapy...
Chemo drugs...
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- 3915 Views
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Last post by NHE
Mon Jul 08, 2013 10:52 pm
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Corticosteroids Boost Risk of Clots
Replies: 1
by
NHE » Wed Jun 05, 2013 12:38 am
First post
Corticosteroids Boost Risk of Clots
Blood clots deep in the veins are among the leading causes of death in the U.S. They are called deep vein...
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My ideas on the finding of this study will surprise NO ONE:
I think this is the likely biological mechanism: Glucocorticosteroids elevate blood...
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Last post by lyndacarol
Wed Jun 05, 2013 5:32 pm
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Last post by adamt
Wed May 01, 2013 1:04 pm
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Oral prednisolone vs IV.
Replies: 17
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whiteflag » Fri Aug 05, 2011 3:06 pm
First post
Hi all, I'm new here.
I keep hearing of oral prednisolone vs IV, such as IVSM.
I was dx'd with ms in 2004 and have had minor symptoms since then...
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I was diagnosed a month ago and only have done one course of IV steroids, 1000mg a day. I could only sleep for two hours at a time, my legs were...
- 17 Replies
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Last post by aredmosquito
Thu Apr 11, 2013 7:16 pm
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Is this a symptom of MS?
Replies: 1
by
whiteflag » Wed Aug 24, 2011 3:52 am
First post
Can anyone shed some light on this, or whether you have experience this before.
I'm RRMS - about 7 years since dx, but what I want to explain refers...
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Hi whiteflag! i don't know if anyone have answered ur question.
But i have it too just like u. Everytime i wake up from laying position or get up...
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Last post by ljelome
Tue Feb 12, 2013 11:03 pm
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oxybutynin
Replies: 8
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Maledicte » Sat Dec 24, 2011 6:25 pm
First post
anyone been given this?
i urinate waaaay too much at night, which makes me extremely tired all day (which i urinate constantly then too)
I get up...
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Dear Maledicte,
I used to have the same problem like u, frequent urinating at night. What i do to stop it is I drink alot of water (1,5 - 2 Ltr/day)...
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- 5649 Views
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Last post by ljelome
Tue Feb 12, 2013 10:47 pm
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Methotrexate or Azathioprine?
Replies: 7
by
burntsienna » Mon Oct 10, 2011 5:37 am
First post
As I have not been able to tollerate any of the first line DMD treatments (Interferons or Copaxone) my neuro has suggested that I try either...
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Hi! burntsienna,
Sorry, i'm new here. I can't turn away after reading your post.
My neurologist had prescribed me once with imuran (azathioprine)....
- 7 Replies
- 6567 Views
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Last post by ljelome
Tue Feb 12, 2013 9:07 pm
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SMIV: not working?
by
shortcake » Tue Nov 13, 2012 10:09 am
I got SMIV last week on Wednesday, Thursday and Friday for a bad relapse. It was 1g each day (I think). It was my first time getting this. Haven't...
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- 4517 Views
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Last post by shortcake
Tue Nov 13, 2012 10:09 am
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HBOT
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stazmatic » Tue Aug 28, 2012 7:37 pm
Has anyone on this board tried hyperbaric oxygen therapy to help heal their symptoms of MS that haven't gone away on their own? I have been doing...
- 0 Replies
- 4194 Views
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Last post by stazmatic
Tue Aug 28, 2012 7:37 pm
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My doctors prescribed me 1250mg of Predisone?
Replies: 3
by
RobM105 » Wed May 23, 2012 1:55 am
First post
Does that seem right to you? It's a particularly bad exacerbation: I can barely see, I can barely move my legs, I can barely feel my hands and legs...
Last post
Yeah. I guess with an autoimmune condition that tanking the immune system would be the solution in extreme cases.
Thanks for the clarification. I was...
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Last post by RobM105
Wed May 23, 2012 11:26 am
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Drugs to help an over active bladder,which is most effective
Replies: 1
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adamt » Sun Feb 05, 2012 5:38 am
First post
Hi,
I took Tolterodine xl 4mg for 2 months with a slight improvement in frequency, but have been taking Trospium 60mg for the past 3 weeks with...
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I am having over active bladder issues at the moment, I believe coupled with some sort of bladder infection.
Not had these symptoms of having to rush...
- 1 Replies
- 4800 Views
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Last post by LR1234
Sat Feb 18, 2012 6:28 am
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detrol. side effects
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Gardenia » Fri Feb 03, 2012 1:20 pm
Constipation bc I take 4 a day,, water, fibre doesn't do the trick Senokot S does but I worry, i've read can't use it too much. Does any one take...
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- 4467 Views
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Last post by Gardenia
Fri Feb 03, 2012 1:20 pm
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IVIG
Replies: 5
by
bspotts1 » Fri Jan 13, 2012 8:06 am
First post
Searching....for anyone with any experience taking IVIG - intravenous immunoglobulin. It's a blood product extracted from the plasma of donors and...
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Thanks Kirsten for sharing your experience. My wife is the ms'er in the family and she has not yet been approved to start the infusion...just thought...
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- 5195 Views
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Last post by bspotts1
Tue Jan 17, 2012 9:14 am
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Kynoselen
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Trent » Sat Sep 10, 2011 2:29 am
Has anyone tried this for recovering from wasted muscle? It was developed in France for use with racehorses, but is now used by bodybuilders such as...
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- 4789 Views
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Last post by Trent
Sat Sep 10, 2011 2:29 am
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Botox
Replies: 4
by
lyndacarol » Mon Aug 08, 2011 4:34 pm
First post
There seems to be growing interest in using Botox for urinary problems:
Pyott said he expects U.S. regulators this year to approve Botox for...
Last post
Quote:
Or perhaps, detrusor/sphincter muscles fail to coordinate their actions. To me, the muscles seem to be the key player. Which scientists would...
- 4 Replies
- 5284 Views
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Last post by Wonderfulworld
Wed Aug 10, 2011 10:39 am
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IVSM working or not?
Replies: 1
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whiteflag » Tue Aug 09, 2011 3:28 pm
First post
I've started a 5-day course of IVSM yesterday so today is day 2. I've had this done 7 yrs ago but I can't remember how long it took for it to take...
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I've started a 5-day course of IVSM yesterday so today is day 2. I've had this done 7 yrs ago but I can't remember how long it took for it to take...
- 1 Replies
- 5010 Views
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Last post by NHE
Tue Aug 09, 2011 10:25 pm
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The Sole Post
Replies: 1
by
L » Wed Nov 03, 2010 1:23 pm
First post
My post is the sole post!
Last post
Now we have the TWO lone posts!
I think I had Sol-Medural once, many years ago--didn't have any real side effects that I remember...so I'm no help...
- 1 Replies
- 5147 Views
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Last post by koopico
Thu Nov 11, 2010 8:15 am
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Steroids
Replies: 1
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lyndacarol » Wed Nov 03, 2010 4:47 pm
First post
In response to the suggestion by mattalleng and creation of this new forum...
There have been many postings on steroids in numerous forums. Perhaps...
Last post
Thanks for listing those, Lynda!
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- 5845 Views
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Last post by koopico
Wed Nov 10, 2010 11:23 am
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