Gilenya, or Fingolimod, is the first approved oral disease modifying drug for MS.
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Last post by NHE
Sat Jul 16, 2016 11:35 pm
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FDA approves generic fingolimod
by
NHE » Tue Jun 30, 2020 8:35 am
FDA Approves Generic Versions of Gilenya
December 6, 2019
On December 5, 2019, the United States Food and Drug Administration (FDA) announced...
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Last post by NHE
Tue Jun 30, 2020 8:35 am
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Incidence of fingolimod-associated macular oedema
Replies: 1
by
NHE » Sat May 16, 2020 9:25 am
First post
Real-world incidence of fingolimod-associated macular oedema.
Mult Scler Relat Disord. 2020 Apr 28;42:102125.
BACKGROUND: Fingolimod (Gilenya,...
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Real-world incidence of fingolimod-associated macular oedema.
Mult Scler Relat Disord. 2020 Apr 28;42:102125.
I was initially unaware of the...
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- 411 Views
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Last post by NHE
Sun May 17, 2020 7:58 pm
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Beneficial Effects of Fingolimod in Alzheimer's Disease
Replies: 1
by
Petr75 » Thu Sep 26, 2019 3:19 am
First post
2019 Sep
Department of Biological Chemistry, Medical School, National and Kapodistrian University of Athens, Greece
Beneficial Effects of Fingolimod...
Last post
2019 Jul 29
Department of Veterans Affairs, VA Boston Healthcare System, Boston
Dual dose-dependent effects of fingolimod in a mouse model of...
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Last post by Petr75
Thu Oct 03, 2019 10:54 am
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FDA Warning on Stopping Gilenya
Replies: 5
by
NHE » Thu Feb 07, 2019 2:20 am
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The FDA has issued a warning regarding that stopping Gilenya may increase MS disease activity to levels worse than when the drug was first started....
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I have joined, and already received my first dose for:
Thanks for the information. I hope that this works out well for you. It would be great to...
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Last post by NHE
Mon Mar 18, 2019 10:09 pm
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Last post by MSUK
Thu Jan 25, 2018 6:54 am
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Last post by MSUK
Tue Dec 19, 2017 6:47 am
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Last post by MSUK
Mon Oct 30, 2017 7:55 am
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Gileyna significantly reduces relapses in children...
Replies: 1
by
MSUK » Tue Sep 05, 2017 2:51 am
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Phase III trial shows Gileyna significantly reduces relapses in children and adolescents with MS
A phase III Paradigms study in paediatric multiple...
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Phase III trial shows Gileyna significantly reduces relapses in children and adolescents with MS
A phase III Paradigms study in paediatric multiple...
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Last post by NHE
Tue Sep 05, 2017 10:34 pm
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Gilenya and MS in Netherlands
by
rice123 » Fri Jul 07, 2017 4:26 am
Hello Everyone,
I have recently joined this community.
I have a question regarding the access to gilenya in Netherlands.
I currently live in Turkey...
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Last post by rice123
Fri Jul 07, 2017 4:26 am
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Last post by MSUK
Thu May 04, 2017 2:22 am
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Survey Closed
Replies: 1
by
CaseyStratisGRP » Wed Mar 22, 2017 8:27 am
First post
Thank you for your input! We truly appreciate your time and your feedback.
Last post
[quote= Stratis Group ]
About Our Company
The biopharmaceutical landscape is constantly evolving and casting new light on how manufacturers must...
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Last post by NHE
Thu Mar 23, 2017 5:55 am
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Coughing side effect?
Replies: 2
by
fishee2 » Wed Mar 01, 2017 2:27 pm
First post
Hey All,
I started on Gilenya back in November last year. It has been great, no complaints. However in the past few weeks I've picked up this cough...
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I have a cough and started G about 3 weeks ago. Probably a bit early to say its a side effect of G I guess.
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Last post by LisainOZ
Fri Mar 03, 2017 7:33 pm
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Real risk of ‘rebound syndrome’ after stopping Gilenya...
Replies: 4
by
MSUK » Thu May 05, 2016 12:58 am
First post
Real risk of ‘rebound syndrome’ after stopping Gilenya treatment, study claims
‘Rebound syndrome’ following cessation of Gilenya for multiple...
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Yeah, there are always tradeoffs. I've used ativan off and on a lot in my life so I'm ok with it. thanks for the info.
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Last post by trrish
Wed Mar 01, 2017 4:22 pm
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Does gilenya stop pot from working?
Replies: 1
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msmyass » Mon Jan 09, 2017 8:36 pm
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I have found huge benefits from using pot for pain and I am about to switch to gilenya and I read that it stops cannabinoids from working. This...
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I've used cannabis while on Gilenya and when off of it, and I did not notice any different whatsoever. I also never had pain from the Gilenya. I wish...
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Last post by trrish
Sun Feb 26, 2017 11:50 am
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Doubt about cannabinoids and fingolimod
Replies: 2
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623san » Sun Mar 30, 2014 2:42 pm
First post
Hi,
I'm a diagnosed MS patient for around 7 years or so. I've been taking Interferon B1a, first 44mu and now 22mu throughout all this time.
Around...
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I was on Gilenya for 5 years and I use cannabis. I went off of it 5 months ago. I did not notice any difference in the effects of cannabis while on...
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Last post by trrish
Sun Feb 26, 2017 9:57 am
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I'm switching to gilenya and I'm scared help please
Replies: 1
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msmyass » Mon Jan 09, 2017 9:17 pm
First post
So if i was on copaxone and it didn't work, and I switched to tecfidera only to get new enhanced lesions, and my dr is suggesting gilenya is that...
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Apologies for late reply! My wife is a school teacher, switched to gilenya two years ago after developing antibodies to tysabri. No side effects at...
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Last post by dreddk
Sun Feb 12, 2017 9:11 pm
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Last post by MSUK
Fri Feb 10, 2017 7:19 am
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Last post by Margarita
Fri Feb 03, 2017 5:26 am
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Gilenya may be best in MS patients failing initial treatment
Replies: 2
by
MSUK » Wed Feb 11, 2015 4:57 am
First post
Switching multiple sclerosis patients with disease activity despite treatment with a first-line injectable to oral fingolimod (Gilenya) was...
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There are no simple answers to your questions but from what I can determine, there is no concrete evidence that any of the MS drugs really work (I am...
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Last post by ElliotB
Wed Jan 11, 2017 6:04 am
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Last post by MSUK
Tue Nov 01, 2016 5:33 am
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Anyone carry the JC virus and take Gilenya?
Replies: 1
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ThePirate » Mon Mar 21, 2016 2:06 am
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Hi all! I've been taking Aubaggio for the last few years, but my neurologist wants me to switch meds as I've had two relapses in the last two years....
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This is probably way too late for you, but I do. Found out I am JVC + way after starting Gilenya. I was curious about my status as I knew I will most...
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Last post by sophie447
Mon Jul 11, 2016 5:45 pm
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Last post by seeva
Sat Jun 11, 2016 5:36 am
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may have to start Gilenya
Replies: 1
by
proudmutt » Thu Apr 23, 2015 4:50 pm
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I registered on this forum largely to find people taking Gilenya and ask about how likely side effects to it are. And WHAT they are most likely to...
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How has your experience been? I start Gilenya tomorrow.
Thanks!
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Last post by Brichardson22
Sun Jun 05, 2016 8:03 pm
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My Gilenya First Dose Experience
Replies: 3
by
ovifan08 » Thu Feb 07, 2013 7:23 am
First post
I took my first does of Gilenya at 8am yesterday morning. I was being monitored at a Concentra Immediate Care center. I wasn't sure what to expect,...
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Are you still on Gilenya? I start my FDO Monday morning and would love to hear how the medicine has been - good and bad. Thanks!
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Last post by Brichardson22
Sun Jun 05, 2016 7:59 pm
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Last post by Cliffhanger
Fri Jun 03, 2016 9:29 am
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Last post by MSUK
Mon Apr 18, 2016 2:38 am
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Gilenya shown to benefit neurons
by
MSUK » Thu Apr 07, 2016 4:50 am
The immune system-suppressing multiple sclerosis (MS) drug Gilenya also has potentially beneficial effects on the nervous system, according to a...
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- 2876 Views
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Last post by MSUK
Thu Apr 07, 2016 4:50 am
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Day #.... Highlights of the first few days
Replies: 40
by
lmacalus » Wed Feb 02, 2011 3:09 pm
First post
So day one - whew, LONG wait in MD waiting room. Took first dose at nearby cardiologist office. Staff great & kind & NO ill effects. heart rate, BP &...
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Still on G, YEARS later. For the past 5 years, I have enjoyed beating the expectation of the reduction in relapses and quite frankly being...
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Last post by lmacalus
Sat Mar 12, 2016 10:12 am
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ponesimod (or gillenia) effects
Replies: 1
by
zorro8081980 » Wed Jan 20, 2016 7:00 pm
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I have been proposed to try to take part in ponesimod clinical trial, third phase (without placebo). Ponesimod is a drug made by Actellion, the Swiss...
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Does it worth it? Is gilenia really effective drug? What is the estimated rate of disability slowing? What side effects have to be aware of?
Hi...
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Last post by euphoniaa
Thu Jan 21, 2016 6:06 am
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Patients treated with Gilenya “show benefits”
Replies: 1
by
MSUK » Thu Jan 14, 2016 5:34 am
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New research evaluating Gilenya’s clinical efficacy, safety, and tolerability in patients with relapsing-remitting multiple sclerosis (RRMS) has...
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..following 105 RRMS patients...
finding the oral drug’s efficacy in a real-world setting was comparable to results observed in Phase 3 clinical...
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Last post by CureOrBust
Thu Jan 14, 2016 5:52 pm
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Generic Gilenya rival launched in Russia
Replies: 1
by
MSUK » Tue Jan 12, 2016 2:28 am
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Russian firm BioIntegrator says it has successfully launched Neskler -- the first generic version of Gilenya...Read more -
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I wonder what the equivalent of the FDA registered trial process is in Russia that this went through? was it a large placebo controlled trial? I...
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Last post by CureOrBust
Thu Jan 14, 2016 2:28 am
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Last post by MSUK
Wed Nov 11, 2015 6:25 am
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Last post by MSUK
Mon Oct 12, 2015 4:43 am
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Last post by MSUK
Mon Oct 12, 2015 12:46 am
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Last post by MSUK
Tue Sep 22, 2015 1:08 am
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Gilenya and LDN
Replies: 4
by
RedPepper » Sat Oct 22, 2011 11:55 am
First post
Hi, to the forum:
Has anyone been thinking of taking both Gilenya and LDN?
Does anyone know if there are contraindications?
What a dilemma*
I would...
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Any updates on this topic? I'm also considering Gilenya, if it works ok with LDN - which has helped me over the past several years. RRMS + some...
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Last post by CSHealth
Fri Sep 11, 2015 2:02 pm
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Third case of PML reported to Novartis
by
MSUK » Wed Aug 19, 2015 4:06 am
Novartis has been notified of a third case of progressive multifocal leukoencephalopathy (PML) in a patient with relapsing multiple sclerosis (MS)...
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Last post by MSUK
Wed Aug 19, 2015 4:06 am
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Last post by MSUK
Wed Aug 05, 2015 4:11 am
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Gilenya and Airplane travel
Replies: 1
by
mccpm » Sat May 02, 2015 6:37 pm
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Hello all. I am due to start Gilenya at the end of next week. I have been on Copaxone for about 2 years but still seeing a new lesion every few...
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Never been an issue for me over the last 3-4 years.Take normal precautions and ensure you have enough meds with you. I recommend having them in your...
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Last post by Jmayginb
Thu Jul 30, 2015 8:30 pm
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A severe side effect response to gilenya
Replies: 13
by
Cece » Sat Mar 31, 2012 6:29 pm
First post
A Canadians first dose: Well unfortunately it did not go well. My blood pressure dropped so quickly, to 30 bpm they sent me to VGH and after, every...
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Honestly, there are terrible side effect possibilities with many drug therapies. I have been on Gilenya for 3 yrs.. If I recall accurately....
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Last post by Jmayginb
Thu Jul 30, 2015 8:26 pm
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Last post by MSUK
Mon Jul 20, 2015 6:43 am
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Last post by MSUK
Tue Jun 30, 2015 12:47 am
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- 3505 Views
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Last post by MSUK
Thu Jun 18, 2015 2:46 am
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MS mom needs medicine
by
Hedaya » Mon Jun 15, 2015 1:07 am
Dear all,
First of all I want to express my admiration for your courage in facing MS and your kindness in supporting the patients.
My name is...
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- 3285 Views
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Last post by Hedaya
Mon Jun 15, 2015 1:07 am
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New insights into MS treatment
by
MSUK » Mon May 18, 2015 3:06 am
Data from two Novartis phase III clinical trials show that adding brain shrinkage (brain volume loss) to an existing tool to assess multiple...
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- 3455 Views
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Last post by MSUK
Mon May 18, 2015 3:06 am
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- 3312 Views
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Last post by MSUK
Wed Apr 29, 2015 1:41 am
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Patient taking Gilenya contracts PML
by
MSUK » Tue Mar 10, 2015 2:47 am
A woman in a Gilenya after-market study says the company didn’t notify all participants about a new case of progressive multifocal...
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- 3946 Views
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Last post by MSUK
Tue Mar 10, 2015 2:47 am
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Best decision I ever made!
Replies: 3
by
Deedle » Sat Dec 21, 2013 8:31 am
First post
I've been on Gilenya for 4 years now (reluctantly started in the clinical trial because I ran out of DMD options) and I've never felt better. I've...
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It's still going well for me and this April will be 7 years on G with only one very small relapse. Are you a member of the Gilenya group on Facebook?...
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- 5040 Views
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Last post by Deedle
Tue Jan 13, 2015 9:33 am
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- 0 Replies
- 4127 Views
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Last post by MSUK
Mon Jan 05, 2015 1:29 am
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