A board to discuss the Multiple Sclerosis modifying drug Avonex
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Experiences with Avonex
Replies: 18
by
Arron » Wed Mar 29, 2006 3:29 pm
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This is a call for our members who currently are, or previously have taken, Avonex for the treatment of MS to please share your experiences with the...
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I was on Avonex for about eight months. After month six, I developed severe general anxiety (not about sticking myself with a needle), bad enough...
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Last post by Liverly
Fri May 05, 2017 12:15 pm
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Last post by NHE
Sat Jul 16, 2016 10:49 pm
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Psoriasis & Avonex
by
wahinewithms » Wed Sep 19, 2018 11:26 am
Aloha folks,
I have MS and psoriasis. I had read that interferons could potentially help lessen the scales of psoriasis, but after only 2 Avonex...
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Last post by wahinewithms
Wed Sep 19, 2018 11:26 am
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First Injection
Replies: 2
by
wahinewithms » Tue Sep 11, 2018 6:35 pm
First post
Aloha Folks,
I'm new to this. Diagnosed with MS in March, and injected with Avonex for the first time yesterday.
I read that injecting during the...
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400 mg ibuprofen 30 minutes before injection, 600 mg 2 hours after injection.
I gradually decreased it to zero. Took about 3-4 months for me.
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Last post by Zyklon
Wed Sep 12, 2018 3:23 am
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- 0 Replies
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Last post by NHE
Wed Sep 05, 2018 9:33 pm
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New Blood Test Predicts Who Will Benefit From Interferons
Replies: 8
by
mrsilkykat » Sun Apr 11, 2010 5:15 pm
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A simple blood test is now available to predict who will and who will not benefit by using Interferons. No more guess work. No more trying to figure...
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Has anybody heard anymore news on this blood test ?
Sorry I have been away from this site for quite awhile.
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Last post by lovebug
Sat Dec 02, 2017 10:59 pm
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Nuro wants another MRI
by
Deadheadgrateful » Mon Sep 18, 2017 2:14 pm
I just had one 2 months ago and now she wants another to see if my Avonex is causing lesions.
Is this something on the common side for nuros to do?...
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Last post by Deadheadgrateful
Mon Sep 18, 2017 2:14 pm
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For anyone flying
Replies: 4
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Tbone » Fri Nov 09, 2007 6:10 pm
First post
This is from another post I had setup. I hope this may be helpful for someone...
I just ordered from insulincase.com the Small Medication Cooler...
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Regarding the polar bear cooler, I recent went to Europe for two weeks, that's six syringes of rebif. Looked for a medical cooler all over the web...
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Last post by Markd
Sun Sep 04, 2016 7:44 pm
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NEW to Avonex
Replies: 18
by
cene » Fri Aug 05, 2016 5:24 am
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Hi All,
I'm new in the forum and was diagnosed with MS few months ago.
My first symptom was back in 2010 and was only local as Optic Neuritis. No...
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Also got tested for Vitamin B12 and it is 372 pg/ml. Can this be the reason for some of the symptoms i'm having?
Vitamin B12 at 372 pg/mL is a...
- 18 Replies
- 6421 Views
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Last post by NHE
Wed Aug 24, 2016 9:41 pm
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Why did you choose Avonex?
Replies: 13
by
shaight » Wed May 04, 2011 8:12 am
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i posted a similar question elsewhere with no results. therefore, i am going to post this same question in the specific drug rooms.
was it your Dr's...
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This is an old thread but it takes me back to my choice of Avonex. When it came out, there were only three! Yes, 3! I liked Avonex because it was...
- 13 Replies
- 9287 Views
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Last post by avengr13
Tue Mar 01, 2016 6:48 pm
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Acronym's Are Not My Friend
Replies: 3
by
JPH » Fri Feb 19, 2016 9:21 am
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Hi all, I am new here and have been reading up on many of the informative posts! One of my biggest problems has been trying to decipher many of the...
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Thank you euphoniaa for that link! I will read it and try to get a crash course in the art of abbreviated medical terminology (aoamt) ;)
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Last post by JPH
Sat Feb 20, 2016 9:53 am
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On Avonex - New Lesion and Relapse
Replies: 2
by
chintan » Thu Feb 18, 2016 3:16 am
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Hi All,
I am new to this forum and this is first post.
I am 31 yr old male. Diagnosed with RRMS in 2013 March (Optic Neuritis and Balance issues)....
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Now I have the following questions
1) Is it normal to have few relapses and new lesion while on Avonex?
2) If no then can i still continue taking...
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Last post by lyndacarol
Thu Feb 18, 2016 7:44 am
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Move to London from US
Replies: 5
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soup » Fri Aug 22, 2008 7:16 am
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I have the opportunity to relocate as an expat to London for 2 years. I am currently taking avonex here in the US and want to make sure that should I...
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Thanks passing along a good suggestion. I did end up contacting the Biogen UK office and all they could tell me is that it is available and it just...
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Last post by yiasza
Tue Nov 24, 2015 2:13 am
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New to DMDs + Avonex: how do you balance your life with it?
Replies: 2
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yiasza » Thu Nov 19, 2015 1:33 am
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Hello all! Firstly, I can't believe I never found this comm before... I'm so glad. :)
I've had MS for a good few years but was only diagnosed back...
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I had a great nurse who came out to show me how to do the injections. She told me to drink a lot of water the day before, the day of, and the day...
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Last post by yiasza
Tue Nov 24, 2015 2:01 am
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Maximizing INTERFERON-Beta effectiveness
Replies: 24
by
jackD » Mon Jul 02, 2007 6:32 pm
First post
MMP-9s KILL the activity of ALL IFN-Betas.
It is a VERY GOOD IDEA to lower MMP-9s if taking an Ifn-Beta drug.
:wink: If you want to maximize...
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One BIG caution about Zocor------
Taking 80 mgs of ZOCOR is BAD BAD BAD.
jackD
- 24 Replies
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Last post by jackD
Sun Nov 01, 2015 11:00 am
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Avonex and Weight Gain
by
buygirl » Sun Apr 12, 2015 12:12 pm
I have been on Avonex for a little over 2 years now.
Over the last two years I have gained close to 18 pounds. My doctor says it is not from the...
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Last post by buygirl
Sun Apr 12, 2015 12:12 pm
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Stopping and starting back up?
Replies: 3
by
Isaac27 » Tue Dec 09, 2014 3:40 am
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I've been taking Avonex for around 6 years now, without missing a dose. Up until a few weeks ago, that is. I just moved to Japan, and, due to all the...
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Now I am noticing a different problem. I had the nails on both my toes split around the same time. I wasn't sure why they would do that. I had a...
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Last post by lyndacarol
Mon Dec 22, 2014 10:24 am
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Just took myself off Avonex
Replies: 1
by
annabeth » Mon Jul 07, 2014 4:40 pm
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I found the side effects were getting worse and worse after 8 weeks. I also had signs of hypothyroid: Temp 96.2, feeling of heat, but skin cold and...
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I found the side effects were getting worse and worse after 8 weeks. I also had signs of hypothyroid: Temp 96.2, feeling of heat, but skin cold and...
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Last post by Avonexveteran
Tue Sep 30, 2014 9:49 am
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Just starting
Replies: 15
by
QuicheLorraine » Sat Dec 29, 2012 10:12 am
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I did my first avonex injection last night and it went very well. I was scared and apprehensive. Not only about the avonex, but about injecting...
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Thank you for a reply. I will contact him Tuesday morning. My face has worsen I purchased a face massager hoping it would help increase blood flow...
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Last post by Cowpenfalls
Sun Aug 31, 2014 6:20 pm
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Hearing a lot of negativity with Avonex?
Replies: 2
by
Alabama » Sat Mar 29, 2014 4:58 pm
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I am a recent user of Avonex (6 Mths) and I am very pleased with the results today. I did have severe attacks of pain ( seizures ) in my right side,...
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Diagnosed March 2014 and started on Avonex pre filled syringes June 2014. I inject 09:30 and work my way through the day. Slight headache but I'm not...
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Last post by Pixiepie
Thu Jul 24, 2014 2:18 pm
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Brain volume changes in patients with relapsing-remitting MS
Replies: 1
by
MSUK » Tue Jun 03, 2014 1:44 am
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Brain volume changes in patients with relapsing-remitting MS treated with Interferon Beta-1a
The reductions in brain volume often seen in patients...
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Low Blood Pressure Linked with Brain Atrophy
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Last post by erinc14
Tue Jun 03, 2014 6:24 am
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please help
Replies: 7
by
bankie3 » Tue Feb 26, 2013 1:48 pm
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In desperate need of advice! Ive been on avonex 3 months now, side effects have reduced and i love that its just once a week but im having the...
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you are defenetly not alone!! I have the same issues. I have been on the pen for the last month, the same thing happened to me. Before I had no...
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Last post by lolaramona8
Mon Apr 21, 2014 11:41 am
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Muscle loss from Avonex??
by
lolaramona8 » Mon Apr 21, 2014 8:06 am
Hello everyone.
My name is Mariana I am 29 years old and I was diagnosed with MS 5 years ago. I've have been taking avonex 4 years ago and I have had...
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Last post by lolaramona8
Mon Apr 21, 2014 8:06 am
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Thinking of Quitting Avonex.. HELP.
Replies: 6
by
BeginHope » Mon Jan 06, 2014 9:38 am
First post
Hello everyone. I'm 20 and I have been on Avonex since I was 14 years old. I've always had a fear of needles and when I was first diagnosed I was...
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Has the Avonex worked for you?
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Last post by ElliotB
Sun Feb 23, 2014 9:09 am
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From Rebif to Avonex
Replies: 2
by
Frederic » Sat Nov 23, 2013 12:23 pm
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Hi everyone,
In May I had moved over to Avonex after 3 months on Rebif the year before.
Just for info - my previous post :
Cheers,
Fred
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I haven't but I'm really not sure if I need to. I felt that I was fine last night for example without taking anything else.
I'll try it in the...
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Last post by Frederic
Sun Nov 24, 2013 2:30 am
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bruising
Replies: 7
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buygirl » Wed Jan 30, 2013 4:42 pm
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I have been on Avonex for one month and I am black/blue in every spot that I do the injection. I had the doctor's office do the injection last week...
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I have transferred from betaferon to avonex due to bruising at injectioins sites. the bruising has occurred for 3 years now, yet the 10 years...
- 7 Replies
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Last post by NHE
Thu Nov 07, 2013 10:23 pm
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bloating
by
buygirl » Wed Sep 18, 2013 5:29 pm
I have been on Avonex since Jan and I have had the worst bloating. At first I thought I was gaining weight but its more of a bloating/puffy feeling....
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Last post by buygirl
Wed Sep 18, 2013 5:29 pm
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Temporarily stopping Avonex
Replies: 2
by
MSHusbandUK » Tue Aug 06, 2013 3:45 am
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Hi all,
my wife has been taking Avonex since 1999. In that time she's slowly gone from R-R to secondary. Currently the Avonex is well tolerated....
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thanks in advance all. Now I've found this forum, I might post a lot more.
Welcome to ThisIsMS. Please do join us in posting. We are good listeners;...
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- 4324 Views
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Last post by lyndacarol
Tue Aug 06, 2013 5:34 pm
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Hair loss on Avonex
Replies: 9
by
Mimi123 » Mon Mar 05, 2012 12:38 pm
First post
Hi there,
I've just begun taking Avonex - I've taken my third injection and have noticed that I am losing a lot of hair (I actually noticed this from...
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I am experiencing hair loss!!!! it's my edges I can see my scalp now and I have really thick hair and it's shedding really bad!! I called biogen...
- 9 Replies
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Last post by Ladymac
Tue Jul 16, 2013 2:13 pm
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Leg pain
Replies: 1
by
Biggieconn » Tue Jun 04, 2013 4:23 am
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I've been injecting avonex for over 5 years. 9 days ago I injected in the top of my thigh as usual - I've had progressive leg pain ever since. I am...
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I've been injecting avonex for over 5 years. 9 days ago I injected in the top of my thigh as usual - I've had progressive leg pain ever since. I am...
- 1 Replies
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Last post by NHE
Tue Jun 04, 2013 8:52 pm
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Vastly decreased injury recovery with Avonex?
Replies: 3
by
neltnerb » Sun May 19, 2013 7:37 pm
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I have been taking Avonex since July 2012. In January 2012 I suffered a toe injury doing karate which ended up resulting in needing a minor...
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The post you reference looks scary -- the decreased rate of healing possibly the same chemical that causes so much of the damage?
I wish this was...
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Last post by NHE
Mon May 20, 2013 2:09 pm
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positive on avonex
Replies: 18
by
janr609 » Fri Feb 01, 2013 8:38 am
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Hello All,
I started Avonex four weeks ago, but before I did I read many horror stories about side effects, which is unfortunate, but i am here to...
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It seems as though my flu like symptoms are escalating.
I started taking the shot mid day Saturday hoping I would be better by Sunday morning. It...
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Last post by buygirl
Sun Apr 21, 2013 5:16 pm
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Last post by MSUK
Tue Mar 12, 2013 1:11 am
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worse side effects on rainy days?
Replies: 1
by
meet » Sun May 22, 2011 9:51 am
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Was diagnosed with ms last year in april. Have been on avonex since then. Have recently experienced that the side effects following the shot are...
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I started Avonex a couple months ago and started to notice pain in my arm muscles and joints when the weather is damp. The pain is intermittant and...
- 1 Replies
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Last post by JerseyDan
Thu Jan 03, 2013 11:42 am
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My Side Effects Are Getting Worse
Replies: 5
by
TaureDawn » Mon Dec 24, 2012 2:11 am
First post
Hi all!
I was diagnosed with MS February 13th 2012. The doctor prescribed Avonex. When I first started taking the injections I got the typical side...
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Hi TaureDawn- Welcome to This Is MS. I think you'll find a very supportive community here. Just to reiterate a little of what NHE said, trying an...
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Last post by Froggie
Wed Dec 26, 2012 8:44 pm
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Discontinuing My Avonex Injections
Replies: 32
by
ambuscio » Sat Nov 24, 2007 12:46 pm
First post
Hi everyone - I've been lurking for awhile and finally decided to post. I just quit injecting Avonex two weeks ago after doing the injections for...
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Hi ambuscio, I was hoping you could give us an update on discontinuing Avonex. I'm in a similar situation--can't stand the side effects and also...
- 32 Replies
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Last post by tulpen
Sun Nov 25, 2012 9:34 pm
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Just starting
Replies: 3
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jenf » Thu Jul 12, 2012 1:52 pm
First post
But I chose Avonex for the convenience. I'm hoping the side effects don't outweigh the benefits. I started with Copaxone, but the daily injections...
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Thank you for the suggestions. I did try the ibuprofin and drank lost of water. That definitely helped witht the flu-lile symptoms. The avonex didn't...
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- 5301 Views
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Last post by jenf
Wed Nov 14, 2012 10:02 am
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Avonex while sick?
Replies: 14
by
NHE » Mon Jan 07, 2008 3:21 am
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I know that we have discussed the issue of taking Avonex while being sick in the past. At that time, I had only one prior experience in this area and...
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Thank you Lyndacarol. Well I went ahead with the shot because most people stated the Avonex actually helped at the beginning of a cold. I won't do...
- 14 Replies
- 13600 Views
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Last post by MAJ
Tue Oct 30, 2012 6:13 am
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Experiencing severe reactions from Avonex
Replies: 9
by
conita » Fri Oct 05, 2012 8:55 pm
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Is there anyone out there that has severe symptoms from the Avonex pen injections? I really could use some support. The Avenox pharmacist is a...
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Hi Harry,
I'm way too big a chicken to use Tysabri. The problems that arise with that treatment relate to interactions with JC Virus (John Cunningham...
- 9 Replies
- 7490 Views
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Last post by Scott1
Thu Oct 11, 2012 6:43 pm
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Newbie to ThisIsMS and about to start Avonex
Replies: 3
by
akh13 » Thu Aug 02, 2012 2:58 pm
First post
Hi,
I was diagnosed with CIS last year after having an episode of double vision (and an MRI) and have been struggling with the decision to start...
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You probably have already started the Avonex, but I thought I'd share. I started Avonex somewhat recently. I take four ibuprofens right after the...
- 3 Replies
- 5511 Views
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Last post by Azile
Mon Oct 08, 2012 3:13 pm
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Severe reaction to Avonex after eight years
Replies: 2
by
trashcanman » Tue Sep 18, 2012 8:57 am
First post
Has anyone ever heard of someone having a severe reaction to Avonex after successful prolonged use? I have taken Avonex for eight years, and except...
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Hi,
Your doctor's conclusion makes no sense at all. If you were fine and then something happened (that sounds like an allergic response to me) after...
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- 6269 Views
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Last post by Scott1
Thu Sep 27, 2012 2:57 am
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Working full time?
Replies: 4
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emme » Sat May 26, 2012 6:02 pm
First post
I read posts on dealing with Avonex side effects. I would like to hear from people who take Avonex and also work full time. I struggle with the side...
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Thanks for responses. I often wonder if I am even really aware of how much Avonex has changed my life. I have considered taking a break, but I hear...
- 4 Replies
- 5572 Views
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Last post by emme
Mon Jul 16, 2012 6:45 pm
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Going Off of Avonex after being on it for 11 years
Replies: 2
by
cleannana » Sun Jun 03, 2012 3:52 pm
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I have been on avonex since 2000. I have done really well with it, except since October of last year, my systems started up again and they have not...
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Thank you for getting back to me. And I do agree with what you have stated. I had some tests done and it stated by D3 level was 44 not bad, but not...
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Last post by cleannana
Tue Jun 05, 2012 1:37 pm
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Genetic sensitivity to interferon-beta
Replies: 1
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Punchy » Tue Oct 25, 2011 8:59 am
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My father recently had a DNA profile done and one of the traits that came back was a significantly increased sensitivity to interferon beta.
This...
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I'm not sure what it means, if anything. Does your father have MS as well?
Do you know what they mean by respond ?
I think this might help with the...
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- 5190 Views
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Last post by Scott1
Wed May 16, 2012 8:32 pm
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Coming off Avonex after 8 years of use (!!)
Replies: 4
by
LauraB » Sat Apr 14, 2012 3:24 pm
First post
Hello,
I am 24 years old and live in Canada. I was diagnosed with MS after having my hepatitis B vaccine at the age of 15, when my right side became...
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Hi Laura,
Weird is about a good a word as any.
I usually pick up by the second injection but I take a multipronged approach, not just Avonex. If...
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- 8668 Views
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Last post by Scott1
Wed May 09, 2012 4:30 am
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Injecting in the arm
Replies: 4
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Hanhie » Thu Apr 03, 2008 8:43 am
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I was just wondering, for people who inject in the upper arm, does it hurt? I have been thinking of doing this but am a bit worried of it hurting? (...
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I did arm injections for the last 2 weeks with no issues.
But I've only been on Avonex for 2 months.
In a way they are better since ripping off...
- 4 Replies
- 7223 Views
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Last post by nickbits
Sat Mar 17, 2012 6:39 am
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after what time?
Replies: 2
by
annbbe » Sat Feb 18, 2012 8:27 am
First post
Hi everybody. I switched from Tysabri to Avonex. Could you please tell me after what time of taking it I could feel a bit better? 1 INJECT aVONEX...
Last post
If you read my posting just below yours on how to MAXIMIZE INTEFERON meds you will learn how they work.
You will learn that Avonex takes at least...
- 2 Replies
- 5907 Views
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Last post by jackD
Sat Feb 18, 2012 11:21 am
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Anybody take Interferon and has no side effects?
Replies: 24
by
ElJacko » Sat Apr 17, 2010 7:31 pm
First post
Reason I'm asking is that I'm on a trial of the hopefully, longer lasting Interferon 1B.
To date I've had 3 injections and experienced nothing like...
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The only issue I've had in 4 months on Avonex is a generally blah feeling on the morning after. Otherwise, it's been fine. I miss Tysabri though....
- 24 Replies
- 15807 Views
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Last post by ShootingStar
Sun Jan 01, 2012 4:00 pm
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Side effects?
Replies: 10
by
majorka » Sat Oct 29, 2011 1:06 pm
First post
Hi,
I've been on Avonex for 4 months. After shot, every Saturday I feel terrible, like a bus hit me. I don't have any strentgth to get up from my...
Last post
No, actually Crocin is having the same paracetamol like others. Its only the brand name in India, widely used as a pain reliever like you have...
- 10 Replies
- 6750 Views
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Last post by NHE
Fri Dec 16, 2011 3:17 pm
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Ughh horrible
Replies: 4
by
katcupcake91 » Tue Dec 06, 2011 4:28 pm
First post
i have been on avonex for 3 months now, after being taken off rebif. I honestly feel worse on the shots than i did when i wasnt on them. I have had...
Last post
Have you talked to your neuro about Gilenya? I know many doctors are hesitant about prescribing due to safety concerns but if you are unable to do...
- 4 Replies
- 6353 Views
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Last post by Dev29
Thu Dec 08, 2011 1:17 pm
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