A board to discuss the Multiple Sclerosis modifying drug Rebif
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Last post by NHE
Sat Jul 16, 2016 10:58 pm
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Experiences with Rebif
Replies: 1
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Arron » Thu Mar 30, 2006 12:13 pm
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This is a call for our members who currently are, or previously have taken, Rebif for the treatment of MS to please share your experiences with the...
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Hi!
I'm on Rebif and have been since the summer of 2003 when I got my dx. I am always happy to share about my experiences.
I noticed that the...
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Last post by jazzcat
Thu Feb 05, 2009 4:32 pm
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PPMS and Rebif
Replies: 2
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orphansparrow » Wed Jul 20, 2016 11:34 am
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Hi there,
My husband was diagnosed last week with what the neurologist believes is PPMS. But she also prescribed Rebif to him, which she wants him...
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I have PPMS and was offered some of the CRAB drugs to try for effect.. I declined due to the side effects were probably worse than the benefit....
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Last post by HUD45
Mon Nov 21, 2016 8:47 am
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Last post by MSUK
Thu Aug 25, 2016 1:22 am
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Bruising/redness site reactions
Replies: 3
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dairygold » Mon Jul 06, 2015 12:38 pm
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Hi all,
This is my first time posting here, I was diagnosed in October 2014 and started taking Rebif in December with the Rebismart device. Overall,...
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Thanks so much for your replies,good to know there are ways to track injection sites and hopefully your posts help others,my neurologist actually...
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Last post by dairygold
Fri Jul 08, 2016 2:11 pm
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Rebif and fibroids
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Moochie60 » Thu Apr 21, 2016 2:14 pm
I live in Morocco where medicines, knowledge and experience is a bit limited so I'm looking to see if anyone has experience with interferons fueling...
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Last post by Moochie60
Thu Apr 21, 2016 2:14 pm
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Should i take Rebif?
Replies: 8
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Mrmr » Wed Jul 08, 2015 11:52 pm
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Hi All,
I've just registered and want to share my story and concerns.
I'm 38 old female married with 3 kids...I have been active working in the...
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My advice as an 'MS veteran' of 25 years is NO don't take any drug. None of them have been proven to have any effect in long term studies. I have...
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Last post by mariacallous
Sat Mar 19, 2016 1:19 pm
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Last post by scsi
Mon Feb 01, 2016 5:31 pm
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Rebif and depression
Replies: 11
by David » Thu Apr 01, 2004 11:25 am
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I've been on this drug for over a year now and I'm convinced it's making me really miserable and quite gloomy though my neuro dismisses it. I'm...
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Your doctor is sort-of right. Side effects do usually show up fairly quickly BUT the degree or severity does change over time. That may be what has...
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Last post by oreo
Fri Jan 22, 2016 10:03 am
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Fifteen-year follow-up study of Rebif patients published
Replies: 1
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MSUK » Tue Oct 13, 2015 2:29 am
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EMD Serono, the American biopharmaceutical business of Merck KGaA, Darmstadt, Germany, has announced that the Journal of Neurology, Neurosurgery and...
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I have tried, cannot find this article on the MSUK-pages...
After searching elsewhere I found the original:
I went to the end of that paper,...
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Last post by chenman
Sun Nov 22, 2015 6:21 am
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Sleepy Rebif--and introduction
Replies: 1
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inkwench » Tue Jul 07, 2015 3:05 am
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Okay, to back track and my experience with MS--back when I was in graduate school, I developed optic neuritis. Doc said that the odds were good I'd...
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Okay, to back track and my experience with MS--back when I was in graduate school, I developed optic neuritis. Doc said that the odds were good I'd...
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Last post by NHE
Wed Jul 08, 2015 3:06 am
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Last post by Naz11
Fri May 29, 2015 9:36 pm
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Loss of appetite?
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MagnoliaMills » Sun May 10, 2015 8:12 pm
Started Rebif about 4 weeks ago. I've done really well with it. No injection site side effects. No serious pain. But I've noticed that I'm not as...
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Last post by MagnoliaMills
Sun May 10, 2015 8:12 pm
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thinking of quitting Rebif, what to try next?
Replies: 2
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fishee2 » Mon Jan 26, 2015 8:49 am
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Hello Everyone,
I have been on Rebif for approx 10 years or so. I have been on .22 mcg only, my liver couldn't handle the .44 apparently. But it has...
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I was on Rebif for a little over three years. It was effective at first, but then I started developing lesions again and some of my symptoms became...
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Last post by Froggie
Tue Feb 24, 2015 8:01 pm
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This is the situation... looking for some wisdom.
Replies: 2
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hmimcclellan » Tue Nov 18, 2014 1:38 pm
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Hi there, I was diagnosed with RR MS in May and I have been on the Rebif shots since June.
I will be honest and say that I really don't know a whole...
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I am taking a B-12 supplement along with daily vitamins, would there be anything else you might suggest?
Green tea, turmeric, omega-3 fish oil,...
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Last post by NHE
Wed Nov 19, 2014 12:15 am
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Has Rebif intensified anyone's neuropathy?
Replies: 1
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Maya176 » Tue Nov 11, 2014 11:03 am
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36-year-old woman, diagnosed February 2013 (but first flare was April 2010). I have been on Rebif since May 2013. My neuropathy has intensified from...
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36-year-old woman, diagnosed February 2013 (but first flare was April 2010). I have been on Rebif since May 2013. My neuropathy has intensified from...
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Last post by lyndacarol
Tue Nov 11, 2014 1:24 pm
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Last post by MSUK
Wed Jun 04, 2014 1:29 am
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Skin reaction
Replies: 2
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natsjhall » Fri May 09, 2014 1:02 am
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Hi everyone,
I'm new to the forum, purely because I have this one question and I would like to share my experience I have had with this amazing drug...
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Hello, thank you so much. I Googled Lipoatrphy and it seems it fits the symptoms (apart from having HIV) Seems there are a few drugs but will have to...
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Last post by natsjhall
Mon May 12, 2014 4:11 am
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Going Off Of Rebif... Withdrawal?
Replies: 3
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NiftyBunny » Sat May 25, 2013 9:27 am
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Hi guys,
I am going off of Rebif and I have been off it for about a week and a half now. I'm switching onto Tysabri because my MS was too active for...
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I recently stopped taking Rebif and did not have a withdrawal, but I started up with Tecfidera right after.
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Last post by carolsue
Sat May 10, 2014 2:11 pm
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Last post by MSUK
Fri Apr 04, 2014 5:57 am
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What it the safe range of liver ALT number ??
Replies: 2
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fajfaj » Thu Jan 09, 2014 1:38 pm
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Hi
I'm now for over year on Rebif 44mc X 3, we know that Rebif increase liver enzymes but, what is the ALT test ranges in number that I must stop...
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I read somewhere about 2 to 3 times the upper limit of normal, so 80-120ish. Definitely heed the advice of the above post, though.
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Last post by aredmosquito
Tue Mar 25, 2014 2:01 pm
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Wondering whether to stay on Rebif
Replies: 4
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Frederic » Sun Apr 01, 2012 3:34 am
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Hi Everyone,
So That's me been taking Rebif for 3 months now (RR for 12 years now, 35 yo). Have taking nothing prior to that except for a relapse...
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Hi everyone,
Just an update for some further info on what I'd decided to do about the Rebif treatment :
In April 2012 I did actually discontinue...
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Last post by Frederic
Sat Nov 23, 2013 12:19 pm
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Giving away Rebif
Replies: 1
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phsulin » Sun Jul 07, 2013 10:21 pm
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Hi :)
I was diagnosed with MS in Sept 2008 & have been on Rebif since then. However, I've stopped jabbing for a year now with the hope of getting...
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I recently switched from Rebif to Techfidera. I have 17 syringes of Rebif which I won't be using, and would like to get them to someone who has a...
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Last post by minismommy
Mon Jul 15, 2013 10:05 am
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Rebif Rebidose?
Replies: 4
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aredmosquito » Wed Apr 17, 2013 5:10 pm
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My doctor and I decided Rebif is my best option (I hate long needles, don't want to mix my shots, and can't handle possible IPIRs from Copaxone...
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Wanted to update. I did my 20th shot yesterday. I don't mind the Rebidose injectors too much. The first few times I had to put on headphones while I...
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Last post by aredmosquito
Wed Jun 19, 2013 2:21 pm
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Any side effects from longterm use??
Replies: 4
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Markd » Sat Apr 23, 2011 10:33 am
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:?: Been shooting up for about 6 years now. Other then the red patches on my belly, no real side effects that I can attribute to Rebif. Has anyone...
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I've been using rebif for 11 months. I don't know about longterm side effects but I'd certainly like to know more about that.
On the topic of...
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Last post by mmmelissa
Tue Jun 18, 2013 10:06 pm
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Scared and need advice
Replies: 3
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Solipsist » Tue Apr 23, 2013 5:00 am
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Hello. I'm a 27 year old single mother and student who works. I also have a phobia of needles. I was diagnosed in January 2013...and made my mother...
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My opinion is that having MS produces enough anxiety on its own--you surely don't need the added type of anxiety that needles cause you! I don't...
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Last post by carolsue
Tue Apr 23, 2013 6:51 pm
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Rebif side effects
Replies: 2
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titchie » Mon Apr 08, 2013 5:38 am
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Hi, first posting for me, on Ribif, I went to the 44mg but site reaction too large and painful so went to 22mg. I still have awful site reactions I...
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Have you consulted your neuro or your doctor who has recommended you to try rebif? Did you tell him/her what you're going through? Please see him/her...
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Last post by andreagwolford
Thu Apr 11, 2013 8:28 am
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30 day supply limit
Replies: 8
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getbozman » Wed Apr 30, 2008 4:59 am
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Hello: I have been on Rebif for a year and a half with very few side effects and no new lesions. My medical insurance company was changed a few...
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Hi everyone!
I am planning to relocate to Singapore, but can't find any trustworthy information on MS health care and medication costs in the...
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Last post by JetSilver
Wed Apr 10, 2013 3:24 am
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FDA approves Rebif Rebidose interferon beta-1a for MS
Replies: 1
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MSUK » Fri Jan 04, 2013 1:11 am
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Merck Serono, a division of Germany's Merck, announced that the U.S. Food and Drug Administration (FDA) approved Rebif(R) Rebidose(R) (interferon...
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I have never had to inject myself with anything before. Now that I am recently diagnosed with RRMS, my neurologist wants me to research Rebif and...
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Last post by aredmosquito
Tue Mar 26, 2013 7:17 pm
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Last post by MSUK
Tue Mar 12, 2013 2:18 am
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help with a new person on rebif
Replies: 5
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julieg » Wed Dec 26, 2012 10:35 pm
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I have just been on Rebif Since Nov. 21/12 I was on copaxone for 13 years and it was no longer working, witch was to bad as I had no side effects and...
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Buy the big bottle of Ibu at Costco. My flu like symptoms lasted about 6 months. The reaction was really handy when I was feeling lazy. Been about 6...
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Last post by Markd
Tue Feb 05, 2013 9:45 pm
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sudden side affects
Replies: 1
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fishee2 » Wed Jan 23, 2013 6:32 am
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Hello All,
I have been a rebif user for many years now, gotta be 5+. Anywho I am only on the .22mcgs due to elevated liver enzymes when i was on the...
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Update for anyone who runs into this down the line.
My following shot I experience the same symptoms. The next morning I called MS lifelines to ask...
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Last post by fishee2
Mon Feb 04, 2013 9:05 am
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rebif and infertility in men???
Replies: 5
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jsimm » Tue Dec 20, 2011 8:25 pm
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I know that their website says that there were no effects in male monkeys... but my wife and i have been ttc for months now and nothing is happening....
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Fertility x Rebif44
My sperm count is low and still not have children.
This count is prior to using rebif.
So, I believe not be the remedy but of...
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Last post by 1978leandro
Sat Feb 02, 2013 9:33 am
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rebif
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julieg » Mon Jan 14, 2013 8:15 am
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I have been on Rebif since Nov 24, was on copaxone for almost 13 years, and it stopped working. I really do not like the way this rebif makes me...
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I was on Rebif for 18 months after Optic Neuritis. Felt dreadful for 18 months. Now completely off it and feel a million times better and less...
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Last post by mrbarlow
Sun Jan 20, 2013 7:02 am
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Hair-loss ....
Replies: 19
by
siren » Wed May 18, 2005 6:35 pm
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Hi all,
I've been on Rebif since Dec last year and I have been experiencing a lot of droppage of hair recently and the rate & the amount of hair that...
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Welcome to ThisIsMS, ruraliowa. We are glad you have jumped in and joined our discussion.
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Last post by lyndacarol
Mon Dec 03, 2012 9:00 am
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Injection Pain
Replies: 1
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Kbragg » Fri Nov 23, 2012 7:40 pm
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:sad: Hi All,
I am new here but wanted to talk to someone about injection site pain. I am on Betaseron
other day. I am very thin & have very little...
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Welcome to ThisIsMS. I believe that you'll find this to be a supportive community. I can't answer your questions about injection site pain with...
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Last post by NHE
Fri Nov 23, 2012 10:07 pm
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REBIF & Thyroid function
Replies: 3
by
oreo » Mon Feb 06, 2012 5:42 pm
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I've been on Rebif since 2005. The day after I had my routine blood work done at the beginning of December, I got a call from my Dr.'s office....
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TAClark: haven't had those side effects/symptoms, but I did develop high blood pressure coincident with going on Rebif 7.5 years ago. I'm fit and eat...
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Last post by carolsue
Fri Nov 09, 2012 10:30 am
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Rebif and painful soreness
Replies: 5
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ladyheather » Thu Oct 18, 2012 7:33 pm
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So I took my first full dosage (44 mcg) of Rebif last night, and whereas before I could deal with the soreness during the titration dosages, I am...
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Update: I've had a reaction to Rebif, it seems. A few weeks ago, I started feeling a lack of appetite and then yesterday I couldn't keep anything...
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Last post by ladyheather
Wed Oct 31, 2012 12:37 pm
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Disposing of Needles
Replies: 13
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Karazhan » Thu Apr 08, 2010 1:26 pm
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I currently have a year's worth of used needles stored in a plastic Folger's coffee canister (a perfect container, btw). I remember the MS Lifelines...
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Yup...needle nippers from walmart...5 bucks...check the isle in the pharmacy where the diabetic testing supplies are located.
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Last post by jcoleman316
Tue Oct 16, 2012 1:10 pm
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Short temper
Replies: 7
by
astro » Wed Dec 16, 2009 9:01 pm
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Anyone else notice this side effect when taking rebif?
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You are not the only one who is experiencing this type of feeling. I noticed that I tend to get irritated at the least little things, and that I also...
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Last post by brokensailor513
Sun Oct 14, 2012 8:56 am
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Emotionally Dealing with Rebif
Replies: 17
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NiftyBunny » Tue Dec 06, 2011 11:55 am
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Hi,
So I have been on the Rebif for about 4 months now... side effect wise it seems to be going well. Usually I get a headache the next morning which...
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I was diagnosed three days after Christmas 2011, so everything is still quite fresh for me. I dread the Rebif (44 mcg) shots not so much because they...
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Last post by brokensailor513
Sun Oct 14, 2012 8:47 am
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In MS treated with interferon beta....
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MSUK » Thu Sep 27, 2012 11:14 pm
In MS treated with interferon beta, early disease activity predicts poor outcome
After 15 years of follow-up, patients with relapsing-remitting...
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Last post by MSUK
Thu Sep 27, 2012 11:14 pm
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Post Injection Malaise
Replies: 5
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Froggie » Fri May 25, 2012 8:36 pm
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Greetings all- I've been on Rebif for over two years now and while I've managed to deal with any flu-like symptoms, I still sometimes feel worn out...
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That's great news! Thanks for the update and I'm so glad it's helped.
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Last post by carolsue
Thu Sep 27, 2012 9:24 pm
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Last post by j3nn12
Sun Aug 26, 2012 6:40 pm
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Another rebif injection site question
Replies: 1
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diggiesmallz » Tue May 01, 2012 8:57 am
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Hey everyone! Ok so once again I have a headach question. Sorry. Ok, Since I have been taking rebif for almost a yr now, I have been getting super...
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Hey - Been on Rebif myself for a long time now. I know I had the same question as you.
There are some good posts in here:
I find it easiest to...
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Last post by fishee2
Fri Jun 08, 2012 6:55 am
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Migraines since starting rebif?
Replies: 2
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diggiesmallz » Fri Mar 16, 2012 9:40 pm
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Hello everyone, hope your doing well tonight! I started on rebif july 2011. Overall things have been so much better than I thought they would ever be...
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thanks to both of you! I startded the headache journal and I'll keep you posted!!
God Bless!
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Last post by diggiesmallz
Tue May 01, 2012 9:07 am
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Last post by MSUK
Thu Apr 19, 2012 10:31 pm
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Splitting pain when injecting
Replies: 2
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generaltomfoolery » Sun Apr 08, 2012 10:23 am
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Hi, I have looked in other threads but can't find a conclusive answer so please forgive a probably previously covered thread.
I have been using...
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I have been using Rebif for around 6 years. The only extreme pain I have ever experienced is a spot on my right thigh, seems like I might be hitting...
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Last post by Markd
Sun Apr 15, 2012 5:32 pm
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Anyone with GOOD Experiences on Rebif??
Replies: 44
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NiftyBunny » Fri Aug 12, 2011 10:54 am
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Hi,
My name is Amber, I was given my official diagnosis of RRMS yesterday.
They want to start me on Rebif, and I'd like to give it a chance. If it...
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I take Rebif as well! No relapse since I started which was when I was Dx. That was May 2011. I dont use the rebaject. I like to control the speed of...
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Last post by diggiesmallz
Sat Mar 31, 2012 8:28 pm
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Rebif and Metrorrhagia side effect
Replies: 2
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rocco24 » Fri Mar 09, 2012 10:36 pm
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I am hoping someone here can help me with my concern. My mom 57 years old was on Avonex for the last 5 years and 5 weeks ago her Doctor changed her...
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Hi rocco,
I'm sorry to hear about your mom's problem and wish her well with it. I haven't taken Rebif before, but I did want to note that on the...
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- 6530 Views
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Last post by rocco24
Sat Mar 10, 2012 11:23 am
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