Rebif

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Coronavirus (COVID-19): What You Need To Know

Last post by jimmylegs « Wed Jun 03, 2020 6:36 pm
Posted in General Discussion
Replies: 132
by jimmylegs » Sun Mar 15, 2020 4:10 am » in General Discussion
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What You Need To Know About Coronavirus (COVID-19)

What does COVID-19 mean for people living with MS? Many disease modifying therapies (DMTs) for...

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A Randomized Trial of Hydroxychloroquine as Postexposure Prophylaxis for Covid-19 (June 3)

...
CONCLUSIONS
After high-risk or moderate-risk...
132 Replies

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Last post by jimmylegs
Wed Jun 03, 2020 6:36 pm

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Last post

Hypothyroidism and Rebif

Last post by triara « Sun Oct 01, 2006 5:05 am
Replies: 4
by kalb13 » Wed Jan 04, 2006 8:54 am

First post

Hi! My mom has MS and hypothyroidism (Hashimoto's specifically). She's been on Copaxone but she just had a scan and they found new lesions, so...

Last post

I had graves disease. I was severely hyperthyroid, They fed me radioactive iodine and killed it dead as a doornail. I have to take a huge dose of...

4 Replies

6852 Views

Last post by triara
Sun Oct 01, 2006 5:05 am
Injection Site Immediate Bump Reactions

Last post by oreo « Sat Aug 26, 2006 6:06 pm
Replies: 2
by FourDs » Fri Aug 25, 2006 6:56 pm

First post

Hey everyone,

I am posting something that is actually happening to my fiancee. She was diagnosed with MS in October 2005, and has been taking a form...

Last post

Does she pre-warm the injection.

5 minutes in the armpit will bring the serum up to her body temp - less of a shock to the system. Also, inject...

2 Replies

3668 Views

Last post by oreo
Sat Aug 26, 2006 6:06 pm
New to Rebif - Worried about Site Reactions

Last post by cby22 « Mon Aug 21, 2006 5:32 am
Replies: 8
by cby22 » Fri Aug 11, 2006 6:52 am

First post

Hi All,
I have just switched to Rebif from Avonex. I've had 5 injections at 8.8 mg (Titration Pak) and have had site reactions to 3 of them. I get...

Last post

Dear BeBe,
Thank you for the new suggestions. I will try the warm compress and witch hazel :D
cby

8 Replies

4324 Views

Last post by cby22
Mon Aug 21, 2006 5:32 am
How long before side effects?

Last post by Markd « Thu Jul 13, 2006 8:09 pm
Replies: 5
by tricksantiks » Thu Jun 29, 2006 5:39 pm

First post

I was wondering, how long was it before you started experiencing flu like symptoms from Rebif?

Honestly, I wasn't expecting side effects for a...

Last post

I had the Rebiff flu for quite awhile. A tylenol before injecting go to sleep A tylenol in the morning. I am not sure how l;ong I had to do this but...

5 Replies

5370 Views

Last post by Markd
Thu Jul 13, 2006 8:09 pm
Rebiject II issues -Need tips!

Last post by Markd « Thu Jul 13, 2006 8:02 pm
Replies: 5
by dnnyski » Wed Oct 26, 2005 7:00 am

First post

Hey all,

I have been taking Rebif a few weeks now. I prefer to use the Rebiject for the normal reasons. However, I noticed something every time I...

Last post

I back the plunger up on the syringe before I remove it. Just a slight amount seems to create a vacuum or somthing. Remove the cover the usual way,...

5 Replies

6094 Views

Last post by Markd
Thu Jul 13, 2006 8:02 pm
Question about interactions with Rebif

Last post by tricksantiks « Sun Jul 09, 2006 6:43 pm
Replies: 4
by scoobyjude » Tue Mar 07, 2006 8:21 pm

First post

I planned to ask my neuro today if any of the supplements I'm taking might interact with Rebif since I am going to be starting it soon. Unfortunately...

Last post

wow...just throwin it out there: I had a sinus infection show up on my first MRI when they were trying to figure out why I was blind in my left eye...

4 Replies

3727 Views

Last post by tricksantiks
Sun Jul 09, 2006 6:43 pm
Tritation

Last post by DenverCO « Sat Jan 07, 2006 11:57 am
Replies: 3
by cmlane » Fri Jun 03, 2005 5:59 am

First post

I've started taking Rebif this week, using the Rebiject II. I've been sent 4 weeks supply of 44mg syringes, but really need 22mg. The MS nurse that...

Last post

The MS nurse that came to show me how to inject opened each syringe and simply squirted out half, put the needle cap back on, and put them back into...

3 Replies

3370 Views

Last post by DenverCO
Sat Jan 07, 2006 11:57 am
Serono fined!

Last post by HarryZ « Wed Oct 26, 2005 7:24 pm
Replies: 2
by HarryZ » Wed Oct 19, 2005 4:15 pm

First post

Serono, the makers of Rebif, have just run into a little bit of trouble with the law in this country. I certainly hope they didn't apply this...

Last post

Bebe,

Serono Labs is a subsidiary of Serona SA, the parent company. I would think that Serona SA was very aware of what Serono Labs was doing and as...

2 Replies

3723 Views

Last post by HarryZ
Wed Oct 26, 2005 7:24 pm
why Rebif?

Last post by carolsue « Tue Oct 18, 2005 3:25 pm
Replies: 2
by ga_kristy » Sun Oct 09, 2005 7:34 am

First post

what made you choose Rebif over the other CRABS? My son will have to start one soon, and Im torn between which one we should go with. His Dr. asked...

Last post

I chose Rebif over Avonex because of the head-to-head trial that indicated that Rebif was more effective. I can't say that the thought of an...

2 Replies

4958 Views

Last post by carolsue
Tue Oct 18, 2005 3:25 pm
Combination of RebifÂ® and mycophenolate mofetil (CellceptÂ®)

Last post by batpere « Thu Sep 29, 2005 3:28 am
Replies: 3
by Olgica » Sun Aug 07, 2005 9:09 am

First post

Hi!I have got MS 12 years ago.I am on Rebif since 1996.I have took it year and half.I have stoped because Rebif was experimental drug that time and...

Last post

I haven't heard of cell-cept. What is that? I am on Rebif and have been for about 2 years. I am about to have the first MRI since my diagnosis two...

3 Replies

3666 Views

Last post by batpere
Thu Sep 29, 2005 3:28 am
Research paper on REBIF

Last post by bromley « Wed Sep 28, 2005 5:30 am

by bromley » Wed Sep 28, 2005 5:30 am

0 Replies

2505 Views

Last post by bromley
Wed Sep 28, 2005 5:30 am
Thyroid Issues and interferon

Last post by jazzcat « Thu Aug 25, 2005 12:06 pm
Replies: 2
by kareng7 » Fri May 06, 2005 5:51 pm

First post

Just followed an interesting line of research about thyroid problems and MS--since thryoid runs in my family. I found a study that says up to 24% of...

Last post

Hi all,

I have been on Rebif for about 2 years now. My white cell counts are a little off (low) but other than that, I guess I am okay.

peace,...

2 Replies

3497 Views

Last post by jazzcat
Thu Aug 25, 2005 12:06 pm
Combination of Rebif and Novantrone

Last post by Brian « Thu Aug 25, 2005 5:08 am

by Brian » Thu Aug 25, 2005 5:08 am

Hello,

I just started on Rebif yesterday. I am in my two years of getting Novantrone (IV) every three months.

When I was dxed in 2/2002, I started...

0 Replies

2416 Views

Last post by Brian
Thu Aug 25, 2005 5:08 am
worse straight after

Last post by CureOrBust « Sat Aug 06, 2005 6:21 am
Replies: 4
by CureOrBust » Thu Jul 28, 2005 3:15 am

First post

Within a few minutes of injecting rebif, my symptoms (ie balance and weakness) are MUCH worse. does everyone get this same reaction?

I have been...

Last post

Try taking 2 Tylenol about half an hour BEFORE the shot. It really helps with the aches, pains, headache and other flu like symptoms.

yep, took two...

4 Replies

3467 Views

Last post by CureOrBust
Sat Aug 06, 2005 6:21 am
not working?

Last post by bebe « Sun Jul 17, 2005 4:18 pm
Replies: 2
by nicko » Sat Jul 09, 2005 1:11 pm

First post

I've been on rebif since april 30. I'm currently on the high dose 44. I'm handling the side effects pretty well, practically no flu like effects...

Last post

I agree that waiting is appropriate. In the Rebif trial, effect on MRI was seen quickly (at 2 months) but you may need to wait a little longer for...

2 Replies

3046 Views

Last post by bebe
Sun Jul 17, 2005 4:18 pm
Site reactions?

Last post by siren « Mon Jun 13, 2005 9:25 pm
Replies: 2
by cmlane » Mon Jun 13, 2005 12:23 am

First post

I've now had 5 injections of 22mcg (legs & rear , belly in one hours time !!), but have not had any injection site reactions....yet.

Is this common...

Last post

My first shots was with the 44 mcg and I was brusing all over..however injection site reactions became a little better after a few wks/mth . Now I'm...

2 Replies

3022 Views

Last post by siren
Mon Jun 13, 2005 9:25 pm
New Rebif user with a question

Last post by AmazingGrace « Mon Jun 06, 2005 1:01 am
Replies: 5
by BeckyLA » Tue Dec 07, 2004 3:31 pm

First post

Hey all! I just made the decision to try Rebif as my first stab (get it?... stab , hee hee) at MS treatment. That is, if you don't count my...

Last post

I've been on Rebif since October 2000 -- yes folks, that's 4 1/2 years. It is the only MS treatment I've ever used and it has worked exactly as...

5 Replies

5126 Views

Last post by AmazingGrace
Mon Jun 06, 2005 1:01 am
Getting off of Rebif??

Last post by Trudy « Tue May 24, 2005 5:21 am
Replies: 1
by panda » Sun May 22, 2005 1:26 pm

First post

When I was first diagnosed with MS I was getting MS attacks about once every three months. I then got onto Rebif and my attacks increased to about...

Last post

Hi Stef,

I was on Rebif for about 4 years and hated it. I hated the expense (though I do have insurance), I hated the needles, I hated being...

1 Replies

4975 Views

Last post by Trudy
Tue May 24, 2005 5:21 am
autoinjector

Last post by JFH « Fri May 13, 2005 11:13 pm
Replies: 10
by lscmb0517 » Fri Mar 04, 2005 12:58 pm

First post

Does anyone use the AJ instead of manually injecting? What have you found to be more tolerable.

I was on Avonex since 2/2000 and am considering...

Last post

... and always will.

Of course one day, Mark, we all hope we wont need to at all :?

10 Replies

5076 Views

Last post by JFH
Fri May 13, 2005 11:13 pm
rebif and anxiety

Last post by Marknamealreadytaken « Fri May 13, 2005 8:56 pm
Replies: 14
by billf » Fri Jul 30, 2004 6:36 am

First post

Anyone experienced anxiety attacks since going on rebif? I wasn't aware that this was a known side-affect. Panic/anxiety attacks, especially at...

Last post

been on this stuff for about 16 months no panic attack yet. The doc did offer me some prozac just in case something happened. It didn't get me high...

14 Replies

5746 Views

Last post by Marknamealreadytaken
Fri May 13, 2005 8:56 pm
Copaxone/Rebif increase cancer risk?

Last post by eric « Sun Feb 06, 2005 8:32 pm
Replies: 2
by eric » Tue Feb 01, 2005 12:10 am

First post

Anybody heard anything about this buzz that copaxone and rebif both might increase certain cancer types?

Any more information on this?

Thanks.

Last post

Hi Bebe

This is a part of the article that is referring to the interferons:

The research revealed that the other three treatments increased the...

2 Replies

4683 Views

Last post by eric
Sun Feb 06, 2005 8:32 pm
her

Last post by Arron « Mon Jan 31, 2005 2:17 pm
Replies: 3
by PhireX » Mon Jan 31, 2005 3:37 am

First post

Allow me to be the first to say-

WTF Is all of this?

Mods...delete...;)

Last post

ugh... annoying spammers! thanks for the warning team! :)

3 Replies

3237 Views

Last post by Arron
Mon Jan 31, 2005 2:17 pm
site reactions improving with 29 gauge needles?

Last post by namaah « Sun Jan 23, 2005 10:02 am
Replies: 10
by Bobble43 » Fri Jan 14, 2005 12:17 pm

First post

Love those smaller needles! I guess it doesn't take much to make me happy.

Although the 29 gauge needles are only about 15% smaller, they have made...

Last post

Whoa, there. 8O Do not expel the air bubble before injecting Copaxone!

Copaxone or Rebif? This is the Rebif forum.

10 Replies

4736 Views

Last post by namaah
Sun Jan 23, 2005 10:02 am
Rebif and Backaches

Last post by NHE « Sat Jan 15, 2005 12:39 am
Replies: 1
by BeckyLA » Fri Jan 14, 2005 11:35 am

First post

I just started Refib two weeks ago and things have been going really well. I don't seem to be having any real flu-like symptoms and the shots are...

Last post

I don't take Rebif but I do take Avonex. In addition to the differences in side effects related to injection method and dosage, many of the side...

1 Replies

3233 Views

Last post by NHE
Sat Jan 15, 2005 12:39 am
New Study Rebif to Copaxone

Last post by HarryZ « Tue Jan 11, 2005 6:17 pm
Replies: 1
by better2gether » Wed Jan 05, 2005 1:13 am

First post

Wednesday January 5

Serono's Rebif MS drug, Teva's Copaxone to go head-to-head in test

ZURICH (AFX) - Serono SA said it has completed patient...

Last post

Janet,

Serono's Rebif MS drug, Teva's Copaxone to go head-to-head in test

I wonder if Dr. Tosches knows about this newest battle between the drug...

1 Replies

3360 Views

Last post by HarryZ
Tue Jan 11, 2005 6:17 pm
Swank Diet

Last post by elaine « Tue Jan 11, 2005 5:51 pm
Replies: 1
by rozo822 » Tue Jan 11, 2005 4:19 pm

First post

Does anyone have any information on the Swank Diet?

Last post

www.swankmsdiet.com

this is the swank web site you will get all the information you will need and great support
Elaine

1 Replies

3220 Views

Last post by elaine
Tue Jan 11, 2005 5:51 pm
Rebif and Alpha Liopic Acid

Last post by Arron « Wed Jan 05, 2005 1:57 am
Replies: 3
by Chicano » Thu Dec 30, 2004 10:18 am

First post

Friends,

A new member to the this great site. I am a 34 year old male living in San Francisco, CA, dx three years ago with rr ms. My doctor says I...

Last post

welcome to the site. As pointed out above, Alpha Lipoic Acid has been discussed in a few studies as potentially beneficial for MS.

3 Replies

3761 Views

Last post by Arron
Wed Jan 05, 2005 1:57 am
needles and brusing

Last post by bebe « Sun Nov 21, 2004 7:39 pm
Replies: 3
by steve-o » Fri Nov 19, 2004 6:46 pm

First post

My wife tried the rebif injector ...whew and that went like crap. Then we went to manual injections, that went better but site brusing was common....

Last post

The new autoinjector is awesome. Like you said, you can adjust the depth which is useful for me in my arms. Also, the force doesnt seem to be as...

3 Replies

4545 Views

Last post by bebe
Sun Nov 21, 2004 7:39 pm
Anyone have to lower their dose b/c of...

Last post by carolsue « Wed Oct 20, 2004 8:01 pm
Replies: 8
by VirtuallyFine » Wed Mar 10, 2004 4:32 pm

First post

Anyone have to lower their dose b/c of elevated liver enzymes? I had to do this and I am wonder how common it is. I had been on rebif for about 1...

Last post

I hear that sometimes after liver enzymes increase, they may come back down after a couple months.

Anyone have low platelet levels after being on...

8 Replies

4718 Views

Last post by carolsue
Wed Oct 20, 2004 8:01 pm
Air Bubble

Last post by Guest « Wed Oct 20, 2004 7:11 pm
Replies: 10
by oreo » Thu Aug 05, 2004 4:35 pm

First post

This might seem like a silly question but that has never stopped me before.

There is an air bubble in every syringe of Rebif. As I am currently on...

Last post

This is correct, do not remove the air bubble.

10 Replies

6484 Views

Last post by Guest
Wed Oct 20, 2004 7:11 pm
rebif---

Last post by Guest « Wed Oct 20, 2004 7:08 pm
Replies: 32
by lynn45 » Fri Jun 25, 2004 10:49 am
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First post

Has anyone experienced hives or itching related to rebif? I have been on rebif for 6 months and have been having bouts of itching and a rash. I have...

Last post

You can get the new autoinjector by calling MS Lifelines and request one. The depth can be adjusted now, its great! There are reports in my area of...
32 Replies

19407 Views

Last post by Guest
Wed Oct 20, 2004 7:08 pm
Anyone feel worse on rebif?

Last post by carolsue « Fri Sep 03, 2004 12:22 pm
Replies: 23
by momsboyz » Tue Dec 23, 2003 7:36 am
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First post

I've been on rebif for 4 months and feel like a train wreck. Stiff, sore, tired, dizzy, eye pain. Anyone have suggestions? Does it get better?

Last post

sandi55,
what did your doc say about your site reactions? I, too look like a domino on rebif. I no longer am concerned about it and merely monitor...
23 Replies

14069 Views

Last post by carolsue
Fri Sep 03, 2004 12:22 pm
Do you pay for your Rebif out-of-pocket?

Last post by HarryZ « Thu Aug 19, 2004 10:21 am
Replies: 3
by RickR » Wed Aug 18, 2004 3:27 pm

First post

Last week my Dr. switched me from Rebf to Copaxone. I have 10 unopened syringes left. If you are paying for your Rebif out of pocket, I know this has...

Last post

Rick,

Your offer was not the first, nor will it be the last good intention of trying to give a very expensive rx drug to someone who can use it....

3 Replies

3446 Views

Last post by HarryZ
Thu Aug 19, 2004 10:21 am
Newly Diagnosed - Just Started Rebif

Last post by Bobble43 « Mon Jul 19, 2004 3:56 pm
Replies: 4
by SandyInPA » Sat Jul 17, 2004 11:40 pm

First post

This is my first visit to this forum, and my first try at reaching out to others with MS. I was just diagnosed on June 22nd, and did my first Rebif...

Last post

Hi SandyInPa, This is Bobble43 from Pa.Sounds like the first injection went okay (I won't say fine, since we all know it isn't the fun thing to do!)...

4 Replies

3530 Views

Last post by Bobble43
Mon Jul 19, 2004 3:56 pm
Just starting...

Last post by k8jsl « Wed Jun 16, 2004 6:54 pm
Replies: 4
by k8jsl » Tue Jun 15, 2004 3:12 pm

First post

Hello all..
I will be starting Rebif 8.8 tommorrow morning..
Can anybody enlighten me as what to expect ??
I will be taking it just before I leave...

Last post

Well so far so good,
I took it around 6pm just to see what would happen if anything..
kinds hard to tell if I had the fever like symptoms it was HOT...

4 Replies

3457 Views

Last post by k8jsl
Wed Jun 16, 2004 6:54 pm

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