A board to discuss the Multiple Sclerosis modifying drug Novantrone
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Last post by NHE
Sat Jul 16, 2016 11:21 pm
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Last post by frodo
Mon Jan 13, 2020 9:42 am
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Last post by ElliotB
Tue Sep 18, 2018 6:04 am
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RE; M.S DRUG MITOXANTRONE(NOVANTRONE)LINKED TO MANY MORE CAS
Replies: 1
by
seeva » Tue Feb 21, 2017 2:04 am
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HI Friends please read
Multiple Sclerosis Drug Linked To Many More Cases Of Leukemia
regards
seeva
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I had 7 doses of Novantrone in 2002 over 1 year. After 6 months that's when I first had to use a cane. Never did help my MS at all.
Here's some good...
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Last post by SammyJo
Thu Aug 24, 2017 8:49 pm
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Considering Novantrone/Campath
Replies: 1
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Camilla » Sat Jan 16, 2010 8:20 pm
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Hi,
My MS has gradually worsened (walking more unstable) over a year, and my neuro suggested I look at Novantrone as an option -- see ehat 3 doses...
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I am in the same boat and considering the same things. They are scarey but I dont like living this way either. Let me know if you find any answers....
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Last post by avengr13
Thu Feb 25, 2016 9:29 am
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Last post by MSUK
Mon Oct 28, 2013 1:49 am
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Last post by MSUK
Thu Jul 11, 2013 2:03 am
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Acute myeloid leukemia in MS patients treated with MTX
Replies: 1
by
MSUK » Wed Nov 16, 2011 2:41 am
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Acute myeloid leukemia in Italian MS patients treated with mitoxantrone
Summary: The Italian Mitoxantrone group report data following their...
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Well at least this was one drug my dr did not want to use! He said it was because of the heart problems it caused though. He said if I had one more...
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Last post by stillfighting
Sat Oct 13, 2012 9:38 am
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Never tested after Novantrone treatments?
Replies: 1
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MsJae » Mon Aug 15, 2011 12:39 pm
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I have RRMS and my neuro agreed that Novantrone would benefit me. I went for the initial cardio testing, took 3 treatments (he wanted 6), and sent me...
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I saw my neuro & he said he knew nothing of the tests required after the novantrone treatment, he seemed surprised when I brought up the fact that I...
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Last post by MsJae
Tue Aug 30, 2011 3:10 pm
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Novantrone and Leukemia and Greater Heart Damage Risk
Replies: 7
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daisy » Wed Nov 19, 2008 2:08 pm
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My husband was diagnosed in early September 2008 as having Acute Myelogenous Leukemia (AML) Secondary to administration of Novantrone.
There are...
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Hi Everyone,
My son who was 23 yrs of age started having the mitoxantrone. he had 3 doses over 3 months. and 4 dos every three months. 7 in total...
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Last post by kats
Tue Jul 06, 2010 3:13 am
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Last post by MSUK
Tue Jun 01, 2010 12:42 am
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Chemo anyone?
Replies: 1
by
AJWANTSACURE » Tue Feb 23, 2010 6:03 am
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Has anyone done chemo therapy for their MS. Novaantrone does not seem to help anyone with their symptoms.
Anyone try cyclophosphamide? If so how did...
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Several folks here have done a treatment regimen with high dose cyclophosphamide. You may want to read through some of the threads in the Revimmune...
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Last post by NHE
Tue Feb 23, 2010 11:45 am
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Health insurance
Replies: 1
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SandyK » Thu Oct 22, 2009 10:48 am
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I was booted from my state coverage when I was awarded Social Security in July. Which means, I don't have coverage and can't find a carrier who will...
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Hi Sandy,
I just sent you a PM so check your inbox.
NHE
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Last post by NHE
Thu Oct 22, 2009 6:58 pm
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Why Novantrone?
Replies: 6
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digepix » Sat Feb 09, 2008 8:10 am
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I went to see my neurologist yesterday, I go as infrequently as possible. I told him I went off my Avonex in December after nine years. I proceeded...
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When my neurologist told me the chance of leukemia after Novantrone had risen from the original 1 per 1000 to 1 per 150, he said he felt shaken....
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Last post by SammyJo
Wed Oct 07, 2009 9:06 pm
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Novantrone questions
Replies: 6
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BuzzMonkey » Sun Jan 25, 2009 12:06 pm
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If anyone still gets on here
My Dr's want to start me on Novantrone due to my MS worstening over the last year.
Thoughts good or bad would be greatly...
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MS is getting worse. Progressing faster than neuro likes.
Have tried Rebif, tysbri, now novantrone.
First treatment was September 3, 2009. Went ok....
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Last post by littlevern
Tue Sep 22, 2009 2:51 pm
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No Strength After Novantrone Treatment
Replies: 3
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eyequeue » Mon Aug 11, 2008 10:15 am
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My wife just started Novantrone.
Her MS has been getting much worse for 3 years now. She doesn't have relapses or remission, she has constant, daily...
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this is what it was like for us too.
It's scary for the first week after the infusion. Kim wouldn't eat. Took her 3 days to eat one ritz cracker. We...
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Last post by notasperfectasyou
Thu Sep 04, 2008 5:49 am
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Started Novantrone
Replies: 1
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ms_melissa » Sun Aug 03, 2008 2:58 pm
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I started Novantrone this past week. My MS was progressing so fast, and after 18 months of Betaseron, my doctor felt it was time to add another drug....
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Hi,
my story is much the same as yours, dx in 2005, fast accumulation of disability, except I have just finished 2 years of Mitoxantrone (what...
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Last post by loader
Tue Sep 02, 2008 6:59 am
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Risks of Novantrone
Replies: 3
by
Pookie » Tue Jul 01, 2008 3:29 pm
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My boyfriend Scott's neurologist recommends that he go on Novantrone. He has been on Betaseron in the past but had bad injection site reactions....
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How often do you inject?
Avonex is once per week. I alternate legs each week for the injections. If your boyfriend does decide to go this route,...
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Last post by NHE
Wed Jul 02, 2008 11:22 am
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Last post by rainer
Tue May 20, 2008 2:42 pm
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Last post by bromley
Mon Feb 18, 2008 5:15 am
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Mitoxantrone observational study
Replies: 4
by
dignan » Wed Sep 12, 2007 6:30 am
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The side effects can be nasty, but mitoxantrone can also be highly effective...
Mitoxantrone as induction treatment in aggressive relapsing...
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HI DIGNAN THANKS FOR YOUR IN FORMATION ABOUT NOVANTRONE. IT IS VERY USEFUL INFOMATION.
REGARDS
SEEVA :roll:
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Last post by seeva
Mon Jan 28, 2008 5:08 pm
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IS ANYONE ON NOVANTRONE
Replies: 18
by
D » Sat Dec 11, 2004 8:19 am
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If you are how has it affected you? Some neuros are trying to convince me and some are against it. I'm truly oncerned about the cardiac toxicity. :?:
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I started on Mitoxantrone in Oct '06, just had my second dose Jan '07.
DX'ed Oct '05, on a walking stick within 5 daysof that, on Betaferon since Dec...
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Last post by loader
Thu Feb 15, 2007 9:49 pm
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Considering Novantrone
Replies: 7
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Aaron » Mon May 01, 2006 2:17 pm
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My Doc recommeded that I go on Novatrone due to worsening symptoms. He gave me some info on it, and one thing I noticed is that due to the lowered...
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We are getting ready for our second Novantrone treatment. We did not wear masks after the first and were not advised to. We got 2 boys in elementary...
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Last post by notasperfectasyou
Tue Nov 21, 2006 8:18 am
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Last post by bromley
Tue Nov 21, 2006 8:11 am
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Novantrone & LDN
Replies: 5
by
mscaregiver » Sun Jun 06, 2004 12:14 pm
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I am trying to get info on Novantrone & LDN, does anyone know of anyone or anyplace to find info on the aspects of these two and thier interaction?...
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Hi,
I've been taking LDN for around 6 months, and I've been taking a chemo drug, Cyclophosphamide, for about one month (I had an intense burst of 5...
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Last post by Craig445
Wed Jun 21, 2006 12:46 pm
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Last post by bromley
Tue May 30, 2006 9:15 am
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Last post by bromley
Wed Oct 26, 2005 2:51 am
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Last post by bromley
Wed Sep 28, 2005 4:31 am
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Novantrone and Copaxone
Replies: 1
by
Brian » Thu Jan 13, 2005 10:58 am
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I am going to a dual therapy approach to my PPMS starting in 2/05. It is going to be a combination of Novantrone and a daily injection of Copaxone...
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I took my lifetime dosage of Novantrone and stopped about a year ago. My doctor(neurologist) says he thinks my progression has stopped. I'm trying to...
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Last post by ramairdad
Sun Jan 16, 2005 11:13 am
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I am on Novatrone
Replies: 1
by
Share » Tue Nov 23, 2004 3:30 pm
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So far so good for me......I have had my first novatrone treatment back in September of this year. I was quite sick for 10 days but then I've doing...
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Hi Share,
Thanks for posting your experience with Novantrone so far. Sorry to hear your MRIs looked so bad. When we were considering Novantrone for...
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Last post by seelie
Wed Nov 24, 2004 11:39 am
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Novantrone
Replies: 2
by
Lap » Tue Aug 03, 2004 5:48 pm
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Can anyone tell me how long it takes for Novantrone to have any effect? My daughter has had three doses over the past three months and is to have one...
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Lap,
After hearing this story it sometimes makes you wonder about our health care people. It appeared in another MS Internet Forum.
About a year...
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Last post by HarryZ
Sun Aug 29, 2004 5:59 am
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Why No Posts on Novantrone?
Replies: 7
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seelie » Tue Jul 06, 2004 11:05 am
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There seems to be a lot of discussion about Avonex, Rebif .... and of course LDN... but I don't see much about Novantrone.
I am considering using it...
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I found this interesting... Doc just put me on Amantadine which they seem to hand out like candy to MSers....
Possible Side Effects: Feeling...
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Last post by seelie
Tue Aug 10, 2004 4:05 am
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ldn
Replies: 2
by vk » Thu Feb 26, 2004 11:52 am
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iI HAVE BEEN RESEARCHING LDN AND AM CURRENTLY ON NOVANTRONE TREATMENTS. ALL THE 'MEDICAL' INFO SAY THEY COUNTER EACH OTHER. HAS ANYONE HAD ANY...
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:D THANK YOU FOR THE REPLY. JUST SAW THE NEURO AND HE SAID HE HAS ONLY ONE PATIENT ON LDN AND IT WAS NOT HELPING. HE LIKENED IT TO 'BEE VENOM'. WE...
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Last post by vk
Sat Mar 13, 2004 9:41 am
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