Can your life ever be normal again?

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David1949
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Re: Can your life ever be normal again?

Post by David1949 » Sun Nov 12, 2017 3:04 pm

Have you read the Multiple Sclerosis Diet book? I read it shortly after I was diagnosed. I found it to be uplifting. It might improve your attitude and make things seem less hopeless. I don't think it will cure MS but I think it can slow it down.

Dave

You can buy it on Amazon https://www.amazon.com/s/ref=nb_sb_ss_c ... G4VL8HMABR

Daisycat
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Re: Can your life ever be normal again?

Post by Daisycat » Sun Nov 12, 2017 3:28 pm

I’ve been following the diet recommendations that I’ll find online. I’ll look into that book because I need something to give me hope. Right now everything seems pointless.

robbie
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Re: Can your life ever be normal again?

Post by robbie » Thu Jun 20, 2019 9:27 am

It's for the rest of your life ,pace yourself. Stay busy at work enjoy yourself do things you've thought about but haven't done. Don't let it mess up your thoughts easily said I know.🤔
Had ms for 27 yrs, taken a different approach to treatment I call it the FUMS treatment
DISCLAIMER anything posted by me is purely made from anger and disdain for ms,
Regime
2 cigars a day
4 beers
6 or more codein
2 valium
Pot as needed

robbie
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Re: Can your life ever be normal again?

Post by robbie » Mon Jul 22, 2019 11:09 am

What a completely moronic thing to say, it's insulting to those of us that have serious life changes thanks to this , not just numb fingers and toes
Ms/better life, up to you, what a frigging joke

Zyklon wrote:
Sun Nov 12, 2017 7:37 am
Can your life ever be normal again? Yes and no, depends on you. It can be even a better life.
Had ms for 27 yrs, taken a different approach to treatment I call it the FUMS treatment
DISCLAIMER anything posted by me is purely made from anger and disdain for ms,
Regime
2 cigars a day
4 beers
6 or more codein
2 valium
Pot as needed

ElliotB
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Re: Can your life ever be normal again?

Post by ElliotB » Mon Jul 22, 2019 11:39 am

"Yes and no, depends on you. It can be even a better life."

What an excellent, factual, truthful statement!


My life is better in many, many ways and although there are certainly difficult times as well, but overall my life has been enhanced in many positive ways!


A few examples:

- my memory is much, much, much better than at any time in my life.

- my cognitive abilities are probably better than at any time in my life.

- my overall health (aside from MS) is better than at any time in my life and continues to improve.


To be fair,things are certainly not perfect but in total my life is better overall.

Having a better life is a choice everyone can make, MS or not.


There are so many people with MS that do remarkably well and are very, very happy with their lives.

And of course there are many healthy people that are very, very unhappy with their lives.

Zyklon
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Re: Can your life ever be normal again?

Post by Zyklon » Mon Jul 22, 2019 2:59 pm

robbie wrote:
Mon Jul 22, 2019 11:09 am
What a completely moronic thing to say, it's insulting to those of us that have serious life changes thanks to this , not just numb fingers and toes
Ms/better life, up to you, what a frigging joke

Zyklon wrote:
Sun Nov 12, 2017 7:37 am
Can your life ever be normal again? Yes and no, depends on you. It can be even a better life.
Yes and no, depends on you. In my case, it is better and I see I am not alone...
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

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jimmylegs
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Re: Can your life ever be normal again?

Post by jimmylegs » Mon Jul 22, 2019 6:24 pm

that you are not, z. if i hadn't made the major changes i did after dx and fixated on health to the extent i did, i have a pretty good idea what kind of crap state i could be in by now :S
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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zen2010
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Re: Can your life ever be normal again?

Post by zen2010 » Tue Jul 23, 2019 6:28 am

Hello,

Hope my comment won't hurt anybody.

I kind of agree with Robbie.

Zyklon,
If i remember well, your EDSS is 1 or even less.
If you were at 6, I'm pretty sure your speech would be different...


Cheers

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jimmylegs
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Re: Can your life ever be normal again?

Post by jimmylegs » Tue Jul 23, 2019 8:34 am

as i understand things, zyklon has worked very hard to get from 5.5/6 at dx to 0.5/1 earlier this year.
viewtopic.php?f=20&t=28969&p=257260&hilit=edss#p257260

back story
viewtopic.php?f=20&t=28969
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

robbie
Family Elder
Posts: 1283
Joined: Thu Jan 27, 2005 3:00 pm
Location: Northern Ontario, Canada

Re: Can your life ever be normal again?

Post by robbie » Tue Jul 23, 2019 9:51 am

1st remission can feel so good, almost euphoric like it's all just a bad joke.
Had ms for 27 yrs, taken a different approach to treatment I call it the FUMS treatment
DISCLAIMER anything posted by me is purely made from anger and disdain for ms,
Regime
2 cigars a day
4 beers
6 or more codein
2 valium
Pot as needed

ElliotB
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Posts: 1917
Joined: Mon Feb 03, 2014 4:08 pm

Re: Can your life ever be normal again?

Post by ElliotB » Tue Jul 23, 2019 10:03 am

"Zyklon has worked very hard to get from 5.5/6 at dx to 0.5/1 earlier this year. "

Zyklon, if you don't mind sharing, what are some of the things you did to improve things...

Zyklon
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Re: Can your life ever be normal again?

Post by Zyklon » Tue Jul 23, 2019 10:45 am

Can you please don't make it personal?

Question is: Can your life ever be normal again?

3rd and last time: Yes and no, depends on you.

You may do nothing and stay well for your life
You may do everything and become wheelchaired in just days

MS can be cruel, MS can be forgiving, MS can be teaching, MS can be punishing. You name it and whatever you do, it is not moronic.

Peace, out...
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

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jimmylegs
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Re: Can your life ever be normal again?

Post by jimmylegs » Tue Jul 23, 2019 1:54 pm

fyi @ElliotB zyklon's journey is thoroughly documented here:
viewtopic.php?f=20&t=28969

zy i don't know if i agree that someone could have done everything and end up wheelchair-bound in days.. only because i personally doubt that 'everything' that could or should be done, could possibly be achieved in just days!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

robbie
Family Elder
Posts: 1283
Joined: Thu Jan 27, 2005 3:00 pm
Location: Northern Ontario, Canada

Re: Can your life ever be normal again?

Post by robbie » Tue Jul 23, 2019 2:19 pm

Hi JL and EB you guys are so central to Tim's what is your EDSS # ?, it helps understand where people are at
Had ms for 27 yrs, taken a different approach to treatment I call it the FUMS treatment
DISCLAIMER anything posted by me is purely made from anger and disdain for ms,
Regime
2 cigars a day
4 beers
6 or more codein
2 valium
Pot as needed

ElliotB
Family Elder
Posts: 1917
Joined: Mon Feb 03, 2014 4:08 pm

Re: Can your life ever be normal again?

Post by ElliotB » Tue Jul 23, 2019 4:52 pm

Not sure, I have never been given a score but based on what I have read about how it is calculated, I am probably at 3 or 4.

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