The Italian multiple sclerosis register
The Italian multiple sclerosis register
Department of Basic Medical Sciences, Neuroscience and Sense Organs, Bari, Italy
The Italian multiple sclerosis register.
https://www.ncbi.nlm.nih.gov/pubmed/30426289
Abstract
The past decade has seen extraordinary increase in worldwide availability of and access to several large multiple sclerosis (MS) databases and registries. MS registries represent powerful tools to provide meaningful information on the burden, natural history, and long-term safety and effectiveness of treatments. Moreover, patients, physicians, industry, and policy makers have an active interest in real-world observational studies based on register data, as they have the potential to answer the questions that are most relevant to daily treatment decision-making. In 2014, the Italian MS Foundation, in collaboration with the Italian MS clinical centers, promoted and funded the creation of the Italian MS Register, a project in continuity with the existing Italian MS Database Network set up from 2001. Main objective of the Italian MS Register is to create an organized multicenter structure to collect data of all MS patients for better defining the disease epidemiology, improving quality of care, and promoting research projects in high-priority areas. The aim of this article is to present the current framework and network of the Italian MS register, including the methodology used to improve the quality of data collection and to facilitate the exchange of data and the collaboration among national and international groups.
-
- Similar Topics
- Replies
- Views
- Last post
-
- 4 Replies
- 1680 Views
-
Last post by zen2010
Mon Feb 25, 2019 9:52 am
-
- 1 Replies
- 893 Views
-
Last post by Petr75
Sat Nov 02, 2019 9:51 am
-
- 3 Replies
- 1725 Views
-
Last post by Petr75
Thu Mar 05, 2020 9:23 am
-
- 0 Replies
- 299 Views
-
Last post by Petr75
Sun Oct 18, 2020 6:20 am
-
-
Multiple Sclerosis and Ischemic Stroke
by Petr75 » Fri Mar 29, 2019 10:23 am » in General Discussion - 0 Replies
- 792 Views
-
Last post by Petr75
Fri Mar 29, 2019 10:23 am
-
-
- 0 Replies
- 312 Views
-
Last post by Petr75
Thu Dec 10, 2020 11:35 am
-
- 0 Replies
- 438 Views
-
Last post by Petr75
Thu Mar 19, 2020 10:24 am
-
-
Exercise and the brain in multiple sclerosis
by NHE » Sat Nov 14, 2020 4:31 am » in Exercise and Physical Therapy - 0 Replies
- 273 Views
-
Last post by NHE
Sat Nov 14, 2020 4:31 am
-
-
-
Type 1 diabetes (T1D) and multiple sclerosis
by Petr75 » Thu Jan 09, 2020 4:23 am » in General Discussion - 1 Replies
- 640 Views
-
Last post by frodo
Wed Jan 15, 2020 4:02 am
-