I have SPMS and have been diagnosed for almost 9 years. I am on Copaxone for the last 20 months after 4plus years on Betaseron and Avonex. No help from any of them, although Copaxone feels like I'm doing better.
Thanks for any help/info, SheilaT
But the thing is, drug addicts use a much larger dose of Naltrexone than we would need so why can't we get help from the doctors. We didn't bring our illnesses on ourselves, drug addicts do and they get all the help and support going! It would be absolutely WONDERFUL if all us MSers could at least TRY LDN just to see if it helps get our lives back, even just a little.
WE WANT LDN, WE WANT LDN, WE WANT LDN.
I wondered if the media could help our situation, what do you all think?
Hi, well I went to my new neuro and left him all the info on LDN, he will get back to me......
Sooooooo I decided to get LDN from a doctor in the US while I wait for my Neuro or GP to decide whether they are going to prescribe.
I am now on LDN, started taking it on Tues 17th FEB...3mg dose caps.
I'll keep you updated on my progress.
Andy ( I'm happier now I'm trying LDN ) [/b]
The consultation price is now $150 (£82)
plus cost of meds and shipping
Total cost for 2 months supply of 3mg LDN capsules was $248 (£135.50)
The next telephone consultation will cost less and the script will be for more than 2 months supply.
Hope that helps you. If you need to know more, send me a private message.
How long? 1 month
How many mg's? 3 mg
When do you take it? 11:00 PM
What kind of MS do you have (rrms, spms, ppms)?
RRMS (diagnosed 6 months ago).
Positive changes since/while taking LDN?
I had new symptom 3 month ago, all of which reduced 50%
after starting LDN.
Negative changes since/while taking LDN? NONE
Any relapses while on LDN? NO
The million dollar question: Will you continue to take it? YES
Dr Bihari in New York charges much much more for a telephone consultation, (so I'm told).
Anyway, I no longer will have to use Dr Scott as my doctor here in the UK is now prescribing LDN to me.
Thanks for your concern anyway.
Well I,ve been on LDN now for 61days (off and on until my system has gotten used to it )
Regime now is 2weeks on 3mg then break for 3 days, this routine was given to me by a doctor who is on LDN. It's so that the body does not get used to the dose and therefore need more than is required...staying on 3mg instead of upping the dose through time...makes good sense I thought.
The pains in my feet and ankles are now just a memory and I can go to bed and sleep ok. I still have my 2 walking stick to get about but I have now and again taken a few wobbly steps without them...still early days for which I intend to continue with LDN.
Feel better in myself and life is not so down....looking better as the weeks go by.
All take care
How long? 5 weeks
How many mg's? 3 mgs.
When do you take it? 11:00p.m.
What kind of MS do you have (rrms, spms, ppms)? unofficially, spms
Positive changes since/while taking LDN? less spasticity [no longer take Baclofen], better balance, slightly less severe mood swings, progression seems to have stopped!!!
Negative changes since/while taking LDN? None.
Any relapses while on LDN? No.
The million dollar question: Will you continue to take it? He!! YES
Does anyone know if this naltrexone drug is available in Canada? I has MS but my neuro doctor doesn't know what kind. I have spasticity and fatigue but taking Amantidine only. Please let me as I am interested in taking this naltrexone. I can not take any injections; afraid of needles.
Thanx and God Bless