Experiences with Tysabri
Experiences with Tysabri
Born out of our experiences (no pun intended) here at This is MS, where a wonderful community has formed based (originally) on shared and common experience, the Experience Project extends that reach of reassurance and wisdom provided by people who have "been there before" to all people and all experiences.
Specifically, while MS can certainly shape a person, it does not *define* them-- each of us are complex individuals with thousands of experiences that make us who we are, of course one of the most potent being our experiences with Multiple Sclerosis.
Each one of those experiences would be worthwhile to record for your own history, the therapeutic effect of writing, and the benefit it could provide to another who is just now facing something you have already been through (and survived). Your experiences will undoubtedly help countless others.
Participation is of course absolutely free. We have been working passionately on this project for a long time, and really believe in its potential to help others. Taking a few moments to share your experiences with the MS therapies you have tried will help us make that a reality.
Share Your Statin Experiences
Read Others' Tysabri Experiences
Anybody getting Tysabri?
I visited one of the Brain Talk websites and they have a Tysabri thread where people are posting their experience. Most have only had 1-2 infusions. The general sense is that most think it too early to tell if working, others think it is having a positive affect. Can't give you a link because I fell across on a search for something else. HarryZ uses it so could point you in the right direction. I think the site was closed for a while because of technical problems.
Ian
Found the link -
<shortened url>
- HarryZ
- Family Elder
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- Location: London, ON, Canada
- Contact:
Here is the link that Ian was telling you about...amelia wrote:Yes, Gary and I would love to read what others have gone through. I know SOMEBODY is getting it!
http://forums.braintalk2.org/
Scroll down to the MS link and then register...it's free. There are some pretty decent people that post on that site and of course they talk about Tysabri and have some users that participate.
Harry
- HarryZ
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- Location: London, ON, Canada
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Re: Tysrabri
Sorry...posted a message in the wrong section...HarryGregB wrote:I am considering taking it. I am on rebiff. Is there anybody that can say it is better
I have taken both. If Rebif hadn't caused my depression to go through the roof, I'd likely still be on it. I go for my sixth infusion next week of Tysabri, and I'm feeling pretty good. I have more good days now. It has gotten progressively better over time, and I can now say, I think it's the Tysabri, because I haven't felt this good in awhile now. Yesterday was an excellent day, considering.
I still take several other meds, but I have a feeling I'll be able to taper off some of them over the next six months or so.
Good luck with your decision!
But for the 4 or 5 first years, it allowed me to keep on jooging etc...
Now i am taking tysa and feel better since i have not had any new crisis for 4 months(since my Tysa start)
So i'd say that if u feel good with Rebif keep on with it, otherwise move to Tysa.
DEAR MEMBERS MY NAME IS SEEVA PLEASE SOMEONE LET ME KNOW HOW I CAN GET TYSABRI NOW IN AUSTRALIA. ACCORING MY DR. TYSABRI IN THE MARKET IN APRIL 2008. WITH THE PPS APPROVEL. IF ANY ONE LET ME KNOW HOW I CAN GET NOW AND THE COST.bromley wrote:Amelia,
I visited one of the Brain Talk websites and they have a Tysabri thread where people are posting their experience. Most have only had 1-2 infusions. The general sense is that most think it too early to tell if working, others think it is having a positive affect. Can't give you a link because I fell across on a search for something else. HarryZ uses it so could point you in the right direction. I think the site was closed for a while because of technical problems.
Ian
Found the link -
<shortened url>
REGADS
SEEVA :roll:
- msladyinca
- Family Elder
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- Joined: Sun Aug 13, 2006 2:00 pm
- Location: So. Calif.
- Contact:
I am here in the US, and I have had a 17 Tysabri infusions so far.
On an Australian MS website, someone posted that Tysabri is being made available for 20 MS patients, until the PBS starts to fund it in April, 2008.
You/Neurologist need to contact Biogen (the manufacturer of Tysabri.
The Australian MS website is: <shortened url>
Also, below are the links to Biogen's website, and the website of Élan (the company that discovered Tysabri and is the copartner of Biogen for Tysabri). Hope this information helps. All my best, Lauren:
Biogen: http://www.biogenidec.com/site/contact.html
"contact in Australia:Australia
Suite 2, Level 4
123 Epping Road
NORTH RYDE NSW 2113
AUSTRALIA
Phone: 61 02 8875 3900
Fax: 61 02 9889 1162"
Élan: http://www.elan.com/Products/
"Elan has a Patient Assistance Program to provide TYSABRI and PRIALT to patients who might not otherwise be able to afford them. For more information on Elan's Medical Needs Program, you may contact the following: TYSABRI at 1-888-489-7227 or PRIALT at 1-888-774-2581"

http://lauren-livingwithms-aolcomlglbgl ... gspot.com/
Co-owner of a MS Support Group
TYSABRI
REGARDS
SEEVA

- msladyinca
- Family Elder
- Posts: 104
- Joined: Sun Aug 13, 2006 2:00 pm
- Location: So. Calif.
- Contact:
My MS is now stable, and I have not had a relapse nor any disease progression in over a year since being on Tysabri therapy, woo hoo!
All my best, Lauren


http://lauren-livingwithms-aolcomlglbgl ... gspot.com/
Co-owner of a MS Support Group
tysabri
BEST REGARDS
SEEVA :roll:
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