So excited about the finding you all!

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Joined: Tue Sep 27, 2011 6:12 pm

So excited about the finding you all!

Post by MSQUEEN » Tue Sep 27, 2011 6:44 pm

I was dxd in May 2011 with parathesis from toes to waist. My GP referred me to neuro(who proved to be practicing MS care like it was a toothache)and a thoracic mri. It came back to be transverse myelitis. The next step was mri thorasic with contrast, no cancer! And then a bain scan revealing 12 lesions. The lesions justified a couple of years of brain fog, camoflauged with "new mom brain" and workaholic(6/week hairstylist) In January I lost my little bro 27 to a heroin overdose. I tried to be "healthy" in my grief process but the stress and broken heart were enough to bring on the attack mentioned. As it turns out I had a previous episode but didn't connect the dots. My daughter was about 8 months and I went numbish in my trunk right side. I WebMD'd it and diabetic issues came up so I decided taht it must be because I hadn't been good about taking my PCOS (insulin resistance)meds,metformin also happens to also treat diabetes. Symptoms resolved and I hadn't thought of it again....until the diagnosis I made no neurological connection.
My symptoms:
Banding , my waist was wrapped in rubberbands.
Parathesis from waist to toes. IV solumel for 3 days and then weened off with pills.* weeks later, the complete sensation returnned..but I still fear I am a poor night of sleep away from parathesis.
Cognitive issues with memory and concentration, tested (-7) on t.o.v.a. ADHD test. I have ADHD in my family chemistry for sure but as a girl and a coper I found all kinds of tricks to help...but with lesions I couldn't control it..I was a senile 30 yr old.And headaches...better now than preceeding steriod IV treatment.
I had no history of UTI before cognitive issues or my daughter born in 2008. My hubby and I have been together for 10 years with no genital issues. I think it's got something to do with the chronic yeast infections I have had for the last 5 years. I can't figure out how to control them.
Chronic Yeast Infection, It seemed very obvious to me that there was a connection between sugar/ yeast infections and sugar(insulin) resistance) from PCOS before my MS diagnosis. I had read up on threelac to treat systemic OB just keeps prescribing diflucan..and that can't be good for my liver...
I have been eating so much vegan since my diagnosis and I lost 35 lbs...looking better that ever(silver lining) but I am def still on a journey finding the right dr's and wellness people. A lot of idiots in LA. So I did a 30 day raw vegan cleanse (Dr. Richard Schulze and it's just too unrealistic because I can't eat soy or beans per the best bet diet and I def don't want a neuro reation to lunch so I do vegan in the day and a small portion of white meat or fish in the pm
Adderall XR
Baclofen , when needed for spasms or banding
Vitamin D omega 800 mg /dy
Currently trying to work in pilates, yoga, and acciupuncture to keep me well.
I go to USC Oct 10th to see a real MS specialist!!!!!!!!!!!!! I couldn't be more excited. My MS is currently considered mild/moderate(mostly because no one gives a shit if your MS symptoms are not currently mobility) and I want to limit this disease in whatever ways possible. It's so random and unpredictable..there is no comfort in my current RRMS can evolve to Progressive? I respect a FOR NOW ...way of thinking.For now it is incurable...but I do believe that collectively we can make Dr's cure us all!
By coming together in my grief group I grew stronger and I believe I will gain more than a sigle great thing by joining this group of fighters.

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Re: So excited about the finding you all!

Post by want2bike » Wed Sep 28, 2011 4:32 am

Vegan is a good thing. Sometimes it takes time to see the results so don't give up. You have control over your own health. If you are looking for something to help with the yeast infections Olive leaf extract or Oregano oil may help. Sugar could be the problem.

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Re: So excited about the finding you all!

Post by civickiller » Fri Sep 30, 2011 11:16 pm

i would recommend going to see an Upper Cervical Care Dr to get tested to see if you can benefit from this type of natural gentle care.
stop by the chiropractic treatment forums to learn more about it or just search upper cervical care on any search engine

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Re: So excited about the finding you all!

Post by jimmylegs » Sat Oct 01, 2011 4:05 am

welcome to TiMS, msq!

take control of your own health.
pursue optimal self care, with or without a diagnosis.

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Re: So excited about the finding you all!

Post by Pip » Mon Oct 10, 2011 1:56 am

If you are in U.S. I suggest you go to Boston. There is the best diagnostic/research clinic for M.S.
It is the most frustrating, elusive illness. You're right about family doctors symbolically waving garlic so that it will go away.

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