Actually the ADA (American with Disabilities Act) gives you plenty of job protection/security.
"I see my neurologist tomorrow to see what drugs I’ll be on and I’m terrified of the side effects from them. From what I read on cdc drug websites they are all pretty bad."
Actually, that is not the case for many of them. Do your homework - you should be able to find one that you are comfortable with.
As important as a medication may be, there is no substitute for good diet, exercise, nutritional supplements and lifestyle changes (elimination of all stresses in your life). There is a lot of info on this site that you will likely find helpful.
"As for the drugs they all have at least one nasty side effect "
Not everyone has side effects from DMDs for MS, I take one and have no side effects. My experience is not unique - of course there are no guarantees. There are many tips on this site on how to best deal with DMDs and their possible side effects. Hopefully what ever you end up taking will not cause you grief... Do your homework!
Daisycat wrote:I see my neurologist tomorrow to see what drugs I’ll be on and I’m terrified of the side effects from them. From what I read on cdc drug websites they are all pretty bad. Anyone have advice for drug choices for a newly diagnosed person?
I was diagnosed in June. I have had an exercise-fatigue-related dropfoot for many years, but never had time to go deal with it. Always taking care of everyone else, you know. Anyway, I decided 2017 was going to be the year I'd get it dealt with, and after spine surgeons, multiple orthopedic surgeons, and 2 neurologists, I was told I have MS. AND that I have likely had it for over 20 years, and just had very few symptoms!
Anyway, my doctor told me I could choose whichever therapy I wanted, but that he suggested Copaxone. So, after reading all the risks with all the others, I went for Copaxone. I have been taking it since mid-September, and it's really ok. I thought I'd never be able to deal with injections, but my Type-1 Diabetic stepdaughter (since aged 12!) told me to "buck up". And it's OK.
I did start having pretty uncomfortable allergic reactions after the first month, but right now I am taking Benadryl about 30 minutes before I inject, and it's significantly better. I just remind myself that I do not want more lesions, especially since I have so many, despite being a low-symptom patient. I sort of feel like I was ridiculously lucky and I don't want to test fate! And the risks involved with all the OTHER DMD meds were quite concerning, as compared to "redness, swelling, and rarely, shortness of breath". So this Copaxone is my new normal.
I remember this time really well. I thought I would be in a wheelchair within 12 months. (1979)
I looked at everything, spent time looking at diets and anything natural that would help. I decided to have a healthy diet, evening primrose oil was good at that time, I took that. I personally never touched the drugs offered but that is your personal choice.
Has anyone heard of Oxygen Drops? I started these 15 years ago and they took my fatigue away. I would not be without them. Also I use an electronic machine for my leg muscles.
I was diagnosed in 1979 after a lumbar puncture but I had symptoms from my early 20's. I am 70 yrs. old next March and I am still walking, I use a walker's stick for balance when I am on my own. My right foot doesn't lift up very well so I have a leg brace. But hey ho I am still out there. I finally retired from fostering children this year. I have had an active life and not missed out on much. Be positive and have faith in your future, it might not be as bad as you think. Things are moving forward fast.
Have your vitamin D levels checked and read up on the Dr. Coimbra protocol as this is the way forward for me. It might be for you!
Maybe what you think is important isn't what is important.
If you havn't got any symptoms, at the moment, then I would look at Dr. Coimbra's protocol and Vitamin D3. You can try to fight this before it takes over. It is your choice at the end of the day.
Today is the first day of the rest of your life. It might have better things in store than you were expecting. Nobody knows what is going to happen. You have already started to put positive things in place. You need a specialised Doctor to help you. They are listed in the protocol.
Imagine good things and good things will come. It also works the other way. Always try to think positive and draw positive things to you.
Let the fear motivate you but not control your life. It can be a tool for better health. Read success stories and stay away from horror ones. Don't join the dark side. Take a step, share, another step, share, soon you will enjoy your regular life.
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!