Hello from New England

New members should feel free to introduce themselves here
Post Reply
User avatar
Family Elder
Posts: 473
Joined: Sun Nov 22, 2009 3:00 pm

Hello from New England

Post by tzootsi » Mon Nov 23, 2009 6:59 am

Hi! I have been 'lurking' on this site for many months, and decided to take the plunge and join in. I am the husband of a woman who was dx'd with a mild case of ms 2 1/2 years ago. Her symptoms are not the usual, and even her Neuro han't given her a clear cut ms category. She has a heavy right leg, slightly weaker right arm, and some minor balance issues, along with some buring skin, and discomfort in sitting one one position for a long time. Other than that, she is in excellent health, and can bicycle for hours. She never has had any 'attacks' as such, and her symptoms which started about 10 years ago, were very gradually getting worse up until about 18 months ago, when she started the MS Recovery Diet, and taking LDN.
Anyhow, this whole CCSVI thing is what really grabbed me on this site - my claim to fame is that I'm the guy who first told Ashton Embry about CCSVI after reading about it here.

User avatar
Family Elder
Posts: 5360
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Post by cheerleader » Mon Nov 23, 2009 7:38 am

Hey, thanks for telling Ashton, tzootsie! He hunted down the cheerleader after going online and searching CCSVI- and contacted me in September, very excited about the research. I know Sharon also introduced him to CCSVI. Ashton hooked me up with Avis Favaro at CTV and I was able to introduce her team to all the CCSVI doctors, so your good deed is appreciated :) Don't we love the internet!

I'm a new england girl (miss those fall colors!) So glad to hear that your wife is able to bike (Jeff loves his bike) and is staying healthy with diet, supplements and exercise. All are so important.

keep posting and welcome!
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09

User avatar
Family Elder
Posts: 403
Joined: Sun Aug 30, 2009 2:00 pm
Location: Chandler, AZ

Post by CRHInv » Mon Nov 23, 2009 7:43 am

Welcome Tzootsi!
I am so glad you jumped in, and thanks for getting Ashton Embry on board. I feel for you and your wife. I did have a big attack, but I was/am still diagnosed atypical. I am like your wife with lingering symptoms but still a lot of abilitly. I also follow my own version of the MS Recovery Diet/ Swank/ etc. I think the diet is important. The CCSVI is what really got me to jump in here also. I have been to Stanford and I can tell you this is a great thing. I hope you continue to research and find the best answers for you both.
Take good care,
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.

Family Elder
Posts: 1517
Joined: Wed Feb 11, 2009 3:00 pm
Location: California

Post by LR1234 » Mon Nov 23, 2009 7:55 am

Welcome to the site and we look forward to your participation in our lively debates:)!!

Post Reply