Ocrevus

Tell us what you are using to treat your MS-- and how you are doing.
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ebrownkirkland
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Ocrevus

Post by ebrownkirkland » Mon Feb 12, 2018 6:46 am

Hi there. My husband was diagnosed with RRMS back in May, but now the doctor thinks he may have PPMS. He suggested that we look into Ocrevus. I have been reading about it a little and it sounds scary (could cause cancer, could lead to death), but it's the only MS drug out there that treats PPMS. Anyone have any experience with it?

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NHE
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Re: Ocrevus

Post by NHE » Tue Feb 13, 2018 1:55 am

ebrownkirkland wrote:Hi there. My husband was diagnosed with RRMS back in May, but now the doctor thinks he may have PPMS. He suggested that we look into Ocrevus. I have been reading about it a little and it sounds scary (could cause cancer, could lead to death), but it's the only MS drug out there that treats PPMS. Anyone have any experience with it?
I have no experience with Ocrevus, but a good place to start is to read the Prescribing Information. Be sure to look up any words you don't know. The Free Dictionary has a medical dictionary available which works well.

Anunymouse
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Re: Ocrevus

Post by Anunymouse » Sun Aug 05, 2018 6:59 pm

I've been on it for over a year. I'll be on my 3rd dozen in October. My Dr says there is nothing new in regards to the cancer risk and the number of people in the study that did get cancer was not out of the norm for the regular population. He says he has seen a good response with the patients he has on it.

Kheuer
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Re: Ocrevus

Post by Kheuer » Wed Nov 21, 2018 5:44 pm

ebrownkirkland wrote:Hi there. My husband was diagnosed with RRMS back in May, but now the doctor thinks he may have PPMS. He suggested that we look into Ocrevus. I have been reading about it a little and it sounds scary (could cause cancer, could lead to death), but it's the only MS drug out there that treats PPMS. Anyone have any experience with it?

I'm 5 months post first infusions. They have no idea what type MS I have.

I had classic epididymal dot dash dot, plus paraventricular white matter lesions and a large 2cm avoid lesion in the cerebrum

I was diagnosed in April 18, at age 46 male, after 1 year of symptoms. Ocrevus started May 2018.

No side effects.

I can say that the 2cm ovoid lesion on my MRI in March, was gone in an MRI I had in September.

It also seems there is a less pronounced .-. but ???


No real progression, other than balance, which could have been evident before.

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seeva
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Re: EXPERT DISCUSSES FIRSR AND ONLY DRUG APROVED FOR PMS

Post by seeva » Tue Jan 29, 2019 3:50 pm

HI FRIEDS PLEASE READ
https://medicalxpress.com/news/2017-03- ... rosis.html
REGADFS
seeva

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