I was just diagnosed with MS. I'm 24, married, and have a 16 month old daughter. My entire torso pretty much and left arm are stone numb. I finished 3 days of IV steroids on friday but am on no other meds. I'm still in shock from the whole situation and am praying for the feeling to come back in my body so that I can feel again, and go back to work, care for my daughter, etc... I guess I'm looking for others who have had this numbness and it went away for hope that mine will too. Can anyone give me some ray of hope? I'm trying to be optimistic but I'm also so scared...
That's how my numbness feels, if I put my hands on my leg I know I'm touching my leg however, I could easily grab a razor blade right now and cut into my leg and not even feel it. The way I feel temperature has also changed on the right side of my body where I am numb. Cold burns! When cold water splashes on me it feels like hot oil popping on my skin from a frying pan! I don't really seem to feel heat considering I first realized I was numb when I learned I could keep my foot under the scolding hot faucet water in my bathtub as long as I wanted to even though just tapping my other foot under the water for just a split second burnt! It also hurts to touch anything else cold such as a cold piece metal or even a cold table surface(my right arm gets a little sensitive to cold sometimes even though it's not numb), really weird...
I am just glad that it stopped at my shoulder blade and didn't make its way to my face or my arm... I was scared at first, but I have to admit, since my other symptoms popped up I hardly even think about my numbness, I guess because I still have SOME feeling it doesn't get in the way too much... Just have to be careful that I'm not burning my skin or anything like that.
But it's really good that you are started steroids, that does wonders for people! It's definitely helped me improve, but I still have my numbness... I start my injections this week and will be starting an anti-inflammatory diet pretty soon so I'm hoping between that and my oral steroids that I will go into remission soon, but in your case, I wouldn't worry too much, the steroids will probably help but keep in mind you might see effects as soon as three treatments or as long as two months, fingers crossed! Good luck!
- Family Elder
- Posts: 202
- Joined: Sun Nov 22, 2009 3:00 pm
- Location: Didsbury, Alberta Canada
Is this a first attack for you or is it just a different type of symptom for you?
Numbness, lack of sensation (could not feel cold like tile on the floor, or the porcelain of the toilet.. on one side) is how my first MS Symptoms presented. Also, in some areas of my leg,s that tingly feeling like when the rfeezing is coming out (at the dentist). I would describe the lack of sensation also as though when I touched my bare leg, it felt like I was touching my leg while I was wearing pants - not like skin on skin???
It is such a scary feeling because it just feels like it will be like that forever - it somehow feels so permanent, doesn't it? That is what makes it so frightening for me anyhow. My attacks come come on slowly, creeping up my legs and one time I felt a constriction - like a big old boa constrictor wrapped around my waist. When they recede, they seem to recede back downwards again, for me anyway and as slowly as the symptoms work their way up, that is how slowly they work their way back down. It is very hard for me to put this into practice, because I get so afraid, but I know that if I can make myself relax and make myself get some rest, it really helps the symptoms ease up. I find that stress is a huge trigger for me & so is lack of rest. I get a little buzz in my R big toe when I am tired or stressed and it is my cue to chill, relax & de-stress. This very difficult for me when I am having an attack, but I know it is my best medicine.
I hope it eases up for you soon.