bloodwork monitoring

Tell us what you are using to treat your MS-- and how you are doing.
Post Reply
User avatar
jimmylegs
Volunteer Moderator
Posts: 12067
Joined: Sat Mar 11, 2006 3:00 pm

bloodwork monitoring

Post by jimmylegs » Mon Oct 28, 2019 3:37 pm

welp i've been feeling a bit on the crap side and some of the answers are coming in now. most levels look great; the main news so far is serum magnesium on the low side of normal. looks like some regimen juggling is in order!

update: high normal ferritin and copper with low normal zinc. see this is why you need data not guesswork. i was imagining i was tired from low ferritin. not even close. bring on the zinc!!

dec 11 update (background: had had some significant challenges starting at the end of october - coincidentally, just before/as the bloodwork results came in - into early december, mainly sudden onset right-sided spasticity and right-sided head to toe numbness):

off to the doc first thing tomorrow. still working hard on the self care management details, as informed by last tests.
subjectively everything keeps getting better day by day. daily waking fatigue cleared up first. then the right sided spasticity/numbness, although pre-existing chronic paresthesia (not ms origin) - is still present. i had been feeling confident about driving again for a long time, but had first opportunity to try it today. no probs :D

dec 18 update:

got the new requisition. not without a bit of push back from the relatively new-to-me doc. but i have it in hand, and we shall see what fruit my recent efforts may have borne. subjectively, things are much better :D now to see if updated data matches how i feel.

jan 20 update:

great news from the lab :D way better zinc and ferritin status after corrective efforts in nov dec and early jan. improved copper-zinc ratio (see 4th/last study in viewtopic.php?t=30764&start=105#p255324), with room to do even better.

jan 30 update:

still all on the up and up. have done more research to assess how long will be safe at higher than usual zinc intakes. will go back to the doc in a couple months. might ask for the new requisition then, even if i don't run the tests till a bit later on.

feb 8 reflection:

overall, this experience of spasticity was unlike any previous. maddening. glad it's long gone now. magnesium might have contributed somewhat to improvements last year, but it was clearly not the main player.
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

Post Reply
  • Similar Topics
    Replies
    Views
    Last post