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A board to discuss Tcelna as a treatment for Multiple Sclerosis
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Lyon
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Post by Lyon » Sat Aug 06, 2011 8:51 am

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Last edited by Lyon on Sun Nov 20, 2011 2:57 pm, edited 1 time in total.

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JanethePain
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Blood and stuff :-)

Post by JanethePain » Tue Aug 09, 2011 7:38 am

This reads to me that someone is expecting a LOT of activity. Phase III used to rope about 5000 for its part of the studies... this would confirm such a number, I think. We could ALL use some good news!
Jane the Pain

Lyon
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Post by Lyon » Tue Aug 09, 2011 11:24 am

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Last edited by Lyon on Sun Nov 20, 2011 2:58 pm, edited 1 time in total.

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JanethePain
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Flares

Post by JanethePain » Tue Aug 09, 2011 12:25 pm

Yip, I was on the "real thing" for Phase II and got one dose in the extension part about 48 hours before the trial was discontinued. As for flares, the fatigue stayed about the same but last November, I had a flare in my left hand that I called the numb-thumb syndrome. The mad tingles eventually subsided but I've had permanent deficit on that one (good thing I'm not left-handed).

So I really have a major bone to pick with the *s and **s who managed to get our vaccine side-lined for so long a time. I would punch 'em with my numb thumb but I wouldn't feel anything.

;-)
Jane the Pain

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