montel, A funacello, Terrie Garr

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
lumpc1
Family Member
Posts: 28
Joined: Fri Jan 29, 2010 3:00 pm

Post by lumpc1 » Tue May 18, 2010 8:45 am

i don't see how a person that can still use there hands and feet are to bring awareness to a disease that is much more serious than that, like in the early years of this thing nobody really thought is was a big deal. in fact when I retired many thought it was a scam. cause I could still ride a M/c and walk, although my hands & feet had been buzzing for many years. it sounds like another one of those I couldn't do this and was confined to that for a couple of weeks or months thing, like the e deliack thing. I'm almost certain I would be riding a bicycle still if I had not slipped into this stage 4 years ago after GB surgery. it is a another of those 'you can do' inspirational stories. that is not how MS is when it gets to this point. you can do nothing to buck up.

User avatar
karenul
Newbie
Posts: 7
Joined: Mon Apr 19, 2010 2:00 pm

Post by karenul » Tue May 18, 2010 5:21 pm

Neil Cavuto is a hot shot business newscaster on FOX. He has MS and has said recently that it is getting pretty bad. Maybe being a reporter himself he would show some interest. His e-mail is :roll: listed on the Fox web-site.

Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”