Plodding to Poland with Johnson...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
Johnson
Family Elder
Posts: 979
Joined: Tue Dec 01, 2009 3:00 pm
Location: Ucluluet, BC
Contact:

Plodding to Poland with Johnson...

Post by Johnson » Wed Jun 02, 2010 4:58 pm

...and hopefully, positively prancing back.

I am off tomorrow (Thurs. 3d June), and am scheduled for the procedure in Katowice on Tues. 8th. Thanks to those who PM'd me with good wishes. I'm touched that you remembered.

I have been scarce here since I paid for the procedure and booked my flight a couple of weeks ago. I found it too un-nerving to read both the good and bad stories, the doubts and questions, etc. Once committed to going, I am going. I intend to ask a lot of questions, and ask that they be gentle with my valves and such, and hope that I don't have an unresolvable problem, like an extra heart, or brain (though, I wish I did have any extra brain). I go with the quietest of hope, and the tiniest of doubts, but I have no choice. I cannot wait 5-10 years for the perfection of the state-of-the-art, or for Canada to finally deign to help its citizens with CCSVI. I throw up my right hand, with my middle finger extended, and shout "study this!". !7 years is a too long time to feel like we feel. 25 years, or longer is worse. One month is bad enough. I gave up thinking I could ever get better through divine intervention, so I'll take the medical one.

I first contacted Dr. Simka on Dec. 10th, after humming and hawing, and did not hear anything for quite a while, so to those contacting now, don't worry. It takes a while to hear from them, but you will get treated. I had an invitation from AMEDS this AM for September, but I will cancel that next Wednesday, so there is one more spot opening up. I first contacted them in early March.

I will post from Poland with the gnarliest of details that you might not hope for, and the most flowery joy that I hope for. We will see. I have no expectations, other than jet lag. I will give on-going updates on the tracking thread (page 6) too.

I look forward to meeting mtf and skincoll, and I'm sure, others.

Over and out,

Johnson
My name is not really Johnson. MSed up since 1993

User avatar
prairiegirl
Family Elder
Posts: 228
Joined: Fri Feb 05, 2010 3:00 pm

Post by prairiegirl » Wed Jun 02, 2010 5:08 pm

Wish you the very best of all possible outcomes, Johnson! You will have a lot of people here thinking of you and rootin' for a great result. Look forward to your missives-- happy trails and a smooth flight!

User avatar
msgator
Family Elder
Posts: 103
Joined: Wed Mar 17, 2010 3:00 pm
Location: USA
Contact:

Post by msgator » Wed Jun 02, 2010 5:12 pm

Wishing you all the best. Can't wait to read your reports.
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.

User avatar
Trish317
Family Elder
Posts: 357
Joined: Sat Sep 06, 2008 2:00 pm
Location: Rhode Island

Post by Trish317 » Wed Jun 02, 2010 5:12 pm

Sending you prayers and good thoughts....

User avatar
garyak
Family Elder
Posts: 314
Joined: Sun May 30, 2010 2:00 pm
Location: grande prairie , alberta,canada
Contact:

Post by garyak » Wed Jun 02, 2010 5:15 pm

I'm a newbie but wish you the best of outcomes and will look forward to you posting your experience and results :) gary

User avatar
Katie41
Family Elder
Posts: 179
Joined: Sat Dec 05, 2009 3:00 pm
Location: Southern California
Contact:

Post by Katie41 » Wed Jun 02, 2010 5:19 pm

Johnson, all the very best wishes for the best outcome imaginable.
Katie41

User avatar
PCakes
Family Elder
Posts: 849
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada
Contact:

Post by PCakes » Wed Jun 02, 2010 5:34 pm

i've just now scooched out to the edge of my chair..

User avatar
pegmegrund
Family Elder
Posts: 110
Joined: Sat Oct 31, 2009 3:00 pm
Contact:

Re: Plodding to Poland with Johnson...

Post by pegmegrund » Wed Jun 02, 2010 5:37 pm

Johnson wrote:I will post from Poland with the gnarliest of details that you might not hope for, and the most flowery joy that I hope for.
I look forward to your details, and also hope for much flowery joy. Safe travels!

User avatar
shye
Family Elder
Posts: 758
Joined: Sun Nov 29, 2009 3:00 pm
Location: NYC
Contact:

Post by shye » Wed Jun 02, 2010 5:41 pm

Lots of love and light to you Johnson...

User avatar
Hope66
Family Member
Posts: 62
Joined: Tue Feb 24, 2009 3:00 pm
Location: Southwestern Ontario, Canada
Contact:

All the best to you!

Post by Hope66 » Wed Jun 02, 2010 5:52 pm

My thoughts are with you.

Please take good care and send updates as you're able.

Cheers
Hope (who has relatives in SA, BC)
-----------
Dx March 2003
Avonex

User avatar
Drury
Family Elder
Posts: 237
Joined: Sun Mar 28, 2010 2:00 pm
Contact:

Post by Drury » Wed Jun 02, 2010 6:08 pm

Wishing you the very best Johnson.
Drury

Cece
Family Elder
Posts: 9332
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece » Wed Jun 02, 2010 6:10 pm

Wishing you all the best!!!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

User avatar
HappyPoet
Family Elder
Posts: 1413
Joined: Thu Jul 09, 2009 2:00 pm
Contact:

Post by HappyPoet » Wed Jun 02, 2010 6:17 pm

Johnson,

Please know that you travel with all our hopes and prayers.

My husband's homeland will host one of the finest gentlemen we have ever known, one who always helped us whenever we came knocking on his PM door.

We'll be following all your updates!
~Bronek & Pam

User avatar
esta
Family Elder
Posts: 385
Joined: Wed Nov 25, 2009 3:00 pm
Location: Summerland. BC Canada
Contact:

Post by esta » Wed Jun 02, 2010 6:19 pm

OK, THIS IS IT ...it's going to go swimingly, best of luck, johnson :D :D :D

User avatar
sbr487
Family Elder
Posts: 865
Joined: Tue Nov 24, 2009 3:00 pm
Location: India
Contact:

Post by sbr487 » Wed Jun 02, 2010 7:15 pm

Get well, Captain. Looking forward to talk to a healthy "Johnson" soon ...

Post Reply
  • Similar Topics
    Replies
    Views
    Last post