Plodding to Poland with Johnson...
Plodding to Poland with Johnson...
...and hopefully, positively prancing back.
I am off tomorrow (Thurs. 3d June), and am scheduled for the procedure in Katowice on Tues. 8th. Thanks to those who PM'd me with good wishes. I'm touched that you remembered.
I have been scarce here since I paid for the procedure and booked my flight a couple of weeks ago. I found it too un-nerving to read both the good and bad stories, the doubts and questions, etc. Once committed to going, I am going. I intend to ask a lot of questions, and ask that they be gentle with my valves and such, and hope that I don't have an unresolvable problem, like an extra heart, or brain (though, I wish I did have any extra brain). I go with the quietest of hope, and the tiniest of doubts, but I have no choice. I cannot wait 5-10 years for the perfection of the state-of-the-art, or for Canada to finally deign to help its citizens with CCSVI. I throw up my right hand, with my middle finger extended, and shout "study this!". !7 years is a too long time to feel like we feel. 25 years, or longer is worse. One month is bad enough. I gave up thinking I could ever get better through divine intervention, so I'll take the medical one.
I first contacted Dr. Simka on Dec. 10th, after humming and hawing, and did not hear anything for quite a while, so to those contacting now, don't worry. It takes a while to hear from them, but you will get treated. I had an invitation from AMEDS this AM for September, but I will cancel that next Wednesday, so there is one more spot opening up. I first contacted them in early March.
I will post from Poland with the gnarliest of details that you might not hope for, and the most flowery joy that I hope for. We will see. I have no expectations, other than jet lag. I will give on-going updates on the tracking thread (page 6) too.
I look forward to meeting mtf and skincoll, and I'm sure, others.
Over and out,
Johnson
I am off tomorrow (Thurs. 3d June), and am scheduled for the procedure in Katowice on Tues. 8th. Thanks to those who PM'd me with good wishes. I'm touched that you remembered.
I have been scarce here since I paid for the procedure and booked my flight a couple of weeks ago. I found it too un-nerving to read both the good and bad stories, the doubts and questions, etc. Once committed to going, I am going. I intend to ask a lot of questions, and ask that they be gentle with my valves and such, and hope that I don't have an unresolvable problem, like an extra heart, or brain (though, I wish I did have any extra brain). I go with the quietest of hope, and the tiniest of doubts, but I have no choice. I cannot wait 5-10 years for the perfection of the state-of-the-art, or for Canada to finally deign to help its citizens with CCSVI. I throw up my right hand, with my middle finger extended, and shout "study this!". !7 years is a too long time to feel like we feel. 25 years, or longer is worse. One month is bad enough. I gave up thinking I could ever get better through divine intervention, so I'll take the medical one.
I first contacted Dr. Simka on Dec. 10th, after humming and hawing, and did not hear anything for quite a while, so to those contacting now, don't worry. It takes a while to hear from them, but you will get treated. I had an invitation from AMEDS this AM for September, but I will cancel that next Wednesday, so there is one more spot opening up. I first contacted them in early March.
I will post from Poland with the gnarliest of details that you might not hope for, and the most flowery joy that I hope for. We will see. I have no expectations, other than jet lag. I will give on-going updates on the tracking thread (page 6) too.
I look forward to meeting mtf and skincoll, and I'm sure, others.
Over and out,
Johnson
My name is not really Johnson. MSed up since 1993
- prairiegirl
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- pegmegrund
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Re: Plodding to Poland with Johnson...
I look forward to your details, and also hope for much flowery joy. Safe travels!Johnson wrote:I will post from Poland with the gnarliest of details that you might not hope for, and the most flowery joy that I hope for.
- Hope66
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All the best to you!
My thoughts are with you.
Please take good care and send updates as you're able.
Cheers
Hope (who has relatives in SA, BC)
Please take good care and send updates as you're able.
Cheers
Hope (who has relatives in SA, BC)
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Dx March 2003
Avonex
Dx March 2003
Avonex