I am off tomorrow (Thurs. 3d June), and am scheduled for the procedure in Katowice on Tues. 8th. Thanks to those who PM'd me with good wishes. I'm touched that you remembered.
I have been scarce here since I paid for the procedure and booked my flight a couple of weeks ago. I found it too un-nerving to read both the good and bad stories, the doubts and questions, etc. Once committed to going, I am going. I intend to ask a lot of questions, and ask that they be gentle with my valves and such, and hope that I don't have an unresolvable problem, like an extra heart, or brain (though, I wish I did have any extra brain). I go with the quietest of hope, and the tiniest of doubts, but I have no choice. I cannot wait 5-10 years for the perfection of the state-of-the-art, or for Canada to finally deign to help its citizens with CCSVI. I throw up my right hand, with my middle finger extended, and shout "study this!". !7 years is a too long time to feel like we feel. 25 years, or longer is worse. One month is bad enough. I gave up thinking I could ever get better through divine intervention, so I'll take the medical one.
I first contacted Dr. Simka on Dec. 10th, after humming and hawing, and did not hear anything for quite a while, so to those contacting now, don't worry. It takes a while to hear from them, but you will get treated. I had an invitation from AMEDS this AM for September, but I will cancel that next Wednesday, so there is one more spot opening up. I first contacted them in early March.
I will post from Poland with the gnarliest of details that you might not hope for, and the most flowery joy that I hope for. We will see. I have no expectations, other than jet lag. I will give on-going updates on the tracking thread (page 6) too.
I look forward to meeting mtf and skincoll, and I'm sure, others.
Over and out,
I look forward to your details, and also hope for much flowery joy. Safe travels!Johnson wrote:I will post from Poland with the gnarliest of details that you might not hope for, and the most flowery joy that I hope for.
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Please take good care and send updates as you're able.
Hope (who has relatives in SA, BC)
Dx March 2003
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CCSVI alive and well in Poland. Fascinating article.
Last post by Thomas79 « Mon Jun 24, 2019 12:17 amReplies: 4
Posted in Chronic Cerebrospinal Venous Insufficiency (CCSVI)by CureIous » Sun Apr 08, 2018 11:54 pm » in Chronic Cerebrospinal Venous Insufficiency (CCSVI)
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Last post by Thomas79
Mon Jun 24, 2019 12:17 am