Plodding to Poland with Johnson...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Johnson
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Plodding to Poland with Johnson...

Post by Johnson »

...and hopefully, positively prancing back.

I am off tomorrow (Thurs. 3d June), and am scheduled for the procedure in Katowice on Tues. 8th. Thanks to those who PM'd me with good wishes. I'm touched that you remembered.

I have been scarce here since I paid for the procedure and booked my flight a couple of weeks ago. I found it too un-nerving to read both the good and bad stories, the doubts and questions, etc. Once committed to going, I am going. I intend to ask a lot of questions, and ask that they be gentle with my valves and such, and hope that I don't have an unresolvable problem, like an extra heart, or brain (though, I wish I did have any extra brain). I go with the quietest of hope, and the tiniest of doubts, but I have no choice. I cannot wait 5-10 years for the perfection of the state-of-the-art, or for Canada to finally deign to help its citizens with CCSVI. I throw up my right hand, with my middle finger extended, and shout "study this!". !7 years is a too long time to feel like we feel. 25 years, or longer is worse. One month is bad enough. I gave up thinking I could ever get better through divine intervention, so I'll take the medical one.

I first contacted Dr. Simka on Dec. 10th, after humming and hawing, and did not hear anything for quite a while, so to those contacting now, don't worry. It takes a while to hear from them, but you will get treated. I had an invitation from AMEDS this AM for September, but I will cancel that next Wednesday, so there is one more spot opening up. I first contacted them in early March.

I will post from Poland with the gnarliest of details that you might not hope for, and the most flowery joy that I hope for. We will see. I have no expectations, other than jet lag. I will give on-going updates on the tracking thread (page 6) too.

I look forward to meeting mtf and skincoll, and I'm sure, others.

Over and out,

Johnson
My name is not really Johnson. MSed up since 1993
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prairiegirl
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Post by prairiegirl »

Wish you the very best of all possible outcomes, Johnson! You will have a lot of people here thinking of you and rootin' for a great result. Look forward to your missives-- happy trails and a smooth flight!
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msgator
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Post by msgator »

Wishing you all the best. Can't wait to read your reports.
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
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Trish317
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Post by Trish317 »

Sending you prayers and good thoughts....
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garyak
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Post by garyak »

I'm a newbie but wish you the best of outcomes and will look forward to you posting your experience and results :) gary
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Katie41
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Post by Katie41 »

Johnson, all the very best wishes for the best outcome imaginable.
Katie41
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PCakes
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Post by PCakes »

i've just now scooched out to the edge of my chair..
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pegmegrund
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Re: Plodding to Poland with Johnson...

Post by pegmegrund »

Johnson wrote:I will post from Poland with the gnarliest of details that you might not hope for, and the most flowery joy that I hope for.
I look forward to your details, and also hope for much flowery joy. Safe travels!
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shye
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Post by shye »

Lots of love and light to you Johnson...
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Hope66
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All the best to you!

Post by Hope66 »

My thoughts are with you.

Please take good care and send updates as you're able.

Cheers
Hope (who has relatives in SA, BC)
-----------
Dx March 2003
Avonex
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Drury
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Post by Drury »

Wishing you the very best Johnson.
Drury
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Post by Cece »

Wishing you all the best!!!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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HappyPoet
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Post by HappyPoet »

Johnson,

Please know that you travel with all our hopes and prayers.

My husband's homeland will host one of the finest gentlemen we have ever known, one who always helped us whenever we came knocking on his PM door.

We'll be following all your updates!
~Bronek & Pam
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esta
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Post by esta »

OK, THIS IS IT ...it's going to go swimingly, best of luck, johnson :D :D :D
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sbr487
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Post by sbr487 »

Get well, Captain. Looking forward to talk to a healthy "Johnson" soon ...
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