Meanwhile, back at the mice ranch...
Anna and her husband did a very wonderful job on this interview.
Good job Anna and Pete, you done us proud...
Hopefully Anna can come and tell us all the cool stuff they DIDNT put in there...
I remember going through the list of my improvements such as bladder urgency, balance, walking, leg stiffness, brain fog, fatigue and swallowing. I remember telling her that I've switched from a daily survival mode (some days I woke up thinking, I can't wait for bed time!) to a living mode and actually looking forward to participating in a day. Forty-seven countries that have acknowledge this as a congenital malformation, ridiculous that they won't touch us because of MS and all the wrongs with the MS Society's CCSVI studies were also mentioned etc., etc.
I feel confident, that today, I can also add headaches and TN have also improved if not disappeared and I can bend over and pick something up off the floor without feeling like I have to pass out and feel like I'm out of breath!
On a kind of sad note. I also have stopped donating and asking friends/family to walk/ride for MS. I know that there are others out there that will need the MSS resources but I just can't bring myself to fundraise for them anymore. If they changed their tune and started pushing treatment then I think some of us may start back up. But I think it may already be too late for them.
My angle was not to bash the Society but I realize the reporter has to get all sides in. To have the lady from our local chapter say there is no connection just. . .. grrrrr! We're not going to move quickly on it with that attitude.
I did not expect to get this much out of the treatment but I'm certainly not taking it for granted. Recovery seems to be as individual as our MS. I can say one thing for sure. . . no drug has given me back or improved my symptoms like angioplasty has!
I still need my walking aids but less and I think that's a victory!