TIMS Survey?
TIMS Survey?
This could be achieved by a simple survey of TIMS users. I have voted in surveys on TIMS but I do not know how to set one up. Perhaps someone could enlighten me?
It also seems that your condition might change over time so maybe a three month survey, a six month survey and a year survey?
What do people think?
perhaps a website where people can fill in the date and place / country (think about it) of liberation, and then ask them to tick some boxes (yes or no or present them a scale from good to bad)
max 10 question, must be simple, short, easy to read, clear = question and answer may not be subject to interpretation (and that is really a challenge).
I am sure that woudl really add a lot of value for all of us!!
- codefellow
- Family Elder
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don't forget....
For a fair and balanced survey, their input needs to be included on the scale.
- elyse_peace
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http://www.thisisms.com/ftopicp-128869.html#128869
take control of your own health.
pursue optimal self care, with or without a diagnosis.
- 1eye
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This is a freebie. All it has s name, liberation place and whether the proc was not doing anything, making you better, making you worse
The link is http://www.surveymonkey.com/s/5V89WDD
Not a doctor.
- Katie41
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- blossom
- Family Elder
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ccsvi
Re: Survey
Is it possible to view the results?1eye wrote:I posted a link to a surveymonkey survey, topic called survey
This is a freebie. All it has s name, liberation place and whether the proc was not doing anything, making you better, making you worse
The link is http://www.surveymonkey.com/s/5V89WDD
NHE
I had originally thought to keep this simple as several people have suggested. There is already the tracking thread for more extensive reporting. I also thought a three-way split was the most simple. If negatives need to be specifically counted then a four way split is easy :
dramatic improvement / moderate improvement/ no improvement / worse
I agree that recording “first, second, or third procedures; immediately better, then worse; immediately worse, then better; slowly improving; slowly worsening.” would be useful but I am not sure how to do it. If I have understood how the survey works it simply counts how many ticks in each box so if ten people ticked the box saying ‘slowly worsening’ it would not be possible to know which of the other boxes these people had ticked. So you would not know whether they were worsening from a dramatic improvement or moderate improvement or no improvement. You could get an indication of this by comparing the totals from each survey (three months on – sixth months on – year.) If these were recorded as comments (if free text comments are allowed) then they could not be counted. I think I would prefer to keep it simpler.
I can also see real value in the suggestions from blossom. But this seems to me like something different to a quick survey. It sounds more like the registry of symptoms that Zivadinov and Zamboni have both already suggested. This definitely needs doing but is a much more complicated affair than my idea.
I do not want to make the survey too onerous or complicated. So I am now suggesting this:
Tick one of the following to describe your improvement
Dramatic improvement
Moderate Improvement
No improvement
Worse
Tick any of the following which apply
I have had one procedure
I have had two procedures
I have had three procedures
I am slowly improving
I am quickly improving
I am slowly worsening
I am quickly worsening
I will create four surveys for
Immediately after your procedure
Three months on
Six months on
Twelve months on
Results will be accessible in the surveys section which you access in the modules menu on the left hand side of the screen.
I would hope to put the surveys up soon (within a day?) so any final comments help would be welcomed.
- 1eye
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You should be able to design your survey using this account.
username is 1eye
password is password
Not a doctor.
- TvG
- Getting to Know You...
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- Joined: Sun Aug 09, 2009 2:00 pm
- Location: The Netherlands
- Contact:
ccsvi-tracking.com
Registered participants can input their data (personal experience of symptoms and professional examination results if available) every month and view their personal graphics. Aggregated graphics will soon be available.
The CCSVI-tracking site is now open for registration of participants. You can visit http://www.ccsvi-tracking.com/_contact.php to submit your registration request.
So I decided to keep mine even simpler. I hope it does become redundant but just incase it is some use I have gone ahead as I outlined but with only the first question. It is in four parts for each time frame.
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