While the organization is, in my opinion largely responsible for the fact that Canadians with MS cannot access vascular medical care in our own Country, I have decided to maintain membership.
I am hoping to have the opportunity in the future to vote as a member and help elect a board of directors which might actually represent persons with MS and act in our best interest.
The membership form states that if membership fee presents a financial hardship to send in the form without payment and that your membership will be maintained.
In the space allowed for payment, I made a brief note explaining that that I am unable to pay, as any disposable income I have will be used to fight for the rights of Canadians with MS to access vascular medical care in Canada.
I have also written to MS Canada and advised them my donations, which I have made for over 25 years, are instead being directed to Dr. Haacke's research and to Angioplasty for All. I have asked friends who have donated to MSS in support of me to do the same.
- Family Elder
- Posts: 385
- Joined: Wed Nov 25, 2009 3:00 pm
- Location: Summerland. BC Canada
I, however would love to be proven wrong...I just felt this was a win/win so to speak.
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
That is awesome!Brightspot wrote: In the space allowed for payment, I made a brief note explaining that that I am unable to pay, as any disposable income I have will be used to fight for the rights of Canadians with MS to access vascular medical care in Canada.
RRMS - Official diagnosis January 2009
MS symptoms since at least 2000 (EBV trigger 98?)
75 - 80% Resistant Stenosis in Left Jugular - Stent
Tokuda Hospital, Bulgaria (Dr. Petrov)
Immediate and substantial results!!
Just to let you know: I am a member and volunteer in a local chapter. And yes, esta is correct: membership $ sent to a local chapter stay in the local chapter.
Membership is important because if you are a member, you have a say. You can vote at the AGM! Membership numbers also impact the amount of grant money the Chapter can potentially ask for and receive from the government.
In local Chapters, gaming grant money and any funds raised through membership goes to pay for things like: self-help groups, workshops, newsletters, hardship fund, exercise classes and so on. It also helps to fund community-based activities (like work with local governments and transit on accessibility issues, awareness campaigns etc).
And for many of the fundraising activities that take place throughout the province during the year, a good portion of that money stays in the community where it was raised.
thanks for listening - and if you decide membership is right for you, please support your local chapter.
- Family Elder
- Posts: 3770
- Joined: Wed Mar 17, 2010 3:00 pm
- Location: Kanata, Ontario, Canada
Not a doctor.
I am sure there are people at the local level who are compassionate and understand the needs of MS patients but when 48% of the monies collected go to administration costs, it leaves a sour taste in my mouth. The society should have been aware of this procedure long before most of us and at least made a mention in their editorials but nothing, until the story broke.... doesnot leave me with a warm & fuzzy feeling. My friends and family feel the same.
So until the upper echelon who are responsible for these decisions, are removed, we are out...
Here's the link:
http://www.facebook.com/topic.php?uid=1 ... pic=654623
Christopher points out in one year, MS Canada spent $4,623,235 on advertising and promotions, $4,230,996 on office supplies, $7,739,009 on research, and $350,000 per year on CCSVI research.
What dos this say about priorities?