Green light following three liberation procedures
Green light following three liberation procedures
Diagnosed with MS in 1986 my clinical condition continued to deteriorate along the years. I am from Ferrara and have the good fortune to be a friend of prof. Zamboni. I had CCSVI diagnosed by him and had bilateral jugular veins angioplasty by his radiologist in 2007, with immediate improvement in my mobility and body functions.
I noticed a slight going back and had an angioplasty of the right jugular vein performed in Belfast in 2009, with consequent small improvement. A doppler study in Ferrara in June 2010 showed that the right jugular vein was ok but the left one, which was not dilated in Belfast, was re-stenosed.
Few days later Roberto Galeotti, radiologist of Zamboni's team, performed a balloon angioplasty of my left jugular vein, followed by immediate improvement in my mobility.
I had a new study in Ferrara last june and to Paolo's delight (not to speak about my own) my right jugular vein was found to be absolutely "normal", while the left one was smaller than normal but with completely normal blood flow with no regurg.
I will not need any intervention for the immediate future. Zamboni has changed my life.
Zamboni told me that he has started a clinical study in twenty hospitals in Italy and expects to have results in a year.
You may well know by now that the canadian government has officially approved the beginning of research in CCSVI.
We are getting there, although the wait has been and is going to be painful for another while.


Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
- MegansMom
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I am wondering if any of any of the early first group from Zamboni's original study have not needed further PTA after their original procedure?
At the release of his initial study in 2009 I believe those 65 MS/CCSVI patients were at least 18 months out and 50% had restenosed. I am wondering if eventually this number rose or stayed constant?
Did the pwMS for years restenose more than the CIS or very early MS or at the same rate?
Do those early pioneer patients still have their data collected?
Welcome back and glad to meet you
Cat AKA MegansMom
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
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Neck collar
Thank you for your post.
The flow in my jugular veins was measured with ultrasounds.
I do not know about private clinics dealing with CCSVI in Italy, but I do know that Dr Gilhooly's team have performed over 200 liberation procedures (Essential Health Clinic, Glasgow).
I am part of the initial 65 patients treated in Ferrara and I know that a certain number were treated for re-stenosis.
Take care
Congratulations, this is wonderful to read.I had a new study in Ferrara last june and to Paolo's delight (not to speak about my own) my right jugular vein was found to be absolutely "normal", while the left one was smaller than normal but with completely normal blood flow with no regurg.
I will not need any intervention for the immediate future. Zamboni has changed my life.
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