Yes, now that I have gone through this process, I agree. I am only one person, but my doppler only showed one "possible" problem. I went for the venogram, and sure enough, CCSVI in left IJV and azygous.I truly question these testers. Too many folks who were tested with MRV, or Doppler and deemed Not to have CCSVI have been later found ( at another center or via venogram) to indeed have it. I don't believe everyone does but it seems that the majority do.
The only true way to know you do not have it is to have a venogram if you have symptoms of CCSVI
I have the pictures to prove it. It's not a question of whether there was something wrong with my veins, it's there for me, and anyone else who sees the pictures (I have not posted them yet because I am only a week out but I intend to). Now that I have actually gone through this process, these studies seem a little like someone saying someone doesn't have a flat tire because the on-board computer says they don't. Are you going to believe the computer or the fact that your tire is deflated?