Updated my blog
- ozarkcanoer
- Family Elder
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- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
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- Loobie
- Family Elder
- Posts: 2197
- Joined: Mon Sep 11, 2006 2:00 pm
- Location: Dayton, Ohio USA
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I graduated from Troy, so I'm real familiar with Indian Lake. Lots of friends have second homes up there. If you can believe it, that 3 foot deep lake is a big time hot spot and people are/were putting up big homes all around that lake!ozarkcanoer wrote:Lew, I know how cold and dreary Ohio can be since I grew up in a small town about 60 miles north of Dayton. We lived by a lake called Indian Lake and it froze so hard that you could drive an automobile over the ice and do twirlies, LOL.
You are spot on with the LDN and the spasticity. Lower the dosage for awhile.
Hey, your update on the blog is pretty darn fantastic. You have not gotten worse -- a few months ago all our posts were about no more progression. So far so good - right? My improvements are very subtle -- I may not notice anything for a couple of weeks and then ---woa! -- there it is!!.
Sharon
- Quest56
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- Location: Northern Calif Monterey Bay Area
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Lew, Sharon,Sharon wrote:Lew -
You are spot on with the LDN and the spasticity. Lower the dosage for awhile.
I've tried twice in the last two months to restart LDN after the stent procedure on 9/16, first at 4.5mg nightly, then at 3.0mg.
I had used LDN for almost a year before stopping it a few weeks in advance of the stent procedure in September.
Both times on trying to restart, after one night, there was an immediate increase in lower leg spasticity and a return of bladder leakage problems. I had been enjoying the great reduction in these symptoms that started the day the stents were installed.
I miss the stamina assist that LDN used to give me, but I'm unwilling at this point to wait out the initial increase in spasticity that comes with restarting LDN (assuming it does eventually die down again with time). During the year I used LDN I was living with the nightly spasticity and the bladder leakage problem, without realizing that LDN might be contributing to it.
I think the stents are helping improve my stamina in place of the LDN, so I'm making the choice to live without for now.
Good luck, Lew, I'll be watching for your updates. If it works for you, I may bite the bullet and try sitting out the spasticity as well.
--Tracy
Stent in left and right IJVs
SPMS
Copaxone
Former Ampyra User
Regular Botox Bladder Injections
300mg d-Biotin / day