making CCSVI charitable contributions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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jimmylegs
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making CCSVI charitable contributions

Post by jimmylegs » 9 years ago

written by cheer, and copied over from the FB page:

1. Buffalo Neuroimaging Center- now conducting research into diagnosing CCSVI
http://www.bnac.net/?page_id=497

2. Stanford University MS Innovations Fund- now planning a clinical trial for CCSVI in MS for mid 2010
http://www.facebook.com/note.php?note_id=146260942210
Please send donations to:
Stanford MS Innovations Fund c/o Dr. Michael Dake
Cardiovascular Research Center, 300 Pasteur Drive,
Stanford, CA 94305-5407.

3. The MRI Institute- Dr. Mark Haacke's organization is now setting up worldwide MS/CCSVI diagnostic centers, with plans to help diagnose and treat CCSVI
http://mrimaging.com/donate.html

An expert in advanced MRI techniques, Dr. Mark Haacke, is a professor at McMaster University. He is helping to coordinate an effort in CCSVI at McMaster and St. Josephs's Hospital. This research will allow for people in Ontario and Eastern Canada to volunteer for the study and also to be more aware of information that will speed the work of the study and perhaps help all interested parties with MS. St. Joseph's Hospital in conjunction with McMaster are currently in the process of obtaining human studies approval for this project.

There is plan to fund the quick start of the study with private donations.

McMaster Donation information:

* http://givetomcmaster.ca <http://givetomcmaster.ca/> Donation Designation Category: “Other”; Designation for this gift: “Other”; then Special Instructions “MS research in the MR Imaging Research Centre”
* Or mail cheque written to McMaster University c/o Terry Milson, Faculty of Engineering, McMaster University,1280 Main St. W., Hamilton, ON L8S 4L7, with instructions to donate to the “MS research in the MR Imaging Research Centre

4. Direct MS- Dr. Ashton Embry's proactive charity-
Dr. Embry has spoken out as to the need for more research and testing for CCSVI. Now.
http://www.direct-ms.org/donate.html

5. University of British Columbia donations-
The UBC group needs to raise $500,000 to start their CCSVI research.
Here is the link to make a donation.
Make sure you designate CCSVI research so the money goes to that project.

https://www.worldclasshealthcare.ca/howtogive

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ozarkcanoer
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Post by ozarkcanoer » 9 years ago

Volunteers are raising money for the BNAC CCSVI research via "Help Solve the MStery of MS" parties !!!!!!!! Please help if you can !! Here is an evite for a party in New York City :

<shortened url>

ozarkcanoer

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vendredi5h
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Post by vendredi5h » 9 years ago

I just made a donation through Ashton's Direct-MS (item #4 in the jimmylegs' list) and I just want to add that while doing your contribution you'll get four choices:
- CCSVI - General
- CCSVI - UBC
- Diet related
- General

So we can specify that our donation is for CCSVI. I was searching a place where we can donate to CCSVI while getting fiscal benefit here in Canada, and was pleased to find that it's possible through Ashton's website.

Yannick

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Moom9335
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Direct-MS donations

Post by Moom9335 » 9 years ago

Just got a note from Direct-MS in regard to my donation for U of B study. $75,000 has been donated for the study. Publicity will do nothing without money for the studies. Good work MSers.

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letsfundccsvi
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For donations in Canada

Post by letsfundccsvi » 9 years ago

For more info on choices for donating to CCSVI resarch in Canada, check out the report on CCSVI in Canada on Charity Intelligence's website:

www.charityintelligence.ca

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jimmylegs
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Post by jimmylegs » 9 years ago

there have been cautions posted about CI, might turn out that everything is legit, i don't know.
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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GREMLIN
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donations

Post by GREMLIN » 9 years ago

if you wish to donate to McMaster University you can do so on your own, there is no need to go thru CI - remember ever person that touches your money gets their cut of the pie.
Donate directly to McMaster, UBC or Buffalo. McMaster has Dr. Haake involved and he is the man here really pushing for this.

my opinion :)

jimmylegs had all of the direct links on the earlier correspondence. You just have to make sure you specify for the CCSVI research

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jimmylegs
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Post by jimmylegs » 9 years ago

list credit to cheer
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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letsfundccsvi
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Post by letsfundccsvi » 9 years ago

To donate directly to the initiatives in Canada that are planning their testing, here are direct links to the donation pages. For St. Joseph's (Hamilton, ON), choose MS/CCSVI Research on the pull-down tab:

http://www.stjoes.ca/general_donation.asp

For UBC (Vancouver, BC):

https://www.supporting.ubc.ca/onlinedon ... d%20(D732)

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BriT
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Donating to CCSVI in Canada--minimize dilution

Post by BriT » 9 years ago

Hello all,
This post is intended to provide clarity on Charity Intelligence Canada:

Ci is one alternative for Canadians wishing to give to support the two studies in Canada to further CCSVI research. You have the right to scrutinize and ask questions, and we applaud each of you for doing so.

Charity Intelligence Canada is for donors, by donors in Canada. The volunteer members of Ci are donors too. Ci is a registered charitable organization that brokers donations for donors. Team members of Ci found there was no objective third party that donors could go to for advice on their giving. And so Ci began. Ci provides objective information and analysis on Canadian charities in hope that donors can maximize the impact they can have on their donations.

There are NO fees--donors can choose to flow through 100% of their donations. As a registered Canadian charity we keep our lights on by relying on the benevolence of others who value and choose to support our work. Giving through Ci, donors can remain anonymous. Ci believes in holding charities and recipients accountable for their results, seeking they be accountable and transparent to the public on how the funds were used. Ci will keep donors up to date when total funds requested are received to avoid overfunding and bloat.

Ci does not, and I repeat DOES NOT mind how donor's choose to donate to support furthering CCSVI research in Canada, whether giving directly to the sites at UBC or St.Joe's (for clarity, please note you can donate to St.Joseph's Healthcare (hospital), which is different from the foundation), or via Ci. It's your money, and your choice.

Ci's goal is to help donor's make informed giving decisions, to give intelligently, and to have results with their giving. There is a misconception that each Canadian CCSVI study is fully funded, and this is certainly not the case. Ci is advocating for and hopes to draw attention to this fact. For those who care passionately about funding CCSVI research in Canada, Ci felt it was necessary to highlight the best charitable players who should be recipients of donations, who both need funding and have the potential to produce results. Ci also highlights the risks of donating to each study. No matter which of the 3 giving paths is taken to fund this research, we support your choice. Each is a pure play. Let's get this train moving already.

Giving for impact is a relatively new concept of giving for Canadians and you likely have not heard of Charity Intelligence Canada before. Be informed and do your homework before donating: Visit the website www.charityintelligence.ca, call or e-mail Ci, contact the two CCSVI sites in Canada warranting your funding, contact those who have come under Ci's scrutiny to get the facts. Start dialogue on charitable giving. And please, give Ci your feedback and tell us where we have gotten it wrong or what you would recommend Ci could do better. We would love to hear from you.

To quell any further misconceptions on Ci's role in funding CCSVI research in Canada, read Ci's report on CCSVI on the web--it's short, it will give you the facts, and give each of you a fine understanding that there are alternatives and often better ways to donate than by conventional means. Ci's goal--minimize donor dilution (charitable resources are a scarce thing) and have impact for Canadians in need. It's not a matter of giving more, but re-allocating where we are giving to.

Keep up the dialogue. It starts with a conversation.

Sincerely,

Bri Trypuc
Donor Services
btrypuc@charityintelligence.ca
info@charityintelligence.ca
Be informed. Give intelligently. Have impact.

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sbr487
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Post by sbr487 » 8 years ago

I just donated a small amount to Charity Intelligence.
The thing I liked about it is that it allows me to send a card in dedication.
I sent it to Dr. Dake. Of course, I want to send to Dr. Z, S, Sclafani but I can't do that for now. Maybe next time. So please use this option (sending a card) when you donate through CI

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BELOU
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$

Post by BELOU » 8 years ago

Is there a place where to give money to support research (CCSVI)? I'm about to give another 100$ to MS society of Canada but if I could give directly to support Dr. Z I would. Any ideas?
Marc

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letsfundccsvi
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Post by letsfundccsvi » 8 years ago

As far as I understand it, donating money to the MS Society of Canada will not add one penny to CCSVI research. They may fund a tiny portion of research into CCSVI starting in July but if you have $100 to give, please put that money where it WILL fund CCSVI research. Options for doing so include:

St. Joseph's Healthcare, Hamilton:

http://www.stjoes.ca/msccsvi_donation.asp

UBC:

http://www.mriresearch.ubc.ca/content/CCSVI/donate.php

Charity Intelligence (raising funds for organizations doing CCSVI research in Canada):

http://www.charityintelligence.ca

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BELOU
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ccsvi

Post by BELOU » 8 years ago

Ok, thanks... If it happens that CCSVI is the key let me tell you that MS societies will have failed big time. Maybe except the part of their budget that is given to help MS sufferers.

Marc
RR:2004 EDSS: 0 COPAXONE since 2009

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marrydavidson101
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Post by marrydavidson101 » 8 years ago

thanks for sharing this all

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