- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
1. Buffalo Neuroimaging Center- now conducting research into diagnosing CCSVI
2. Stanford University MS Innovations Fund- now planning a clinical trial for CCSVI in MS for mid 2010
Please send donations to:
Stanford MS Innovations Fund c/o Dr. Michael Dake
Cardiovascular Research Center, 300 Pasteur Drive,
Stanford, CA 94305-5407.
3. The MRI Institute- Dr. Mark Haacke's organization is now setting up worldwide MS/CCSVI diagnostic centers, with plans to help diagnose and treat CCSVI
An expert in advanced MRI techniques, Dr. Mark Haacke, is a professor at McMaster University. He is helping to coordinate an effort in CCSVI at McMaster and St. Josephs's Hospital. This research will allow for people in Ontario and Eastern Canada to volunteer for the study and also to be more aware of information that will speed the work of the study and perhaps help all interested parties with MS. St. Joseph's Hospital in conjunction with McMaster are currently in the process of obtaining human studies approval for this project.
There is plan to fund the quick start of the study with private donations.
McMaster Donation information:
* http://givetomcmaster.ca <http://givetomcmaster.ca/> Donation Designation Category: “Other”; Designation for this gift: “Other”; then Special Instructions “MS research in the MR Imaging Research Centre”
* Or mail cheque written to McMaster University c/o Terry Milson, Faculty of Engineering, McMaster University,1280 Main St. W., Hamilton, ON L8S 4L7, with instructions to donate to the “MS research in the MR Imaging Research Centre
4. Direct MS- Dr. Ashton Embry's proactive charity-
Dr. Embry has spoken out as to the need for more research and testing for CCSVI. Now.
5. University of British Columbia donations-
The UBC group needs to raise $500,000 to start their CCSVI research.
Here is the link to make a donation.
Make sure you designate CCSVI research so the money goes to that project.
Volunteers are raising money for the BNAC CCSVI research via "Help Solve the MStery of MS" parties !!!!!!!! Please help if you can !! Here is an evite for a party in New York City :
- Family Member
- Posts: 38
- Joined: Sat Oct 17, 2009 2:00 pm
- Location: Quebec, Canada
- CCSVI - General
- CCSVI - UBC
- Diet related
So we can specify that our donation is for CCSVI. I was searching a place where we can donate to CCSVI while getting fiscal benefit here in Canada, and was pleased to find that it's possible through Ashton's website.
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
Donate directly to McMaster, UBC or Buffalo. McMaster has Dr. Haake involved and he is the man here really pushing for this.
jimmylegs had all of the direct links on the earlier correspondence. You just have to make sure you specify for the CCSVI research
For UBC (Vancouver, BC):
https://www.supporting.ubc.ca/onlinedon ... d%20(D732)
This post is intended to provide clarity on Charity Intelligence Canada:
Ci is one alternative for Canadians wishing to give to support the two studies in Canada to further CCSVI research. You have the right to scrutinize and ask questions, and we applaud each of you for doing so.
Charity Intelligence Canada is for donors, by donors in Canada. The volunteer members of Ci are donors too. Ci is a registered charitable organization that brokers donations for donors. Team members of Ci found there was no objective third party that donors could go to for advice on their giving. And so Ci began. Ci provides objective information and analysis on Canadian charities in hope that donors can maximize the impact they can have on their donations.
There are NO fees--donors can choose to flow through 100% of their donations. As a registered Canadian charity we keep our lights on by relying on the benevolence of others who value and choose to support our work. Giving through Ci, donors can remain anonymous. Ci believes in holding charities and recipients accountable for their results, seeking they be accountable and transparent to the public on how the funds were used. Ci will keep donors up to date when total funds requested are received to avoid overfunding and bloat.
Ci does not, and I repeat DOES NOT mind how donor's choose to donate to support furthering CCSVI research in Canada, whether giving directly to the sites at UBC or St.Joe's (for clarity, please note you can donate to St.Joseph's Healthcare (hospital), which is different from the foundation), or via Ci. It's your money, and your choice.
Ci's goal is to help donor's make informed giving decisions, to give intelligently, and to have results with their giving. There is a misconception that each Canadian CCSVI study is fully funded, and this is certainly not the case. Ci is advocating for and hopes to draw attention to this fact. For those who care passionately about funding CCSVI research in Canada, Ci felt it was necessary to highlight the best charitable players who should be recipients of donations, who both need funding and have the potential to produce results. Ci also highlights the risks of donating to each study. No matter which of the 3 giving paths is taken to fund this research, we support your choice. Each is a pure play. Let's get this train moving already.
Giving for impact is a relatively new concept of giving for Canadians and you likely have not heard of Charity Intelligence Canada before. Be informed and do your homework before donating: Visit the website www.charityintelligence.ca, call or e-mail Ci, contact the two CCSVI sites in Canada warranting your funding, contact those who have come under Ci's scrutiny to get the facts. Start dialogue on charitable giving. And please, give Ci your feedback and tell us where we have gotten it wrong or what you would recommend Ci could do better. We would love to hear from you.
To quell any further misconceptions on Ci's role in funding CCSVI research in Canada, read Ci's report on CCSVI on the web--it's short, it will give you the facts, and give each of you a fine understanding that there are alternatives and often better ways to donate than by conventional means. Ci's goal--minimize donor dilution (charitable resources are a scarce thing) and have impact for Canadians in need. It's not a matter of giving more, but re-allocating where we are giving to.
Keep up the dialogue. It starts with a conversation.
Be informed. Give intelligently. Have impact.
The thing I liked about it is that it allows me to send a card in dedication.
I sent it to Dr. Dake. Of course, I want to send to Dr. Z, S, Sclafani but I can't do that for now. Maybe next time. So please use this option (sending a card) when you donate through CI
St. Joseph's Healthcare, Hamilton:
Charity Intelligence (raising funds for organizations doing CCSVI research in Canada):
- Family Elder
- Posts: 5359
- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
- Been thanked: 1 time
and click on the donate button.
dx dual jugular vein stenosis (CCSVI) 4/09
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